22-05-2025
Special meaning behind Edinburgh man's decision to take on gruelling cycle challenge
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An Edinburgh man is taking on a gruelling challenge as he cycles 435 miles to raise awareness for a disease close to his heart.
Giles Lomax, 37, set off from Edinburgh Castle on May 20 to cycle to London. Each mile on the mission represents every baby that was born with Spinal Muscular Atrophy since the UK rejected the disease to be added to the bloodspot programme in 2018.
The illness causes muscle weakness and a progressive loss of movement. It is a rare neuromuscular condition and while there is no cure, therapies and support can help manage the condition.
Working as the CEO for SMA UK, Giles will be calling in at The Royal Hospital for Children & Young People and the Royal Manchester Children's Hospital to meet some clinicians.
The route started at Edinburgh before moving onto the Scottish borders, Carlisle, Penrith, Manchester, Stratford-upon-Aven and concluding in London.
Speaking to Edinburgh Live, ahead of the challenge, Giles said: "I did something similar to this last year in Ireland to raise awareness but since the number just keep going up, I decided to get back on the bike.
"It's absolutely critical we keep spreading awareness because if babies are treated earlier, they can grow up to have normal lives.
"If treatment is delayed, the damage can be unrepairable and children will grow up to have really complex needs like being in a wheelchair or having breathing problems or spinal braces.
"It is a really big challenge for me because I am on my own. It's a long day in the saddle but I am nervous and excited. I also know I am doing it for the right reasons."
A statement from SMA UK reads: "Over the four days, Giles will travel a total of 435 miles which represents the number of babies born with SMA in the UK since the UK rejected SMA to be added to the bloodspot programme in 2018.
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"If that wasn't enough, then he will be joining cyclists taking part in the annual Ride Scorpion from Great Missenden on Saturday morning. There are plenty of spaces still available and you can find out more and sign up by clicking here.
"We will be publishing details of the route, as well as the main stops, and there will be a live tracker available throughout the week.
"Giles will be supported by our Community Engagement Coordinator, Gary and they would welcome anyone from the SMA Community to visit them at their pit stops or even join the ride for a few miles."
You can find out more here.
