
West Lothian woman who had to be revived at birth celebrates her 100th birthday
A West Lothian woman who was thought to have died at birth has celebrated her 100th birthday. Margaret Johnston was born in her granny's house in Dalmeny on April 26, 1925. She was born "blue" and it was thought she hadn't survived the birth, she had been put aside until her granny noticed a small pulse at the side of her head. Baby Margaret was then placed in a bath of warm water and was revived, and is still going strong a century later. Margaret grew up in Stoneyburn, and spent most of her life there apart from the school holidays which she spent at her granny's. One of four children, Margaret is the last surviving sibling. She had an older sister, Jeannie, and younger sister, Olive. She also had a younger, brother George. Jeannie and Margaret were really close and when her big sister started school Margaret cried so much that the school allowed her to start a year early, so she went through school with her sister. Both then worked together 'in service' in a large household in Edinburgh to a Professor and his family – Margaret started working life at 14 years old and was the table maid, while Jeannie worked in the kitchen. Margaret went on to work in Bangour Hospital, and in Plessey Electronics factory in Bathgate, and then at Tippethill Hospital in Armadale as a kitchen assistant. She met husband, Tom, at Fauldhouse Miners' Club and they married a year-and-a-half later. Tom was in the Army and stationed in Newcastle, where they lived for a short time. Tom died in 2009. The couple had one son, Gordon, whom they both adored – Margaret called him her golden boy. Gordon married his wife Tracy, who Margaret treats like a daughter. They have never had a cross word and Tracy is constant visitor and companion to Margaret. Sadly, Gordon died late last year. Margaret does have two grandsons, Gordon and Tracy's son Andrew, who lives in Australia with his wife Laura and their five-year-old daughter Frankie; and Colin who lives in the United States with his wife Stacey. She would help out by watching her grandsons when they were small. Margaret often travelled to Portsmouth for holidays and visit her brother George. In her younger years, Margaret enjoyed knitting, and keeping up to date with current affairs. She also enjoyed bowling, indoor and outdoor. She liked watching TV Soaps and still enjoys her daily read of the newspaper. Margaret always kept a wee pet budgie and loves when one of the staff brings her budgies in for a visit. Margaret had been living in sheltered housing in Whitburn from around 2015 but moved into nearby Whitdale Care Home in August 2021, where her sibling Jeannie was a resident. They would spend every day together, with Margaret walking along to visit her sister. Jeannie passed away at the age of 99 years. Margaret felt she needed to move while she still had all of her faculties intact. The centenarian was an active member of Brucefield Church and had many friends, and one in particular, a neighbour Sadie, has been a constant visitor over many years. She still enjoys an occasional sherry, or a wee whisky and lemonade, or a sweetheart stout, and a nice meal and good plain food. Margaret said: 'I think the secret to my long life has been hard work. I've had good life but I've no desire to be really old!' Daughter-in-law Tracy, joined her for her birthday celebration at Whitdale where West Lothian's Lord Lieutenant, Moira Niven MBE presented Margaret with a framed birthday card from King Charles. Don't miss the latest news from the West Lothian Courier. Sign up to our free newsletter here .

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Daily Record
21 hours ago
- Daily Record
Determined mum wows to take on Scottish Government over 'Postcode Lottery' support for adults with learning disabilities
Margaret Roberts, from Ayr, claims her severely learning disabled son Brandon, is the victim of 'discrimination.' A devoted mum is demanding a national review of transport provision for adults who are learning disabled across all health and social care partnerships (HSCPs) in Scotland. Margaret Roberts, from Ayr, claims her severely learning disabled son Brandon, is the victim of 'discrimination'- because South Ayrshire Council's HSCP won't help fund and meet his complex care and transport needs. And Margaret claims the discrimination of learning disabled adults' care needs is more widespread - after discovering that many other Scottish local authorities DO fund transport costs. She said: 'This is an atrocious case of discrimination and it's an issue that needs to be urgently reviewed by the Scottish Government. 'Basically, the South Ayrshire Council HSCP were trying to make Brandon fit a service that didn't fit him and I am not going to allow this. Instead, I am challenging the system and I am requesting that the Scottish Government, conducts a national review of transport provision for adults with learning disabilities - across all HSCPs.' Ayrshire Live previously told how Margaret and Brandon were left in limbo last year following a dispute with South Ayrshire Council's HSCP over Brandon's health and social care needs. At the time Margaret claimed she'd been forced to adopt additional caring pressures for Brandon, after a fallout with social care chiefs. The dispute arrived as a result of the local authority's proposed new day-care service package which identified Arrol Park, in Doonfoot Road, Ayr, for Brandon's health and social care needs. However, Margaret labelled the set-up 'unsuitable and dangerous for Brandon,' because Brandon has a history of absconding and has no road safety awareness. She was also told that the council would not help fund transport arrangements for Brandon to attend. The South Ayrshire Health and Social Care Partnership said they were willing to 'work with the family' to achieve the best outcome for Brandon, but so far the situation hasn't changed. Brandon is still supported by his mum 24/7 for the last 16 months. And it's prompted Margaret to claim a 'Postcode Lottery' exists after she raised a Freedom of Information request showing that many other councils do stump up the cash for similar needs. Margaret now has the backing of one MSP who has been made aware of her situation and is also calling for a review. Brandon, 28, is severely learning disabled and lives with Autism. He is also non-verbal and has a fixation with transport. On one previous occasion Brandon absconded was later traced on a train to Aberdeen. He previously attended Camphill Blairdrummod, a third sector day service in Stirling since leaving school nine years ago. Margaret and Brandon moved to South Ayrshire in November 2023 which resulted in Brandon's care package being transferred from the East Dunbartonshire Adult Disabilities Team to the South Ayrshire Adult Disabilities Team. From the outset of Brandon transferring to South Ayrshire - and before any needs assessment had been done by a social worker - it was stipulated by the social work department that they would not be funding the same care package for Brandon. Margaret was also told Brandon would be going to Arrol Park Resource Centre three days per week - and they would NOT be providing transport to assist his travel. According to Margaret, South Ayrshire Social workers even suggested that he purchased a mobility car to fund his own travel and that his mum could drop him off and collect him. But Margaret has her own professional career and unable to facilitate this. Again, says Margaret, this was suggested without a carers support plan 'being completed.' Despite meetings with the head of service and social work service manager, Margaret's still not been able to secure an agreement that suits Brandon's care needs. Margaret said: 'The Carers (Scotland) Act 2016 states that carers should be supported to work if they choose to do so. Social workers are required to take the Carers (Scotland) Act 2016 into consideration when developing an individual's carers support plan. They should consider their need to balance their caring responsibilities with work, quality of life and wellbeing whilst undertaking their caring role.' Margaret's situation was assessed as part of her carers support plan assessment. But nothing put in place to enable her to balance work commitments and transport Brandon to and from the identified suitable service. 'The Scottish Government's health and wellbeing framework stipulates that the priority for Scottish Ministers is to improve people's experience of health and care services and the outcomes that services achieve,' said Margaret. 'In particular, improving the quality and consistency of outcomes across Scotland, so that people and carers have a similar experience of services and support, whichever, Health Board or Local Authority area they live within. 'But there are inconsistencies and people like Brandon are not getting the level of service they are entitled to, so there's discrepancies and discrimination here.' Margaret set out to conduct research at national level to scope out how many local authorities across the country implemented the same practices. There are 32 local authorities in Scotland. Margaret contacted the 32 local authorities using under the Freedom of Information Act. And, according to Margaret, her findings demonstrated a 'clear inequality' across the country in relation to providing transport for people who are learning disabled to their day services. She said: 'This inconsistent approach clearly demonstrates a postcode lottery, where services are determined not by need, but by geography, for those who are learning disabled adults.' Margaret's FOI shows there are 13 local authorities who do not provide transport. All three local authorities in Ayrshire (North, East and South) don't provide this. Margaret said: 'This situation raises serious human rights concerns. Unpaid carers are being relied upon to provide daily transport, often at the expense of their own employment and wellbeing, contrary to the Scottish Government's statutory commitments to support carers. 'Carers have been forced to reduce working hours, give up careers that they have worked hard for to facilitate travel for their adult to access a day service. This forces families further into poverty and poor health outcomes.' Margaret is now campaigning for the power of these decisions to be removed from local authorities and for Scottish government to take leaderships on this issue and conduct a national review of transport for provision, for adults who are learning disabled- across all HSCPs. She also requesting that Holyrood introduce clear national guidance or standards to ensure equity and consistency in service access across Scotland and a 'rights-based approach to future service planning,' 'in line with Scotland's obligations under international and domestic law.' She added: 'This is a matter of dignity, fairness, and equality and should be treated it with the gravity it deserves and to also address the growing inequalities faced by learning disabled adults and the families who support them.' A spokesperson for the South Ayrshire Health and Social Care Partnership said: 'South Ayrshire Health and Social Care Partnership are working to achieve the principles set out by Scottish Government and our local Strategy to provide care closer to people's homes. 'We can't comment on individual cases, but we continue to work with the family to achieve the best outcomes based on the principles of improving health and wellbeing, choice and control, living as independently as possible and active citizenship.' Social Care Minister Maree Todd, who this week moved across to take on the drug and alcohol ministerial brief, said: 'The Scottish Government want those with learning disabilities to live longer and healthier lives. 'Independent living is a crucial part of enabling human rights, with self-directed support playing a key role in delivering this. 'The Scottish Government holds overarching responsibility for health and social care policy in Scotland and has published clear standards outlining what people should expect when accessing services. 'The statutory responsibility for delivering, commissioning and providing appropriate social care services at a local level lies with local authorities and Health and Social Care Partnerships, taking account of local population needs.' South Scotland Labour List MSP, Colin Smyth, said: 'Margaret and Brandon's situation is deeply upsetting— and sadly, it reflects a wider problem families across Scotland are facing. 'There is a clear postcode lottery that exists when it comes to support for adults with learning disabilities. 'Some Health and Social Care Partnerships fund transport, others don't— and that inconsistency is placing huge pressure on carers and creating unnecessary barriers for those who need help the most. 'Families shouldn't be forced to fight for basic support because of where they happen to live. The system must be fairer.' He added: 'The Scottish Government needs to carry out a national review and bring forward clear guidance to ensure everyone, no matter where they live, gets the support they're entitled to.'


Scotsman
04-06-2025
- Scotsman
West Lothian mum raises money for 2-year-old daughter with rare and serious condition
The devoted mother of a West Lothian toddler has said she is prepared to 'sleep in the car' if she can't afford accommodation while her daughter is undergoing life-changing surgery. Sign up to our daily newsletter Sign up Thank you for signing up! Did you know with a Digital Subscription to Edinburgh News, you can get unlimited access to the website including our premium content, as well as benefiting from fewer ads, loyalty rewards and much more. Learn More Sorry, there seem to be some issues. Please try again later. Submitting... Denni-Leigh Shanks' two-year-old daughter Dakota was born with a rare condition which saw her bladder develop on the outside of her body. After a year on a waiting list, Dakota is now set to have the vital surgery in Manchester on June 23 - a procedure which could see her need to stay in hospital for up to eight weeks - but Denni-Leigh has been forced to reach out for help to pay her own accommodation costs. The Livingston mum said launching a GoFundMe page was 'the last thing' she thought she would do, but that she needs to 'scramble' funds together in just a few weeks to secure accommodation down south. Advertisement Hide Ad Advertisement Hide Ad Speaking to the Evening News, Denni-Leigh said: 'We always knew Dakota would need an operation at some point but doctors said they wouldn't be able to do it straight away because there were too many risks. When she was born they said it should happen within 12 months but it got delayed and then last month I was given a date for the operation in June – it was very out of the blue. 'We need to travel to Manchester a week before her operation for daily pre-op appointments and I'll need to cover hotels, food, fuel - everything to get up and down there. We have to fund everything until Dakota is admitted to hospital. West Lothian mum, Denni-Leigh, with travel with her daughter Dakota to Manchester for life-changing surgery later in the month | Submitted 'We've been told she could be in hospital for four to eight weeks, but it just all depends on how Dakota heals after the surgery. I'm hoping to get accommodation through the Ronald McDonald charity for that period, but it's an unknown at the moment because I can't apply for it until Dakota is admitted to hospital, and then it will just depend on if there are spaces available, there could still potentially be a wait time. 'But the main thing is that Dakota has a safe place to stay for that first week. Everything I do, I do for Dakota. So, if for any reason I can't get into the Ronald McDonald accommodation and I don't have the funds to stay anywhere else then I'll probably just sleep in the car if I have to.' Advertisement Hide Ad Advertisement Hide Ad Denni-Leigh was told last year that the operation was due in early 2025 and saved up money for the trip. But unexpected costs including having to buy a new washing machine meant she had to use up some of her savings. And the family was also dealt a heartbreaking blow just a few weeks ago when Dakota's dad Kris Braithwaite, who was helping Denni-Leigh with travel and hotel costs, died suddenly. Denni-Leigh said: 'Kris was always there for his daughter and he would have helped in any way he could. 'Dakota is really struggling with it. She's only two so she doesn't really understand, but she makes a lot of comments about wanting her daddy back and makes a lot of comments about being sad and has struggled with her sleep since it happened.' Advertisement Hide Ad Advertisement Hide Ad Writing on her GoFundMe page, Denni-Leigh said: 'Any donations even as little as a pound will go a very long way and will be so gratefully appreciated! Please help my baby girl.' You can support Denni-Leigh and Dakota by visiting the gofundme website.


Edinburgh Live
03-06-2025
- Edinburgh Live
West Lothian dad takes on challenge after schoolgirl's debilitating diagnosis
Our community members are treated to special offers, promotions and adverts from us and our partners. You can check out at any time. More info A West Lothian dad took on a huge challenge after a young girl in the community received a debilitating diagnosis. Owen Donoghue, 44, raised over £1,8000 after running the Edinburgh half-marathon to help eight-year-old Ella-Rose Kennedy. She was diagnosed with a debilitating progressive genetic condition, Friedreich ataxia, a disorder that causes damage to the nervous system and cerebellum, the part of the brain that deals with voluntary movements, reports the West Lothian Courier. Owen, who has six children, went to school with Ella-Rose's dad Michael. Owen's son is also in Ella-Rose's class at Howden St Andrew's Primary. The funds raised will go directly to the P5 schoolgirl, who waited at the finish line as he completed the half-marathon. One in every 50,000 people are affected by Friedreich ataxia, in which nerves in the spinal cord break down leading to a deficiency of sensory signals to the brain. The condition is caused by an abnormal gene and insufficient levels of a protein named fraxatin, parents are unaffected because they only carry a single pathogenic variant, but those affected by the condition inherit variants from each of their parents. Ella-Rose's parents, Michael and Jenny, are pinning their hopes on drugs, that are currently being trialled on children, becoming available in the near future to help their daughter. (Image: Supplied/West Lothian Courier) But current support options are limited, with Owen determined to help out by raising funds to help with whatever he can in the meantime. Owen said: "It's more than double the distances I've ran before but it went really well and wasn't as bad as I thought it would be. Sign up for Edinburgh Live newsletters for more headlines straight to your inbox "The weather was decent as well and it was quite straightforward. Wee Ella-Rose came along and was at the finish line. Her family are going to need quite a lot of money as the years go on. "I couldn't have done it without Mel from FoxFit training me. I'd also like to thank the local community who have been mega-supportive and the businesses around my wife's Devilish Diner cafe that helped me raise money - Spark, MGK Hair Design, Daisy Drop In, and the Tower Bar."