Meriden woman with rare brain condition inspires others on social media
HARTFORD, Conn. (WTNH) — A Connecticut woman had no idea she had a rare brain condition since birth until she passed out and was flown to Hartford Hospital, where she would end up needing four surgeries.
'My mom had said that I came to her with a regular headache and she said within a matter of five minutes, I had passed out,' 26-year-old Michaela Williams of Meriden said. That jumpstarted her emergency medical ordeal.
Dr. Eric Sussman, a Hartford Hospital neurosurgeon helped save her life. It turns out that Williams was among just 1% of the population to have a condition called arteriovenous malformation, or AVM. It is abnormal tangles of high pressure blood vessels in her brain. They flowed into delicate arteries which started to bleed under pressure. 'Removing the AVM is very, I think, one of the more complex surgeries that we do. But in her case it was just the whole clinical picture of her being sick and really teetering on the edge the whole time she was here,' Sussman, who specializes in vascular surgery, said.
Sussman says Williams underwent four surgeries, including a craniotomy, where part of her skull was removed to allow her brain to heal for a period of time. Williams' strength and faith pulled her through. Sussman calls it miraculous. 'I'm still creative. I like to write. I like to paint. I like to go outside,' Williams said, who continues to make uplifting TikTok videos like she did before her diagnosis.
She hopes to help others who may be going through a tough time. 'I want them to feel encouraged, understood, heard. I want them to feel like they're not the only one,' Williams said.She would like to make a dating app for others living with brain injuries.'Everybody that follows me on TikTok, they are family. They encourage me, they push me, uplift me and we encourage and push and uplift each other,' Williams said.
There are two very positive takeaways from Williams' journey. First, she was very lucky that her mother was home when she first passed out to get her emergency care. Second, Dr. Sussman said that her brain will continue to heal, possibly for a few more years.
Copyright 2025 Nexstar Media, Inc. All rights reserved. This material may not be published, broadcast, rewritten, or redistributed.
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