
Atomic bombs destroyed their lives – now they want Russia to pay
The Geiger counter came to life as we trudged toward the lip of the crater, its clicks becoming frantic before giving way to an alarm.
'This is the Atomic Lake,' said the hazmat-suited guide, throwing out his arms against the wind to encompass the circular expanse of water below. 'Don't get too close to the edge.'
Sixty years ago a nuclear bomb ten times more powerful than the one that destroyed Hiroshima exploded at the bottom of a 178-metre shaft in this remote (but not unpopulated) corner of Kazakhstan.
The blast excavated a basin a quarter of a mile wide and several hundred feet deep, sending up a plume of pulverised rock and radioactive material that was detected as far away as Japan.
It was not a one off. The hydrogen bomb was one of 456 nuclear weapons detonated by the Soviet Union at the Semipalatinsk Test Site, a 7,000 square mile swathe of steppe known as the Polygon.
The tests started in 1949 and continued right up until 1989 and the fall of the Berlin wall. They account for a quarter of all the nuclear explosions in history, creating an ongoing health crisis of a scale and nature that is hard to fathom.
The Kazakh authorities estimate that one-and-a-half million people living in nearby cities, towns and villages were exposed to the residual fallout.
The region has elevated rates of cancer, heart disease, birth defects and fertility problems – all linked to the tests. Suicides are common and the area's graveyards are filled with people who died young.
But as well as sickening those who were directly exposed, the fallout has worked its way into the population's DNA, leading to mutations that have been passed down through the generations.
'There were so many children born with different mutations'
Almost everyone who grew up in Semey, a city of about 350,000 that lies only 75 miles from the Polygon, was affected in some way by the testing programme.
Olga Petrovskaya, the 78-year-old chair of Generation, a campaign group founded in 1999 to petition the government for greater support for the victims of the tests, remembers explosions shaking the city.
'We would be taken out of the classroom because they were worried about the windows shattering,' she said. 'But nobody would explain why it was happening.'
White dust would sometimes fall on the city, causing sores to form on exposed skin. It was not long before people started dying.
'When we were six years old, at nursery school, there was a girl who died of leukaemia,' she said. 'And then at [primary] school our classmates were also dying of cancerous diseases.
'Cancer became a very common diagnosis – there is no family that hasn't been affected by it – and there were so many children born with different mutations.'
Ms Petrovskaya lost her brother, her aunt and her in-laws to cancer in the 1960s. She herself suffered numerous miscarriages and still has debilitating headaches and dizzy spells that she believes are linked to the radiation.
Her group of activists has dwindled as its members succumbed to their illnesses. There are now only a handful of them left.
The Soviet testing programme has been frequently criticised for its recklessness.
For instance, the first test of a two-stage hydrogen bomb created a blast much more powerful than anticipated, causing a building to collapse and killing a young girl in Kurchatov, the closed-off city 40 miles away where the tests were directed from.
But the scientists and military personnel responsible understood the risks inherent in what they were doing. Modelling has shown that people who lived through all 456 tests received doses of radiation up to 120 times greater than survivors of the Hiroshima bombing.
'The Soviet authorities were absolutely not ignorant of the dangers of nuclear weapons testing,' said Dr Becky Alexis-Martin, a Lecturer in Peace, Science, and Technology at the University of Bradford.
'The tests occurred long after the Hiroshima and Nagasaki bombings, and records from the time reveal that the scientists involved in the Polygon tests had expert understandings of the impacts of ionising radiation on health.'
People living around the test site 'became unwitting test subjects, and their lives were treated with casual disregard due to racism and ignorance,' added Dr Alexis-Martin
'It was a crime of negligence, whereby secrecy, control, and the acquisition of more powerful nuclear weapons were prioritised over the lives of local people.'
There is a growing body of evidence showing that radiation-induced mutations can be passed down multiple generations.
In 2002, an international study of 20 families living around the Semipalatinsk test site showed that exposure to fallout nearly doubled the risk of inherited gene mutations.
'Genetic consequences manifest in many different ways and any gene can be affected by radioactive exposure. Some gene changes are invisible beyond our DNA – but others can have harmful and intergenerational impacts,' said Dr Alexis-Martin.
'We often think of birth defects when we think of radiation exposure, but hereditary heart conditions, blindness, and deafness can also arise.'
Today many Kazakh families still bear the marks of the tests several generations after the explosions stopped.
'I will not live much longer'
Asel Oshakbayeva was born in 1997, eight years after the last atomic detonation at the Polygon.
Yet she soon began to have seizures, and at the age of three months suffered a brain haemorrhage that left her blind and unable to speak, move or eat.
'She was in a coma, she couldn't see anything,' said her mother, Sandugush.
The family sold their home and two cars to fund experimental surgical treatment in Russia that, after 14 operations, repaired damage to her optic nerve, partly restored her speech and made it possible for her to eat again.
But she remains totally dependent on her mother, and the pair left Semey and now live cheek-by-jowl with five other relatives in a small flat in Astana, the capital.
Sandugush, like her parents before her, was exposed to high levels of radiation while living near the Polygon.
In total, three generations of her family have now been officially recognised as victims of the testing, including her daughter. Her husband died of cancer 10 years ago, and she herself has a host of unusual health complaints.
'I will not live much longer,' she said, gesturing to her side where surgeons removed cancerous tumours from her breast and lymph nodes.
She now worries who will look after her daughter in the future. 'She has the mind of a ten-year-old. If I die, what will happen?'
Despite the high prevalence of disability in the communities affected by the Polygon, a stigma around the children born with deformities persists.
Maira Zhumageldina, 56, lived for a time in the area of maximum radiation risk and gave birth to her daughter Zhannur in 1992.
Zhannur's ribcage, spine and limbs never properly formed, leaving her permanently disabled – unable to walk, talk or feed herself.
When the extent of Zhannur's disability became clear, Ms Zhumageldina came under pressure to give her up, even from her own family.
'When I had Zhannur about 13 or 14 children were born with different kinds of disabilities, so some were abandoned and some died at early ages,' she said.
'My parents-in-law said: 'Why don't you leave her?' But I said 'this is my child' I could never leave her.'
A well-thumbed album of photographs documents the 28 years that Ms Zhumageldina devoted to caring for her daughter.
She trained as a massage therapist to ease her pain, and took her to Astana for specialised treatment.
'I even took her to China, because she had some heart issues and I thought they could treat her there,' she said. 'But the Chinese doctors said that they could not help because of her ribs.'
Zhannur died in 2020. 'I miss her to this day.'
After her death, the modest support payments Ms Zhumaheldina received from the government stopped and she was forced to take out a small loan worth about $1,000 to put on a small memorial service for her.
She is now training at a local college with the aim of getting a job at a local rehabilitation centre for children with similar disabilities, but she said she is worried about her repayments.
It's a precarious position that many families affected by the Polygon find themselves in.
'Have you ever seen the rain?'
Living in the shadow of the nuclear testing programme requires a certain kind of resilience.
One study of a village on the edge of the testing site, for example, documented a community of self-described 'radioactive mutants' who claimed to have developed biological adaptations to the effects of radiation.
'For many years we were exposed to radioactive fallout, and now we eat it. Slowly and quietly, our bodies got used to it,' claimed one villager.
In truth, it's really a coping mechanism.
While many people The Telegraph met expressed similar ideas – particularly a belief that they will fall ill if they leave the area – more often resilience means coming to terms with the illnesses and disabilities caused by the tests.
As a result of his family's exposure to the radiation, Bulat Kabyzhanov went blind as a young man – one of the more common side-effects and one that doesn't necessarily require witnessing the blinding flash of a nuclear explosion yourself.
That hasn't stopped him from becoming an international chess champion who travels the world to compete in high-level tournaments.
'It helps me to stay up, you know, to stay positive,' he told the Telegraph over a lunch of horse meat, fried bread, fresh fruit and whisky.
One of his favourite players is the 19th century British champion Howard Staunton.
Now 68, he coaches the next generation of up-and-coming players. He is also a part of a club in Semey for those who have either gone blind or are losing their sight as a result of the tests.
Its members are a similarly talented bunch.
Among them are a singer who made it all the way to the semi finals of Kazakhstan's version of the X Factor, a star keyboardist, an aspiring poet and stand-up comedian, and an arm-wrestling coach. Its newest member, Kamila Khasyenova, is an eight-year-old girl.
'I was a 22-year-old man – I couldn't see anything really,' said singer Marat Aliaskarov after belting out a cover of 'Have you ever seen the rain?' as performed by Bradford rockers Smokie. 'It was from genetic change.'
Yet Mr Aliaskarov and the other members of his club are optimistic that scientific breakthroughs may one day give them back their vision.
'There is some hope – Elon Musk, for example, he invented some chips and will test them in orangutans to help them see again,' he said, referring to Mr Musk's claims that his company Neuralink can restore sight in monkeys.
'The slow genocide'
Optimism of this sort is harder to come by in the villages that fringe the test site, where people whose families have been torn apart by the tests accuse the government of a 'genocide' by inaction.
Reluctant to cough up the cash to properly support the hundreds of thousands of people sickened by the radiation and unwilling to press Russia for help in fear of provoking a diplomatic row, the government, they say, is simply waiting for them to die.
In Sarzhal, a rural settlement with around 1,000 occupants that lies only 12 miles from the perimeter of the Polygon, locals remember strange, almost supernatural events – the sun appearing to rise again soon after it had set, the sky turning red, powerful winds tearing across the steppe, and mushroom clouds climbing over the horizon.
Most of the fallout came their way – the Soviet scientists in Kurchatov made sure not to detonate any weapons while the wind was blowing towards them.
Hardly anyone here lives to retirement age, and cancer and birth defects are common.
'It's a genocide,' said Acen Kusayenuli, 59, a veteran of the war in Afghanistan who recently had a portion of his lung removed after being diagnosed with cancer. He cannot afford chemotherapy so instead chews herbs to fight the disease.
'We were just like mice,' he said. 'Why else would they not relocate the people and animals? They wanted to see how we would be affected.'
Even the landscape has suffered.
'When we were young, the grass used to grow as tall as a man. Now it's just dust,' he said. 'I've read that it could take 250 years to recover.'
On a low hill a short drive away there is a sprawling graveyard, one of three where the village lays its dead to rest.
Mr Kuyaseuli's parents, both of whom died of cancer, are buried together here and it was the anniversary of his mother's death.
'Most of the people in this cemetery died of cancer,' said his sister, Nurgul Kusayenkizi.
Many graves held people who didn't make it out of their 40s.
Yet the villagers, always kept in the dark about what was going on, bore the burden of death with a strange stoicism common to many parts of the former Soviet Union.
'We just accepted that whoever gets sick, gets sick,' she said.
Mr Kuyaseuli's nine-year-old son, Tauekel, who accompanied his father and aunt to the grave to pray, has already developed heart problems.
'The nuclear weapons tests were undertaken in the knowledge that the local ethnic Kazakhs could be harmed or even gradually eradicated,' said Dr Alexis-Martin.
'The lack of impetus and action across the decades by successive Soviet, Russian, and Kazakhstan governments and the global community amounts to 'slow genocide' – this arises when an ethnic or cultural group is gradually and systematically destroyed due to cumulative and sustained harm over time.'
Seventy-five miles further down the road is the village of Kaynar, which sits in the shadow of a rock formation overlooking the test site. Older residents remember climbing to the top to watch the explosions.
'I remember seeing the mushrooms,' said Rymbibi Zhumagazina, 76. 'We were too young to understand.'
She and her 84-year-old husband, Baimagambet Kabenov, are outliers in this part of the world.
A former truck driver on the local collective farm, he is one of the few people here to live long enough to retire.
'The locals used to go into the Polygon area to collect grass – almost all of them died. So many young people died,' he said.
He now has advanced lung cancer, and is already on morphine to ease the pain he has with breathing.
Dr Saule Isakhanova, the head doctor of the Abralinski Regional Hospital which looks after around 2,100 people in Kaynar and the surrounding villages, said nearly half of her patients had health problems linked to the tests.
Her husband, the former mayor, was one of those who used to go out into the steppe to collect grass. He now has bowel cancer.
She said the effects of the tests could continue to harm people living in the area for a long time.
'Research shows that particles of these elements can remain in the dust for 300,000 years,' she said, referring to the radionuclides released by the bombs. 'Those particles, once you breathe them in, they get into your bones.'
While much of the research attention has so far focused on rates of cancer and birth defects, little has been done to understand the prevalence of developmental disorders among children affected by the tests.
In a run-down suburb on the outskirts of Semey, Aigerim Orazgaliyeva, a 29-year-old mother of two, is struggling.
Doctors have diagnosed her nine-year-old son, Islam, with a mental disorder linked to his family's history of exposure to radiation that causes him to behave extremely aggressively.
On the day The Telegraph visited, he bit and clawed at his mother, screaming and crying as she tried in vain to take him to the bus stop in the hope of calming him down. His behaviour has become so hard to control that he is no longer able to attend school.
'It's hard, so hard. I'm looking after them on my own,' said Ms Orazgaliyeva, whose younger son has also been diagnosed with the same condition.
Dr Talgat Moldagaliyev, the former Director of the Institute of Radiation Medicine and Oncology in Semey, said more work is needed to understand the effects the tests are continuing to have.
'It's a living experimental zone, but not enough research has been done.'
'It should never happen again'
Most of the victims of the Polygon only learned the truth about what had been happening to them after the Soviet Union collapsed and Kazakhstan gained independence.
That moment gave rise to Kazakhstan's first civil society movement, which connected survivors of the Polygon tests with communities affected by American nuclear testing in Nevada.
Over 35 years since the last nuclear explosion at the Polygon, there is a renewed push to win justice for those affected by the radiation.
Maira Abenova, the founder of Committee Polygon 21, an advocacy group representing the victims, lost her mother, brother, sister and husband to diseases related to the Polygon and now suspects she has cancer herself.
She wants the world to recognise that the suffering did not end with the closure of the test site.
'Currently the law recognises as a survivor of the nuclear tests only those people who lived in four regions around the Polygon from 1949 to 1991,' she said, referring to a law brought in in 1992 which gave people who qualified a 'radiation passport' certifying their exposure to the radiation.
Those given the small, beige documents, which bear a blue mushroom cloud stamp on the cover, receive a small amount compensation and other benefits including longer holidays.
While older survivors of the tests say the system worked at first, many of the families The Telegraph spoke to, particularly those in the hard-hit villages, said it was difficult to get official recognition for their children.
Rising medical costs far outstrip benefits worth around $40 a month and moving away from the villages, even to seek better medical care, disqualifies survivors from support.
Ms Abenova has been petitioning government agencies, who are more interested in collaborating with Russia on nuclear energy and turning the test site into a dark tourism destination, to take action on a grander scale.
'You cannot solve the problem just by paying small additional payments, you have to upgrade the economy in the region,' she said.
United Nations resolutions and the sustainable development goals (SDGs) should also be used to improve the lives of those living in the areas affected by the tests, and a new law is needed 'which recognises all the survivors,' she said.
Committee Polygon 21 was among several Kazakh civil society groups to appeal to the UN in New York urging global action on justice for the testing victims.
After Vladimir Putin, the Russian President, withdrew his country's ratification of the global treaty banning nuclear weapons tests, and with advisers of Donald Trump urging him to restart US testing, Ms Abenova hopes her work will also energise calls for disarmament.
'Kazakhstan suffered from nuclear tests [...] Our people should use this opportunity to appeal to other countries that it should never happen again,' she said.
Meanwhile, how safe it is to live in the area around the Polygon remains unclear.
The site itself has been picked over by scavengers looking for – often highly irradiated – scrap metals.
Some 116 bombs were detonated in the atmosphere, but 340 exploded underground, and a secretive joint US-Russian-Kazakh cleanup programme to secure fissile material and even bomb components left behind by the Soviets in tunnels and shafts was only made public after it ended in 2012.
Those living nearby still do not know if their food and water is safe.
Piles of rubbish and discarded bottles are evidence that the nuclear lake, created as part of an ill-fated programme to find peaceful uses for atomic weapons, has become a popular fishing spot.
While a local legend says fish the size of pigs lurk in it, in reality the carp are a normal size – though they do have radioactive Strontium in their bones.
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'If someone gets Type 2 diabetes at age 19, they'll need support from the NHS for the rest of their life. In the end, they're the same budgets, because it's all taxpayer-funded and supported.' Creating a healthcare system like the Finnish In Britain, life expectancy has been in decline since 2011. In Finland, however, life expectancy has risen by around two years since then for both sexes, and things are only set to get better: by 2070, the average Finnish man should expect to live to 89. Mortality from treatable conditions is lower than the EU average, too. This is a sure sign that Finland has got it right when it comes to healthcare, Prof Sridhar says, as is the fact that cancer survival rates are among the best in Europe. 'When you're diagnosed with cancer, the faster you get access to treatment, the more likely you are to survive. Part of the reason Britain struggles with this is that we can't get treatment within the 60 days, or 30 days, whatever the crucial window is for the particular cancer that you have,' she explains. The big difference is that Finland's health system is built around prevention, says Prof Sridhar. 'With the NHS, we often wait for someone to have a heart attack before we wonder how to save them. Instead, we should look at whether that person knew they were at risk of heart attack. Did they know their blood pressure? Did they know their adiposity levels around their abdomen? It would help if we shifted our thinking and implemented screenings earlier on.' The way to do that is through tax, Prof Sridhar says. 'In Finland, they've done very well to reduce inequality. Capitalism exists, and it's accepted that some people will have nicer lives than others, but there comes a point where you're deemed to have enough. In Britain, there are billionaires and multi-millionaires that pay less tax than an NHS nurse, because of how the system works. We could tax those people properly, and have a healthier society where everyone does better, without putting the onus on normal working people.' Cleaning up our water and air like the Swiss Zurich, in Switzerland, is the least polluted city in the world. It wasn't always that way. In 2010, the city's air was badly polluted, a result of traffic as well as wood-burning for heat in the winter. The city committed to lowering its emissions, which meant reducing the amount of journeys people took by car. Here, as in many countries with cleaner air, 'the message has been about connecting diesel and the danger from air pollution to your health and the health of your loved ones, rather than the environment,' says Prof Sridhar. 'Changing your car is really expensive. Helping people to realise that children who breathe polluted air are more likely to have asthma, and will have changes in their brain, makes it easier for them to take action.' Switzerland also has some of the cleanest tap water in the world, along with Germany. In England, we've 'become worse at separating sewage from the water supply,' says Prof Sridhar. When it comes to fixing that, however, we needn't look so far for answers. 'Scotland has some of the cleanest and best-tasting water in the world, while in England, water quality has declined,' says Prof Sridhar. 'The difference is that in Scotland, our water is publicly owned. When things go wrong, we're able to hold water companies accountable, because the shareholders are people who live here. In England, where water is private and the companies are owned by people overseas, that's much harder to do.' Ageing well like India Prof Sridhar's Nani, her maternal grandmother, lives in Chennai, a big city in the east of India. At 92, she stays active, eats a simple plant-based diet, and has a good social life. She lives independently and can still get about well. 'She hasn't fought ageing, or tried to look younger,' Prof Sridhar says. Prof Sridhar's grandmother has inspired her to pursue 'functional health' rather than attempting to look a certain way. Doing squats and staying flexible is important 'because one day, those are the things that will help you to go to the bathroom on your own,' she says. 'My grandmother would never in a million years say that she's sporty, and it would be helpful to move away from those categories in Britain too,' says Prof Sridhar. It's another change that could start in schools, where at the moment, 'people can feel that they're un-sporty, so can't participate'. India has its own challenges with getting its population to move more – 'people have often had to work hard and move all of their lives just to get food and water, so why would they move in their leisure time?', Prof Sridhar points out – 'but there are fewer care homes in India as well as in Japan, so someone like my grandmother is able to stay living independently for longer, because you can stay in your community for longer'.