
Celine Dion's Battle With Stiff Person Syndrome—What We Know
Based on facts, either observed and verified firsthand by the reporter, or reported and verified from knowledgeable sources.
Newsweek AI is in beta. Translations may contain inaccuracies—please refer to the original content.
Celine Dion's surprise appearance at the 2025 Eurovision Song Contest this week sparked fresh interest in her ongoing health journey with Stiff Person Syndrome, a rare neurological disorder she was diagnosed with in 2022. The Canadian singer, 57, delivered a pre-recorded message during the first semifinal in Basel, Switzerland, as part of the show's tribute to her historic 1988 win.
Fans welcomed the message with cheers and anticipation, as organizers confirmed they remain in "close contact" with Dion amid hopes she may join the live finale on Saturday.
What Is Stiff Person Syndrome?
Stiff Person Syndrome (SPS) is a rare autoimmune and neurological disorder that affects the brain and spinal cord. It causes progressive muscle stiffness and painful spasms, and it can affect posture and movement. According to the National Institute of Neurological Disorders and Stroke, SPS impacts about one in a million people and is often misdiagnosed because of its overlap with other conditions.
People with SPS may become increasingly sensitive to noise or touch, which can trigger episodes of muscle spasms. Although the disorder is chronic, treatments including medication and physical therapy can help manage symptoms.
When Was Celine Dion Diagnosed?
Dion revealed in December 2022 that she had been diagnosed with SPS and would step back from performing to focus on treatment. She canceled her Courage World Tour and noted that the decision was made with her medical team's advice.
Since that announcement, she has made limited but notable appearances, including performing "Hymne à l'Amour" during the 2024 Paris Olympics opening ceremony. Her video this week marked her return to the Eurovision stage after 37 years.
A video message from Celine Dion during the dress rehearsal and preview show of the first semifinal at the 69th Eurovision Song Contest in Basel, Switzerland, on May 12, 2025.
A video message from Celine Dion during the dress rehearsal and preview show of the first semifinal at the 69th Eurovision Song Contest in Basel, Switzerland, on May 12, 2025.
Georgios Kefalas/Keystone via AP
What Has Celine Dion Said About Her Health Battles?
Dion delivered a heartfelt video message on Tuesday night, speaking in French and English to the Eurovision audience.
"Switzerland will forever hold a special place in my heart. It's a country that believed in me and gave me the chance to be part of something so extraordinary," she said during the broadcast.
"Winning the Eurovision Song Contest for Switzerland in 1988 was a life-changing moment for me, and I'm so thankful for everyone who supported me."
Speaking directly to fans, she added: "Dear Eurovision family and contestants. I'd love nothing more than to be with you in Basel right now...Music unites us...It is our strength, our support in the moments where we need it. I love you all, Europe and the rest of the world, of course. Kisses, I love you."
Following her message, several past Eurovision performers sang her winning 1988 track "Ne Partez Pas Sans Moi." Dion's performance that year, representing Switzerland, helped launch her international career.
Is Stiff Person Syndrome Curable?
There is no known cure for SPS, but therapies exist to help reduce its impact. They can include medications such as muscle relaxants and anti-anxiety drugs, as well as intravenous immunoglobulin (IVIG) treatments. Physical therapy can also play a key role in maintaining mobility.
While SPS presents significant challenges, many patients are able to adapt their routines and continue their careers and personal lives with the help of tailored treatment plans.
Dion's message and ongoing engagement with Eurovision organizers have fueled speculation that she may appear live at the contest's grand finale. Swiss broadcaster SRG SSR confirmed they are still in "close contact" with Dion.
Dion's presence may have been virtual, but her impact on Eurovision and pop music continues to resonate.
"Now, 37 years later, it's so beautiful and emotional to see Switzerland winning and hosting this incredible event once again," Dion said. "This night is yours and I hope you feel as proud as I do."
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