Latest news with #Phe
Eater
6 days ago
- Business
- Eater
A Whopping 20 New Seattle Restaurant Openings You Should Know About
Here's a list of notable openings we've clocked in the Seattle area in the last month. If we missed something, please email us: seattle@ . CAPITOL HILL — Capitol Hill Seattle Blog reports that the former Regent Bakery and Cafe space on 14th and Pine Street is now a Japanese hot pot joint called Raku Shabu Shabu, which is still in its soft opening phase. SOUTH LAKE UNION — We've been hyping up La Loba for a little while now — this new Spanish restaurant from Vegas-based chef Oscar Amador inside the 1 Hotel has more style than most hotel restaurants and has a menu laden with all sorts of fun stuff, like wood-fired dishes, tableside tartar, and extravagant seafood platters. PIONEER SQUARE — Speaking of swanky hotels, Populus just opened with a pair of food and drink 'concepts,' as they say in the biz: Firn, which is Pioneer Square's first rooftop bar, plus a below-roof restaurant called Salt Harvest. CAPITOL HILL — And speaking of rooftop bars, Capitol Hill has a new one called Cantina Del Sol, which is the first of several bars and restaurants that the Pike Street Hospitality Group plans to put inside the former Mercado Luna building at the corner of Pine Street and Summit Avenue. MADRONA — You don't get a lot of new barbecue restaurants in Seattle, but caterer Richard's Too Good BBQ just opened a brick-and-mortar location on 34th Avenue. It's serving classic barbecue dishes and Southern-style sides like corn bread and collard greens. As a bonus, the whole menu is gluten-free. CHINATOWN–INTERNATIONAL DISTRICT — A new restaurant called International Lobster Rolls is 'serving fresh specialty lobster rolls inspired by Southeast Asian, Korean, Hong Kong, Vietnamese flavors and more,' according to its Instagram. It also has sides like garlic fries and lobster bisque. CAPITOL HILL — Maybe the next new hot Vietnamese coffee shop just opened on Pine. Called Phe, it specializes in phin-brewed coffee (topped with things like honeycomb toffee) and matcha. Expect a crowd during this soft-opening phase — according to Phe's Instagram, it's been so popular it ran out of matcha last week. KENMORE — Industry vets Cody and Andrea Westerfield have turned their pop-up De La Soil into a permanent restaurant inside Copperworks Distilling's Kenmore location. It's serving seasonal fare mostly sourced mostly from one farm, the nearby Tuk Muk. There's also a kids menu. GREENWOOD — What might be Seattle's only drive-thru pizzeria just opened — BoBu serves a simple menu of square pizza slices, sandwiches, and pretzels out of a shack on Northwest 85th Street and Eighth Avenue. FREMONT — Livbud, the vegetarian-friendly all-day cafe on Stone Way, has been converted by owner Heavy Restaurant Group into a new spot called Hushy's. It's serving freshly baked focaccia sandwiches, plus salads, sides, drinks, and (in the near future) soft serve. CENTRAL DISTRICT — Temple Pastries owner Christina Wood has gotten into pizza, opening a new restaurant in the Temple space called Sacro Bosco. It specializes in Roman-style rectangular pizza and will also be serving aperitivo, Italian wine and cocktails, and some desserts including tiramisu and olive oil cake. For now, it's dine-in only. BALLARD — Long-running Thai restaurant Thai Siam reopened after owner Vhanthip 'Nancy' Bhokayasupatt managed to get enough money to buy the building, keeping a neighborhood institution in place. FIRST HILL — After starting out in the kitchen of a Tacoma Holiday Inn, a budding chain called Secret Burger Kitchen has opened a Seattle location at the sleepy south end of Broadway. It serves smashburgers, fries, and more smashburgers, with a whole section of the menu devoted to spicy, chile-laden burgers and fries. DOWNTOWN — Taz Matcha Cafe & Bar is now open on Stewart Street near Fourth Avenue. Well, at least the cafe part is. It's serving 'ceremonial-grade' matcha along with pastries and small bites until 2 p.m., and the evening bar part of the business will open soon. MADRONA — Another interesting cafe — this one drawing on Filipino and Korean influences — has opened on 34th Street. Called Yoka Tea, it has matcha, boba tea, and some croffles. WHITE CENTER — Popular food truck Whateke has taken over the former Que Chevere space, which is now Whateke Sports Bar. It'll be serving the Mexican food Whateke is known for and some new items like ceviche. There will also be space for all-ages family dining, reports White Center Now. AURORA — Top Dead Center, a motorcycle-inspired cafe, just opened on Aurora near 77th Street. It's serving coffee (both Vietnamese phin-brewed stuff and espresso) and a selection of Spanish- and Portuguese-inspired food, like tinned fish, egg tarts, and sandwiches. PIONEER SQUARE — Famed local ice cream chain Molly Moon's has opened its 10th scoop shop, this one in a picturesque former boat launch down by Pioneer Square, part of a long-running effort to revive the downtown waterfront. CHINATOWN–INTERNATIONAL DISTRICT — A new poke restaurant called Pokerrito Ya just opened on King Street. It's billing itself as 'Japanese–Hawaiian fusion' and serving poke in bowls as well as in burritos. CAPITOL HILL — A year after opening its first Seattle location in the University District, student-centric cookie delivery chain Insomnia now has a second location, this one on Broadway between Pike and Pine. BELLEVUE — Finally, a new bar called Valentina's Wine Bar just opened on Bellevue's Main Street. It will serve flatbreads and charcuterie in addition to wine, and it's owned by the same people behind a wine bar in the oceanside town of Seabrook. Sign up for our newsletter.
Associated Press
22-04-2025
- Health
- Associated Press
Cycle Pharmaceuticals Launches Cycle Vita PKU™, an AI-Powered Smartphone App for On-The-Go Management of Phenylketonuria (PKU)
BOSTON--(BUSINESS WIRE)--Apr 22, 2025-- Cycle Pharmaceuticals (Cycle) has launched Cycle Vita PKU, an AI-powered app to help patients with PKU manage every aspect of their treatment plan. PKU is an inherited disorder caused by a deficiency of the phenylalanine hydroxylase (PAH) enzyme needed to process phenylalanine (Phe), which is found in all foods containing protein. 1 Nearly all cases of PKU are diagnosed through newborn screenings, 2 and require lifelong adherence to a strict PKU diet. 3 It can be challenging for patients with PKU, or their caregivers, to keep on top of everything, like medication, medical formula, lab results and diet. The app is designed to offer flexible and timely support with daily tracking, reminders and diet management tools. Users can plan their meals with a searchable food database of over 9,000 foods, as well as an AI-powered meal scanner that estimates Phe levels with a photo snap of the meal. For adolescents and young adults, who are gaining independence and navigating the transition to adulthood, Cycle Vita PKU may be a helpful aid for adhering to their medication and a Phe-restricted diet on-the-go. 'The launch of Cycle Vita PKU marks an exciting milestone as the first app from Cycle Vita™, Cycle's dedicated patient support platform. As part of Cycle's commitment to the PKU community, Cycle will continue to innovate and find new ways to provide support tailored to patients' needs. Cycle Vita PKU is just one example of that commitment.' says Jamie Ray, Director - Patient Support Program, Cycle. Cycle Vita PKU does not provide medical advice, diagnosis or treatment. Always seek the advice of your healthcare provider with any questions you may have. References Cycle Vita™ and Cycle Vita PKU™ are trademarks of Cycle Pharmaceuticals Ltd. ©2025 Cycle Pharmaceuticals Limited. All rights reserved. US-VITA-2500003. February 2025 About Cycle Pharmaceuticals Cycle Pharmaceuticals was founded in 2012 with the sole aim of delivering drug treatments and product support to the underserved rare disease patient community. Cycle focuses on rare metabolic, immunological, and neurological genetic conditions. Within neurological conditions, we focus on multiple sclerosis. Cycle is headquartered in Cambridge, UK and has offices in Boston, Massachusetts. For more information, please visit and follow us on X, LinkedIn and Facebook. View source version on CONTACT: [email protected] Cycle Pharmaceuticals Tel: +44 1223 354 118 KEYWORD: UNITED STATES NORTH AMERICA MASSACHUSETTS INDUSTRY KEYWORD: BIOTECHNOLOGY FDA OTHER HEALTH HEALTH GENERAL HEALTH PHARMACEUTICAL NEUROLOGY RESEARCH GENETICS SCIENCE CLINICAL TRIALS SOURCE: Cycle Pharmaceuticals Copyright Business Wire 2025. PUB: 04/22/2025 09:48 AM/DISC: 04/22/2025 09:48 AM
Morocco World
11-04-2025
- Health
- Morocco World
The Plight of PKU Children in Morocco and How little Sara fed a 100 PKU children
Washington DC – Almost six years ago, Fatiha and Abellatif Abderraziq stood in the parking lot of Washington children's hospital waiting for the doctor that just delivered their baby girl Sara. It was late at night and the doctor's shift was ending but she wanted to let them know as soon as possible because she had just received the test results. She finally walked towards them in the half light of the parking lot. They tried to read her face before she spoke but had no idea what was about to be revealed to them. When the doctor finally spoke, she had tears in her eyes. She let them know that their daughter would never have a normal life, would never be like other children, would not be like her sister Amira, and if they were not extremely careful with her diet, she would end up mentally and physically disabled. Thus began little Sara's story. Fatiha and Abedellatif stood there in shock trying to register the list of foods that the doctor was cautioning them against. Sara was a PKU child which is short for Phenylketonuria, a rare disease that afflicts roughly one in 10,000 babies depending on the background of the parents and so many other factors. PKU is a rare genetic disease that prevents the normal break down of protein amino acids like Phenylalanine (Phe). Phe is a precursor to Tyrosine which is essential for brain development and proper function. In Short, a build-up of Phe in PKU children can lead to brain fog and eventual disability. PKU children need expensive amino acids added to their diet without which they cannot have normal lives. Fatiha Abdellatif took little Sara home and looked up everything they could about PKU children. They were entering a new world of health science they never imagined they would. The first two years were very hard, they had a lot to learn and adapt to. Their lives changed forever. In time, with the excellent help from Children's hospital (Dr. Rieger), with the support of their insurance company, and the laws already established in the US for rare diseases, Sara would grow up to be a healthy six-year old girl with a healthy behavioral and moral development. When Sara was about two years old, Fatiha took a trip to Morocco, her home country and immediately started noticing cases of PKU children. She felt so much for them and at first she started using her savings to purchase small quantities of amino acids to send to remote family children that suffered from PKU. Through social media and word of mouth, within a year, she had almost 100 cases that were diagnosed with PKU in Morocco. Each case had a story, and a lot of them were heart wrenching. Almost all did not have any sustainable access to the needed amino-acids nor proper care for their children. Morocco did not even list PKU as a rare disease in the health ministry register. Fatiha and Abderraziq listened to their WhatsApp voice messages for countless hours day and night. Waling mothers told them their stories of the immense difficulties they had to figure out what was wrong with their babies. There were only two machines in Morocco capable of diagnosing PKU properly, and to get to those machines was a great ordeal. Mothers afraid of having a second or third PKU child relating gut wrenching stories about their decision to end pregnancies. Fathers who were not well to do spoke heroically of wanting to sell their own blood to get the amino acids needed for their children. In Morocco, lucky PKU children were diagnosed within a year of birth, but a lot of cases were not, and most of the families were playing catch up. As the children age it becomes more and more difficult to treat them. Then Covid hit. Fatiha and Abderraziq joined a non-profit organization in Virginia that was 501c3, founded a nonprofit in Morocco, SOSPKUMAROC, engaged with the Moroccan ambassador Lalla Joumala, and pestered Royal Air Maroc day and night for reasonable shipping rates to Morocco. They literally worked day and night and for three years they sent enough PKU food to sustain almost 100 families. They had donors from Morocco and the US, but they had to work hard to maintain them and to show progress, and a lot of cases did indeed show progress through video messages they got the parents to keep a steady feedback and update. Still, there were difficulties. Some parents did not even afford the monthly blood test that was needed to make the Phe content in the blood was within the proper limits. SOSPKUMAROC started paying for the blood tests, but the need was greater than what they could sustain. Fatiha and her husband also engaged with the Moroccan minister of health through SOSPKUMAROC two years ago, and even got him to issue a letter for the recognition of PKU as a rare disease. However, so far the letter has yet to take effect administratively in terms of diagnosis at the hospital centers of Morocco and for PKU amino acid compensation. Algeria, Egypt, Palestine as well as other MENA countries already provide PKU amino acids to their patients. A well established PKU health policy is still not established in Morocco. More recently, Fatiha also engaged with a Moroccan advocacy company called ASAP, Affair Scientifique Affair Public. Dr. Nawal Bentahila, who is leading ASAP, is extremely well qualified for the PKU case and is currently navigating the administrative waters in Rabat. There is progress but unfortunately slow, the non-profits on both sides of the ocean are showing signs of fatigue and the families are growing impatient. Last year, Fatiha with the help of SOS PKU Maroc and others spent her vacation to organize a conference in Casablanca for the PKU children. By all measure it was a success, the kids got to meet and play and the best part she recalls was the fact that the families could interact with a Psychologist (Dr, Kfifi) who gave them her time and what able to show them how to deal with their abnormal children. So many families were overwhelmed with emotion and were crying in the room. Given that the cost of sustaining and caring for a disabled PKU child or adult is much higher than the cost of taking care of a healthy PKU patient, the families' request is really not unreasonable: 1- PKU needs to be listed in the rare disease list, 2- newborn screening to be available in all of the six national hospital centers, 3- Phe blood test machines to be available in all of the six hospital centers, 4- Amino-acid availability or compensation for all the PKU patients. Sara's story is still unfolding, her parents continue to share with Morocco the best of what they learn in the US about PKU. This year Sara inspired her parents to organize another conference in Marrakesh for the PKU children in Morocco, November 17-19, save the date! She thinks it will be grand. To help Sara with her dream to help other like her, please reach out to her mom: [email protected]. Tags: chilrenHealthMoroccoPKU
