
'Our daughter is a baby living in an adult's body and we have no idea why'
Mia is fourteen but has the mental age of a much younger child of around six months after being diagnosed with chronic epilepsy as a child, with doctors unsure what caused it
A father has spoken of his sadness how his teenage daughter with the mental age of a baby will never 'go to university, be married or grow up' thanks to an unknown condition.
Parents Chris and Emma Connor grew concerned for little Mia when they realised she was missing milestones growing up. Over her first Christmas she was taken to hospital for tests and diagnosed with chronic epilepsy, but since then the exact nature of her condition has remained a mystery. Now doctors say the 14-year-old has the mental age of a baby aged between six and nine months - with no clue as to what caused it.
Chris told WalesOnline: 'It was a very difficult time, but beyond that was realising Mia was not going to grow up as normal.
'We suddenly realised, she's not going to uni, she's never going to a ball, never going to be married, never going to have her own children, everything you'd hope and expect for your child – none of that is going to happen for Mia.
'It took me quite a while to accept. I just couldn't understand – I'd think to myself, what's the point of Mia? What is she giving to society?
"But when you get through to her and when you see her smile – everybody feels it. And in time I've come to realise that that is Mia's job - to make people happy.
'The cause of Mia's problems are still unknown. They've found no genetic markers. Lots of studies have been done and they've found nothing. She's now going through the SWAN clinic in Cardiff in a last-ditch attempt to find a reason for how she is. But I don't know if they ever will find any answers.'
Chris and Emma continue to give Mia the best life possible, and Chris runs regularly with Mia in a special adapted buggy, often through the Merthyr Mawr sand dunes near the family home in Bridgend. He is running the Brecon Carreg Porthcawl 10K for Tŷ Hafan Children's Hospice this July as they have supported his family and Mia for more than a decade.
Chris added: 'Our family has never been able to help us and if we didn't have Tŷ Hafan, we'd have struggled massively with no support. Tŷ Hafan has definitely helped to keep our little family together and it has given us more of an existence, more of a life, with the opportunity to change to be normal and not just carers.
'Emma and me always get on better, when we stay at Tŷ Hafan. We're always that bit more giggly and better with each other.
'Mia is now quite big, and she has no sense of danger. That means every minute of every day, almost every second of every day Em and I have to look out for her.
'It's really only when we are at Tŷ Hafan that we are able to power our brains or systems down enough to properly relax because it is only there we are able to trust Mia's in safe hands.'
The parents have also had to face their own health battles, as Emma was diagnosed with cancer and Chris has mild heart problems.
James Davies-Hale, head of fundraising for Tŷ Hafan Children's Hospice, said: 'We're so grateful to Chris and everyone who will be running the Brecon Carreg Porthcawl 10K for us on Sunday, July 6.'

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Wales Online
4 hours ago
- Wales Online
DWP £441 payment due in days if you suffer from one of 57 common health conditions
DWP £441 payment due in days if you suffer from one of 57 common health conditions The Department for Work and Pensions (DWP) offers a payment of more than £110 a week to certain people with specific health conditions - and it's due to increase in line with inflation this year This month individuals with certain health conditions are being urged to verify their eligibility for a vital support payment (Image: WalesOnline/Rob Browne ) This month individuals with certain health conditions are being urged to verify their eligibility for a vital support payment. The Department for Work and Pensions (DWP) identifies 57 medical conditions that could make you eligible for a payment of £441 every four weeks. The DWP provides an attendance allowance to those with a disability severe enough to require another person's assistance for care. The amount you receive depends on the level of care your disability necessitates. If you're physically or mentally disabled, or of state pension age or older, you might qualify for this payment. Like other benefits, the attendance allowance saw an increase in April. Last November, the government announced that state benefits would rise by 1.7% from April. This means that from April 2025, if you qualify, you'll have more money in your pocket. Here's everything you need to know about the attendance allowance, including how to apply and how much you could receive. What is attendance allowance? Attendance allowance is a benefit provided if your disability is severe enough that you need someone to help take care of you. It's paid at two different rates, and the amount you get depends on the level of extra care you need. Attendance allowance isn't determined by your income or savings, and it doesn't cater to mobility needs. However, other benefits you're receiving could see an increase if you qualify for attendance allowance. The lower rate is granted if you need frequent help or constant supervision during the day, or supervision at night. The higher rate is given if you require assistance or supervision both day and night, or if a healthcare professional has suggested that your life expectancy might be less than 12 months. In April 2024, both rates experienced a 1.7% rise after the DWP adjusted most benefits in line with September's CPI inflation figure. In 2025/26 the Attendance Allowance rates are £110.40 per week for the higher rate and £73.90 per week for the lower rate. The payment is given every four weeks which adds up to around £441 in a four-week period. What health issues could make you eligible for attendance allowance? The DWP provides a list of common health conditions that might qualify you for attendance allowance. They are as follows: Arthritis Spondylosis Back pain – other/precise diagnosis not specified Disease of the muscles, bones or joints Trauma to limbs Visual disorders and diseases Hearing disorders Heart disease Respiratory disorders and diseases Asthma Cystic fibrosis Cerebrovascular disease Peripheral vascular disease Epilepsy Neurological diseases Multiple sclerosis Parkinson's disease Motor neurone disease Chronic pain syndromes Diabetes mellitus Metabolic disease Traumatic paraplegia/tetraplegia Major trauma other than traumatic paraplegia/tetraplegia Learning difficulties Psychosis Psychoneurosis Personality Disorder Dementia Behavioural disorder Alcohol and drug abuse Hyperkinetic syndrome Renal disorders Inflammatory bowel disease Bowel and stomach disease Blood disorders Haemophilia Multi system disorders Multiple allergy syndrome Skin disease Malignant disease Severely mentally impaired Double amputee Deaf/blind Haemodialysis Frailty Total parenteral nutrition AIDS Infectious diseases: viral disease - Covid-19 Infectious diseases: viral disease - precise diagnosis not specified Infectious diseases: bacterial disease – tuberculosis Infectious diseases: bacterial disease – precise diagnosis not specified Infectious diseases: protozoal disease – malaria Infectious diseases: protozoal disease – other/precise diagnosis not specified Infectious diseases - other / precise diagnosis not specified Cognitive disorder - other / precise diagnosis not specified Terminally Ill Unknown How can I apply for attendance allowance? You can apply for attendance allowance by post click here. You'll receive notes along with a form guiding you on how to fill it out. Article continues below Send the completed form to Freepost DWP Attendance Allowance. There's no need for a postcode or a stamp. You can ring the attendance allowance helpline to request a copy of the form in different formats, such as braille, large print or audio CD. The helpline number is 0800 731 0122 and it operates from 8am to 6pm. Discover everything else you need to know about attendance allowance here.


Daily Mirror
5 hours ago
- Daily Mirror
'I thought I'd burnt toast but it was symptom of very serious condition'
Gareth Evans, 57, from Cardiff, was diagnosed with Parkinson's in 2018 after he started to show symptoms in his mid 40s - including depression and unusual smells When Gareth Evans, a staunch rugby fan and carpenter, reached his mid-40s, peculiar signs began to emerge, indicating something was amiss. Known for his activity levels and joyful nature both at work and at home, Gareth suddenly found himself grappling with inexplicable sadness and unprovoked tearfulness while on the job. Experiencing involuntary arm twitches and sensing the phantom scent of burnt toast further compounded his confusion. Despite the jigsaw of symptoms, it wasn't until medical professionals stepped in that the perplexing picture was completed with a diagnosis of Parkinson's – an illness with no known cure. Gareth grappled with depression, one of the initial indicators of his condition but remained without answers for some time. "Depression... it comes with Parkinson's," he recounted. The reality of the disease dawned on him as he tried to cope with overwhelming emotions. "I didn't understand it. I'd go into work and I'd feel very sad and I would cry." Concealing his struggle became second nature to Gareth, who worked at the Cardiff and Vale University Health Board. "I would come home and I'd cry in the shower, but I was very good at hiding it, didn't talk about it, and didn't get any help and that just got worse and worse." He was acutely aware that something was amiss but couldn't pinpoint the problem. "I just knew there was something wrong. I just didn't know what." It wasn't until unmistakable physical manifestations became evident that Gareth sought assistance. Now 57-years-old, he reflects: "I worked for 34 years for the health service. So I was actually at work and I looked down onto my left arm, and I could see the muscle just on the forearm... it was twitching, twitching a lot. "I couldn't control it, couldn't stop it and I had this for a while, you know, for a couple of days." "So actually, I went to see a friend of mine who worked in the hospital and I asked her advice and she told me I needed to get it sorted." Gareth ultimately sought help from his GP and was referred to a specialist at the University Hospital of Wales, ,reports Wales Online. After receiving his diagnosis on September 21, 2018, he admits he "cried like a baby". The revelation offered clarity for his past ailments, but the subsequent reality of living with the condition has drastically impacted his life. "First of all, the depression just wasn't me, because I've always enjoyed life to the full," Gareth shared. He explained that the emotional toll of depression hit him harder than the Parkinson's itself, saying, "The depression knocked me for a six, more so than the actual Parkinson's, to be honest." Now, years after the diagnosis date, he faces significant challenges: "But it affects me now, like 10 years on if you want to go from the diagnosis date. I can't walk properly. If I don't take my tablets, I get these terrible cramps." Recalling a harrowing episode, Gareth said, "I was walking the dog one day and I forgot to take my tablet and I was stuck in the field for 40 minutes. I just couldn't move." Compounded by bad weather, his situation worsened: "It was tipping down with rain and all my muscles had seized up." Painfully immobilised by cramps, Gareth described the recurring struggle: "I had a terrible cramp and it was very, very painful. This sort of thing happens quite a lot. It affects your internal organs as well. "It affects you bladder. So you're constantly back and forth to the toilet. You think you need a wee, but then you don't, and then you do, and that affects you there. But I must admit, I don't really let it get to me too much now. I'm in control of it." Nearly 8,300 people in Wales are currently living with Parkinson's. The progressive neurological condition caused by a lack of dopamine in the brain. The disease causes both motor symptoms such as tremor, stiffness, and slowness of movement, as well as less commonly recognised non-motor symptoms including sleep disturbances, memory issues, and constipation among others. It can also sometimes lead to phantosmia – where patients perceive smells, such as burnt toast, that aren't actually there. In recent years, Parkinson's has come to renewed public attention as a result of Michael J Fox's campaigning on the issue. The Back to the Future star has been open about his experience with the condition, and has won awards for his advocacy for a cure for the disease. For Gareth, once he had fully taken in the advice from experts and come to terms with the diagnosis, he felt he could move on and get back to work. But while Gareth's return was accommodated well by his employers, in light of his diagnosis he soon had to retire upon his doctor's advice. Recalling how he dealt with his retirement, he said: "The first few months, I just sat in the window, looking out at the rain, beating down onto the patio, and I'm thinking, 'Is this it? Is this what retirement is about?' "Like I said, I'm a very headstrong person, and I've been involved in team sports all my life, mostly rugby. So you know when you're down, and you know you can do something about it. "So, I decided to... enjoy as much as possible and get out and about if I can. Look after my grandchildren and my wife."It was a case of, 'it's not going to get better. So I've got to live with it and work with it'." It wasn't long before he found solace in his retirement, and found surprising new ways of coping. "I started painting, believe it or not," he said. "Another symptom I've got with Parkinson's is insomnia. I don't sleep very well. So I get up at night and I paint, painting by numbers. "I find that quite relaxing. Now that you might think is strange because I've got a tremor. I tremor most of the time. "So when I actually paint, because your brain tells you to concentrate and you literally go in and you paint, the painting by number is a very fine painting. You don't tremor because you use your brain." One of his favourite creations is a painting of his wife's grandfather, a World War two veteran. He explained: "I've got a painting on my wall in my kitchen and it's my wife's grandfather. He was just a couple of days short of 102 before he passed and I painted him and he's sitting in an armchair with his World War two medals across his chest." Gareth also now helps other people diagnosed with Parkinson's to come to terms with their diagnosis. He explained: "Funny enough, I actually do talk to people who are recently diagnosed and need help. "They'll come over to my house or they'll phone me. We tend to stick together, belong to a Facebook page for Parkinson's. "We all stick together and we help each other out... talking's the best thing." Newly diagnosed patients often went through similar emotions, he added. "The biggest thing is fear, knowing it's not going to get better, it's going to get worse, and there is no cure. The tablets I take actually work for me but, believe it or not, they've been out since the '60s annd '70s with all these tablets, they'd been around for years and years, and [doctors working in the field of] Parkinson's are trying to find a cure. "I'm hoping come September to actually go on a trial with my consultant. I've asked to put my name forward and become a guinea pig, so to speak. Because you've just got to try something, you've just got to give it a go." Gareth has thrown his weight behind fundraising, raising significant funds for Parkinson's charities through quizzes, marathons, and rugby matches. Earlier this month – on May 4 – Gareth raised £8,000 when he underwent a sponsored head shave and wax at the Maltsters Arms pub in Whitchurch, Cardiff. He said: "I'll always help, no matter what charity, and if I am able to do anything, I'll do it. "This last one, this one we've done, all I had to do was sit down and have my hair cut. It was the easiest £8,000 I've ever been involved in making! "I've done charity rugby games as well because, when I was first diagnosed, I wanted to raise some money for Parkinson's, so I organised a rugby game. All the people I've been involved with over the years, coaching, playing with, playing against, they all turned up for me. We raised £1,680 that day. That was just one day. "Another time in work, when I used to work, I used to have a 'fat club', we used to call it the 'Big Boy's Belly Fat Club' and the boys used to pay a pound a week and I would have my scales in work and I'd weigh them and I'd write their weight down on the board to encourage them for next week to come in lighter. "This went on for a couple of years and a lot of people got to know about it. Again, we raised money and it was all sent over to Parkinson's." This Friday, Gareth is organising an auction in aid of Parkinson's charity, where shirts donated by Wales rugby stars Rhys Patchell and Ben Thomas will go under the hammer. Meanwhile, Gareth wishes people were more aware of Parkinson's and how to approach people with the disease. He recalled: "(At) Christmas time, I went to watch Cardiff rugby play. I wasn't feeling well. I couldn't explain why I was feeling like it, but I wasn't very well and I decided to leave the rugby halftime. "My wife was picking me up in town because of my condition. I became so bad quickly and I didn't know what it was. I had a chest infection as well. "I approached a man in Queen Street and I asked him for help because I was walking with cramps and I was stiff. I wasn't drunk by any means but this guy thought I was drunk, and I asked him for his help. He gave me the F-word, told me to go away. "It made me cross, because that was the first time that had ever happened. So I just want people, you know, who haven't got Parkinson's, to just realise when you look at somebody and they're a little bit different to normal, just think to yourself it could be something medical. "It could be something causing that problem. Give them a chance, there's always a story behind everybody." In the meantime, Gareth says he's had amazing support from his family. He said: "My wife, she keeps me motivated. My family, my children, my grandchildren. I'm a very lucky man. I've got a fantastic family and I've got a fantastic circle of friends and colleagues. I've been fortunate enough to be recognised in work and I actually went to meet the royal family at a garden party a couple of years ago. " Gareth added: "I've got three granddaughters and they're brilliant, six, four, three, and 18 months - nearly two. And my wife looks after them on a Tuesday, they come here to our house every Tuesday and I sit there and I just watch them and it makes me happy because I live through them. "You look at your children and you... You see them doing well, and you just think to yourself, 'I've done something right in life, having a good family'. That's my unit, what I call my unit. My children."


Sky News
14 hours ago
- Sky News
Diddy trial latest: Alleged victim 'Mia' challenged over social media posts
'It was very confusing': Mia quizzed over more posts about Combs Sean "Diddy" Combs's defence attorney is continuing to question Mia over social media posts. "The highs were high and the lows were low," Mia says, defending her posts featuring Combs. She is asked more specifically about a post made five years on from the initial alleged sexual abuse, in which she praised Combs for continuing to "inspire" every day. "I was posting the good part of my life," she says in response. When asked why she would promote the person she has claimed stole her happiness, Mia says "I had to support the things Puff supported". "It was very confusing, ups and downs." 'I didn't want my family to know the misery I was in': Mia defends social media posts Jurors are shown a series of social media posts from Mia's personal account featuring her then boss Sean "Diddy" Combs. She wished Combs a happy birthday in one of the posts, while in another she thanked him for being a "good friend". His defence attorney Brian Steel asks Mia to confirm whether the posts and pictures show the man who she says traumatised her life. "Yes," she says. After seeing another post from January 2013, Mia is asked by Steel whether she had been sexually assaulted, or abused mentally, physically and emotionally by Combs at this point. She replies by saying "yes". When asked to explain why Combs was featuring on her social media account, Mia says "Instagram was to show how great your life is even if it wasn't true". "I had his [Diddy's] fans following me, and I didn't want my family and friends to know the misery I was in." Diddy's defence attorney begins cross-examination of Mia As Mia returns to the stand, she will now be cross-examined by one of Sean "Diddy" Combs's defence attorneys. Brian Steel begins by asking Mia whether she suffered a great deal because of Combs, and if she developed a trauma. "Yes," Mia responds to both questions. When asked whether Combs's conduct was the worst thing that ever happened to her, Mia replies "yes". She also says that, at times, she wanted to kill herself. Former assistant says she suffers from severe PTSD As proceedings get back under way, a moment to bring you from just before the break. Mia says she hasn't been able to return to work because she suffers from "severe, complex PTSD". "I would have to leave [other jobs] because I would be triggered by really normal situations with, like, an overwhelming sense of fear of being in trouble," she says . When asked who caused her to have those feelings, Mia responds by saying "Puff" – one of Combs's many former stage names. Short break Proceedings have been paused for a short break. We'll hear more from Sean Combs's former assistant, who is testifying under the pseudonym "Mia", after the break. We expect things to resume at about 4.10pm UK time. Former assistant says Combs believed she 'stabbed him in the back' by hiring attorneys Mia testifies that Sean Combs no longer wanted to be involved in Revolt Films and wanted it to shut down towards the end of 2016. The media company was founded by Combs and she worked for it as a director of development and acquisition. Mia says she felt "heartbroken" by the decision to close the firm, and avoided calls from Combs and his staff. She says she hired an employment attorney to help her obtain a severance payment and, after nine months of back and forth, she ended up with a sum of $400,000. Mia says that she took home $200,000 of that, with attorneys taking the rest as compensation for bonuses owed, severance and overtime. She tells the court that Combs believed she had "stabbed him in the back" by hiring the lawyers. As we've told you, Mia has testified that she stopped working for Combs in 2017 (see 15.18 post). Mia says Diddy became angry at her for counting his money too slowly Mia, Sean Combs's former assistant, is now asked about a trip to the Caribbean island St Barts on New Year's Eve in 2010. She says she was staying on a chartered yacht with Diddy and other members of his staff. Mia describes a moment when she was called into the rapper's room and was told to count the money in his safe, something she says was not her job. Despite doing as he asked, Mia says Combs became "really angry" and accused her of counting too slowly. "He chased me out of the room," she says, telling the jury that she ran to the third floor to hide. "I just wanted to get away from him and leave the country," she adds, but says she went back on the boat "because I felt that I had to". 'He is currently firing me at the moment': Email shows moment Diddy's former assistant was suspended Attention now turns to how Sean Combs's former assistant was suspended. Mia explains that she was suspended for oversleeping, adding that she accidentally overslept after being awake for several days. The jury is shown an email chain between Mia and another employee of Sean Combs in March 2011. In the email, Mia is asked about the handling of tickets for an event, and responded by saying "I'd totally help but he is currently firing me at the moment". She says that came after she bought the wrong workout gear for Diddy, leading to her being suspended without pay. Mia explains that she continued working for Combs until 2017, adding "I tried to run away before and it didn't work". When asked if she could get other jobs, Mia says Diddy would have destroyed her reputation. "I was scared of him," she says. 'Let's go to war': Diddy threatens to 'tell everything' in messages shown to jury The jury is shown another WhatsApp exchange, this time between Sean Combs and Mia on 31 October 2025, while she was still in South Africa. "If you don't call me now f*** it all. And imma tell everything. And dont ever speak me again. You have 2 min. F*** her. Call my [house] now or never speak to me again. F*** abc and all lawyers. Let's go to war," Diddy wrote in one message shared with the court. Mia explains that US TV network ABC had bought the rights to a comedy show she had written, but it never aired. When asked what she thought Diddy's message meant, Mia says he was threatening to tell Cassie about the times he had sexually assaulted her but "framed differently... that I had a part in it". Prosecutor Madison Smyser asks Mia what would happen if she didn't follow Diddy's instructions, to which she says she would have been in big trouble, losing her job and being emotionally or physically abused. Mia recalls 'night terrors' about Diddy and says he threatened to kill her The jury is shown a WhatsApp exchange between Sean Combs's chief of staff Kristina Khorram and Mia in October 2015. Khorram initiates the conversation and tells Mia that Diddy wants to talk to her. Mia responds by saying Diddy didn't sound right in his mind, adding that he was slurring his words, threatening her job and threatened to kill her. When asked by prosecutor Madison Smyser about how those threats made her feel, Mia says she was "desperate to make it right, terrified and sad". When Khorram asked Mia how things were going, she said she was sore, had anxiety and suffered "night terrors" about Diddy.