Baby Cared for by 80 Different Nurses During 185-Day Hospital Stay While Awaiting Lifesaving Transplant (Exclusive)
At 2 months old, Mattie Beacham was diagnosed with a rare liver disease called biliary atresia and needed a liver transplant to save her life
She spent 185 days at Orlando's AdventHealth for Children, where every one of the 80 nurses in the hospital's critical care unit cared for her in some way
After a difficult journey, Mattie underwent a successful liver transplant, and her parents credit the hospital's nurses for fighting for their daughter "as if she were their own"It takes a village — or in this case, a "warrior squad" of 80 determined nurses.
When Allison and Michael Beacham brought their then-2-month-old baby daughter Mattie to Orlando's AdventHealth for Children, she was critically ill and battling for her life. Diagnosed with biliary atresia, a rare disease of the liver and bile ducts that affects infants, Mattie needed a lifesaving liver transplant.
But initially, she was too sick to even be placed on the waitlist. "Her liver was dying by the hour," Allison recalls to PEOPLE. "Michael and I spiraled, entering a new dimension of flight, advocacy and, of course, fear."
Mattie would spend 185 days — half a year — in the hospital, during which time every single one of the 80 nurses who worked in the pediatric intensive care unit (PICU) cared for her in some way. Those nurses never stopped fighting for Mattie, even as her situation seemed hopeless.
At her sickest, Mattie's organs began shutting down and she went into a coma. Eventually, her heart stopped. Medical staff performed CPR and brought her back, but Allison and Michael were given some heartbreaking news.
"Chaplains repeatedly came in with the doctors telling us that Mattie would not last more than four hours and that it was time to let her go," Allison says. "But it wasn't time for consolation yet; it was time for battle."
While Mattie remained in a coma, Allison remembers finding solace in morning runs outside the hospital before rounds began in Mattie's unit. "I'd jog and reflect and pump myself up to be the best mom and advocate that I could possibly be as I came to terms with the dire reality," she says.
But she and Michael were far from alone. Their daughter's team of dedicated doctors and nurses rallied around them through it all.
"Joe, Amanda, Kim, Niki, Caila, Eric, Hannah … instead of being 'another nurse in scrubs,' they became Mattie's warrior squad, determined to find solutions to one of the most complicated patients in the history of the liver transplant program," Allison tells PEOPLE.
"They wept, they nurtured, they even laughed with us at brief moments of levity," she continues. "Their wet brows and huddles assured us they were thinking outside of the box to bring back to life our precious, unresponsive angel, who was still only alive artificially."
Even nurses who were not part of Mattie's care team showed their support.
"Nurses who weren't assigned to Mattie on day or night shift asked to be with her. Nurses not in the Critical Care Unit would come visit in between their patients," Allison says. "The AdventHealth team understood us, respected us and fought for Mattie as if she were their own."
Never giving up, the nurses even pushed to try experimental or never-before-used treatments on Mattie.
"One of the nurses — Amanda [Hellner] — helped engineer a tandem dialysis and plasmapheresis machine that had only been done once in the country, according to them," Allison says. "The doctors initially didn't want to try it as the risks were too great. But the nurses rallied with us and convinced the administration to try this unknown and unproven technique."
'It really tested us as a PICU," nurse Nikki Sapp says. "But if there's something we can do, we're going to try, and sometimes that one treatment that we've never done is what is going to save their life."
The risky technique worked — and proved to be a turning point for Mattie, who eventually stabilized and grew healthy enough to undergo the transplant surgery once an organ match was found. Hellner, the PICU's nurse educator at the time, remembers being in the room when Mattie opened her eyes for the first time following the 10-hour procedure.
"It's just one of the moments you live for as a nurse, and that was one I'll never forget,' she says. 'I'll carry that always with me in my career. She's become part of my why.'
These days, Mattie — who turned 2 in December — is "the happiest human," according to her proud mom.
"She finds boo-boos on us that we don't even know we have. She hugs strangers' legs. She kisses even when she shouldn't," Allison says. "She blows kisses to everyone at AdventHealth."
Never miss a story — sign up for to stay up-to-date on the best of what PEOPLE has to offer, from celebrity news to compelling human interest stories.
As for the toddlers' nurses? They are forever "family" to the Beachams.
"They've come to two of her birthday soirées and blew the roof off of our house. The parties were as much of a celebration of Mattie's birthday as they were a celebration for her healthcare heroes," Allison tells PEOPLE.
After Mattie's experience, Allison says she has newfound appreciation for the work that nurses do and the dedication and compassion they show — both to their patients and their families.
"My reason for even existing has changed, thanks to learning, feeling and understanding how nurses are wired. To work 12 hours with some of the most intense and complicated situations imaginable —nurses bring perspective to how we want, and should, live our lives," Allison says.
Read the original article on People
Hashtags

Try Our AI Features
Explore what Daily8 AI can do for you:
Comments
No comments yet...
Related Articles


Bloomberg
37 minutes ago
- Bloomberg
What RFK Jr.'s Changes to CDC Panel Mean for Vaccine Policy
By , Rachel Cohrs Zhang, and Damian Garde Save Robert F. Kennedy Jr., secretary of health and human services, appointed eight new members of an expert panel that advises the federal government on immunization policy, including several vocal vaccine critics and one who identifies as an 'anti-vaxxer.' The appointments came days after Kennedy's dismissal on June 9 of all 17 members of the committee that advises the US government on vaccine safety and policy, saying that removing the entire panel was the only way to restore public confidence in immunizations.

Associated Press
37 minutes ago
- Associated Press
Near-record nitrate levels in Des Moines, Iowa-area rivers threaten drinking water
DES MOINES, Iowa (AP) — Local officials warned more than half a million Iowans in the state's capital city and suburbs on Thursday that near-record level of pollutants in its rivers could make drinking water dangerous if immediate steps are not taken to reduce demand. But the officials declined to explain what they believe has caused the surge in nitrate levels, which has historically been tied to runoff from farmland draining into Des Moines-area rivers. The water utility, Central Iowa Water Works, issued a first-ever ban on lawn watering for the region after seeing the highest levels of nitrates in the river water since 2013. Federal regulations require a maximum nitrate level of 10 milligrams per liter. The current level being provided to 600,000 customers is 9, local officials said. 'If we end up in a space where we're well over that … threshold, we're really going to start worrying about our pregnant women and our children under the age of six months,' said Juliann Van Liew, public health director for Polk County. Van Liew warned that could drinking water with too-high levels of nitrate could potentially cause birth defects and a condition when an infant's blood doesn't have enough oxygen, commonly known as blue baby syndrome. Tami Madsen, executive director of Central Iowa Water Works, said it is not unusual to see an increase given Iowa's 'nitrate seasons' but noted this year has been unusually high. Still, she deferred on an explanation of what is driving the higher rates. 'Unfortunately, this is a first and this is not history that anyone should be proud of,' Madsen said of the ban on lawn watering. She urged cooperation. 'If we continue on the path we're on today, where people are still choosing to water their lawn over producing water that meets safe drinking water standards, we'll be back here to talk to you all about a violation of the Safe Drinking Water Act,' Madsen said. Officials made clear the water currently meets regulations and is safe to drink. But while the water utility works to treat the water to reduce nitrate pollutants to a safe level, Des Moines metro residents' demand is higher than the amount they are able to treat. The utility said it has been treating water for 55 days, at a cost of between $14,000 and $16,000 a day. In the past, the high cost to Des Moines and the rest of Polk County has led officials to go to farmers directly, to the statehouse and to court in a tug-of-war with the state's dominant agricultural industry. The officials have long complained that nitrates and phosphorous from farm fertilizers pour off fields, leaving rivers so polluted that even the utility's sophisticated and costly equipment can't keep up with purifying. In 2015, the utility took the issue to court to ask for the millions of dollars it was being forced to spend to filter unsafe levels from drinking water taken from the Des Moines and Raccoon rivers. A judge ultimately dismissed the lawsuit against three northwest Iowa counties, ruling the issue was one for the Legislature to address. The state's Republican leaders at the time lauded the ruling, saying the lawsuit wasn't necessary to improve water quality because farmers and government subdivisions already are taking steps to ensure water quality.


WebMD
42 minutes ago
- WebMD
FDA OKs New Next-Gen Pill for Rare Lung Cancer
approved a first-of-its-kind oral pill to treat a rare type of advanced lung cancer that often spreads to the brain. The new drug, known as taletrectinib but sold as Ibtrozi, is meant for adults with non-small-cell lung cancer (NSCLC) that has spread or worsened and is linked to a faulty ROS1 gene. This targeted therapy offers new hope to about 3,000 people in the U.S. and over 1 million globally who are diagnosed each year with advanced ROS1-positive NSCLC. NSCLC is the most common form of lung cancer – a leading cause of cancer-related deaths. About 2% of advanced cases are ROS1-positive, which grow faster and are harder to treat. Most patients are diagnosed in their 50s, often without a history of smoking. The cancer often spreads to the brain, seen in 35% at diagnosis and nearly 50% after treatment. This makes treatment especially challenging and highlights the need for better options. The FDA's decision was based on two clinical studies of people with ROS1-positive NSCLC. One trial involved 113 people who had previously been treated with a drug similar to Ibtrozi, while the other included 157 who had not. About 85% to 90% of those new to treatment responded to Ibtrozi, and at least 63% continued to see benefits for over a year. Among those previously treated, about 52% to 62% improved, with most (up to 83%) continuing to respond for at least six months. Ibtrozi also helped shrink brain tumors in 73% of people who were new to similar treatments, and in 63% of those who had tried one before, according to a news release by Nuvation Bio, the drug's maker. "Ibtrozi's durability of response and ability to effectively penetrate the brain, coupled with a well-characterized and manageable safety profile, further addresses these critical needs for patients," said Nathan Pennell, MD, PhD, a professor of medicine at the Cleveland Clinic and an investigator of the clinical trials. Ibtrozi belongs to a class of medicines called tyrosine kinase inhibitors (TKIs). It blocks the faulty ROS1 protein, helping slow cancer growth and spread. Ibtrozi is designed to reach the brain and keep the disease under control for longer. The FDA recommends 600 mg oral Ibtrozi pills once a day on an empty stomach, with no food two hours before or after taking it. Treatment continues until the cancer worsens or side effects become too serious. The most common side effects include things like nausea, diarrhea, tiredness, and dizziness. The FDA also warns about more serious risks, like liver and lung problems, heart rhythm issues, muscle pain, and possible harm to an unborn baby. People who use the drug should tell their doctor about all medications they're taking, including over-the-counter ones – especially anything for acid reflux. Women are advised not to breastfeed during treatment and for three weeks afterward. It's also important to protect your skin from the sun while taking the drug and for at least five days after stopping it.