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Family of man who died from high cholesterol condition urges others to get tested
Family of man who died from high cholesterol condition urges others to get tested

ITV News

time6 days ago

  • Health
  • ITV News

Family of man who died from high cholesterol condition urges others to get tested

A Cheshire family say the tragic loss of a family member led to the discovery of a hidden genetic condition – and a potentially life-saving diagnosis for multiple family members. Mike Clarke, 29, died a week after collapsing from a heart attack in 2015 during a football match - despite medical intervention where stents were fitted in his heart. Blood tests revealed Mike had high cholesterol, something his family had always struggled with but never fully understood. Mike's brother Simon said: 'After my brother's death, we all went for tests, I was found to have high cholesterol too and received support at Leighton Hospital's lipid clinic. "Medication helped, but there were still unanswered questions like why was this affecting so many of us?' Simon's Consultant referred him to a new pilot service screening for Familial Hypercholesterolaemia (FH), a hereditary condition that causes extremely high cholesterol from birth and significantly increases the risk of early heart disease if left untreated. Simon, from Winsford, underwent genetic testing through the service and a few months later received confirmation that he had FH. 'It was hard to hear. No one wants a lifelong condition but it wasn't really about me. It was about getting answers for my family,' said Simon. 'The genetic testing means I now know I have a condition that, even with diet and exercise, will always be present. "It allows us to plan and make sure that when the children in our family reach the age where they can be tested, we take that step and don't ignore it.' Thanks to Simon's diagnosis, cascade testing began across the family. His nephew was just four when he lost his father. Now 13, he has also tested positive for FH and has already started medication. 'He's been on treatment since he was 11 – that's two years of risk reduction already. We can't change what happened to my brother, but we can try to stop it happening again.' Simon's story is just one of many that highlight the impact of the FH genetic testing pilot launched in 2022 across Cheshire and Merseyside. Now, the service has been commissioned on a recurrent basis by NHS Cheshire and Merseyside, with support from Health Innovation North West Coast. The service is delivered by Liverpool Heart and Chest Hospital NHS Foundation Trust and offers genetic testing to individuals with suspected FH, followed by family cascade testing for first-degree relatives - parents, siblings and children. Those diagnosed receive a personalised care plan, including lipid-lowering therapy. Since the service was launched: FH affects around one in 250 people, but fewer than five per cent of cases are diagnosed. As part of the Lifespan Pathway for Lipid Management 2024, services in Cheshire and Merseyside now aim to offer a cholesterol test to all adults under 40 at least once to help close that gap.

Warrington Hospital to use AI to speed up diagnosis of skin cancer
Warrington Hospital to use AI to speed up diagnosis of skin cancer

Yahoo

time16-06-2025

  • Health
  • Yahoo

Warrington Hospital to use AI to speed up diagnosis of skin cancer

AI technology will be used to speed up the diagnosis of skin cancer in Warrington. Bridgewater Community Healthcare NHS Foundation Trust and Warrington and Halton Teaching Hospitals NHS Foundation Trust say this will provide patients with a swifter diagnosis of skin cancer. The service is located at Warrington and Halton Diagnostics Centre which is located at Halton Health Hub, within Runcorn Shopping City. Penketh resident Stephen Champion has already used the service. Speaking about his experience, he said: 'I was amazed by the speed of the AI. The fact that you get seen and diagnosed within minutes rather than having to book a follow-up appointment, was great. The staff there were brilliant too, very friendly and explained clearly what was going on. 'In terms of where the service is, because you're at a shopping centre, I didn't have to pay for parking and there's plenty of it too. It was all seamless.' Stephen Champion (Image: Supplied) The use of AI comes as a rise in skin cancer referrals is resulting in a high demand for dermatology services across NHS organisations. Since 2022, the dermatology service (which is run by Bridgewater Community Healthcare) is now averaging over 300 patient referrals per month, with approximately half resulting in further testing and treatment into conditions such as skin cancer. This new NHS partnership with artificial intelligence technology provider Skin Analytics uses 'cutting-edge, NICE-recommended AI' by recognising cancerous, pre-cancerous and common harmless skin conditions through photographic images. Resulting in faster diagnosis, this 'state-of-the-art' system called DERM, is impressively 99.9 per cent accurate when ruling out melanoma and 97 per cent sensitive when detecting skin cancer. When visiting the service, which is for patients who are 18 years and over and have been referred by their local GP, patients have images taken of their mole or skin lesion at a dedicated 'Photo Hub Clinic'. These are then inputted into the DERM system and assessed using AI. Those with common harmless skin conditions are quickly discharged without having to see a consultant. If, however, the DERM system flags any skin lesions as potentially pre-malignant or malignant, the patient will receive faster access to care, with some treatment performed on the same day, at the same location. Acting as a 'one stop clinic', not only is the service a first of its kind across the NHS Cheshire and Merseyside region. Warrington and Halton Diagnostics Centre, a service provided by Warrington and Halton Teaching Hospitals, is located at Halton Health Hub, within Runcorn Shopping City. This is one of only a small number of NHS community diagnostic centres to be launched inside a shopping centre in the country, and as such is another first for the NHS Cheshire and Merseyside region. Dr Paul Fitzsimmons is joint medical director for Bridgewater Community Healthcare and Warrington and Halton Teaching Hospitals. He said: "Skin cancer is the most frequently referred cancer specialty within the NHS, and we're experiencing this increase firsthand across Warrington. 'The rise in suspected skin cancer referrals has been placing increased pressure on our dermatology service. 'To better manage this growing demand, the partnership we have created with Skin Analytics has offered a valuable opportunity to work creatively by using effective, cutting-edge AI healthcare innovation. 'Not only does this AI technology speed up diagnosis and possible on the day treatment; the fact the service is located, not in a hospital but inside a modern diagnostic facility within a shopping centre, showcases how healthcare is able to reach out into our local communities.' Dan Mullarkey, medical director at Skin Analytics said: 'At Skin Analytics, we believe every patient deserves access to fast and effective skin cancer diagnosis. 'With DERM, NHS organisations receive a flexible and transformative solution for dermatology services that brings care directly to the community. 'By establishing this service within a shopping centre, expert dermatological care is conveniently accessible where people already live, work, and shop. 'It's wonderful to see local NHS trusts embracing innovation that eliminates traditional barriers to healthcare access, and together, we'll improve the patient journey for those with suspected skin cancer by providing timely care in familiar, convenient locations."

SEND families 'frustrated and helpless'
SEND families 'frustrated and helpless'

Yahoo

time21-04-2025

  • Health
  • Yahoo

SEND families 'frustrated and helpless'

Parents, carers and professionals looking after young people with special educational needs are being left "frustrated and helpless", an inspection has found. Ofsted and the Care Quality Commission said both Wirral Council and the local NHS were failing young people who needed support. The inspectors said that despite some progress having been made, urgent action needed to be taken. Wirral Council said some improvements had been made but that not all families were feeling the benefit yet, the Local Democracy Reporting Service reported. The inspection in January looked at both the services provided by Wirral Council as well as the NHS Cheshire and Merseyside Integrated Care Board. It came after a highly critical inspection in 2021 and a government notice issued last year over a failure to make progress. The council has invested more money in its special educational needs and disabilities (SEND) teams, and the Department for Education described the improvements as significant. The January inspection, published recently, said there were long-standing failings "all too frequently characterised by waiting lists, and delays and failures to identify children and young people's needs". The inspectors said: "Children and young people bear the consequences of weak systems for education, health and care (EHC) plans. "Furthermore, many EHC plans are rarely, if ever, updated to reflect the reviews that education settings carry out. "Consequently, these plans no longer reflect the needs of the children and young people concerned and their needs sometimes go unmet." Wirral Council leader Paul Stuart, a member of the Local Area SEND Partnership Board, said: "We have made progress in recent months, which has been recognised by the Department for Education. "While we continue to work across the partnership board to make large scale improvements for SEND children and their families, we recognise that these improvements are not yet consistently being felt by families themselves." He said there were still changes needed to improve the services and provide positive outcomes for all children and young people across Wirral. "We have a lot of work to do, but we're committed to our young people," he said. "There are a lot of dedicated and passionate staff across the partnership working hard to continue to drive that change and I'd thank them for their commitment to our borough and our young people. "The momentum that Wirral's Local Area SEND Partnership has already built and the pace of work will continue to ensure that families feel the benefits of these changes and the needs of all children and young people with SEND across Wirral are met – and exceeded." Simon Banks, place director (Wirral) for NHS Cheshire and Merseyside, said a recovery plan had been endorsed to improve wait times for assessments. He added: "Wirral is an early adopter in the North West of a new neurodiversity profiling tool that will ensure that neurodevelopmental needs are identified early and support put in place across all areas of a child or young person's life." Listen to the best of BBC Radio Merseyside on Sounds and follow BBC Merseyside on Facebook, X, and Instagram. You can also send story ideas via Whatsapp to 0808 100 2230. Parents of SEND children accuse council of 'neglect' Care Quality Commission Ofsted

Long Covid is the pandemic's dark shadow. Why does no one in power in Britain want to talk about it?
Long Covid is the pandemic's dark shadow. Why does no one in power in Britain want to talk about it?

The Guardian

time17-03-2025

  • Health
  • The Guardian

Long Covid is the pandemic's dark shadow. Why does no one in power in Britain want to talk about it?

Imagine a disease that can render its sufferers bedbound for years. One that could take a marathon runner and leave them unable to walk to the toilet. Imagine that at least 2 million people in England and Scotland alone were affected to some degree, each with a mix of debilitating symptoms, from breathlessness to brain fog to multi-organ damage. Then imagine that there were no proven treatments for this life-changing illness, let alone a cure. In fact, patients are often told it's all in their heads. Now imagine that more people are falling ill every day with the virus that causes this devastating disability – and that successive governments have abandoned almost every strategy to try to get to grips with it. There is no need to conjure up such a nightmare, of course – it is already real. Five years after the first coronavirus lockdown, long Covid is in many ways the pandemic's shadow. While the era of news banners flashing up weekly death tolls on our phones is thankfully a distant memory, vast swathes of people are still living with chronic symptoms years after they were first infected with the virus. And yet you'd be forgiven for thinking long Covid was old news, a relic of the pandemic past alongside banana bread and clapping for the NHS. When was the last time you heard a politician utter the words 'long Covid'? Or saw calls for research or support for sufferers make the front pages? In 2025, long Covid is the public health crisis no one wants to talk about, taking a wrecking ball to people's lives, the economy and the health service while those with power pretend there's nothing to see here. Take treatment. Back in 2020, Boris Johnson's government promised, to much fanfare, that long Covid patients would receive specialist help at clinics, supported by an additional £10m in local NHS funding. Five years on, there are now more than 90 adult post-Covid services across England to provide diagnosis and rehabilitation for those with long-term symptoms. But data shows only a 'fraction' of people with long Covid have actually received help, with a third of them waiting more than three months to be assessed after a GP referral. Recent months have seen long Covid clinics across the country close their doors; NHS Cheshire and Merseyside is the latest to be under threat, with reports it is 'no longer financially viable'. It's no wonder some patients are turning to costly and unproven remedies. When the NHS isn't helping, desperate people drain their life savings to go abroad for 'blood washing'. Or consider access to disability benefits. A study in the Lancet in 2021 found that 22% of respondents with long Covid were too sick to be in employment, and 45% were on reduced hours. And yet, read news coverage of the growing number of people off work due to long-term illness and you're lucky to even see a mention of coronavirus – just a cruel complaint about the 'soaring welfare bill' and plans to further cut disability benefits. It's not like people with long Covid who have kept their jobs are treated any better by the benefits system. In 2023, just 5,224 personal independence payment claimants (paid to those in or out of work) listed long Covid as their main disabling condition – a minuscule amount compared with how many have the condition. That doctors and nurses who developed long Covid saving our lives during lockdown are now reportedly being denied disability benefits gives an insight into how much the state can be trusted to be there in our time of need. Calls for a compensation scheme for key workers with long Covid, you may not be surprised to hear, have also repeatedly been ignored. Even children are being left to suffer alone. In 2024, more than 110,000 minors aged three to 17 in England and Scotland were estimated to have long Covid, with more than 20,000 of them severely affected. At a time in their lives when they should be running around the playground, these children can barely make it out of bed. Not that you ever hear about coronavirus in the school absence debate. Instead, parents of children with long Covid are threatened with being taken to court for truancy. The human cost of all this is palpable, of course, but there is a financial toll for the country too. One study estimated long Covid cost the UK economy at least £5.7bn in lost productivity from 2022 to 2023, while some economists calculate that the annual healthcare bill from the disease could be as much as £4.2bn by 2030. Against this backdrop, you would think ministers would want to curb the spread of coronavirus. After all, the best – and probably, cheapest – way to tackle long Covid is to not catch the virus in the first place. But in 2022, the last official Covid protections were removed, including the end of most free testing. By 2024, the vaccine was severely restricted to only a tiny proportion of the public. That's despite the fact studies show that if a person has been fully vaccinated and is up to date with their boosters, their risk of long Covid is much lower. This decision has had two major consequences: it has become normalised for the public to be repeatedly infected with Covid and, as such, to increasingly be put in danger of long-term health complications. When the pandemic rules were lifted, many spoke excitedly of a 'return to normal'. The millions of people with long Covid have not had that privilege. While the fortunate recover with time, the worst affected are stuck in their own perpetual lockdown: too sick to go to the pub with a mate or sit in the office for a career they had to quit. As you read this column, more people will be falling ill with an exhaustion and pain that won't go away. If the dice lands wrong and it is you or someone you love next, you will hope – at the very least – there will be help on the way. That long Covid sufferers know there won't is not simply the pandemic's dark shadow, but its mark of shame. Frances Ryan is a Guardian columnist In the UK and Ireland, Samaritans can be contacted on freephone 116 123, or email jo@ or jo@ In the US, you can call or text the National Suicide Prevention Lifeline on 988, chat on or text HOME to 741741 to connect with a crisis counselor. In Australia, the crisis support service Lifeline is 13 11 14. Other international helplines can be found at

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