Latest news with #WorldLupusDay
The Citizen
2 days ago
- General
- The Citizen
NGOs raise lupus awareness with fun walk
The annual 10km Lupus Awareness Fun Walk took place on May 31 in Mamelodi. World Lupus Day is recognised on May 10. We Also Sparkle and Waratwa foundations held the walk to close off the awareness month and shine a spotlight on the illness. Systemic Lupus Erythematosus (SLE), also known as lupus, is an autoimmune disease that affects each individual differently. Lupus affects both men and women, and symptoms range from fatigue to joint pain and skin rashes and can affect multiple organs. The awareness walk started in Mamelodi East on Motsumi Street, Ext 4, Moon Park to Top T in Nellmapius and back, making up a distance of the 10km. The day started with a warm-up session by Adventure for Fun to get participants ready for the walk and ended with a festival of colours. Speakers from both NGOs and partnering organisations spoke on the importance of annual events that commemorate serious illness. 'What I can say is that with your support, we will be able to spread awareness about lupus across the country. The more people are aware of lupus, the fewer people with die from it. At least if you know you have lupus, you can manage it. Others don't even get that chance because it kills the organs in the body, and by the time it's diagnosed, it's too late,' Komati said. She added that, despite having flare-ups and challenges, giving in to the disease is not an option. She also insisted that those living with lupus register on their website, as there are currently no statistics regarding lupus in South Africa. Tisetso Khuele (31), a resident living with lupus, said that without the support of close friends and family, the disease would have claimed her life long ago. 'My symptoms first started with my feet swelling, my hands turning blue, I'd pass out randomly, and it only got worse throughout the years until I was diagnosed with lupus in 2009. The symptoms started when I was 14, but I didn't know what it was. No one knew lupus, and where do you even start? So, I was shocked because it was something new, so we had to search for specialists, I had to find a doctor to help me manage the condition,' Khuele said. She added that since being on medication, she can live more easily, maintain a job and a healthy lifestyle. She dedicated her walk to friends who have died from lupus and urged those who receive their diagnosis to keep pushing, as they can still make it. Her mother, Esther Khuele, said her wish was that more mothers and daughters would attend campaigns such as these, as though lupus can affect men, it's more prevalent among women. Esther is the founder of Lila Butterfly Lupus Foundation. 'As Tiseto mentioned, her symptoms began at 14. That's a tender age where you think it's just changes related to adolescence, the fatigue and things like mood changes can be chalked up to a child being a child, not realising something big is on the horizon. We've experienced days where we woke up with her hands and feet being blue, I'm talking blue like denim. She's not talking, eyes protruding out of the sockets, lung issues, being exposed to the sun, there were times we had to cut vacations short because of it,' Esther said. She said more education is needed about the disease as it is a silent killer, claiming young and old lives alike. Her organisation intends to spread the message till the country is sensitised to Lupus. Do you have more information about the story? Please send us an email to bennittb@ or phone us on 083 625 4114. For free breaking and community news, visit Rekord's websites: Rekord East For more news and interesting articles, like Rekord on Facebook, follow us on Twitter or Instagram At Caxton, we employ humans to generate daily fresh news, not AI intervention. Happy reading!
The Star
26-05-2025
- Health
- The Star
Walk A Payung in support of SLE patients
Better awareness: Participants in purple shirts and umbrellas doing the 3km walk around Titiwangsa Lake, Kuala Lumpur, held in conjunction with World Lupus Day. — Bernama KUALA LUMPUR: Shades of purple filled Titiwangsa Lake as more than 400 participants gathered for Walk A Payung 2025, a 3km walking programme, held in conjunction with World Lupus Day. The event yesterday saw not only patients with the chronic autoimmune disease Systemic Lupus Erythematosus (SLE) taking part, but also family members and members of the public, all dressed in purple shirts and carrying purple umbrellas – a symbol of solidarity and protection against the sun's rays, which can trigger lupus symptoms. President of the Malaysian SLE Society (PSLEM), Prof Dr Syahrul Sazliyana Shaharir, said the annual event, organised in collaboration with the Faculty of Medicine, Hospital Canselor Tuanku Muhriz (HCTM), Universiti Kebangsaan Malaysia (UKM), aimed to raise public awareness on SLE, a condition that affects 43 out of every 100,000 Malaysians. 'This year's celebration has been very encouraging, reflecting growing public awareness of SLE, especially through the educational booth provided as a space for interaction between patients and the general public,' she said. Dr Syahrul Sazliyana shared this with Bernama after the director of the Family Health Development Division of the Health Ministry, Datuk Dr Norsiah Ali, launched the event. A book, iLawanLupus: A Patient Dialogue, a collaboration between PSLEM and AstraZeneca, to increase public understanding on SLE, was also launched at the event. The book will be distributed as educational material for the public. Mazni Ibrahim, 54, who has participated in the programme several times, said her participation was to provide understanding to her immediate family about her struggle as an SLE patient for over 20 years. 'I always bring my siblings and nieces to join Walk A Payung because in the early stages, they didn't understand. Usually, people think SLE patients look healthy, but in reality, our bodies are very weak,' she said. Nor Ezzati Nor Albashri, 33, who works in the food quality control department in Shah Alam, is present to support her good friend, Dr Jazmira Jasni, who was diagnosed with SLE last year. 'Since she was diagnosed, I have always given her moral support, accompanied her when she was admitted to the hospital and made sure she wasn't too tired or stressed. 'Alhamdulillah, now she is stronger and understands how to manage this disease. So today is a significant event for her,' she said. Dr Jazmira, 33, who works at the Jinjang Health Clinic, described her participation in the programme as a symbol of strength and a new beginning in her fight against SLE. 'I am an active person – I like to hike, run – but my life has changed 360° since I got SLE. 'Now I have to be more careful because the heart is one of the organs affected. But I am grateful to have friends always by my side,' she said.
Malay Mail
25-05-2025
- Health
- Malay Mail
Malaysia's lupus warriors unite in a purple parade of solidarity at Taman Tasik Titiwangsa
KUALA LUMPUR, May 25 — Shades of purple filled Titiwangsa Lake this morning as more than 400 participants gathered for 'Walk A Payung 2025', a three-kilometre walking programme held in conjunction with World Lupus Day. The event saw not only patients with the chronic autoimmune disease Systemic Lupus Erythematosus (SLE) taking part, but also family members and members of the public, all dressed in purple shirts and carrying purple umbrellas — a symbol of solidarity and protection against the sun's rays, which can trigger lupus symptoms. President of the Malaysian SLE Society (PSLEM), Associate Professor Dr Syahrul Sazliyana Shaharir, said the annual event, organised in collaboration with the Faculty of Medicine, Hospital Canselor Tuanku Muhriz (HCTM), Universiti Kebangsaan Malaysia (UKM), aimed to raise public awareness about SLE, a condition that affects 43 out of every 100,000 Malaysians. 'This year's celebration has been very encouraging, reflecting growing public awareness of SLE, especially through the educational booth provided as a space for interaction between patients and the general public,' she said. Dr Syahrul Sazliyana shared this with Bernama after the launch of the programme by the Director of the Family Health Development Division of the Ministry of Health Malaysia, Datuk Dr Norsiah Ali, here today. The event also saw the launch of the book 'iLawanLupus: A Patient Dialogue', a collaboration between PSLEM and AstraZeneca, to increase public understanding of SLE. The book will be distributed as educational material for the public. Mazni Ibrahim, 54, who has participated in the programme several times, said her participation was to provide understanding to her immediate family about her struggle as an SLE patient for over 20 years. 'I always bring my siblings and nieces to join Walk A Payung because in the early stages, they didn't understand. Usually, people think that SLE patients look healthy, but in reality, our bodies are very weak,' she said. For Nor Ezzati Nor Albashri, 33, who works in the food quality control department in Shah Alam, her presence today is to show support for her good friend, Dr Jazmira Jasni, who was diagnosed with SLE last year. 'Since she was diagnosed, I have always given her moral support, accompanied her when she was admitted to the hospital and made sure she wasn't too tired or stressed. Alhamdulillah, now she is stronger and understands how to manage this disease. So today is a very meaningful event for her,' he said. Dr Jazmira, 33, who works at the Jinjang Health Clinic, described her participation in the programme as a symbol of strength and a new beginning in her fight against SLE. 'I am an active person — I like to hike, run — but since I got SLE, my life has changed 360 degrees. Now I have to be more careful because the heart is one of the organs affected. But I am grateful to have friends who are always by my side,' she said. — Bernama
Hans India
12-05-2025
- Health
- Hans India
Awareness event held on World Lupus Day
Hyderabad: In observance of World Lupus Day, the Department of DVL at Osmania General Hospital organised a comprehensive awareness rally and seminar to promote understanding about lupus and the precautions necessary to manage the condition effectively. The awareness rally, led by Medical Superintendent Dr Rakesh Kumar Sahay, began from the Superintendent's Office and proceeded to the casualty block. Information about lupus, its symptoms, and preventive measures was communicated in both Telugu and English by students and faculty members, ensuring accessibility to a diverse audience. The event concluded with a seminar held in the DVL Department by 12:30 pm. Attendees were encouraged to spread the awareness further by sharing the information with at least ten others, thereby creating a ripple effect in the community. The overarching goal was to promote healthy skin, a healthy body, and a healthier nation. It featured enthusiastic participation from faculty and students of the DVL (Dr Bhumesh, Dr Sudeer, Dr Aruna and all the asst professors), General Medicine (Dr Premsagar HOD and his team), Nephrology departments and Hospital administration (Dr Jayakrishna Dr Rafi, Dr Kavitha and team) as well as various Heads of Departments. Participants raised awareness through impactful slogans and educational messaging.
Time of India
11-05-2025
- Health
- Time of India
Lupus Support Group via WhatsApp launched in Mangaluru
Mangaluru: On the sidelines of World Lupus Day , KMC Hospital of Attavar has launched a Lupus Support Group , a first-of-its-kind initiative in support group, established through a WhatsApp platform, aims to empower individuals affected by lupus by providing continuous support, health guidance, and community integration. It brings together patients, healthcare professionals, social workers, and expert doctors to share information on managing lupus, improving quality of life, maintaining a healthy lifestyle, and addressing stigma and support group was launched during a function organised by department of rheumatology to observe World Lupus Day at the hospital Chakrapani M, medical superintendent, stressed the importance of public awareness in the early detection and effective treatment of lupus. Resource people at the event included dermatologist Dr Pooja Kotian and rheumatologists Dr Pratyusha Manikuppam and Dr Shivaraj Padiyar, who delivered sessions on lupus care and treatment protocols. The event also featured testimonies from lupus patients who shared their personal journeys of managing the condition, motivating others with their resilience and experiences.A key highlight of the programme was an interactive session between lupus patients, referred to as lupus warriors, and the panel of specialist doctors. Lupus kits were also distributed to all participants by the hospital. Dr. Deepak Madi, deputy medical superintendent was also present. Get the latest lifestyle updates on Times of India, along with Mother's Day wishes , messages , and quotes !
