
Embracing Autism this April
April is Autism Awareness Month – a time used to raise awareness, understand, and accept autistic individuals throughout the world.
Autism Spectrum Disorder (ASD), also known as neurodivergency, is a developmental disability caused by differences in the brain, and this day is observed annually on April 2.
Also read: Celebrating the unique brilliance of autistic children
The Roodepoort Record had an opportunity to sit down with Inspirando Academy (an autism centre) principal Alison Tumbev, who shared a wealth of knowledge from her journey as a neurodivergent individual and as someone who owns an academy dealing with other neurodivergent individuals daily.
Growing up in Roodepoort in the 1970s, Alison says there was little information and limited understanding of autism at the time.
'The majority of the primary schools had a remedial class for learners who had cognitive, physical, and emotional challenges. I was placed in a neurotypical class from Grade One until Grade Seven and continued my high school education at the National School of the Arts, where my performing arts were ballet, contemporary dance, and Spanish dance.
'The challenges that I felt to be the most overwhelming as a child and teenager were separation anxiety, talking to unknown people, and being unable to express myself using words. My parents enrolled me at a ballet studio as a child to build my confidence.
'The joy that I found in dancing became the hidden language of my soul. I felt free and developed the life skills that have assisted me throughout my life. Since matriculating, I have always been passionate about teaching and assisting children with autism,' she said.
With a core background in education and dance, Alison explains that awareness about autism has grown significantly, with 1 in 100 children being diagnosed. She says Autism South Africa plays a vital role in providing parental assistance and training courses, as well as organising events to raise awareness about autism.
'Although autism can be diagnosed at any age, it is described as a 'developmental disorder' because symptoms generally appear in the first two years of life. Autism is not an illness that can be cured but a neurological disorder that requires lifetime management.
'Each neurodiverse child is an individual with special needs that are entirely different from any other neurodiverse child. There may be a few similarities, such as delayed speech, lack of eye contact, stimming, lack of socialisation skills, aggressive behaviour and a restricted diet due to food textures, to name a few,' she added.
Alison's advice to parents with autistic children is to make informed choices about their child's treatment, as not all children respond to the same treatment.
'They should use natural supplements, a good autism center program, Primal Integration Therapy, and be prepared for social outings to help their child grow and develop.'
Lastly, she said, 'I would like to commend all parents who have a neurodiverse child. Know that you are doing your best, even when you are exhausted, as autism requires 24/7 involvement from parents, grandparents, caregivers, and teachers. You are highly praised!'
At Caxton, we employ humans to generate daily fresh news, not AI intervention. Happy reading!
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eNCA
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- eNCA
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The Citizen
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The Parktown community came together to raise awareness about neurodevelopmental disorders
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The Star
29-04-2025
- The Star
The Magic of Love: Raising a Child with Autism
Jennifer Mdluli | Published 4 hours ago With support, resources, and community understanding, children with autism can lead happy, meaningful lives, and their families can feel empowered to advocate for change, says the writer. Image: File April is Autism Awareness Month, a time dedicated to raising awareness about autism, promoting understanding, and advocating for the inclusion of individuals on the spectrum. Autism is a neurodevelopmental condition that affects an individual's ability to communicate, interact socially, and engage in typical behaviours. According to the World Health Organization, about 1 in 100 children worldwide are affected by autism, but local studies in South Africa show a prevalence rate of between 0.08% to 2%. It is a spectrum disorder, meaning its symptoms can vary widely, from mild to severe, and each child with autism experiences it uniquely. 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This is particularly evident in South Africa, where autism is still an under-discussed condition, especially among black communities. Moreover, the financial burden of raising a child with autism can be overwhelming, with specialised care and education often beyond the reach of many. The Importance of Early Diagnosis and Intervention of most critical aspects of autism are the importance of early diagnosis and intervention. According to the World Health Organization, early identification of autism, especially within the first two years of a child's life, can significantly improve their development and overall well-being. However, this is not always easy to achieve, especially when there is a shortage of trained professionals to diagnose autism. In a media statement, Minister Dlamini emphasises that the first 1 000 days of a child's life are crucial for cognitive and emotional development. 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These include the lack of specialised training for teachers in autism spectrum disorders (ASD) and the lack of tailored learning approaches for children with autism. For many parents, the educational system presents another significant challenge, and schools follow a one-size-fits-all curriculum. A child who needs an individualised learning plan tailored to their specific needs may find this challenging. Nompumelelo shares, ''Finding the right school for my child has been one of the hardest things I have done. Many autism schools are not financially accessible. ''The fees can go beyond R15 000 a month, which is far too much for most families, including mine. It is heartbreaking because I want the best for my child, but these financial barriers only add to the emotional and psychological stress we are already carrying. It is not just about finding a school, it is about ensuring my child has the best environment.'' 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Her journey has cultivated her commitment to creating spaces where children, particularly those from underprivileged communities, can receive the support they need. Nompumelelo's organisation, Ausome Heroes, runs various programmes, including Autism Awareness Month, to raise awareness and provide a supportive environment for children on the spectrum. Programmes such as holiday activities, aftercare, awareness walks, talks, and dialogues in churches and local schools in Soweto have partnered with Jaggas Cycles; cycling for change in support of autism, and autism awareness walk are designed to help children and their families feel seen, understood, and supported. The emotional and physical toll of raising a child with autism is undeniable. Parents are urged to seek support groups, professional counselling, and peer support to avoid burnout. Organisations like Autism South Africa and the Association for Autism offer parent support networks and workshops to address caregiver wellness. With support, resources, and community understanding, children with autism can lead happy, meaningful lives, and their families can feel empowered to advocate for change. * Jennifer Mdluli is a passionate radio broadcaster, Head Coach and Founder of Emerald Gymnastics Club, and facilitator dedicated to youth and community development.