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Pittsburgh pediatric burn patients head to special summer camp

Pittsburgh pediatric burn patients head to special summer camp

CBS News16-06-2025

A dozen kids are heading to a special summer camp that caters to some of the Pittsburgh area's youngest burn patients.
One of those kids is high schooler Meira Loring, who said she remembers getting her burn scars at 5 years old.
"I decided that I was going to light a candle, and the match got too close to my hand, and it fell on my dress. So, 41% of my body got burned that day," Loring said.
She is one of the over 200 pediatric burn patients that doctors see each year at UPMC Mercy. Now she's one of twelve children with bags packed going to Camp Susquehanna. All the kids going to the camp have been at UPMC Mercy Hospital as burn patients too.
"Other people know what you're going through, which makes it really easy to just feel connection," said Loring. It's her eighth time going to this pediatric burn survivor camp now.
This four-day camp cultivates connection between children who bear burn scars.
"It's great emotional therapy, but it's also great physical therapy for them," said Dr. Jenny Ziembicki, the medical director of UPMC Mercy's Burn Center.
This camp is a safe and free sleepaway camp with three clinicians from UPMC. That includes a nurse, a tech and a child life specialist.
"A lot of (the children at camp) are still taking medication. They have burn garments, therapy, stretching, that type of thing that they are still going to do while they're up there," said Dr. Ziembicki.
Campers range from 7 to 17 years old, and every one of them bounced with excitement ahead of getting on the bus to camp. Parents said they know what this moment means to their kids.
"You won't regret it. It's hard letting them go, especially that first year, but it's worth it," said Tiffany Taylor, parent to 11-year-old burn survivor Miles. He's gone to this camp three times now.
While the children are at Camp Susquehanna, they enjoy rock climbing, cooking, swimming and engaging in deep conversations.
"Do you see a difference when he comes back?" KDKA-TV's Megan Shinn asked.
"Oh yeah. He — more confidence," Taylor said.
With a hug and kiss goodbye, the children run to be first on the bus for a life-changing camp that helps connect the spirits of all pediatric burn survivors.

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Stung by high prices, Americans make their own weight-loss drugs
Stung by high prices, Americans make their own weight-loss drugs

Yahoo

time16 minutes ago

  • Yahoo

Stung by high prices, Americans make their own weight-loss drugs

By Robin Respaut and Maggie Fick SAN FRANCISCO (Reuters) -In what she calls the "wild west" of obesity medicines, Missouri-based Amy Spencer is a pioneer. Each week the mother of two injects herself with weight-loss drugs, two of which are in clinical trials and not yet approved for sale by the U.S. Food and Drug Administration. One comes mixed with tirzepatide, the active ingredient in Eli Lilly's Zepbound. Spencer, 50, is not part of any drug trial but mixes the cocktails herself, using tiny doses that she believes are safe. The total cost is about $50 monthly, as little as one-tenth of what she would expect to pay their makers for full treatment. The drugs – glucagon-like peptide-1 (GLP-1) weight-loss medicines – are manufactured and shipped from China, according to the packaging. She orders them through online vendors. Spencer belongs to a fast-growing group of Americans turning to what many call the "gray market" for obesity medicines, bringing cheap active ingredients from China often labeled as for research purposes, according to import data and social media postings. It's a trend that drugmakers Lilly and Novo Nordisk, which makes Wegovy, say is dangerous as well as illicit. Reuters tracked online forums and interviewed seven people who said they bought obesity medicines through this market, including an attorney in Arizona who works for a state insurance agency, a retired nurse in Illinois and a Type 1 diabetic in Louisiana, who said the medicine helped cut her insulin intake by more than half. For more than a year there has been demand for cheap Chinese-made powders, exacerbated by limited health insurance coverage in the U.S. Buyers told Reuters the gray market received a boost from an FDA ruling last year that U.S. compounding pharmacies – outsourcing facilities that create drugs in shortage – must stop selling obesity medicines more cheaply than the companies that developed them. Shipments of such active ingredients from Chinese entities not registered with the FDA jumped by 44% in January from the previous month, according to research by the Partnership for Safe Medicines, a public health group focused on the safety of prescription drugs. It said its findings are likely an undercount, because unregistered vendors may not disclose that their parcels contain medicines. Packages valued at less than $800 that enter the U.S. under the de minimis rule are not included in the data. Nearly three-quarters of U.S. adults are overweight or obese, according to government estimates, but a survey by nonprofit health policy research organization KFF found only about 8% say they have taken medicine for weight loss. Most of the gray market buyers Reuters interviewed had told their medical providers they were taking GLP-1 medicines but not where or how they bought them. Insurance coverage for weight-loss drugs has recently increased, but typically only covers branded versions, according to consulting firm Mercer. Many Americans have paid out of pocket for cheaper compounded drugs. Interest in taking small doses of the drugs has also spurred the online marketplace, buyers said. Taking to platforms including Reddit and Telegram for guidance, buyers import small quantities, often described as research materials to sidestep regulatory scrutiny. They swap advice for navigating the market, exchanging information on vendors, shipping and dosage, and sometimes clubbing together to cover the cost of testing the powders. One forum is called StairwayToGray. It has more than 21,000 members on Telegram and recently was gaining nearly 1,000 members weekly. It did not respond to Reuters' inquiries, and blocked access to the forum after receiving them. It has a website where it says it does not facilitate group purchases. "This community is filling the gaps and being our own regulators, ensuring testing and access for everyone who needs it. Because you shouldn't have to choose between your health or your wallet," it says. Spencer stores her stocks in her fridge and makes them up in the kitchen – carefully measuring sterile water, rolling the vial between her fingers until the powder dissolves, and drawing the liquid into a syringe before injecting it into her thigh or belly. She has lost 24 pounds. "This is working so well for me. It's so easy. It's cheap," said Spencer, who assumes her health plan wouldn't cover the drugs. "I don't know what I would do without this medicine." "VERY DANGEROUS" In February, 38 U.S. state and territory attorney generals wrote the FDA seeking action against illegally sold weight-loss medicines, including "research purposes only" ingredients from China. "Much like with counterfeit versions, these active ingredients come from unregulated, undisclosed sources ... and pose risks of contamination and inclusion of foreign substances," they said. Shabbir Safdar, executive director of the Partnership for Safe Medicines, said unapproved drugs can have problems with sterility, purity and consistency. "It can be very dangerous. You're playing the role of your own doctor, pharmacist, and FDA inspector," he said. Of those interviewed, only Spencer reported any problems: She once got her math wrong and overdosed, resulting in several days of severe flu-like symptoms. Lilly said it had taken many steps to address patient safety risks posed by the proliferation of unsafe or untested tirzepatide. The company said it is filing lawsuits, educating consumers and working with social media companies to identify and remove posts that promote unsafe products, including those described as "research use only." "We will continue to take action to stop those who threaten patient safety and urgently call on regulators and law enforcement to do the same," a Lilly spokesperson told Reuters. Novo Nordisk also said it continues to take action against entities that violate laws and regulations and put patient safety at risk. America's Poison Control agency, which maintains the nation's poison data surveillance system and monitors GLP-1 exposures, said it could not reliably track cases involving unregulated "research chemical powders" because they are sold under various names and formulations. The FDA's goal is to stop illegal sales of pharmaceutical medicines at the border, said George Karavetsos, former director of the FDA's Office of Criminal Investigations and co-author of the imports study. But understanding the true nature and intended use of small parcels arriving from China can be difficult, and the FDA rarely seeks charges against consumers for personal use, he said. The FDA said it urges consumers to buy from licensed pharmacies and "avoid products of unknown quality," adding it was actively protecting consumers by intercepting illegal products at ports, and warning companies that market unapproved weight-loss medicines, including those mislabeled as "for research purposes." Although the forums show suppliers purportedly in China, Reuters was not able to verify where the drugs originate. None of the vendors responded to requests for comment. A Reddit spokesperson said the site prohibits facilitating transactions involving drugs and it had shut down a group found to be doing this. Telegram said it removes "more than a million" instances of harmful content each day, but did not comment directly. MICRODOSE MISTAKE Spencer has polycystic ovary syndrome and for years struggled with weight gain and hypertension. She decided to try obesity medicines after seeing claims on social media that microdosing them could give fewer side effects, and bought semaglutide, the active ingredient in Wegovy, from a compounding pharmacy for about $200 per month. She started on one-fifth of the lowest dose. Within days, intermittent joint pain she often suffered had dissipated: "I didn't realize how badly I hurt until the pain was gone." The cost would reach about $500 a month if she bought the drug from Novo, which recently introduced one-off discounts. After a week, Spencer said, her blood pressure dropped so low she thought she might pass out, so she stopped taking hypertension medicine. Her pressure stabilized and she lost three pounds. She wanted to understand more about microdosing, and turned to the gray market last summer. On Reddit, users told how another Novo drug in development, called CagriSema, had helped reduce inflammation and hunger pangs better than semaglutide. CagriSema is Novo's next-generation obesity drug candidate, still in clinical trials so not available to the public. It combines semaglutide with another molecule, called cagrilintide, which intensifies the hormone-mimicking effects to regulate blood sugar and reduce hunger. Spencer was intrigued. She found a U.S. reseller saying they tested Chinese-made CagriSema through a third-party lab before selling it to Americans. On microdoses of CagriSema, Spencer could enjoy food in small quantities. "I could say 'yes' because I knew I was only going to eat four bites." In October, Spencer saw on Reddit that tirzepatide might also reduce inflammation. She placed a new order for vials that contained cagrilintide and tirzepatide combined, dubbed "cagri-tirz." Now each Monday, Spencer injects herself with tiny amounts of cagri-tirz. On Thursdays, she uses retatrutide, a new obesity medicine by Lilly, also in trials. As she was switching to cagri-tirz, Spencer made a dangerous mistake. She calculated her new dosage without realizing the concentration of cagrilintide in the combined vials was 10 times higher than she had taken previously. "I was an idiot. I didn't do my math. Or rather, I did the math for the tirzepatide but not for the cagri," she said. Almost immediately, she began vomiting. The reaction was so severe she had trouble moving. She forced herself to drink water but couldn't eat. After four days, when symptoms lifted, she had lost seven pounds. Despite the blunder, Spencer didn't consider returning to compounded versions of the drugs or abandoning them altogether. She is not regularly monitored by a healthcare provider, but says her treatment has led to a "life-changing" reduction in weight, joint pain and blood pressure. "HONOR SYSTEM" Gray-market buyer Marie, 41, shows how do-it-yourself drugmakers are organizing. She describes herself as a "soccer mom" from the Midwest and asked to be identified by her middle name to protect her privacy. Last year she bought a compounding pharmacy's version of tirzepatide, paying about $470 monthly, and had lost more than 20 pounds when the FDA announced the ban on compounded weight-loss drugs. She began to worry about her supply. Browsing on Reddit, she discovered links to Telegram and a trove of detailed instructions from experienced users for buying weight-loss drug ingredients from China. Customers said they often paid with Bitcoin or through mobile payment service Venmo. After a month closely following the forums, Marie made a purchase in January. The package that arrived contained 20 small glass vials of white powder with red caps. There were no instructions. The vendor who advertised the package on Telegram said it came from China. Marie returned to the forums and joined a group of 52 other customers who paid a total of $1,020 to a Tennessee-based company called Peptide Test. Six members mailed in a vial each and the others chipped in their share of the fee. The lab found the samples were pure. Peptide Test declined to comment. "It's an honor system," said Marie. "These groups are very supportive in a way I haven't seen on the internet before." Before her first injection, Marie gave her husband details of what she had done. They agreed that if needed, he would disclose everything to the emergency medics. But she was fine. In March, Marie volunteered to organize testing a new order of tirzepatide. The group formed on Telegram after users received vials from the same vendor which they judged to be from the same batch based on the color of the caps. In all, 38 buyers agreed to chip in for the $1,300 bill, and decided by poll that five vials would be enough. Five people sent drugs to the lab, Janoshik Analytical in the Czech Republic, which found the vials contained tirzepatide, as purported, with purity between 99.78% and 99.85%. Janoshik's CEO, Peter Magic, is a former amateur weight-lifter. He said his company started out more than a decade ago testing performance-enhancing drugs for online buyers. Last year, it tested 3,050 samples of obesity drugs, up from just over 650 samples in 2023. "We're testing hundreds of these every week," said Magic, whose company helps customers navigate customs requirements for shipping chemicals.

More Frequent Sex Linked With Less Pain in Menopausal Women
More Frequent Sex Linked With Less Pain in Menopausal Women

Medscape

timean hour ago

  • Medscape

More Frequent Sex Linked With Less Pain in Menopausal Women

A new study has linked women's regular sexual activity with less dryness, vulvar pain, and irritation, all common reasons women have less sex as they get older. Results of the study were published in Menopause. However, an expert not involved with the study urges caution in interpreting the results as meaning regular sex relieves the symptoms . The study authors acknowledged that the design of the study determines only an association, not a cause, so it is not clear without a prospective trial, for example, whether having regular sex causes reduction in symptoms or whether women who have fewer symptoms are more likely to engage in regular sexual activity. The study authors pointed out that low estrogen levels during and after menopause may reduce women's life expectancy and decrease quality of life through the genitourinary syndrome of menopause (GSM). GSM includes genital, sexual, and urinary symptoms — all of which can affect how frequently women aged 40-70 years engage in sexual activity. Results Highlight the Importance of Diagnosing GSM 'The findings highlight the importance of diagnosing and treating GSM,' Monica Christmas, MD, associate medical director for The Menopause Society, said in a press release. 'Local low-dose vaginal estrogen therapy is safe and highly effective at alleviating bothersome vulvovaginal symptoms contributing to pain and avoidance of intercourse,' she said. '[I]t is also imperative to recognize the effect these symptoms can have on women who aren't sexually active. Treatment should be offered to anyone with symptoms, whether engaging in sexual activity or not. Normalizing the use of local low-dose estrogen therapy should be a thing.' The study included 911 sexually active women aged 40-79 years selected from the GENitourinary syndrome of menopause in JApanese women (GENJA) cross-sectional study. The women were divided into two groups: The regular sexual activity group, defined in the study as having had sexual activity in the past 3 months (n = 716), and the lower sexual activity group (women with sexual activity in the past year but not in the past 3 months (n = 195). The researchers evaluated sexual function and symptoms in the regular sexual activity group using the Female Sexual Function Index (FSFI) and compared GSM-related symptoms between the groups. Orgasm Capacity Didn't Decline With Age The researchers, led by Yoshikazu Sato, MD, PhD, with the Department of Urology, Sanjukai Urological Hospital, in Sapporo, Japan, reported that FSFI scores suggest that desire, arousal, and lubrication ability declined significantly with age, and sexual pain generally increased. 'However, there was no significant decline in FSFI scores with age in terms of orgasm capacity and satisfaction in participants with regular sexual activity,' the authors wrote. Although most of the women reported low desire and arousal levels, women who engaged in regular sexual activity maintained their orgasms and satisfaction to some extent, 'corroborating the results of previous reports that state that not all sexual functions necessarily decline linearly with age,' they added. Association Does Not Equal Cause Wai Lee, MD, director of female pelvic medicine and reconstructive surgery at The Smith Institute for Urology, Northwell Health, in New York City, who was not involved with the study, told Medscape Medical News that while this study demonstrates that women engaging in recent sexual activity were less likely to have vulvar pain, dryness, and irritation, 'it is important for readers to not conclude that regular sexual activity led to improvements in GSM-related symptoms. A limitation of this study design is that we can't determine causality 2014 so we must consider that in these women, GSM-related symptoms made them less inclined to engage in regular sexual activity.' The authors pointed out possible alternative reasons for the association of regular sexual activity with fewer vulvar symptoms: 'First, women with good vulvar health or fewer vulvar symptoms are more likely to engage in regular sexual activity. Second, women who engage in regular sexual activity may have greater awareness of maintaining healthy vulvar conditions, and thus show greater care for vulvar health and experience less vulvar symptoms. Third, the physical, emotional, and mental effects of regular sexual activity may positively impact vulvar symptoms.' Lee said another interesting finding is that 'despite worsening female sexual function scores for women in their 50s, 60s, and 70s, only 2.9% of the study population received any hormonal therapy. This low rate is consistent with Japanese claims data from 2021 where fewer than 1% of women over the age of 60 received estrogen prescriptions. It is important for physicians and patients to be aware of the effectiveness and safety of vaginal estrogen for symptoms of GSM,' he said. Marcia Frellick is a Chicago-based healthcare journalist and a regular contributor to Medscape.

NORTHEAST GEORGIA MEDICAL'S LEVEL I TRAUMA CENTER ENROLLS 170TH PATIENT FOR PRYTIME MEDICAL'S INTERNATIONAL STUDY
NORTHEAST GEORGIA MEDICAL'S LEVEL I TRAUMA CENTER ENROLLS 170TH PATIENT FOR PRYTIME MEDICAL'S INTERNATIONAL STUDY

Yahoo

timean hour ago

  • Yahoo

NORTHEAST GEORGIA MEDICAL'S LEVEL I TRAUMA CENTER ENROLLS 170TH PATIENT FOR PRYTIME MEDICAL'S INTERNATIONAL STUDY

GAINESVILLE, Ga., June 27, 2025 /PRNewswire/ -- When patients arrive at Northeast Georgia Medical Center (NGMC) in Gainesville with traumatic injuries, they're not only receiving the most advanced, expert care – they're helping to improve health care for people around the world. NGMC recently enrolled the 170th patient in the Partial REBOA Outcomes Multicenter ProspecTive (PROMPT) study, which shares data to improve outcomes for those critically injured patients. A pREBOA-PRO™ catheter was used to control life-threatening bleeding in the 170th patient, who arrived at the hospital's Level I Trauma Center, following a blunt trauma injury. The intervention stabilized the patient, reduced the need for additional blood products and ultimately saved their life. The trauma team at NGMC Gainesville routinely performs partial aortic occlusion – restricting blood flow through the aorta, the largest artery in the body – using the pREBOA-PRO™ device. As part of the PROMPT study, the team shares data on the use of the device to help advance clinical care. "When someone experiences a traumatic injury, every second matters," said Michael Cormican, MD, trauma surgeon at NGMC Gainesville. "We are grateful for the opportunity to support research that can lead to better outcomes for trauma patients." The international PROMPT study, funded by the Department of Defense, aims to ultimately enroll 340 patients across nine selected centers. NGMC patients who meet the study criteria are automatically enrolled. To learn more about NGMC's trauma program, visit ABOUT NORTHEAST GEORGIA MEDICAL CENTER Since 1951, Northeast Georgia Medical Center (NGMC) has been on a mission of improving the health of our community in all we do. With hospitals located in Gainesville, Braselton, Winder and Dahlonega, the four NGMC campuses have a total of more than 750 beds and more than 1,200 medical staff members representing more than 60 specialties. NGMC is part of Northeast Georgia Health System, a non-profit that cares for more than one million people across more than 19 counties. Learn more at ABOUT PRYTIME MEDICAL, INC. The pREBOA-PRO™ device is a product of Prytime Medical Inc, a leading innovator and global provider of lifesaving endovascular occlusion products. Prytime was selected by the U.S. Army Medical Research and Development Command to receive nearly $6 million from the U.S. Department of Defense awarded through the Medical Technology Enterprise Consortium. ABOUT U.S. ARMY MEDICAL RESEARCH AND DEVELOPMENT COMMAND The U.S. Army Medical Research and Development Command is the Army's medical materiel developer, with responsibility for medical research, development, and acquisition. USAMRDC produces medical solutions for the battlefield with a focus on various areas of biomedical research, including military infectious diseases, combat casualty care, military operational medicine, medical chemical and biological defense. ABOUT MTEC The Medical Technology Enterprise Consortium is a 501(c)(3) biomedical technology consortium that is internationally-dispersed, collaborating with multiple government agencies under a 10-year renewable Other Transaction Agreement with the U.S. Army Medical Research and Development Command. The consortium focuses on the development of medical solutions that protect, treat, and optimize the health and performance of U.S. military personnel and civilians. To find out more about MTEC, visit Disclaimer: The views and conclusions contained herein are those of the authors and should not be interpreted as representing the official policies or endorsements, either expressed or implied, of U.S. Government. CONTACT: Courtney Randolph, Public Relations & MarketingNortheast Georgia Medical Center743 Spring Street NE, Gainesville, GA 30501770-219-3840 | View original content to download multimedia: SOURCE Prytime Medical

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