Latest news with #RobBurrowCentreforMotorNeuroneDisease
Yahoo
3 days ago
- General
- Yahoo
Rob Burrow would be 'so proud' of MND centre
Rob Burrow would be "incredibly proud" of the motor neurone disease (MND) treatment centre that bears his name, his widow Lindsey said on the first anniversary of his death. Former Leeds Rhinos star Burrow died on 2 June last year aged 41 after being diagnosed with MND in 2019. The Rob Burrow Centre for Motor Neurone Disease is set to open at Seacroft Hospital in Leeds later this summer. Speaking during a visit to the site, Lindsey Burrow said: "Ultimately that's what Rob wanted to do, to help other families." She told the BBC: "To have this centre for us as a family, as somewhere we can come to remember Rob and to be able to share that with other families that are in the same situation that we've been in, is incredibly special." "Rob would be incredibly proud, he was so humbled," Lindsey said. "To have this centre, to have the marathon, it's just part of Rob's legacy and the amazing work that he's done for the MND community. "He was the face of the MND community in the most difficult of circumstances but to have this, I think it really gives people hope." Burrow's parents Geoff and Irene were at Headingley Stadium - the home of Leeds Rhinos - on Saturday along with his sisters Joanne Hartshorne and Claire Burnett for the club's MND Awareness game against Wakefield Trinity. "We have good and bad days - more bad than good at the moment," admitted Geoff. "But Rob would want us to keep smiling and banging the drum for MND patients." A minute's applause was held for the former scrum-half and hooker before kick-off. Giant banners were displayed on the pitch, with one of them bearing his famous words: "In a world full of adversity we must dare to dream." Dr Agam Jung, consultant neurologist at Leeds Teaching Hospitals NHS Trust and director of the MND service at Leeds, was Burrow's consultant. "Rob's legacy is about courage and dignity," she said. "It's about changing the trajectory of the most cruel disease in the world and oh my goodness, that is something really special." She said she was "very pleased" with the progress at the site of the MND centre. "It's a centre for hope and the MND community draws hope," Dr Jung said. The fundraising effort championed by Burrow and his Leeds Rhinos team-mate Kevin Sinfield raised millions for MND charities following Burrow's diagnosis. Cash raised for the centre will allow researchers to launch projects aimed at reducing the time it takes to diagnose the condition. Rugby league coach and Burrow's former team-mate Jamie Jones-Buchanan also paid tribute to the late star to mark the anniversary, saying Burrow's "spirit and what he stood for is very much alive at Leeds Rhinos, and I think it always will be". "Every opportunity we've got to remember Rob and what he brought to the club and gave so many fans, so many tens of thousands of people, will be a part of who we are for many, many years," he said. Sinfield announced last week that he would be running seven ultra marathons in seven days in seven regions to raise money for MND charities. The challenge will take place in December and will include marathons in Sheffield and Leeds. He hopes the campaign will raise £777,777. "This has become less about running and more about bringing people together," he said. Listen to highlights from West Yorkshire on BBC Sounds, catch up with the latest episode of Look North or tell us a story you think we should be covering here. Rugby player announces new challenge for MND Burrow family say MND site theft 'beggars belief' 'Really special': Hundreds take part in MND Mile The Rob Burrow Centre for Motor Neurone Disease
ITV News
18-05-2025
- Health
- ITV News
Extra security at construction site of Rob Burrow MND centre in Leeds after two thefts
Extra security has been put in place at the construction site of the Rob Burrow Centre for Motor Neurone Disease after two thefts there. The NHS trust which runs the site at Seacroft Hospital in Leeds said it was "really disappointed" in the incidents which caused damage to the facility named after the Leeds Rhino legend who died in 2024. Craige Richardson, Director of Estates and Facilities at Leeds Teaching Hospitals, said: "We are working with West Yorkshire Police, and we have also put in place extra security measures at the site. "We will always take positive action against criminal activity at our hospitals, including prosecution. "The new state-of-the-art Centre will provide a calm and peaceful environment for patients living with MND and their families. We remain on track to open in summer 2025." It is unclear when the thefts took place and what was taken from the site. £6.8million was fundraised to create the flagship centre to care for MND patients in honour of Rob Burrow who had the disease. Construction work started in June shortly after the former player's death at the age of 41. It is due to be completed this summer.
BBC News
29-04-2025
- Health
- BBC News
MND projects for earlier diagnosis to launch at Rob Burrow Centre
Two "ambitious" projects to provide an earlier diagnosis of motor neurone disease (MND) are set to launch in work will use artificial intelligence (AI) and less invasive procedures to detect signs of the debilitating condition in ways that are more "fit for modern times" and lead to better outcomes for patients, experts projects will launch at the Rob Burrow Centre for Motor Neurone Disease, a facility set up after the Leeds Rhino player died from the disease aged 42 in June lead Dr Agam Jung said the projects would give patients a better chance to make the most of their lives and to "live in the now". The first technology - called magnetic resonance fingerprinting (MRF) - aims to detect upper motor neurone signs in multiple areas of the brain at once, and measure any abnormalities in underlying brain the second project plans to use AI on videos of patients' limbs and tongues to identify small muscle twitches that are a key sign of the condition. Currently, most people with suspected MND undergo a specialised test using painful needles and electricity, called electromyography (EMG).Leeds Teaching Hospitals NHS Trust said the aim was to develop a simple test to help doctors recognise the signs of MND earlier, using AI applied to input from an ordinary camera, for example in a Jung, consultant neurologist at Leeds Teaching Hospitals and director of the Leeds MND Centre, said: "Time and again, I bear witness to anxiety and fear during the diagnostic journey."There is an urgent need to identify diagnostic tools fit for the modern times we live in."Harnessing technology, machine learning and artificial intelligence will help us alleviate our patients' suffering significantly." Leeds Hospitals Charity has invested £230,000 in the CEO Esther Wakeman said: "After reaching our fundraising target for the Rob Burrow Centre for Motor Neurone Disease, we knew we wanted to continue to support the Leeds MND Service to ensure we can support the Leeds Teaching Hospitals Trust in setting this centre apart from anything else."Building the centre is just the start of our journey."The new Rob Burrow Centre for MND is expected to open in autumn 2025, and it is hoped the research will get under way in early 2026. Listen to highlights from West Yorkshire on BBC Sounds, catch up with the latest episode of Look North.
