UK landmarks glow orange to raise awareness of rare genetic condition
London's Tower 42, Cardiff Castle, The Mersey Gateway Bridge and Green's Windmill in Nottingham were among the buildings to 'Glow Orange' to highlight Prader-Willi Syndrome (PWS)
This weekend saw some of the UK's most iconic landmarks bathed in light to raise awareness for a rare complex genetic condition affecting around 2,000 people in the UK. The illumination lasted from sunset on Friday until sunrise Saturday morning, across 17 different landmarks, marking the conclusion of Prader-Willi Awareness month in May.
Landmarks such as London's Tower 42, Cardiff Castle, The Mersey Gateway Bridge and Green's Windmill in Nottingham were among those glowing orange to spotlight Prader-Willi Syndrome (PWS). Southend Civic Centre, Worcester's Guild Hall and Edinburgh's Camera Obscura and World of Illusions also shone bright in an orange hue.
Nigel Birrell, CEO of Lottoland, the company behind the activation and a proud charity partner, expressed: "The Prader-Willi Syndrome Association (PWSA UK) is a cause that's very personal to me, and I've been a long-time admirer of the incredible work they carry out.
"It's been truly inspiring to witness so many landmarks across the country light up in support of PWS awareness - the level of engagement has really touched us."
For the second year running, PWSA UK and FPWR UK (Foundation for Prader-Willi Research UK) have collaborated to plan and organise several events, one of which was held at the House of Lords on 14th May.
Held in the capital city, it featured speeches from both charities and members of the PWS community who shared their experiences of living with the condition. The event also offered information to help people understand the complexities of PWS.
The objective of the events was to raise awareness and understanding of the rare condition, which triggers an overpowering and uncontrollable urge to eat that can be life-limiting, as well as causing learning and physical difficulties.
They hope that a better understanding will lead to more effective support which will save money and lives. The charities are also collectively utilising the disorder's initials to help people identify key issues associated with the condition:
P - Persistent hunger: can lead to life-threatening obesity.
W - Warning signs absent: typical health warning signs are absent for people with PWS.
S – Specialist Care: people with the condition need round-the-clock supervision.
Jackie Lodge from PWSA UK and Catherine Shaw from FPWR UK released a joint statement. They said: "We're delighted that PWSA UK and FPWR UK have come together again for PWS month to raise awareness for such an important cause."
"We want to generate as much awareness about PWS as possible and by these buildings and landmarks lighting up orange it is a fantastic way to do so, on top of the other events that have taken place this month. We're really grateful to these buildings for shining a light on this important cause."
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Daily Mirror
3 days ago
- Daily Mirror
UK landmarks glow orange to raise awareness of rare genetic condition
London's Tower 42, Cardiff Castle, The Mersey Gateway Bridge and Green's Windmill in Nottingham were among the buildings to 'Glow Orange' to highlight Prader-Willi Syndrome (PWS) This weekend saw some of the UK's most iconic landmarks bathed in light to raise awareness for a rare complex genetic condition affecting around 2,000 people in the UK. The illumination lasted from sunset on Friday until sunrise Saturday morning, across 17 different landmarks, marking the conclusion of Prader-Willi Awareness month in May. Landmarks such as London's Tower 42, Cardiff Castle, The Mersey Gateway Bridge and Green's Windmill in Nottingham were among those glowing orange to spotlight Prader-Willi Syndrome (PWS). Southend Civic Centre, Worcester's Guild Hall and Edinburgh's Camera Obscura and World of Illusions also shone bright in an orange hue. Nigel Birrell, CEO of Lottoland, the company behind the activation and a proud charity partner, expressed: "The Prader-Willi Syndrome Association (PWSA UK) is a cause that's very personal to me, and I've been a long-time admirer of the incredible work they carry out. "It's been truly inspiring to witness so many landmarks across the country light up in support of PWS awareness - the level of engagement has really touched us." For the second year running, PWSA UK and FPWR UK (Foundation for Prader-Willi Research UK) have collaborated to plan and organise several events, one of which was held at the House of Lords on 14th May. Held in the capital city, it featured speeches from both charities and members of the PWS community who shared their experiences of living with the condition. The event also offered information to help people understand the complexities of PWS. The objective of the events was to raise awareness and understanding of the rare condition, which triggers an overpowering and uncontrollable urge to eat that can be life-limiting, as well as causing learning and physical difficulties. They hope that a better understanding will lead to more effective support which will save money and lives. The charities are also collectively utilising the disorder's initials to help people identify key issues associated with the condition: P - Persistent hunger: can lead to life-threatening obesity. W - Warning signs absent: typical health warning signs are absent for people with PWS. S – Specialist Care: people with the condition need round-the-clock supervision. Jackie Lodge from PWSA UK and Catherine Shaw from FPWR UK released a joint statement. They said: "We're delighted that PWSA UK and FPWR UK have come together again for PWS month to raise awareness for such an important cause." "We want to generate as much awareness about PWS as possible and by these buildings and landmarks lighting up orange it is a fantastic way to do so, on top of the other events that have taken place this month. We're really grateful to these buildings for shining a light on this important cause."
Scottish Sun
5 days ago
- Scottish Sun
UK landmarks glow orange to raise awareness of rare genetic condition
The condition causes an overwhelming and uncontrollable drive to eat that can be life-limiting GLOW UP UK landmarks glow orange to raise awareness of rare genetic condition Some of the UK's most iconic landmarks were glowing orange last night - to raise awareness of a rare complex genetic condition that affects approximately 2,000 people in the UK. London's Tower 42, Cardiff Castle, The Mersey Gateway Bridge and Green's Windmill in Nottingham were among the buildings to 'Glow Orange' to highlight Prader-Willi Syndrome (PWS). 4 A number of buildings across the UK were lit up orange last night to raise awarness for those affected by Prader-Willi Syndrome (PWS), including Cardiff Castle pictured here Credit: Matthew Horwood/PinPep 4 The Mersey Gateway Bridge was also visibly orange last night to mark the end of PWS awareness month Credit: Phil Oldham/PinPep 4 Green's Windmill in Nottingham lit up in orange last night Credit: James Linsell-Clark/PinPep Southend Civic Centre, Worcester's Guild Hall and Edinburgh's Camera Obscura and World of Illusions were also illuminated in an orange. The glow up lasted from sundown until sunrise, across 17 different landmarks, to mark the end of Prader-Willi Awareness month in May. Nigel Birrell, CEO of which was behind the activation and a proud charity partner with a scratchcard dedicated to the cause said: 'The Prader-Willi Syndrome Association (PWSA UK) is a cause that's very personal to me, and I've been a long-time admirer of the incredible work they carry out. "It's been truly inspiring to witness so many landmarks across the country light up in support of PWS awareness - the level of engagement has really touched us.' PWSA UK and FPWR UK (Foundation for Prader-Willi Research UK) have come together for a second year to plan and organise several events, which included one at the House of Lords on May 14th. Hosted in the capital city, it included speeches from both charities and the PWS community who shared their experience of living with the condition. The event also provided information to help people understand the complexities of PWS – the hope being that a better understanding will lead to more effective support which will save money and lives. The aim of the various events was to generate awareness and understanding of this rare condition which causes an overwhelming and uncontrollable drive to eat that can be life-limiting, as well as learning and physical difficulties. Together the charities are using the condition's initials to help people recognise key issues associated with the disorder. P - Persistent hunger which can lead to life-threatening obesity. The full list of lit-up buildings Tower 42 Bradford City Hall Bridport Town Hall Clock St Edmundsbury Cathedral Gateshead Millennium Bridge The Mersey Gateway Bridge Green's Windmill Southend Civic Centre Camera Obscura and World of Illusions The Guild Hall Worcester Cardiff Castle Moorish Castle (Gibraltar) Ranfurly House Dungannon Burnavon Cookstown Bridewell Magherafelt Portsmouth Spinnaker Tower Titan Crane, Scotland W - Warning signs absent, typical health warning signs are absent for people with PWS. S – Specialist Care - people with the condition need specialist care, with round-the-clock supervision. Jackie Lodge of PWSA UK and Catherine Shaw of FPWR UK issued a joint statement. They said: 'We're delighted that PWSA UK and FPWR UK have come together again for PWS month to raise awareness for such an important cause. 'We want to generate as much awareness about PWS as possible and by these buildings and landmarks lighting up orange it is a fantastic way to do so, on top of the other events that have taken place this month. 'We're really grateful to these buildings for shining a light on this important cause.'
The Sun
5 days ago
- The Sun
UK landmarks glow orange to raise awareness of rare genetic condition
Some of the UK's most iconic landmarks were glowing orange last night - to raise awareness of a rare complex genetic condition that affects approximately 2,000 people in the UK. Lon don's Tower 42, Cardiff Castle, The Mersey Gateway Bridge and Green's Windmill in Nottingham were among the buildings to 'Glow Orange' to highlight Prader-Willi Syndrome (PWS). 4 4 4 Southend Civic Centre, Worcester's Guild Hall and Edinburgh's Camera Obscura and World of Illusions were also illuminated in an orange. The glow up lasted from sundown until sunrise, across 17 different landmarks, to mark the end of Prader-Willi Awareness month in May. Nigel Birrell, CEO of which was behind the activation and a proud charity partner with a scratchcard dedicated to the cause said: 'The Prader-Willi Syndrome Association (PWSA UK) is a cause that's very personal to me, and I've been a long-time admirer of the incredible work they carry out. "It's been truly inspiring to witness so many landmarks across the country light up in support of PWS awareness - the level of engagement has really touched us.' PWSA UK and FPWR UK (Foundation for Prader-Willi Research UK) have come together for a second year to plan and organise several events, which included one at the House of Lords on May 14th. Hosted in the capital city, it included speeches from both charities and the PWS community who shared their experience of living with the condition. The event also provided information to help people understand the complexities of PWS – the hope being that a better understanding will lead to more effective support which will save money and lives. The aim of the various events was to generate awareness and understanding of this rare condition which causes an overwhelming and uncontrollable drive to eat that can be life-limiting, as well as learning and physical difficulties. Together the charities are using the condition's initials to help people recognise key issues associated with the disorder. P - Persistent hunger which can lead to life-threatening obesity. W - Warning signs absent, typical health warning signs are absent for people with PWS. S – Specialist Care - people with the condition need specialist care, with round-the-clock supervision. Jackie Lodge of PWSA UK and Catherine Shaw of FPWR UK issued a joint statement. They said: 'We're delighted that PWSA UK and FPWR UK have come together again for PWS month to raise awareness for such an important cause. 'We want to generate as much awareness about PWS as possible and by these buildings and landmarks lighting up orange it is a fantastic way to do so, on top of the other events that have taken place this month. 'We're really grateful to these buildings for shining a light on this important cause.' 4
