logo
Inquiry into Essex mental health deaths on 'troubling path'

Inquiry into Essex mental health deaths on 'troubling path'

BBC News17-05-2025

A lawyer representing more than 120 bereaved families at a mental health public inquiry has warned the hearing is in danger of heading "down a troubling path".The Lampard Inquiry is looking into the deaths of more than 2,000 people under mental health services in Essex between 2000 and 2023.Nina Ali, partner at Hodge Jones & Allen solicitors, said some of the evidence during May's hearings in central London had left their clients "with an overwhelming sense of dissatisfaction".Baroness Lampard, in the chair for the inquiry, said she was "profoundly conscious" of the disappointment felt by some of the core participants.
'Blatant disregard'
The majority of mental health services in Essex are now run by Essex Partnership University NHS Foundation Trust (EPUT).The trust was due to give evidence at the inquiry on Wednesday relating to its use of Oxevision – a monitoring and alert system used on some of its wards and units to make sure patients are not harming themselves.A late submission of evidence by EPUT, which contained substantial changes to its previous position, was described as "highly unsatisfactory" by the inquiry's chief counsel and a decision was taken to postpone the hearing.Baroness Lampard said she was "extremely dissatisfied" with EPUT, which apologised afterwards for not sharing details sooner."EPUT's late submission of the Oxevision evidence - despite being aware of the deadlines - shows a blatant disregard for the families," Ms Ali said."We are concerned that if this behaviour is tolerated, it will send the inquiry down a troubling path."
Melanie Leahy campaigned for more than a decade for a public inquiry following the death of her 20-year-old son Matthew in 2012 at the Linden Centre mental health unit in Chelmsford."Baroness Lampard has vowed to 'seek out' the truth during this inquiry but I fear history will repeat itself and she will come up against the various brick walls I have over the last 13 years of campaigning for the truth," she said."I sincerely hope this is not the case."EPUT's decision to submit evidence late… is not behaviour that shocks me."The total disregard for the families, who should always be at the heart of this inquiry, is indicative of how we have been treated by the trust for over a decade."
'Cover-up' fears
Sally Mizon - whose husband Mark Tyler died in 2012 - said she was "extremely disappointed" with the level of progress of the Lampard Inquiry so far.Mr Tyler shot his mother and then himself in Crays Hill near Basildon in September 2012. An inquest into his death heard he had attended a mental health assessment just weeks earlier, and that he had been "repeatedly ignored and let down by the system he consistently asked for help from"."I hope the next stage of the inquiry will quash my fears of a cover-up and demonstrate that it is a collaborative investigation which proves a clear desire to keep us - the families - at the heart of the process," Ms Mizon said.
Addressing the inquiry on Monday, Baroness Lampard said she was "profoundly conscious that some core participants may be disappointed with the decision I have made to postpone hearing evidence in relation to Oxevision"."My decision… should not be viewed in any way as enabling EPUT to avoid answering questions about its use of Oxevision or to evade responsibility - quite the reverse," she added."I wish to make it clear that I am extremely dissatisfied with EPUT's late submission of evidence. I have said previously, and I repeat, that I will not hesitate to use my statutory powers to compel evidence should this be required."
Apology
A spokesperson for EPUT confirmed to the BBC that its new standard operating procedure regarding the use of Oxevision came into effect on 7 May."We have to react to changing guidance around many areas of the delivery of care and have been reviewing our operating procedure for the use of Oxevision remote monitoring technology following new NHS guidance which was released in February 2025," the spokesperson said."The review has been completed and the new standard operating procedure is now in place."We apologise to Baroness Lampard and anyone impacted that we didn't share details of changes sooner."The trust's chief executive Paul Scott has apologised for deaths under his trust's care.Giving evidence to the inquiry, Mr Scott said the testimonies of bereaved relatives had been "brave, powerful and heartbreaking".The next evidence sessions at the inquiry are due to be held in July at Arundel House
Follow Essex news on BBC Sounds, Facebook, Instagram and X.

Orange background

Try Our AI Features

Explore what Daily8 AI can do for you:

Comments

No comments yet...

Related Articles

'I am a carer for my husband, son and daughter'
'I am a carer for my husband, son and daughter'

BBC News

time9 minutes ago

  • BBC News

'I am a carer for my husband, son and daughter'

A woman has described working 24-hour days in order to care for her husband, son and Buckner, from Three Mile Cross, Berkshire, said she sometimes went without sleep and was too busy to attend health appointments for previously set up a school for her son, who has a personality disorder, and also supports a husband with clinical depression and a daughter who is deaf and has diabetes and tumours on her a survey to mark the start of Carers Week, the charity Carers UK said some carers were reporting declining health because they had no time look after their own needs. Ms Buckner, who gave evidence to parliament about the issue, said: "A day can be 24 hours, literally, because I'm getting no sleep because of things that are going on."For instance, last Friday night, that's the most recent one, [my 18-year-old daughter] had a hypo, she was starting to go in a coma."Then I have a husband who's got clinical depression and a personality disorder. He's been sectioned twice. He can be unpredictable."And then I have a son who's been classed as a danger to society... He has very complex needs." In 2008, Ms Buckner set up a school in Reading where her son, then aged nine, was the only pupil, after he was excluded from other said her caring responsibilities were taking a toll on her own health."I fell over two years ago. I didn't go for an X-ray for three months because I didn't have time," she said."Then I was told I had to go for surgery and I was, like, 'I don't have time'."Now, theoretically I need to have a couple of teeth out. I don't have time."Carers UK said 40% of carers it surveyed said they had postponed or cancelled a medical appointment, while 43% said their health had declined since taking on the charity's chief executive Helen Walker said: "Sadly, caring for someone often comes at a personal cost."It can be a negative cycle for many carers who experience worsening physical or mental health and are unable to take a break to look after themselves." If you are a carer for someone, you can visit the BBC's Support for Carers page for details of organisations that can help. You can follow BBC Berkshire on Facebook, X (Twitter), or Instagram.

Call for change for 'isolated' unpaid Cambridgeshire carers
Call for change for 'isolated' unpaid Cambridgeshire carers

BBC News

time9 minutes ago

  • BBC News

Call for change for 'isolated' unpaid Cambridgeshire carers

Urgent change is needed to prioritise "unsupported, isolated and overlooked" unpaid carers as they struggle with growing challenges in their lives, according to a charity Together, based in St Ives, Cambridgeshire, has gathered first-hand accounts from people it supports across the county and revealed widespread difficulty in seeing a GP, money worries, and carers' wellbeing sacrificed as they look after loved ones with disabilities or long-term conditions."Thousands of unpaid carers across our region are doing extraordinary things, yet they feel neglected, taken for granted and ignored by government and decision-makers," said chief executive officer Miriam Martin. "Better investment in carers' welfare is not only a moral imperative – but a financially sound strategy, saving billions for the NHS and adult social care systems."The Carers Speak Out report has been released to mark Carers Week, which begins on Monday. Based on contributions to its online platform, Caring Together found escalating financial pressures, driven by changes to benefits such as the winter fuel payment, rising energy costs, and the overall cost of living. Many carers had been forced to reduce working hours or give up work entirely, at the expense of their financial stability and personal wellbeing. 'Self-care is a priority' People also shared the emotional and physical toll of caring, with many suffering emotional distress as they watch a family member become increasingly unwell, and struggle to get them the help they carer wrote of her mum who had dementia: "It's a struggle keeping a confused lady safe and calm. "It's heartbreaking."Another carer, Jo, lives in Cambridgeshire and has previously shared her experience of looking after her mother, who has Alzheimer's."It's very difficult when you start caring because you want to put their needs above yours but you have to realise that if you don't prioritise your mental health and wellbeing you will not be able to do the job of caring," she said."It has taken me three and a half years to realise my self-care is a priority."It's more tiring than you think it will ever be and you can't do it on your own, you need other people to help and the forums and support groups out there like Caring Together can help a lot."The charity is calling on GP surgeries to recognise and prioritise unpaid carers and the people they care for, and for MPs to advocate for thousands of their constituents in the same is also urging employers to become carer-friendly, with the support of the charity, which would enable more people to stay in Department for Health and Social Care has been approached for comment. Follow Peterborough news on BBC Sounds, Facebook, Instagram and X.

Mum 'reassured' over Batten disease drug access decision
Mum 'reassured' over Batten disease drug access decision

BBC News

time14 minutes ago

  • BBC News

Mum 'reassured' over Batten disease drug access decision

"To know that he will have that treatment now for the rest of his life is incredible, it's so reassuring."Emily's four-year-old son, Max, from Spinkhill, near Killarmarsh in Derbyshire, has CLN2 Batten disease, a rare degenerative genetic disorder that causes a decline in a child's ability to walk, speak and is symptom-free and has been receiving Brineura, the only approved treatment that slows the condition's progress, since he was access to the drug, which costs over £500,000 per patient per year, had been due to expire at the end of May, however an agreement was reached allowing existing patients to continue to have it. However, it has not been recommended for future patients diagnosed beyond the end of 2025 "due to its high price and the limited evidence of long-term effectiveness", said the National Institute for Health and Care Excellence (NICE). Max goes to Manchester Children's Hospital every two weeks to receive treatment."He has to stay on the bed for four hours, but because he's had this treatment since he was a baby he doesn't really know any different so he likes it," Emily said."He says he's 'going to get his medicine' and sees the doctors."His dad, James, said Max receiving the treatment from a young age "has been absolutely key in the happy little boy that you see".He added: "He's progressing amazingly well in terms of his abilities."He's still symptom-free in terms of Batten disease, so it's a real success for the drug." Max's older sister, Holly, also has Batten disease and had been receiving Brineura as part of her the six-year-old was diagnosed later in life and the family felt she was not getting as much benefit from the drug as her symptoms increased and agreed it should be said: "Holly was on the treatment for around 12 months, but in that time her condition progressed and she started to lose more and more of her abilities."Within the space of a year, she'd gone from being a relatively normal and happy four-year-old to not being able to walk, losing all of her speech and losing her ability to eat and swallowing normally." Emily and James's youngest child, four-month-old Rory, was born after the couple underwent in vitro fertilisation were screened in advance to check if the condition might be passed on again and, as a result, Rory does not have Batten said: "We were lucky to get four embryos that were unaffected and Rory was the first one that we transferred, so he's a healthy baby."On the decision to stop the use of Brineura for children not yet diagnosed with Batten disease, NICE said: "This committee took into account the condition's rarity, severity and the effect of cerliponase alfa [the drug marketed as Brineura] on quality and length of life."But using the proposed price of the medicine, the most likely-cost effectiveness estimate is not within what NICE considers an acceptable use of NHS resources."So, cerliponase alfa is not recommended."In response, the Batten Disease Family Association said: "Whilst this is naturally disappointing, it is important to note that this is not NICE's final guidance on the future of Brineura on the NHS."The NICE committee will meet again in July to consider evidence and consultation feedback in relation to whether patients not currently diagnosed with Batten disease could receive the drug in future.

DOWNLOAD THE APP

Get Started Now: Download the App

Ready to dive into the world of global news and events? Download our app today from your preferred app store and start exploring.
app-storeplay-store