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Big Freeze shines a light on MND – and the Aussie tech helping sufferers take back control
Big Freeze shines a light on MND – and the Aussie tech helping sufferers take back control

News.com.au

time3 hours ago

  • Health
  • News.com.au

Big Freeze shines a light on MND – and the Aussie tech helping sufferers take back control

MND strips voice and movement from thousands Big Freeze and Neale Daniher lead the national fight Control Bionics tech gives the silent a voice There's a reason it's called the Beast. Motor Neurone Disease (MND) creeps in quietly and slowly shuts the body down, one function at a time. It's a progressive neurological disease that attacks the motor neurons, the nerve cells that control movement. Over time, it robs people of their ability to move, speak, swallow, and eventually breathe. The average life expectancy after diagnosis is just 27 months. It's brutal with no known cure, but it's also brought out some of the most inspiring acts of human resilience. Big Freeze bringing hope to many If you've watched AFL on the King's (or Queen's) Birthday in the last decade, you've probably seen celebrities sliding into a pool of ice. That's the Big Freeze, FightMND's flagship event founded by former AFL great Neale Daniher, who was diagnosed in 2013 and is still fighting more than a decade later. Daniher, now 2025 Australian of the Year, has helped raise over $100 million for MND research. And the Big Freeze is back again this Monday, June 9, at the Dees vs Pies match, with the MCG expected to turn into a sea of blue to raise funds and awareness. But behind the icy stunts and the footy clash lies a deeper message: we can't give up. The CEO of MND Australia, Clare Sullivan, strongly believes it's important for people with MND to participate in activities of importance to them. 'For example, being able to tell their grandkids they love them, or being able to go out for a coffee with friends,' Sullivan told Stockhead. She shared a story of a Queensland man in hospital who couldn't speak or press a button to call the nurse. 'This person used his AAC (Augmentative and Alternative Communication) device to call his wife at home to communicate with her, requesting she call the hospital and ask them to provide him an extra blanket as he was cold. 'You can see from this how essential it is that people have the ability to communicate their needs.' Control Bionics helps the unheard be heard And this is where technology such as that offered by Aussie medtech firm Control Bionics (ASX:CBL) could play a crucial role. CBL isn't throwing people down ice slides, but what it's building is potentially life-changing. The company's NeuroNode tech uses EMG (electromyography) to detect the faint electrical signals the body sends to muscles, even if those muscles don't visibly move. These signals are then translated into digital commands. Think of it like a wearable mouse click powered by thought. This kind of assistive technology, Sullivan said, helps people with MND to be independent in their communication, which is essential in maintaining quality of life. 'The equipment is highly adaptable and flexible, which is essential because as a person deteriorates, it can be easily modified," she said. 'The devices are compatible with their 'voices' via voicebanking, which then enables people with MND to communicate in their 'own voice' further aiding in quality of life.' Sullivan also said it's important that access to this kind of technology happens early, because becoming familiar with how they work takes time. 'Practice is essential, and unfortunately we see is that people don't access it until far too late," she said. 'This means that often people give up because they are fighting against fatigue, and other symptoms that make it too hard.' CBL goes beyond voice Beyond NeuroNode, Control Bionics has added a new tool to its kit: NeuroStrip. This is a paper-thin wearable that reads both muscle signals (EMG) and movement data. It's built to be extra sensitive and comfortable, making it easier for people to use over long periods. While it helps with communication, NeuroStrip's potential goes further. CBL said it could be used in rehab, managing movement disorders, or even sports science, where tracking small muscle responses matters. Control Bionics is also stepping into mobility. Its new DROVE module, co-developed with Deakin University, brings smart navigation to powered wheelchairs. DROVE picks up muscle signals and translates them into movement, so a simple intention like 'go left' becomes action. For people with limited mobility, it's a big step towards more freedom without needing complex setups or invasive tech. But Control Bionics isn't alone in the fight. Adelaide-based Link Assistive, for instance, provides eye gaze technology designed to keep communication flowing even when movement becomes severely limited. Zyteq, out of Melbourne, offers a suite of voice and switch-based systems, helping people with MND stay connected using highly customised setups. Costly tech, crucial time Control Bionics is an approved NDIS provider, which means eligible Australians can access funding for its tech like NeuroNode and NeuroStrip. It's also worked closely with MND Associations to place devices into state equipment libraries, helping people get access earlier – often at low or no cost. But it's not always smooth sailing. 'This technology is expensive, and often there are a lot of hoops to get NDIS funding for this,' said Sullivan. Applications usually need detailed assessments from speech pathologists and occupational therapists, which can slow things down. And for those over 65, who aren't covered by the NDIS, the cost can sometimes be out of reach. MND Associations, Sullivan said, fundraise to make this tech available to those who need it most. 'The MND Associations are heavily reliant on community donations and generosity to purchase this equipment for hire, and often there are waiting lists as demand outstrips supply.' While technology like NeuroNode helps restore communication and independence, tackling neurodegenerative disease at their root will also require medical breakthroughs. That's where ASX biotechs come in. Neurizon Therapeutics (ASX:NUZ), for instance, is working on a promising drug for ALS. Neurotech (ASX:NTI) is developing cannabinoid-based therapies for brain disorders. And Neuren Pharmaceuticals (ASX:NEU) has already landed FDA approval for Rett syndrome.

Magpies ponder selection posers for King's Birthday
Magpies ponder selection posers for King's Birthday

The Advertiser

time13 hours ago

  • General
  • The Advertiser

Magpies ponder selection posers for King's Birthday

Dan McStay could return for Collingwood and Bobby Hill is a health watch ahead of the AFL King's Birthday blockbuster against Melbourne. The Magpies will have at least two changes, with Lachie Schultz out for five to six weeks with a hamstring injury and Pat Lipinski in concussion protocols. Hill, the 2023 Norm Smith Medallist, was a notable absentee from training on Wednesday because of illness in his family. McStay is close to returning from the knee injury he suffered in the Anzac Day win over Essendon. Coach Craig McRae is hopeful Hill will play his 100th game, against the Demons. "At this stage, barring him getting sick, that will be the case," McRae said. "He's a little infectious guy that we all love very much - he's a bit of a prankster, too. "We love how electrifying he can be. He can really give the X-factor to our team." Collingwood will have two more training sessions ahead of Monday and McRae said McStay was close to an immediate AFL recall. "There's a big chance Dan will be available. We're not quite ready to announce that - he still has a little bit to go," McRae said. "His magnet is getting really close to being considered." Collingwood will also consider a second ruck to back up Darcy Cameron, given the form of Demons captain Max Gawn. Despite Cameron also having a big season, McRae called Gawn "the best ruckman in the competition. "I have huge respect for Max Gawn ... I still love Darcy, more," McRae said. Sitting on top of the ladder, Collingwood will start favourites against Melbourne. But despite inaccuracy costing them dearly in the loss to St Kilda last weekend, the Demons have rediscovered their mojo and are a massive threat. "The form line, it stacks up. They have tinkered with their game a bit, they're moving the ball a bit faster - they're in good form," McRae said. It will be a massive game for Demons start Christian Petracca, who suffered serious internal injuries in the corresponding game a year ago. "He's a massive threat ... we'll treat him with as much respect as we should," McRae said. McRae is rapt with his own team's form and said his players' ability to lead themselves stacks up against when he was part of Brisbane's 2001-03 three-peat under coach Leigh Matthews. He said sometimes the Collingwood coaches need to stay out of the way of the players. "I did learn that from Leigh - he used to call it the snowball, when it's coming down the hill ... get out of the way," he said. Monday will also be the Big Freeze fundraiser for the FightMND charity, with former Melbourne coach Neale Daniher addressing the Magpies on Wednesday. Daniher, diagnosed with MND more than a decade ago, cannot speak and used eye-recognition technology for his speech. McRae's brother-in-law Pat also has the disease and was another VIP guest at Collingwood on Wednesday. "This one is pretty special - close to home. Our players are super-excited for it, you see them today warming up - all knowing it's a big day, they all have the (Big Freeze) beanies on at training," McRae said. "We want to play the game, not the occasion, which we talk about a lot - but it's a big occasion." Dan McStay could return for Collingwood and Bobby Hill is a health watch ahead of the AFL King's Birthday blockbuster against Melbourne. The Magpies will have at least two changes, with Lachie Schultz out for five to six weeks with a hamstring injury and Pat Lipinski in concussion protocols. Hill, the 2023 Norm Smith Medallist, was a notable absentee from training on Wednesday because of illness in his family. McStay is close to returning from the knee injury he suffered in the Anzac Day win over Essendon. Coach Craig McRae is hopeful Hill will play his 100th game, against the Demons. "At this stage, barring him getting sick, that will be the case," McRae said. "He's a little infectious guy that we all love very much - he's a bit of a prankster, too. "We love how electrifying he can be. He can really give the X-factor to our team." Collingwood will have two more training sessions ahead of Monday and McRae said McStay was close to an immediate AFL recall. "There's a big chance Dan will be available. We're not quite ready to announce that - he still has a little bit to go," McRae said. "His magnet is getting really close to being considered." Collingwood will also consider a second ruck to back up Darcy Cameron, given the form of Demons captain Max Gawn. Despite Cameron also having a big season, McRae called Gawn "the best ruckman in the competition. "I have huge respect for Max Gawn ... I still love Darcy, more," McRae said. Sitting on top of the ladder, Collingwood will start favourites against Melbourne. But despite inaccuracy costing them dearly in the loss to St Kilda last weekend, the Demons have rediscovered their mojo and are a massive threat. "The form line, it stacks up. They have tinkered with their game a bit, they're moving the ball a bit faster - they're in good form," McRae said. It will be a massive game for Demons start Christian Petracca, who suffered serious internal injuries in the corresponding game a year ago. "He's a massive threat ... we'll treat him with as much respect as we should," McRae said. McRae is rapt with his own team's form and said his players' ability to lead themselves stacks up against when he was part of Brisbane's 2001-03 three-peat under coach Leigh Matthews. He said sometimes the Collingwood coaches need to stay out of the way of the players. "I did learn that from Leigh - he used to call it the snowball, when it's coming down the hill ... get out of the way," he said. Monday will also be the Big Freeze fundraiser for the FightMND charity, with former Melbourne coach Neale Daniher addressing the Magpies on Wednesday. Daniher, diagnosed with MND more than a decade ago, cannot speak and used eye-recognition technology for his speech. McRae's brother-in-law Pat also has the disease and was another VIP guest at Collingwood on Wednesday. "This one is pretty special - close to home. Our players are super-excited for it, you see them today warming up - all knowing it's a big day, they all have the (Big Freeze) beanies on at training," McRae said. "We want to play the game, not the occasion, which we talk about a lot - but it's a big occasion." Dan McStay could return for Collingwood and Bobby Hill is a health watch ahead of the AFL King's Birthday blockbuster against Melbourne. The Magpies will have at least two changes, with Lachie Schultz out for five to six weeks with a hamstring injury and Pat Lipinski in concussion protocols. Hill, the 2023 Norm Smith Medallist, was a notable absentee from training on Wednesday because of illness in his family. McStay is close to returning from the knee injury he suffered in the Anzac Day win over Essendon. Coach Craig McRae is hopeful Hill will play his 100th game, against the Demons. "At this stage, barring him getting sick, that will be the case," McRae said. "He's a little infectious guy that we all love very much - he's a bit of a prankster, too. "We love how electrifying he can be. He can really give the X-factor to our team." Collingwood will have two more training sessions ahead of Monday and McRae said McStay was close to an immediate AFL recall. "There's a big chance Dan will be available. We're not quite ready to announce that - he still has a little bit to go," McRae said. "His magnet is getting really close to being considered." Collingwood will also consider a second ruck to back up Darcy Cameron, given the form of Demons captain Max Gawn. Despite Cameron also having a big season, McRae called Gawn "the best ruckman in the competition. "I have huge respect for Max Gawn ... I still love Darcy, more," McRae said. Sitting on top of the ladder, Collingwood will start favourites against Melbourne. But despite inaccuracy costing them dearly in the loss to St Kilda last weekend, the Demons have rediscovered their mojo and are a massive threat. "The form line, it stacks up. They have tinkered with their game a bit, they're moving the ball a bit faster - they're in good form," McRae said. It will be a massive game for Demons start Christian Petracca, who suffered serious internal injuries in the corresponding game a year ago. "He's a massive threat ... we'll treat him with as much respect as we should," McRae said. McRae is rapt with his own team's form and said his players' ability to lead themselves stacks up against when he was part of Brisbane's 2001-03 three-peat under coach Leigh Matthews. He said sometimes the Collingwood coaches need to stay out of the way of the players. "I did learn that from Leigh - he used to call it the snowball, when it's coming down the hill ... get out of the way," he said. Monday will also be the Big Freeze fundraiser for the FightMND charity, with former Melbourne coach Neale Daniher addressing the Magpies on Wednesday. Daniher, diagnosed with MND more than a decade ago, cannot speak and used eye-recognition technology for his speech. McRae's brother-in-law Pat also has the disease and was another VIP guest at Collingwood on Wednesday. "This one is pretty special - close to home. Our players are super-excited for it, you see them today warming up - all knowing it's a big day, they all have the (Big Freeze) beanies on at training," McRae said. "We want to play the game, not the occasion, which we talk about a lot - but it's a big occasion."

Essendon great Tim Watson says Neale Daniher had to overcome his headstrong attitude in MND fight
Essendon great Tim Watson says Neale Daniher had to overcome his headstrong attitude in MND fight

West Australian

time14 hours ago

  • Entertainment
  • West Australian

Essendon great Tim Watson says Neale Daniher had to overcome his headstrong attitude in MND fight

Neale Daniher has had to conquer a headstrong attitude to fight his brave battle against motor neurone disease, says former teammate and close friend Tim Watson. AFL great Watson says the honesty with which his former Essendon teammate has spoken about his health plight — and his resolve not to let it dictate his life —is why the Big Freeze has been such a success. The annual fundraiser, centred around the King's Birthday clash between a side Daniher coached to a grand final, Melbourne, and one of its fierce rivals, Collingwood, has raised more than $115 million in just over a decade. Heading into the 11th Big Freeze on Monday, Watson revealed why Daniher, the 2025 Australian of the Year, had become such an icon. 'I think because of his authenticity. I think people saw that this was something that was real —this person wasn't doing anything for himself. He was doing something for a cause,' Watson told The Nightly. 'I think that resonated with people. In a world where there's so much manufacturing of image, I think people could see that this bloke was 100 per cent authentic and real. And he did it with humour as well — he was self-deprecating. 'The way that he framed it as 'slaying the beast', the way he spoke just appealed to people, and they all just wanted to jump on board the cause.' Watson said the Bombers' youngest-ever captain (1982) never shied away from the challenges and evolved as a person during his MND fight. 'He was very headstrong,' Watson said. 'He had a lot of setbacks in his own career. There's something about him. There's this different Neale that has appeared with this. He's been a remarkable human being. I think it's just astounding how he's conducted himself.' 'I think it's about the positivity, about the way that he's spun it,' Watson said. After being diagnosed in 2013 with the incurable disease, which degenerates motor neurons in the brain and spinal cord robbing the sufferer of the ability to move and talk, Daniher has been determined to find a cure. 'Even yesterday, in his address to Melbourne, it wasn't about 'woe is me' or dwelling on the negative, but saying, 'what's something positive I can do?' No matter how miserable it might look, how can I spin that around? 'He's definitely done that and demonstrated that to everybody — that no matter what the diagnosis might be and how poorly he felt at times … I think it did take him a while when he was first diagnosed to find some sort of way of dealing with it internally. And then the way that he's been able to do that publicly — I think he's just been like a beacon of optimism and inspiration for so many people.' Daniher's playing career was derailed by injuries that saw him miss out on playing in Essendon's flag-winning teams of 1984 and 1985. He did finally win a flag with the Bombers as an assistant coach in 1993. He features on tonight's episode of Unfiltered on Channel 7 , where he shares a rare insight into the lowest point of his career and the personal news that got him 'out of his funk.' The interview was conducted over several weeks, with Hamish McLachlan and Daniher exchanging text messages. Daniher responded using his eye-gaze machine, which makes his voice sound like it used to. Daniher played 66 games in three years for Essendon between 1979 and 1981, but injuries restricted him to just 16 more before he retired. Essendon were the reigning premiers, and Daniher had dreams of lifting the premiership cup that in 1985 when disaster struck in mid-week game. 'Footy gives you great highs and tragic lows, that's for sure. The lowest I felt as a player would have been in 1985,' Daniher said. 'I was making another comeback after two ACL knee injuries and the Bombers were the reigning premiers. I had just made my way back into the team. 'We had a mid-season competition involving interstate teams. I was asked to back up and play in Adelaide. In retrospect, that was a dumb idea. I wasn't ready to play three games in seven days. 'During the second quarter, I got caught in a pack, landed awkwardly, and did my knee again. This time it was my good knee. I was lying on a cold floor with ice on my knee in foreign rooms, on my own, as the sounds of the game continued without me. 'I knew my playing career was done at the elite level, and my crack at September — and maybe a flag — was over.' Daniher added that the impending birth of his first child helped him get out of the injury heartbreak. 'What broke me out of the funk was that I had married Jan earlier that year. Not much later, we received news that we would have our first child, Lauren. That definitely helped me realise that life was more than the number on my back.' Watson said being able to be hear his own voice would be terrific for his mate. 'I think it must be really great for him because of the frustration when you can't speak. For his words to be delivered in the way they can be — it must be a great thing for him. It might just alleviate some of that frustration,' he said. Watson was one of the first sliders to plunge into the icy waters, which has now become a rite of passage for sporting figures and celebrities during the Big Freeze. He said he didn't have any great words of advice for the 2025 sliders announced so far: Peter Daicos, Matt Shirvington, Ariarne Titmus, Mark Taylor, Matt Nable, and Liz Watson. 'Nothing really prepares people for how cold it feels when you first land,' he said. 'It awakens every sense, but it's over in the blink of an eye too. It's a really great experience.' Melbourne will be up against it in upsetting the red-hot Pies, but Watson said the Demons, coming off a loss to St Kilda, would 'rise to the occasion.' 'It's a big game. It doesn't really matter where they are on the ladder,' Watson said. 'There's a lot of tradition and rivalry associated with this game, and the fact that it means so much beyond the football field as well. It's celebrating something bigger than football. 'Melbourne will be trying to do the best they possibly can — not just for Neale, but for the game itself.' Unfiltered with Hamish McLachlan featuring football legend and FIGHTMND Founder, Neale Daniher 9.30pm straight after The Front Bar on Seven and 7plus. COVERAGE OF THE BIG FREEZE STARTS 2PM MONDAY AEDT ON 7 AND 7PLUS TO DONATE BY BUYING A DIGITAL BIG FREEZE BEANIE CLICK HERE

Essendon great Tim Watson says Neale Daniher had to overcome his headstrong attitude in MND fight
Essendon great Tim Watson says Neale Daniher had to overcome his headstrong attitude in MND fight

7NEWS

time14 hours ago

  • Entertainment
  • 7NEWS

Essendon great Tim Watson says Neale Daniher had to overcome his headstrong attitude in MND fight

Neale Daniher has had to conquer a headstrong attitude to fight his brave battle against motor neurone disease, says former teammate and close friend Tim Watson. AFL great Watson says the honesty with which his former Essendon teammate has spoken about his health plight — and his resolve not to let it dictate his life —is why the Big Freeze has been such a success. The annual fundraiser, centred around the King's Birthday clash between a side Daniher coached to a grand final, Melbourne, and one of its fierce rivals, Collingwood, has raised more than $115 million in just over a decade. Heading into the 11th Big Freeze on Monday, Watson revealed why Daniher, the 2025 Australian of the Year, had become such an icon. 'I think because of his authenticity. I think people saw that this was something that was real —this person wasn't doing anything for himself. He was doing something for a cause,' Watson told The Nightly. 'I think that resonated with people. In a world where there's so much manufacturing of image, I think people could see that this bloke was 100 per cent authentic and real. And he did it with humour as well — he was self-deprecating. 'The way that he framed it as 'slaying the beast', the way he spoke just appealed to people, and they all just wanted to jump on board the cause.' Watson said the Bombers' youngest-ever captain (1982) never shied away from the challenges and evolved as a person during his MND fight. 'He was very headstrong,' Watson said. 'He had a lot of setbacks in his own career. There's something about him. There's this different Neale that has appeared with this. He's been a remarkable human being. I think it's just astounding how he's conducted himself.' 'I think it's about the positivity, about the way that he's spun it,' Watson said. After being diagnosed in 2013 with the incurable disease, which degenerates motor neurons in the brain and spinal cord robbing the sufferer of the ability to move and talk, Daniher has been determined to find a cure. 'Even yesterday, in his address to Melbourne, it wasn't about 'woe is me' or dwelling on the negative, but saying, 'what's something positive I can do?' No matter how miserable it might look, how can I spin that around? 'He's definitely done that and demonstrated that to everybody — that no matter what the diagnosis might be and how poorly he felt at times … I think it did take him a while when he was first diagnosed to find some sort of way of dealing with it internally. And then the way that he's been able to do that publicly — I think he's just been like a beacon of optimism and inspiration for so many people.' Daniher's playing career was derailed by injuries that saw him miss out on playing in Essendon's flag-winning teams of 1984 and 1985. He did finally win a flag with the Bombers as an assistant coach in 1993. He features on tonight's episode of Unfiltered on Channel 7 , where he shares a rare insight into the lowest point of his career and the personal news that got him 'out of his funk.' The interview was conducted over several weeks, with Hamish McLachlan and Daniher exchanging text messages. Daniher responded using his eye-gaze machine, which makes his voice sound like it used to. Daniher played 66 games in three years for Essendon between 1979 and 1981, but injuries restricted him to just 16 more before he retired. Essendon were the reigning premiers, and Daniher had dreams of lifting the premiership cup that in 1985 when disaster struck in mid-week game. 'Footy gives you great highs and tragic lows, that's for sure. The lowest I felt as a player would have been in 1985,' Daniher said. 'I was making another comeback after two ACL knee injuries and the Bombers were the reigning premiers. I had just made my way back into the team. 'We had a mid-season competition involving interstate teams. I was asked to back up and play in Adelaide. In retrospect, that was a dumb idea. I wasn't ready to play three games in seven days. 'During the second quarter, I got caught in a pack, landed awkwardly, and did my knee again. This time it was my good knee. I was lying on a cold floor with ice on my knee in foreign rooms, on my own, as the sounds of the game continued without me. 'I knew my playing career was done at the elite level, and my crack at September — and maybe a flag — was over.' Daniher added that the impending birth of his first child helped him get out of the injury heartbreak. 'What broke me out of the funk was that I had married Jan earlier that year. Not much later, we received news that we would have our first child, Lauren. That definitely helped me realise that life was more than the number on my back.' Watson said being able to be hear his own voice would be terrific for his mate. 'I think it must be really great for him because of the frustration when you can't speak. For his words to be delivered in the way they can be — it must be a great thing for him. It might just alleviate some of that frustration,' he said. Watson was one of the first sliders to plunge into the icy waters, which has now become a rite of passage for sporting figures and celebrities during the Big Freeze. He said he didn't have any great words of advice for the 2025 sliders announced so far: Peter Daicos, Matt Shirvington, Ariarne Titmus, Mark Taylor, Matt Nable, and Liz Watson. 'Nothing really prepares people for how cold it feels when you first land,' he said. 'It awakens every sense, but it's over in the blink of an eye too. It's a really great experience.' Melbourne will be up against it in upsetting the red-hot Pies, but Watson said the Demons, coming off a loss to St Kilda, would 'rise to the occasion.' 'It's a big game. It doesn't really matter where they are on the ladder,' Watson said. 'There's a lot of tradition and rivalry associated with this game, and the fact that it means so much beyond the football field as well. It's celebrating something bigger than football. 'Melbourne will be trying to do the best they possibly can — not just for Neale, but for the game itself.'

Watson reveals how MND fight has changed Daniher
Watson reveals how MND fight has changed Daniher

Perth Now

time14 hours ago

  • Entertainment
  • Perth Now

Watson reveals how MND fight has changed Daniher

Neale Daniher has had to conquer a headstrong attitude to fight his brave battle against motor neurone disease, says former teammate and close friend Tim Watson. AFL great Watson says the honesty with which his former Essendon teammate has spoken about his health plight — and his resolve not to let it dictate his life —is why the Big Freeze has been such a success. The annual fundraiser, centred around the King's Birthday clash between a side Daniher coached to a grand final, Melbourne, and one of its fierce rivals, Collingwood, has raised more than $115 million in just over a decade. Heading into the 11th Big Freeze on Monday, Watson revealed why Daniher, the 2025 Australian of the Year, had become such an icon. 'I think because of his authenticity. I think people saw that this was something that was real —this person wasn't doing anything for himself. He was doing something for a cause,' Watson told The Nightly. 'I think that resonated with people. In a world where there's so much manufacturing of image, I think people could see that this bloke was 100 per cent authentic and real. And he did it with humour as well — he was self-deprecating. 'The way that he framed it as 'slaying the beast', the way he spoke just appealed to people, and they all just wanted to jump on board the cause.' Watson said the Bombers' youngest-ever captain (1982) never shied away from the challenges and evolved as a person during his MND fight. 'He was very headstrong,' Watson said. 'He had a lot of setbacks in his own career. There's something about him. There's this different Neale that has appeared with this. He's been a remarkable human being. I think it's just astounding how he's conducted himself.' 'I think it's about the positivity, about the way that he's spun it,' Watson said. Neale Daniher addresses the Melbourne Demons on Tuesday. Credit: Michael Willson/AFL Photos / AFL Photos via Getty Images After being diagnosed in 2013 with the incurable disease, which degenerates motor neurons in the brain and spinal cord robbing the sufferer of the ability to move and talk, Daniher has been determined to find a cure. 'Even yesterday, in his address to Melbourne, it wasn't about 'woe is me' or dwelling on the negative, but saying, 'what's something positive I can do?' No matter how miserable it might look, how can I spin that around? 'He's definitely done that and demonstrated that to everybody — that no matter what the diagnosis might be and how poorly he felt at times … I think it did take him a while when he was first diagnosed to find some sort of way of dealing with it internally. And then the way that he's been able to do that publicly — I think he's just been like a beacon of optimism and inspiration for so many people.' Daniher's playing career was derailed by injuries that saw him miss out on playing in Essendon's flag-winning teams of 1984 and 1985. He did finally win a flag with the Bombers as an assistant coach in 1993. He features on tonight's episode of Unfiltered on Channel 7 , where he shares a rare insight into the lowest point of his career and the personal news that got him 'out of his funk.' The interview was conducted over several weeks, with Hamish McLachlan and Daniher exchanging text messages. Daniher responded using his eye-gaze machine, which makes his voice sound like it used to. Daniher played 66 games in three years for Essendon between 1979 and 1981, but injuries restricted him to just 16 more before he retired. Neale Daniher playing for the Bombers in 1990. Credit: GSP Images / AFL Photos/GSP Essendon were the reigning premiers, and Daniher had dreams of lifting the premiership cup that in 1985 when disaster struck in mid-week game. 'Footy gives you great highs and tragic lows, that's for sure. The lowest I felt as a player would have been in 1985,' Daniher said. 'I was making another comeback after two ACL knee injuries and the Bombers were the reigning premiers. I had just made my way back into the team. 'We had a mid-season competition involving interstate teams. I was asked to back up and play in Adelaide. In retrospect, that was a dumb idea. I wasn't ready to play three games in seven days. 'During the second quarter, I got caught in a pack, landed awkwardly, and did my knee again. This time it was my good knee. I was lying on a cold floor with ice on my knee in foreign rooms, on my own, as the sounds of the game continued without me. 'I knew my playing career was done at the elite level, and my crack at September — and maybe a flag — was over.' Daniher added that the impending birth of his first child helped him get out of the injury heartbreak. 'What broke me out of the funk was that I had married Jan earlier that year. Not much later, we received news that we would have our first child, Lauren. That definitely helped me realise that life was more than the number on my back.' Watson said being able to be hear his own voice would be terrific for his mate. 'I think it must be really great for him because of the frustration when you can't speak. For his words to be delivered in the way they can be — it must be a great thing for him. It might just alleviate some of that frustration,' he said. Neale Daniher gives Tim Watson a push during the first Big Freeze in 2015. Credit: Adam Trafford / AFL Media Watson was one of the first sliders to plunge into the icy waters, which has now become a rite of passage for sporting figures and celebrities during the Big Freeze. He said he didn't have any great words of advice for the 2025 sliders announced so far: Peter Daicos, Matt Shirvington, Ariarne Titmus, Mark Taylor, Matt Nable, and Liz Watson. 'Nothing really prepares people for how cold it feels when you first land,' he said. 'It awakens every sense, but it's over in the blink of an eye too. It's a really great experience.' Melbourne will be up against it in upsetting the red-hot Pies, but Watson said the Demons, coming off a loss to St Kilda, would 'rise to the occasion.' 'It's a big game. It doesn't really matter where they are on the ladder,' Watson said. 'There's a lot of tradition and rivalry associated with this game, and the fact that it means so much beyond the football field as well. It's celebrating something bigger than football. 'Melbourne will be trying to do the best they possibly can — not just for Neale, but for the game itself.' Unfiltered with Hamish McLachlan featuring football legend and FIGHTMND Founder, Neale Daniher 9.30pm straight after The Front Bar on Seven and 7plus. COVERAGE OF THE BIG FREEZE STARTS 2PM MONDAY AEDT ON 7 AND 7PLUS TO DONATE BY BUYING A DIGITAL BIG FREEZE BEANIE CLICK HERE

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