a day ago
Cornish charity boss completes month-long 5k-a-day challenge
A Cornish charity boss has completed a month-long challenge to walk or jog 5k every day.
Claire Eldred, director at Dravet Syndrome UK, took part in the #EveryDayinMayForDravet challenge to help raise funds and awareness for the rare form of epilepsy.
Dravet Syndrome is a severe neurological condition associated with epilepsy and learning disabilities, affecting one in 15,000 live births in the UK.
Lucy Murphy, a young woman who has Dravet Syndrome, and Claire Eldred taking part in the challenge. (Image: supplied)
Daily, those with Dravet often endure multiple seizures, and face a significantly higher risk of sudden unexpected death in epilepsy (SUDEP).
Clare, who lives in Botallack, West Penwith, said: "I'm very proud to be doing #EveryDayinMayForDravet with and for all the families across the UK who are affected by this devastating, life limiting condition.
"Sadly, it's all too common for individuals with Dravet Syndrome to have to wait months or even years to receive a diagnosis as sometimes even medics have not heard of Dravet.
"I hope that raising awareness across Cornwall and the Southwest will lead to more families getting an earlier diagnosis and access to the treatment and support that they need."
She also highlighted the importance of donations for the charity's continued work.
Clare added: "As a small charity, all donations received make a huge difference in helping us to continue our vital work supporting and empowering families, educating professionals, and funding research.
"A huge thank you to everyone who is sponsoring me or who is taking part or donating for #EveryDayinMayForDravet."
The #EveryDayinMayForDravet challenge saw hundreds of participants across the globe, many of whom committed to 5k or 10k daily efforts.
The challenge welcomed all ages and fitness levels, with some children participating in a 2k daily task.
This family-friendly initiative is designed to not only raise funds but also to bolster community spirit and inclusivity among supporters.
Dravet Syndrome UK continues to serve as a lighthouse for families who struggle with the complex challenges posed by Dravet Syndrome.
They aim to ensure those affected receive timely diagnosis, treatment, and the essential support required for improved lives.
To sponsor Claire or donate to the cause, visit the charity's JustGiving page.
For more information, please visit Dravet Syndrome UK's website.
