Parental intuition can predict child's serious illness before doctor's tests

Telegraph

5 days ago

Parents can sense when their child is becoming seriously ill before their vital signs show it, according to new research.
Experts found that in about one in five cases where a child's health worsened while in hospital, parents raised concerns before doctors became aware.
Parental intuition was a better indicator of a child needing intensive care than vital readings including heart rate and abnormal breathing, the study found.
It comes after the NHS introduced Martha's Rule last year giving patients, including parents, the right to ask for a second opinion. The protocol is named after Martha Mills, who died aged 13 in 2021 from sepsis.
Martha's parents, Merope Mills and Paul Laity, raised concerns about their daughter's deteriorating health to doctors on a number of occasions after she was admitted to hospital with a pancreatic injury caused by falling off her bike.
A coroner ruled she would most likely have survived if doctors had identified the warning signs of her rapidly worsening condition and transferred her to intensive care earlier.
Data from 190,000 hospital admissions
For the new study, experts from Monash University in Melbourne, Australia, analysed data from almost 190,000 emergency hospital visits.
Parents or caregivers were routinely asked: 'Are you worried your child is getting worse?'
In almost five per cent of cases, parents said they were concerned their child was deteriorating.
The research team found that this concern was 'significantly' linked to the child being admitted to an intensive care unit (ICU).
Children were found to be four times more likely to need ICU admission if parents had raised concerns, compared with children of parents who were not concerned.
Researchers also found that parental concern was associated with a higher likelihood that the child would need mechanical ventilation or to be given help to breathe.
Parents could prompt earlier treatment
The study, published in the journal Lancet Child and Adolescent Health, also found that 'caregiver concern was more strongly associated with ICU admission than any abnormal vital sign', including abnormal heart rate, abnormal breathing or blood pressure.
There were 1,900 cases where parental concern was documented along with the timing of abnormal vital signs.
The research team noted that in almost one in five cases parents raised concerns about deterioration before vital signs indicated that the child was deteriorating.
They added that this could mean that taking parents' views into account could lead to earlier treatment.
'Parents are the experts'
Overall, they found that the children of caregivers who voiced concerns were 'more unwell, they were more likely to be admitted to an inpatient ward, and stayed in hospital almost three times as long'.
Dr Erin Mills, a lead author from Monash University, said: 'We know that parents are the experts in their children, but stories of parents not being heard, followed by devastating outcomes, are all too common. We wanted to change that.'
She said: 'We wanted to test whether parent input could help us identify deterioration earlier – and it can.
'If a parent said they were worried, their child was around four times more likely to require intensive care. That's a signal we can't afford to ignore
'Parents are not visitors – they are part of the care team. We want every hospital to recognise that and give parents permission, and power, to speak up.'
In March the House of Commons Health and Social Care Committee was told that thousands of patients or their loved ones have sought a second opinion about their NHS care under Martha's Rule.
More than 100 patients have been taken to intensive care 'or equivalent' as a result.