Why young Americans dread turning 26: health insurance chaos

Boston Globe

16 hours ago

But for years, Republicans have whittled away at the infrastructure of the original law. Long gone is the requirement to buy insurance. Plans sold in the online insurance marketplaces have no stringent quality standards. Costs keep rising, and eligibility requirements and subsidies are a moving target.
Advertisement
The erosion of the law has now created an 'insurance cliff' for Americans who are turning 26 and don't have a job that provides medical coverage.
Get Starting Point
A guide through the most important stories of the morning, delivered Monday through Friday.
Enter Email
Sign Up
Some, scared off by the complexity of picking a policy and by the price tags, tumble over the edge and go without insurance, in a health system where the rate for an emergency room visit can be thousands, if not tens of thousands, of dollars.
Today, an estimated 15% of 26-year-olds go uninsured, which, according to an analysis by health research group KFF, is the highest rate among Americans of any age.
If they qualify, young adults can sign up for Medicaid, the federal and state program for low-income Americans, in most but not all states.
Advertisement
But many buy cheap subpar insurance that leaves them with insurmountable debt following a medical crisis. Others choose plans with extremely limited networks, losing access to their longtime doctors and medicines.
Often they find those policies online, in what has become a dizzyingly complicated system of government-regulated insurance marketplaces. They vary in quality from state to state; some are far better than others.
But they generally offer few easily identifiable, affordable and workable choices.
'The good news is that the ACA gave young people more options,' said Karen Pollitz, who directed consumer information and insurance oversight at the Department of Health and Human Services during the Obama administration. 'The bad news is the good stuff is hidden in a minefield of really bad options that'll leave you broke if you get sick.'
Publicly funded counselors called 'navigators' or 'assisters' can help insurance seekers choose a plan. But those programs vary by state, and often customers don't realize that the help is available. The Trump administration has cut funding to publicize and operate those navigator programs.
In addition, changes to Medicaid eligibility in the policy bill passed by Congress in July could mean that millions more enrollees lose their insurance, according to the Congressional Budget Office.
Those changes threaten the very viability of the online marketplaces, which currently provide insurance to 24 million Americans.
In dozens of interviews, young adults described the unsettling and devastating consequences of having inadequate insurance, or no insurance at all.
Damien Phillips, 26, a reporter at a West Virginia newspaper, considered joining the Navy to get insurance as his 26th birthday approached. Instead, he felt he 'didn't make enough to justify having health insurance' and has reluctantly gone without it.
Advertisement
When Ethan Evans, a 27-year-old aspiring actor in Chicago who works in retail, fell off his parents' plan and temporarily signed up for Medicaid, diminished mental health coverage meant cutting back on visits to his longtime therapist.
Rep. Maxwell Frost, D-Fla., the first Generation Z member of Congress, was able to quit his job and run for office at 25 only because he could stay on his mother's plan until he turned 26, he said.
Now 28, he is insured through his federal job.
'The ACA was groundbreaking legislation, including the idea that every American needs health care,' he said. 'But there are pitfalls, and one of them is that when young adults turn 26, they fall into this abyss.'
Back in 2010, the decision to make 26 the cutoff age for staying on a parent's insurance was 'kind of arbitrary,' recalled Nancy-Ann DeParle, deputy chief of staff for policy in the Obama White House.
'My kids were young, and I was trying to imagine when my child would be an adult,' she said.
Before that time, children were often kicked off family plans at much younger ages, typically 18.
The Obama administration's idea was that by 26, young adults were most likely settling into careers and jobs with insurance. But if they still didn't have access to job-based insurance, Medicaid and the online marketplaces would offer alternatives, the thinking went.
But over the years, the courts, Congress and the first Trump administration eviscerated provisions of the ACA. By 2022, a shopper on the marketplace run by the federal government had more than 100 choices, many of which included expensive trade-offs, presented in a way that made comparisons difficult without spreadsheets.
Advertisement
Young Invincibles, an advocacy group representing young adults, runs its own 'navigator' program to help young people choose health insurance plans.
'We hear the frustration,' said Martha Sanchez, who was until recently the group's director of health policy and advocacy. 'Twenty-six-year-olds have had negative experiences in a process that's become really complex. Many throw up their hands.'
The ACA was supposed to help consumers find affordable, high-quality plans online. The legislation also tried to expand Medicaid programs, which are administered by states, as a way to provide health insurance to low-income Americans.
But the Supreme Court ruled in 2012 that states could not be forced to expand Medicaid. Ten states, led mostly by Republicans, have not done so, leaving up to 1.5 million Americans, who could have qualified for coverage, without insurance.
Even where Medicaid is available to 26-year-olds, the transition has often proved precarious.
Madeline Nelkin of New Jersey, who was studying social work, applied for Medicaid coverage before her 26th birthday in April 2024 because her university's insurance premiums were more than $5,000 annually.
But it was September before her Medicaid coverage kicked in, leaving her uninsured while she fought a chest infection over the summer.
'People tell you to think ahead, but I didn't think that meant six months,' she said.
When Megan Hughes, 27, of Hartland, Maine, hit the cliff, she went without. An aide for children with developmental delays, she has a thyroid condition and polycystic ovary syndrome.
She looked for a health care plan but found it hard to understand the marketplace. (She didn't know there were navigators who could help.) Now she can't afford her medicine or see her endocrinologist.
Advertisement
'I'm tired all the time,' Hughes said. 'My cycles are not regular anymore at all. When I do get one, it's debilitating.' She is hoping a new job will provide insurance later this year.
Traditionally, most Americans with private health insurance got it through their jobs. But the job market has changed dramatically since 2010, particularly in the wake of the pandemic, with the rise of the gig economy.
Over 30% of people ages 18 to 29 said in recent surveys that they were working or have worked in short-term, part-time or irregular jobs.
The ACA requires organizations with 50 or more employees to offer insurance to people working 30 hours per week. This has led to a growing number of contract employees who work up to, but not past, the hourly limit.
In Oklahoma, Daisy Creager, 29, has had three employers over the last three years. Insurance was important to her, not least because her former husband had Type 1 diabetes.
As she left the first of those jobs, her husband's endocrinologist helped the couple stockpile less expensive insulin from Canada, since they would be uninsured.
After a few months, they bought a marketplace plan, but it was expensive and 'didn't cover a lot,' she said.
When she found a new job, she dropped that plan, only to discover that her new insurance coverage didn't start until the end of her first month of employment. The couple would be uninsured for a few weeks.
A few days later, she came home to find her husband unconscious on the floor, in a diabetic coma. After hovering near death in an intensive care unit for four days, he woke up and began to recover.
Advertisement
'I think I've done everything right,' Creager said. 'So why am I in a position where the health insurance available to me doesn't cover what I need, or I can barely afford my premiums, or worse, at times I don't even have it?'
Experts agree that the marketplaces need stronger regulation.
In 2023, the federal government defined clearer standards for what plans in each tier of insurance should offer, such as better prescription drug benefits, defined co-pays for X-rays, or coverage for emergency room visits.
Certain types of basic care, such as primary care, should require just a small co-pay for at least a small number of initial visits. Each insurer must offer at least one plan that complies with these new standards at every tier of coverage -- an 'Easy Pricing' option or 'standard plan.'
Most plans on the marketplaces don't meet these criteria. Federal and state regulators had long planned to cull such 'noncompliant' plans, but gradually, fearing that doing so too quickly would scare insurers away from participating.
But with the priorities of the new Trump administration now in focus, and a Republican majority in Congress, it's far from clear what course President Donald Trump, who sought to repeal the ACA outright in his first term, will take.
There are hints: Subsidies to help Americans buy insurance, adopted during the Biden administration, are set to expire at the end of 2025 if the Republican-led Congress doesn't extend them.
If subsidies expire, premiums are likely to rise sharply for plans sold on the marketplaces, leaving insurance out of reach for many more young adults.
This article originally appeared in