Latest news with #Folia
Yahoo
30-04-2025
- Health
- Yahoo
Folia Health and Inspire are Partnering to Bring Personalized Home Health Observations to the Forefront of Patient Focused Drug Development Research
BOSTON, April 30, 2025 (GLOBE NEWSWIRE) -- Folia Health, the pioneer of patient-driven Home Reported Outcomes (HRO), has partnered with Inspire, the world's leading online health community and real-world data platform, to uniquely empower patients and caregivers with the opportunity to contribute a highly personalized form of structured at-home health observations data to accelerate patient-focused drug development research. In this collaboration, Folia and Inspire will focus on building longitudinal Real-World Evidence (RWE) Communities in some of the most complex and heterogeneous conditions to unlock insights that have been previously unattainable and unmeasurable in other data sources. Folia's HRO technology platform and user experience (UX) have been designed in collaboration with patients, caregivers, and clinicians to generate longitudinal insights that are dynamic to each individual. By allowing participants to self-select and define what's most meaningful to share about their lived disease experiences, we can now uncover aspects of diseases that have been the most difficult for researchers to understand and measure when developing novel therapies. 'We are thrilled to partner with Inspire to engage their member communities with our innovative, app-based solution that has been designed to bridge the gap between clinical care decision making and real-world evidence research. These RWE Communities within Inspire's member populations will provide a truly unique combination of real-world data that is required to answer the toughest questions in drug development and reimbursement today.' Nell Meosky Luo - CEO of Folia Health. As the world's largest online health community, Inspire is the go-to platform for patient and caregiver data, research and engagement. Inspire offers unique access to focused patient populations to support initiatives at every phase of development – from preclinical to post-approval marketing. Inspire is a trusted partner to over 100 patient advocacy organizations, and continues to identify opportunities that put patients and caregivers at the forefront of the most important questions in healthcare. 'At Inspire, we believe that empowering patients and caregivers to contribute their lived experiences is essential to driving meaningful research. By integrating Folia's innovative home-reported outcomes with our engaged health communities, we're unlocking new possibilities for real-world evidence generation that reflects the true patient journey—ultimately accelerating patient-focused drug development.' Brett Kleger - CEO of Inspire. Folia | Inspire - Revolutionizing Patient-Centered Real-World Evidence ResearchThis partnership enables the first large-scale digital approach to collecting the real-world lived experiences of patients outside of the clinic setting using Folia's HROs, and will directly measure patient-defined burden and the impact of various treatments on quality of life. These insights will be integrated with Inspire's member linked administrative claims data, EMR records, and AI enabled social media listening insights for the most robust patient-level insights available for patient-focused drug development research available today. The fully remote research model eliminates the need for clinic visits or research sites, while equipping patients with powerful insights to share with their care teams to ultimately receive more precise care. Unlike nearly every current research method today, HROs allow patients and caregivers to actively engage with their own study observations, gaining deeper insights into their personal symptom burden, treatment effects, and flare-up events that are commonly associated with complex diseases, while also seamlessly contributing their data for research. About Folia Health: Folia Health's home-reported outcomes (HROs) method and technology is pioneering the next generation of patient health data by transforming lived health experiences that occur at-home into valuable structured data insights to support research and personalized care. Through an innovative platform backed by expert analysis, we help life science partners develop effective therapies with demonstrated, real-world value for complex, chronic conditions. Folia's wealth of longitudinal data and proprietary analytics play a vital role in establishing a home-centered, data-driven healthcare ecosystem. Folia's platform is private, secure, and allows users to decide when and how their data is shared, while generating insightful trends, visualizations, and reports in the platform that allow them to receive more precise, data driven care. To explore the transformative potential of patient and caregiver knowledge, visit About Inspire: Founded in 2005, Inspire is the leading health community, connecting over 10 million patients and caregivers across 3,000 disease areas. Through its robust patient-centric platform, Inspire supports initiatives across the clinical development lifecycle—from preclinical research to post-market access—enabling life sciences organizations to capture real-world insights and accelerate medical advancements. For more information, visit Folia Health Contact:Connie Zhangconnie@ Inspire Contact:Jillian in to access your portfolio
Yahoo
13-03-2025
- Health
- Yahoo
Novartis Pharmaceuticals and Folia Health Partner on Innovative App-Based Study to Assess Real-World Experience of IgA Nephropathy
BOSTON, March 13, 2025 (GLOBE NEWSWIRE) -- Today, Folia Health and Novartis Pharmaceuticals, Inc. proudly announce their collaboration on an innovative, at-home observational real-world evidence initiative supporting individuals with IgA nephropathy. This ground-breaking study will leverage Folia's cutting-edge technology platform, allowing participants to track changes and quality of life impacts based on the symptoms most relevant to them- whether commonly associated with IgAN or not- alongside their individual treatment plan during an initial six-month observational period. By enabling participants to self-select and define what's most relevant to them, rather than relying solely on pre-specified patient-reported outcomes (PROs), this approach provides a comprehensive and nuanced understanding of the lived experiences of IgAN. This study is the first real-world data program designed to capture the at-home experiences of individuals and caregivers managing IgAN. Developed in collaboration with IgAN patients themselves, it directly measures patient-defined burden and evaluates the impact of various treatments on quality of life. As new therapies for IgAN become available, these insights will provide a timely and valuable understanding of real-world day-to-day experiences and treatment outcomes in this population. Through the Folia platform, IgAN patients and caregivers can actively engage with their own study observations, gaining deeper insights into their symptom burden, treatment effects, and acute health events. The Folia app can generate tracking summary reports, allowing users to easily visualize their changes over time- such as symptom severity trends, frequency of flare-ups, and treatment responses. Folia can also overlay treatment usage with symptom severity and patients can export visual reports to share with their care teams. This study is entirely remote, eliminating the need for clinic visits while still enabling participants to use their tracked data during medical appointments, ensuring that real-world insights can directly inform their care. 'The point of Folia is to provide a tool to help people with chronic conditions take more control over their care, and understand how their treatment plan is working for them. We're excited to bring these capabilities to kidney disease with this IgAN program, and look forward to the insights on treatment effectiveness and living with IgAN that our participants share with our research teams," said Nell Meosky Luo, the CEO & Founder of Folia Health. 'Advancing IgAN research requires more precise, real-world data captured directly from patients over time. This program enables the collection of granular, home-reported outcomes for the first time in this population, offering a richer, more accurate view of disease progression and treatment impact in everyday life,' said Briana Ndife, Director, HEOR, Nephrology at Novartis Pharmaceuticals. About Folia Health: Folia Health is the founder of home-reported outcomes (HROs), the next generation of patient health data that transforms lived experiences outside the clinic into valuable insights for better research and care. Through an innovative platform backed by expert analysis and support from a compassionate team, we help life science partners develop effective therapies with demonstrated, real-world value for complex, chronic conditions. Folia's wealth of longitudinal data and proprietary analytics play a vital role in establishing a home-centered, data-driven healthcare ecosystem. To explore the transformative potential of patient and caregiver knowledge, visit About Novartis Pharmaceuticals: Novartis is an innovative medicines company. Every day, we work to reimagine medicine to improve and extend people's lives so that patients, healthcare professionals and societies are empowered in the face of serious disease. Our medicines reach more than 250 million people worldwide. Folia Health Contact:Connie Zhang+1 617-306-1282connie@ Novartis Contact:Briana
Axios
06-03-2025
- Business
- Axios
Mediterranean restaurant Mazi opening soon in South End
New Mediterranean restaurant Mazi will open in South End on March 13. Why it matters: It's the latest project by the Built On Hospitality group, which has had quite an eventful few months with recent openings like Folia in South End and Chief's in NoDa. Built On Hospitality partner and executive chef Chris Coleman (of Goodyear House) partnered with Mazi's owners Troy Brewer and Hemant Patel to develop the menu, according to a press release. What to expect: Small plates, wine and cocktails inspired by countries like Greece, Spain and Morocco, to name a few. It'll feature "more than just the Greek, Israeli, and Lebanese food that most Americans think of, but also (fare from) Egypt, Libya, Morocco, Spain, and Italy," Coleman said in a previous statement. Mixologist Bob Peters created the cocktail menu to "showcase Mediterranean flavors such as lavender, pomegranate and sumac," according to a press release. If you go: Mazi will open only for dinner to start, with plans to add weekday lunch and weekend brunch in the coming weeks. Reservations are now available online. Stop by: 1300 South Blvd., across from the rail trail near Nikko Japanese Restaurant. Open Monday-Thursday 4-10pm, Friday-Saturday 4-11pm and Sunday 4-9pm. Go deeper: The 26 most anticipated new restaurants and bars in Charlotte
