
Muckamore families see 'no good' in system after patient abuse
The health trust that runs Muckamore Abbey Hospital has said it is understandable that the families now see "no good" in the health and social care system.In its closing statement to the public inquiry into abuse of patients at the Antrim-based facility, counsel for the Belfast Trust said relationships needed to be rebuilt."Whilst it's perhaps entirely understandable given how let down those families feel, that they should at present see no good or nothing positive in the care provided to their loved ones by the health and social care system, it is a dreadful indictment," Joseph Aiken KC said.The Belfast Trust has apologised to all patients and their families for the abuse that occurred at Muckamore.
Mr Aiken added that "a way must be found to try and rebuild those vitally important relationships which must endure long after the public inquiry has completed its work".He repeated the trust's apology for the abuse.He said the trust also apologised for the behaviour of other staff who, while themselves did not directly abuse patients, may have witnessed it, failed to intervene and allowed it to go unchallenged."Further, the Belfast Trust acknowledged that the individual failings of the staff who abused patients or of the staff who failed to report and escalate abuse that they witnessed also meant that an important aspect of the governance system in place and operated by the Belfast Trust failed to prevent abuse, failed to detect abuse when it occurred, or when witnessed failed to escalate the fact that it had occurred," he said.Each of those instances, he added, were "systems failures" within the organisation.

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The Herald Scotland
5 hours ago
- The Herald Scotland
Former Kilmarnock player tackling jungles and deserts to help daughter
The former midfielder has made his peace with the fact that his daughter will never date a boyfriend, never get married, never have children or find an escape from the 50 different symptoms associated with a debilitating illness. The one thing he can't accept is the impotence of sitting around, doing nothing. His solution is extreme in a very real sense. To raise money for the Reverse Rett charity, 56-year-old 'Mavis' completed the infamous Marathon des Sables over seven days of gruelling heat then finished third in the 230-kilometre Ultra Marathon in Peru last year. On Saturday he tackles the 104-mile Ultra Scotland event between Dalry and Melrose and while his fundraising efforts have contributed over £100k to the search for a cure, the benefits to his own state of mind have been equally undeniable. 'I always say to people that Dionne's condition has given me some unbelievable life experiences and made me realise what's important in life,' he tells Herald Sport. 'Ordinarily I would have never have done the events I've done. Subconsciously I think it also became a substitute for me for the loss of football as well. I played for 21 years and from the age of 22, I started to train every day as if I was contesting a World Cup final.' He retired from playing for St Mirren in 2006 and found coaching an unfulfilling experience. Managing two Subway stores in Coatbridge and Bellshill failed to fill the void left by professional football. In 2008 the credit crunch came along and swallowed up the profits. A neighbour flagged up a recruitment drive by Police Scotland and, after 15 years on the thin blue line, he accepted a role with a London-based charity supporting survivors of human trafficking. His work provides a constant reminder that everyone has their crosses to bear. 'Dionne was 11 months old and there was no sign of crawling or walking before she started refluxing and being sick 20 or 30 times a day,' he recalls of the period when he realised his daughter was ill. Regular visits to the Royal Hospital for Sick Children in Glasgow and Wishaw General failed to come up with a conclusive diagnosis. A breakthrough came, unexpectedly, during a family holiday in Florida when he googled neurologists and found one 30 minutes away. Costing £800, tests and blood samples came back showing that Dionne had a rare genetic neurological and developmental disorder which affects the way the brain develops. Primarily found in females Rett Syndrome causes a progressive loss of motor skills and language. Reverse Rett is a research organisation focussed on delivering treatment to sufferers. While they can do little for Dionne in the here and now, Reilly's quest for a future breakthrough has brought some startling and unexpected life experiences. 'Originally I started doing the events to raise awareness for the charity and for Dionne,' Reilly explains. 'But through that I discovered that I was getting something from it as well. 'You can never replace the adrenaline of playing on a Saturday, but the illness gave me a purpose and incentive to keep fit and healthy and switch from a team event to seeing how far I could push myself.' He began modestly with a Glasgow 10k in 2012 before moving on to the Three Peaks Challenge, spanning Ben Nevis, Scaffel Pike in the Lake District and Snowdon in Wales over the course of 24 hours. A formidable challenge to even the toughest of mortals, Reilly was convinced to go higher, harder. Read more: Malky Mackay on Hibs' £5m chance, training-ground plan and the Black Knights Stephen McGowan: Is Dermot Desmond absentee landlord or Celtic mastermind? Incorporating a 2.4-mile swim in open water, 112 miles on a bike, then a marathon, Iron Man events offered an immediate challenge. He couldn't swim and hadn't cycled since the age of 10. Signing up to a swimming club and purchasing an aluminium bike for £500, he completed two Iron Man events before setting his sights on the legendary Marathon des Sables, a 160-mile ultramarathon held every year in the Sahara Desert. 'There was a freak heatwave and the temperatures were almost 60 degrees centigrade every day,' he recalled. 'A French competitor died on day two and one of my tent mates suffered a cardiac arrest. He was dead for two minutes before they managed to bring him back.' Even a brutal test of endurance failed to tick off all the boxes on the bucket list to end them all. Last year he ran 230 kilometres through the Amazon Jungle in Peru and finished third. 'Prior to the year I did it, only 15 per cent of the competitors finished it,' Reilly explains. 'Day two we hit the jungle and day three was incredible. We went through a protected area where less than 50 westerners had ever ventured. 'One of the reasons for that is that they have a protected species of bat, with only six of them left on the planet. 'We stayed that night with a small indigenous tribe in the jungle. Only 12 people in the whole world spoke the tribe's language. You would put your hammock up and sleep dangling between a couple of trees.' His Just Giving efforts have now raised over £60,000. His autobiography and other initiatives bolster the tally to something in the region of £100k and on Saturday he plans to raise the tally a little more by completing 104 miles and four marathons on the Southern Upland Way between Dalry and Melrose in the Ultra Scotland race. It's a long way from his old, distant life as a professional footballer with Motherwell, Killie, St Johnstone and St Mirren. 'I was at Killie 11 years or so and I had my best memories at Rugby Park, winning the Scottish Cup. But I hardly watch any games on TV these days,' he says. Gathering dust in the attic, he gifted his Scottish Cup jersey and medal away to a diehard Kilmarnock fan and gave a Kaiserslautern jersey acquired after a UEFA Cup defeat in 1999 to a roofer working on his home. 'The experience and the memories sustain me more than souvenirs,' he explains. 'Going down John Finnie Street with the cup and seeing people happy is what I think of. 'Kilmarnock still ask me to do the in-house TV channel and the truth is that I barely know the players. I loved my career and gave it everything and I don't know if subconsciously this is just the way I cope with the loss of that, but I couldn't tell you the last live game I was at or the last 90 minutes I watched on TV. 'I love my boxing now and if you gave me the choice now of watching the Champions League final or a big title fight, I'd watch the boxing.' Mark Reilly will complete the Ultra Scotland race today (Saturday 7 June 2025). To support his fund-raising efforts for Rett Syndrome research visit

The National
a day ago
- The National
Perthshire children's hospice announces major £17 million revamp
The Kinross-based Rachel House is one of two children's hospices run by Children's Hospices Across Scotland (Chas) and will undergo 'extensive upgrades' to ensure it continues to meet the needs of the families who rely on it. The redesign will include an additional hydrotherapy pool, better-equipped bedrooms, and fully accessible adventure gardens. Work on the building is due to start next year, with the full project set for completion in 2027, subject to approval from Perth and Kinross Council. READ MORE: More than £1m in funding announced for restoration projects for Scottish coastline The charity said that the redesign had 'put children and families at the heart of the process' with their input key to the changes being made. Dr Qusai Alhamdan, whose children Mo and Elaine have been supported by Rachel House since 2021, said Rachel House holds a 'very close' place in her family's hearts. The children both suffer from ataxia with oculomotor apraxia, which causes problems with movement, co-ordination and balance. (Image: Children's Hospices Across Scotland) 'As their condition is degenerative, making memories together as a family is very important to us and we have spent many wonderful respite visits at Rachel House over the last four years,' Alhamdan said. 'My wife Esraa and I find our visits to the hospice very relaxing because we don't have to worry about our caring responsibilities as the lovely nurses and staff take over and do everything that is needed so we can just enjoy precious time together.' Built in 1996, Rachel House cost £10m and supported just under 100 children a year in the first few years. Now that number has more than doubled and continues to rise, the charity said. Ken Lowndes' two daughters, Jenny and Marion, were two of the first children to be cared for when the hospice first opened. Both were born healthy, normal babies, but with a two-year age gap, Jenny and Marion were diagnosed with leukodystrophy when they were four years old. Before Rachel House opened, the family made a regular 900-mile round trip from their home in Achiltibuie, north of Ullapool, to Martin House in West Yorkshire. (Image: Children's Hospices Across Scotland) Lowndes said: 'The time we had together in Rachel House was precious for our whole family. It was a place my wife Ann and I felt supported and where we knew our girls would be loved and cared for. 'Children's hospices can sound frightening but in reality it's a place of joy, light and humour, where memories are made and where parents can recharge their batteries and can just be parents – not parent, medic, and round the clock carer.' He added: 'We helped to fundraise for Rachel House but we never knew if Jenny and Marion would get to visit, if they'd live to see it. They did. They loved it, as did we all. 'Ensuring the next generation of families has the same standard of care that my family experienced is vital and the redesigned Rachel House will go on to make a huge difference to hundreds more Scottish families.' Chas CEO, Rami Okasha, said the project is a huge development for the charity, but one they haven't taken on lightly. He added that the charity wants to transform end-of-life care for children and continue to deliver the highest level of care at the hospice. Okasha said: 'CHAS gives unwavering care to children who may die young, and their families, at every step on the hardest of journeys. Rebuilding Rachel House will cost £17 million and is part of getting that right. Applying for planning permission today is the first important step for us. (Image: Children's Hospices Across Scotland) 'This is a huge project for us and one we haven't taken on lightly. We want to transform end-of-life care for children and their families in Scotland. While Rachel House has served hundreds of families well until now, to deliver the high-level care required long into the future we need to upgrade and rebuild. Okasha added: 'No one should face the death of their child alone and to be successful we are once again asking or donors to get on board and help raise the millions of pounds that will make a difference every day for families dealing with the unimaginable reality of loving and caring for a child who will die young.'

South Wales Argus
2 days ago
- South Wales Argus
Birmingham firm secures £1 million to develop STI rapid test
Birmingham-based Linear Diagnostics has secured £1 million in funding to develop the technology, which could deliver results in less than 20 minutes. The funding comes from the NIHR Invention for Innovation programme and will support a three-year project to finalise the test and prepare it for clinical trials. Dr Jean-Louis Duprey, head of research and development at Linear Diagnostics, said: "We are developing a near patient device that will overcome this conundrum." The company is working with the NIHR HealthTech Research Centre and the North East Innovation Lab to deliver the project. Dr Jana Suklan, senior methodologist at the HRC, said: "The NIHR HRC in Diagnostic and Technology Evaluation is delighted to be collaborating with the North East Innovation Lab to support Linear Diagnostics with their exciting technology. "Our research involves analysing unmet needs, examining current practice and identifying the most promising point in the patient pathway for implementing the technology." The test uses Linear's Exponential Amplification (EXPAR) technology, which detects bacterial DNA within minutes. The company has focused on STIs such as Neisseria gonorrhoeae and Chlamydia trachomatis, where rapid diagnosis is essential to prevent further transmission and begin treatment immediately.