
Brexit is a killer
The paper, from Cancer Research UK (CRUK), details how the manner in which Britain left the European Union has done just that – stood in the way of the best possible cancer research and care for UK patients. Importing new cancer drugs now costs almost four times as much. For some trials, shipping costs have increased tenfold. Meanwhile, access to European funds and talent has dried up for UK-based cancer research labs.
Brexit is bad for your health, especially if you have cancer. That's the conclusion from a report titled 'Nothing Should Stand In The Way'.
It is a sad tale, as CRUK's Laura Williams says, of 'clinical trials delayed; drugs stuck in transit; samples destroyed; difficulties recruiting to permanent posts; waits for innovative bits of kit; uncertainty about project funding; the enforced use of expensive couriers; concerns about data-sharing; and frustration at fewer chances to offer shorter-term opportunities to EU-based scientists that push the barriers of research.'
This is a tragedy, and one that could have been prevented, twice. Experts (but who needs those, Lord Gove?) warned that leaving the EU would badly damage a UK medical research sector that was closely intertwined with its European peers and benefited from billions of pounds through pan-European schemes such as Horizon. As Alexander Wright, head of global policy and programmes at Cancer Research UK told me: 'Over 40% of our research involves working with countries inside the EU'.
Even after the referendum, the situation might have been saved. Professor Tamara Hervey, an expert on European health law from the City Law School explains: 'The best Brexit for health would have meant staying in the European economic area, the EEA'. With single market access, free movement for researchers and ongoing regulatory alignment there would have been far less trade friction and far less expense.
Instead, Boris Johnson, desperate and incompetent, threw the baby out with the bathwater. The result is that as this report says, 'Everything's harder'. Or to be more precise, as Alexander Wright says, 'Our evidence shows the challenges involved with Brexit have had a negative effect on people affected by cancer.'
Remember this when Brexiteers pump out the lie that Brexit enabled the UK to get a head start in the race to develop a Covid vaccine and has freed our researchers from Brussels bureaucracy.
Cancer Research UK has found three core areas of medical research that have been affected by the UK's exit from the EU. The UK's access to research funding and collaboration, the environment for clinical trials and medicines, including regulation and standards, and the lack of mobility of the research workforce.
Added tests and rules have meant, in just one case, wasting £22,000 on 'certifying' aspirin, one of the world's oldest, commonest, simplest and most widely used drugs. Shipping costs have increased and a more restrictive immigration system has discouraged top researchers from coming to the UK.
Cancer Research UK calculates that added visa charges alone are costing it £700,000 a year – for that you could train 17 new PhDs every year. The world-renowned Francis Crick Institute is spending another £500,000.
The total across all of the UK's universities and medical research bodies is impossible to measure, but the damage must be immense and not just because of the cost; attracting the brightest and the best foreign researchers when you advertise to the world that they are not welcome is increasingly difficult.
The solutions to this disgusting act of self-harm are within our grasp. Cancer Research UK's report calls for four steps, which should be part of the government's Brexit reset:
1) Avoiding duplication to expedite clinical trials with a UK-EU mutual recognition agreement that includes the inspection of medicines manufacturing sites, batch release and testing. (It is insane that this was not part of the original Trade and Co-operation Agreement).
2) Supporting research programmes, with the UK guaranteeing to stay in the Horizon+ research fund as well as joining health-related EU-funded programmes. (Another no-brainer).
3) Reducing trade friction to support the logistics industry and to meet cross-border regulatory requirements more effectively. (This would ensure scientists can access items needed for research in a 'timely manner', something they cannot do at the moment).
4) Ensuring data flows freely, with alignment on data protection. (If we lose the ability to share data with the EU, all bets are off).
On top of that, the UK needs to get real about immigration. It is idiotic that a Reform-driven attempt to bring down overall immigration numbers at all costs means we are sending top scientists and researchers elsewhere.
Labour now has a chance to undo some of the damage that Brexit has done to the health of the nation and its fight against cancer. No doubt Nigel Farage and his ilk will bleat about Brexit betrayal and 're-entering the EU by the back door'. But why not ask cancer patients what they think?
Many were surveyed for this report and one says, quite clearly: 'I don't care about geographical boundaries in Europe… I just care about scientists being able to work together.'
Successive governments have been run by cowards, hypocrites, liars and uncaring populists. As a result, cancer patients have died unnecessarily.
This government needs to be different and now it has a chance. It needs to be able to boast that it let nothing, and no one stand in its way of improving the health of the people – not even Brexit.
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A TEENAGER with just days to live was forced to evade security guards as he fled through a hospital, before jumping into a getaway car - just so he could die at home. Teddie Marks, 18, was wheelchair-bound, with his legs swelled up from cancer but was able to show off his athletic prowess one last time during the comedic mad dash. 15 15 Mum Jay - who is campaigning for more access to grief counselling for bereaved families - explained how everything had been put in place to allow her son to receive palliative care at the family's home in Braintree, Essex. However, at the last minute, as they left University College London Hospital they were confusingly told Teddie had to stay, against his wishes. Security was called and they were to be blocked from leaving - but the adventurous young man was having none of it. Mum-of-three Jay, 42, said: 'He's 18, they got all his paperwork ready, they gave us all his medication, they said to us he was going to be blue-lighted because from UCLH to Braintree it's a bit of a drive. 'Then they said they were going to get a normal ambulance but I would have to sign responsibility for him, which was fine… then we're told that's been cancelled.' Jay continued: 'In the end, the palliative care nurse fitted him up with a 24-hour pump so that we could get him home and hook him up to the machine.' 'That makes no sense' The family then got into a lift on the 15th floor with the palliative care nurse, alongside a 'bag of medication' and all of Teddie's things from weeks of being in and out of hospital - when they hit another speed bump. 'On the way down she had a call and she was like 'right okay', then she said 'they've called security',' explained Jay. 'We were like what? That makes no sense because she was with us and he'd been discharged. 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'There were days after he got diagnosed where I couldn't get up, couldn't function and he would come in and say to me, 'up you get, Mum'. 'He had such strong faith, he was quite religious - even when Teddie was dying, he had all the family here and was cuddling his girl cousins and he said 'don't cry for me, I know where I'm going.' 'That boy was absolutely something else.' Teddie had first been getting pain in August 2021, and by November he was 'in agony' and 'was up three or four nights straight', said Jay, who took him to A&E multiple times. However, they were sent away again and again and told to take over the counter painkillers. 15 15 15 Jay said Teddie was 'very robust', he was captain of Chelmsford City EJA, but even his pain threshold was being pushed to the limit. Eventually, the family paid for a private doctor and MRI scan, then an operation which found abscesses. The doctor sent off for a biopsy at UCLH and then a week later a phone call confirmed the worst. 'It was during lockdown so everything was a bit dodgy,' said Jay. 'I got told over the phone that Teddie had cancer and was given a treatment plan.' During his treatment Teddie refused to stop, and passed his GCSE Maths and English - the latter to an A* standard - while undergoing chemotherapy. And even passed his driving test. But while his memory lives on, Jay is still as heartbroken now as she was a year ago. 'You can't prepare yourself' 'You know it's coming but you can't prepare yourself,' she said of her son's death. 'I can't put it into words, it's coming up to a year but I'm still devastated every day. Me and his dad, brother and sister, and his nan. There's not a day that goes by that we don't cry.' She added, of her children: 'They'll always be my babies.' Taking up the baton left by Teddie, his mum is now campaigning herself to raise awareness about the wait times families must endure to receive grief counselling. After filling out a form she was told by the hospice the waiting list is nine to 12 months. Jay said: 'Last week I had an email from Farleigh saying they've got this session thing, it's not one to one counselling, there's other people there. 'There's 10 spaces and to get back to them if I wanted a place. 'I saw the email, 40 minutes later, by the time I got back they'd emailed me saying all the spaces had gone.' Jay said she had another email from the hospice asking since it was a 'considerable amount of time since I put my application in for counselling, have my circumstances changed?' 'They did get an email back saying 'my circumstances haven't changed, unfortunately my son hasn't risen from the dead, I'm still grieving and still in need of support'. She continued: 'It's not going to change. I just can't get my head round that it can take this long to sort… any grief is bad, but when you've lost your child, I can't explain it. It's unexplainable.' Jay went on to say: 'I said to my doctor, 'they're lucky I'm not suicidal'. If he was my only child maybe I would be suicidal but I have two other children who I need to look after. It's not going to change. I just can't get my head round that it can take this long to sort… any grief is bad, but when you've lost your child, I can't explain it. It's unexplainable. Jay MarksMum of Teddie 'I carry the family's grief. My daughter, her and Teddie were 10 months apart - she's got ASD, so she's on the spectrum, and Teddie was her comfort blanket. 'She struggles really badly. Then my eldest son, who's 23 now, he will just struggle silently. 'I feel like I have to carry on because I don't want them to see my grieving and think they've got to carry my grief.' She added: 'I do feel passionately that there are parents going through this and you have to wait a year. We can't go privately. 'My husband sold his company when Teddie got diagnosed because we were backwards and forwards to UCLH. He's a caretaker now and I'm a support assistant in a school.' Jay said: 'I've lost people but nothing compares to losing your child, especially when you've watched your child go through what he did for two and a half years. 'You get a lot of flashbacks, I'm sure it's PTSD. You're replaying stuff continuously. It's traumatising when you hear your baby, though he was 18, in the night screaming in agony. 'It's traumatising to remember the running from the hospital, the taking him to Germany when he was in agony.' She described Teddie as 'my best mate', adding: 'I know parents say that about their kids but he was like my right arm. 'He was always with me, we were always together. We had the same sense of humour. We were always laughing. 'No one could get you in tears of laughter like Teddie could. For me, I'm still completely lost.' Michelle Kabia, Interim Chief Executive at Farleigh Hospice, said: 'Ensuring that the families of our patients receive the best quality support throughout their loved ones illness and afterwards is our absolute priority. "Our bereavement support services are offered free of charge to anyone within mid Essex. "As a result they are in incredibly high demand, as reflected in our current waiting lists, which we are actively working to reduce. 'We regularly stay in touch with people on the waiting list to check how they are, offer interim bereavement support options while they wait for one to one counselling, and check whether their circumstances have changed, as people may have accessed alternative support or moved out of the area. "We welcome all feedback and are continually looking to improve our services. We would be very happy to have a further conversation with the family.' The Sun has also approached University College Hospitals NHS Foundation Trust for comment