Latest news with #VanellopeHopeWilkins
ITV News
26-05-2025
- Health
- ITV News
'Groundbreaking' surgery performed on girl born with heart outside body in Leicester
This article and video report contains an image of Vanellope's heart on the outside of her body A young girl has had groundbreaking surgery in Leicester after she was born with her heart on the outside of her body. Vanellope Hope Wilkins, now seven, was born with a condition called Ectopia Cordis - in which the heart is abnormally located either partially or totally outside of the chest. Described as a 'miracle baby', she was delivered by caesarian section at the city's Glenfield Hospital in November 2017. She survived childhood and is thought to be the first baby in Britain to survive the ultra-rare condition. She beat eight-million-to-one odds to survive, spending her first year in intensive care before being able to leave hospital. Seven years on, Vanellope has undergone a groundbreaking operation at Leicester's Royal Infirmary to protect her fragile heart - by reconstructing a protective cage around it - using her ribs. It has been years in the making, and it is the first time it has ever been performed in the UK. Consultant Paediatric Surgeon at Leicester Children's Hospital, Nitin Patwardhan, added: 'Being able to perform a groundbreaking surgery, which has never been done before in the UK, is important for our patients and for the hospital. Our teams do incredible work every single day, and this procedure is another example of this. 'Vanellope is a one-of-a-kind case and I am proud that we have been able to work together to improve her quality of life. We wish her a speedy recovery and all the best for the future.' During the operation, Vanellope was put onto a heart-lung machine called an extracorporeal membrane oxygenation (ECMO) machine - a medical device that temporarily takes over the functions of the heart and lungs. The procedure involved a joint team from the EMCHC and Leicester Children's Hospital totalling around 20 people, including anaesthetists, surgeons, operating department practitioners, perfusionists and theatre nurses. Vanellope is now at home and recovering - with surgeons hoping the first-of-its-kind surgery will allow her to live a more fulfilled life.
Yahoo
01-05-2025
- Health
- Yahoo
'My baby was born with her heart outside her body - look at her now'
A miracle girl who was born with her heart outside her body has undergone a ground-breaking UK-first operation to protect the fragile organ. Vanellope Hope Wilkins, seven, beat eight-million-to-one odds after she became the first baby in Britain to survive the ultra-rare condition. She was diagnosed in the womb with ectopia cordis in which the heart is located either partially or totally outside of the chest. Her parents were told there was "next to no hope" when the abnormality was picked up at a nine-week scan and they were advised to terminate the pregnancy. But mum Naomi Findlay and dad Dean Wilkins refused to give up hope and Vanellope was delivered by C-section at Leicester's Glenfield Hospital in November 2017. Most babies affected have a less than 10 per cent chance of survival but battling Vanellope defied the odds. Doctors said they knew of only a handful of cases worldwide where a baby has survived the condition - and none in Britain. Experts at University Hospitals of Leicester NHS Trust have been working for seven years to monitor her progress and prepare her for a ground-breaking operation. Last Wednesday, April 16, she underwent an eight-hour procedure to reconstruct her chest using her ribs in order to protect her heart as she grows. Naomi, of Bullwell, said: 'It's the fear of the unknown that is the hardest part and saying goodbye before the operation was very hard. READ MORE: Body of 16-year-old boy found in Colwick Country Park's lake READ MORE: Gardeners asked to leave egg shells on bird tables this spring "But when I saw the consultants walking towards me after the surgery, I just knew from their faces that it had gone well, and I instantly felt a huge sense of relief. 'What they have done is truly amazing and I am so in awe of them, I can already see what a difference this operation has made, and I cannot thank everyone involved in her care enough. "Vanellope inspires me every day, she is strong and brave, and I am so proud of her.' The operation took place at the East Midlands Congenital Heart Centre based at Leicester Royal Infirmary. It involved Vanellope being put onto a heart-lung machine called an extracorporeal membrane oxygenation (ECMO) machine - a medical device that temporarily takes over the functions of the heart and lungs. This allowed the medical team to carefully detach her heart from a thin layer of skin and carry out a bilateral osteotomy of the ribs, to allow them to be 'stretched' forwards and be joined together at the front to reconstruct her chest solidly. The team included consultant paediatric surgeon, Nitin Patwardhan, and Ikenna Omeje, consultant congenital cardiac surgeon. They were supported by visiting cardiothoracic surgeon, Nagarajan Muthialu, from Great Ormond Street Hospital for Children NHS Foundation Trust. Speaking about the operation, Mr Omeje, said: 'Vanellope's case is completely unique and very rare, so we brought our expertise together and combined several different techniques to perform this surgery. "I was there seven years ago when Vanellope was born as part of the team who were there to protect her heart. "Since then, we have been waiting for the right opportunity to close the chest and give her heart protection. 'It was a tricky procedure, and it has been a long journey to get to this point, but the sense of satisfaction you get knowing you have been successful is very special. "I am just happy to be able to help.' Consultant paediatric surgeon at Leicester Children's Hospital, Nitin Patwardhan, added: 'Being able to perform a ground-breaking surgery, which has never been done before in the UK, is important for our patients and for the hospital. "Our teams do incredible work every single day, and this procedure is another example of this. 'Vanellope is a one-of-a-kind case and I am proud that we have been able to work together to improve her quality of life. "We wish her a speedy recovery and all the best for the future.'
