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After losing lawsuit, the family of Grace Schara plans to continue telling her story

After losing lawsuit, the family of Grace Schara plans to continue telling her story

Yahoo3 days ago

Despite a trial verdict in favor of Ascension, the family of 19-year-old Grace Schara, who died at an Appleton hospital in 2021, vows to continue fighting what they say is a David-and-Goliath battle against the country's healthcare system.
"This door has been closed, but when God closes one door, he always opens another," Grace's father Scott Schara said at a news conference June 20, held on the front yard of a home in Appleton where Schara's attorneys stayed during the trial.
Grace died Oct. 13, 2021 at Ascension NE Wisconsin-St. Elizabeth Hospital, seven days after she was admitted for symptoms of COVID-19. While her cause of death was listed as "acute respiratory failure with hypoxia as a result of COVID-19 pneumonia," Scott Schara filed a lawsuit claiming Grace actually died of a lethal concoction of drugs administered to her by hospital staff, then was not saved due to a wrongful do-not-resuscitate order.
For years, the Schara family has worked to bring attention to their daughter's death, with billboards along Interstate 41 and other highways, as well as a website and newsletter. The trial came more than two years after the family's lawsuit was filed in Outagamie County Circuit Court.
At the end of the nearly three-week trial, a 12-person jury deliberated for two hours and came to a verdict June 19 in favor of the hospital. Of the 13 claims the jury answered in the verdict, only two claims had a dissenter — and there was only one dissenter for each of the two claims.
Cindy Schara, Grace's mother, said the verdict was heartbreaking.
"We really did expect the jury to see what they did to Grace," she said. "She was a valuable person in this world. ... This jury, deliberating as quickly as they did in coming up with their verdict, did not give Grace the respect that she deserved."
RELATED: COVID, conspiracy theories and a billboard campaign: Grace Schara's hospital death finally sees trial
While the family's attorneys argued that Grace died of a drug overdose at the hands of medical staff, attorneys for Ascension and defendants Dr. Gavin Shokar and nurse Hollee McInnis, who both cared for Grace in her final days, gave a different version of events. The defendants' attorneys argued that the drugs provided to Grace — precedex, lorazepam and morphine — were routinely provided in hospital intensive care units, and were used in responsible dosages as a way to slow Grace's too-fast breathing to allow her to take in more oxygen.
Shokar testified during the trial that Grace's parents had explicitly said they did not want her to be intubated, which he said would have been the last-case option he had to try to save her life. Shokar said he labeled Grace as both do not intubate and do not resuscitate with Grace's family's consent, after extensive conversations about the futility of CPR when Grace's lungs were not working properly.
The Scharas say differently, claiming they had no knowledge of Grace's do-not-resuscitate status until her heart stopped and medical staff did nothing to try to revive her, despite the family's shouts and begging.
Besides Scott and Cindy, other speakers at the news conference were Grace's sister, Jess Vander Heiden, as well as attorneys Joseph Voiland and Warner Mendenhall. Gathered in the front yard and sidewalk were around two dozen supporters, many of whom wore purple shirts memorializing Grace.
Scott, Cindy and Jess all expressed disappointment with the outcome of the trial, but said they rely on their faith to guide them as they move forward.
"We are trusting that God has this play out the way that He had known it was going to play out," Cindy said.
The Scharas shared some details about the process to bring the case to trial, and thanked the attorneys for their work.
They acknowledged many odds stacked against people taking on lawsuits against the medical system — including that the maximum amount a person can be awarded for non-economic damages in a medical malpractice lawsuit in Wisconsin is $750,000, and the case took "just over a million dollars to bring to trial," Scott said.
Scott also discussed some of his beliefs at the news conference, including that hospitals were inclined to not save COVID-19 patients due to monetary incentives, and that people should avoid going to hospitals whenever possible.
At trial, defense attorneys pointed out some of Scott's beliefs in conspiracies — something the Scharas said they felt was prejudicial and unrelated to Grace's case.
Mendenhall, one of the Scharas' attorneys, echoed similar sentiments to Scott at the press conference, saying going into a hospital involves a patient "sign(ing) their rights away."
Mendenhall said despite the verdict not going in their favor, he was honored to represent the Scharas at the trial.
"On day one, I pretty much said there's no hope for this case, but you have a case," Mendenhall said. "But by the time we got to trial, I think that the world had turned, and I think we did have a chance at trial. And we worked as hard as we could to get a win for the family and for Grace."
Scott said he is not sure what the next step is, but the family plans to continue to fight for medical reform.
The family draws ties between Grace's death and the death of Grace's brother, Travis Schara, who died by suicide in 2018. Cindy said she believes Travis' death was also influenced by an interaction of medications he was taking at the time.
Cindy also said she believes patients with Down Syndrome, like Grace, are not treated justly in hospitals.
"We are crushed, we are shattered, but we are not defeated, and we will continue on," Jess said tearfully at the news conference. "And we know that we will see Grace and our brother Travis again someday. I hold onto that thought of them in heaven together."
Jessica Van Egeren of the Milwaukee Journal Sentinel contributed to this report.
Contact Kelli Arseneau at 920-213-3721 or karseneau@gannett.com. Follow her on Twitter at @ArseneauKelli.
This article originally appeared on Appleton Post-Crescent: After losing lawsuit, family of Grace Schara plans to continue advocacy

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Federal Proposals Threaten Provider Taxes
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Federal Proposals Threaten Provider Taxes

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How Far Are We from Animal Organs Saving Lives? - Chasing Life with Dr. Sanjay Gupta - Podcast on CNN Audio
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Dr. Sanjay Gupta 00:00:03 'Welcome to Paging Dr. Gupta. This is one of my favorite parts of the week, because I get a chance to connect with you, to answer your questions, and to hear what's on your mind. I also often get to talk about some of the big medical developments that are shaping our lives. If you caught last week's episode, for example, you know that we've been diving into something that sounds very much like science fiction, but at the same time has become very real, quickly, xeno-transplantation, X-E-N-O, transplantation. That is the medical term for transplanting organs from one species into another. In this case, specifically from animals into humans. Even more specifically, from pigs into people. Now, I'm so fascinated by this. I spent two years working on a documentary and we covered everything from the special pig farms to operating rooms. Scientists, surgeons, and patients who are making this happen. I spent a lot of time with all of them. Today, I'm really excited to keep the conversation going by answering the many questions you guys sent in. So let's get into it. Kyra's back with us. What do we have, Kyra? What's up first? Kyra Dahring 00:01:20 Yeah, so Paul wrote in wondering something pretty fascinating about personalized organs, and I'm gonna read it to you. So he wrote: over the past two decades, work was happening in the area of using one's cell makeup to create an organ in the lab. Is this still an approach being considered? Dr. Sanjay Gupta 00:01:37 Okay, Paul, this is a great question. And the answer is yes. There is work that is being done in this particular space of creating basically individualized organs. One of the efforts of a company known as United Therapeutics, they work in the xenotransplant area, one of their efforts is also in creating what can best be called ghost organs. And we got a chance to see this. So imagine this, okay, so you have a pig organ, maybe a pig heart in this case, and it essentially is cleansed using these detergents of all of its biology, of all its cells. The only thing left is the scaffolding of the organ, okay? And then that scaffolding is essentially repopulated, reseeded with human cells, a specific human cells. Now, if you think about that, that essentially now is a personalized organ for somebody. This approach, this idea of creating ghost organs, is still further off than where we are currently with xenotransplantation. But I think to your question, this is the future. These ghost organs that are repopulated with an individual's human cells to create a personalized organ, that may be what we can expect in the future, so for example, let's say you have cardiac disease or you have some sort of disease where you know you're gonna need a transplant in the feature. You could potentially create a personalized organ that would be ready to go when you need it. Before your condition gets too far along, scientists could take some of your cells, simply from your blood or your skin, grow those cells, and then use them to populate the ghost organ scaffolding. Not only do you have an organ designed for you, but because they are your cells immunosuppression, rejection, acceptance, that shouldn't be an issue. It is essentially your organ. Now stick around, after the break we're going to get into just how many of these pig kidneys have actually made it into humans, and the bigger question, could this really solve the organ shortage crisis? Dr. Sanjay Gupta 00:03:54 Okay, we're gonna try and get to as many pages as possible. Kyra, what do we have next? Kyra Dahring 00:03:59 'Next is Ann from Kansas, and she wants to know, you know, how many pig kidney transplants have been done? Whether anyone's lived long-term with them? And if they use different anti-rejection meds than the typical transplant. Dr. Sanjay Gupta 00:04:14 'All right, first of all, how many kidney xenotransplants? Four in two living patients. And the reason I say living patients is because the first couple of transplants were actually done into patients who were brain dead. These were patients who had signed up to be organ donors, but instead in a way they became organ recipients when they were brain-dead. It was an opportunity for scientists to try and study, could these pig organs actually survive in the human body and they found that it worked. So in March of 2024, the first patient, a guy named Rick Slayman at Massachusetts General Hospital got a transplant, a xenotransplant, and he lived for two additional months. In April 2024, a month later, Lisa Pisano got a transplant, lived for a two additional month. A few months later, November of 2024 the third patient, Towana Looney at NYU got a pig kidney. She is still alive, but had to have the pig kidney removed after 130 days because of an unrelated infection. And then in January of 2025, this year, Tim Andrews, the fourth patient, he still has his xenotransplant and soon is gonna surpass 130 days, becoming the longest survivor in the world with a xenotransplant. Now, in addition to the four xeno kidney transplants, there have been two pig heart transplants as well, both at the University of Maryland School of Medicine. January of 2022, David Bennett lived for two additional months. September of 2023, Larry Faucette lived for an additional six weeks. Now, I just wanted to name everybody there because all the folks I just mentioned are pioneers. They volunteered, they put their hands up to do something that had never been done before. And they really sort of ventured out into the unknown. Very, very brave. And as a result of their efforts, they have really advanced science. That's why I wanted to give you all their names. Now, with regard to the second part of your question, the immunosuppression or the anti-rejection medications are very similar to what a human-to-human transplant would take, but typically at higher doses. So similar meds, but higher doses of the meds. And typically a few other drugs that have been added into the regimen, which have been shown to be effective so far in these early studies. The key to the success though, make no mistake, is the engineering of the pig's DNA to make it more similar to a human's. In some cases, there were some genes that were removed. In other cases, certain trans genes were added. So human genes actually added into pig's genome. All right, Kyra, what's our last question? Kyra Dahring 00:07:08 All right, Sanjay, we're wrapping up with one from Alia in Kuwait. She's asking a pretty big picture question: how far are we from this being a solution to the organ crisis? Dr. Sanjay Gupta 00:07:19 Well, Alia, first of all, thanks for calling us from Kuwait. Five years. Five years is the number that I was given over and over again. Kidneys, in part, are going to be the first organs to really get to scale, but it sounds like they're also going to get to hearts, livers, and possibly lungs. We're about to enter clinical trials this summer with United Therapeutics, and we had a chance to visit the farm where they're raising the pigs for the trials. These are biosecure farms, look nothing like a typical farm. They have these filters and clean water and air. In some ways the food and the water and the air that the pigs are getting is even cleaner than what the humans are getting that work there. They have a high level of security. They have their operating rooms right there on campus. So they take the organs there and then send the organs directly to recipients around the country. I don't know, Alia, that I would necessarily say that this is going to solve the organ shortage crisis, but I think it's going to be a very important stopgap. Keep in mind, some of these farms can raise thousands of pigs, and there's a few of these farms around the country, but there's 100,000 people on the waiting list for organs in the United States alone. 17 people who die waiting for an organ. So we're going to need hundreds of thousands of organs potentially to try and solve the organ shortage crisis. And then there are a lot of people who don't currently qualify for transplant, even though they probably should, they're just not sick enough. Then the question becomes, could these pig organs start to supply organs to those folks as well? It's a fascinating field. It combines so many different scientific developments. IVF, cloning, CRISPR gene editing, transplant immunology, transplant surgery. All these scientific developments, some of them Nobel Prize winning developments, came together to create this field of xenotransplantation and potentially save and extend a lot of lives in the process. Dr. Sanjay Gupta 00:09:28 'Thanks for being so fascinated by this like I am and thank you for writing in your questions, sending in your question. I always love hearing what you're curious about. And if there's something else health related you've been wondering about, don't be shy, record a voice memo, email it to AskSanjay@ or give us a call, 470-396-0832, leave a message, and be sure to check out part two of our Chasing Life special on xenotransplantation. I'm gonna dive even deeper into what this breakthrough could mean for the future of medicine overall. The documentary is called Animal Pharm, P-H-A-R-M, and part two will be on the feed Friday. Thanks for listening, and I'll be back next Tuesday. Chasing Life is a production of CNN Audio. Our podcast is produced by Eryn Mathewson, Jennifer Lai, Grace Walker, Lori Galaretta, Jesse Remedios, Sofia Sanchez, Kyra Dahring, and Madeleine Thompson. Andrea Kane is our medical writer, our senior producer is Dan Bloom, Amanda Sealy is our showrunner, Dan Dzula is our technical director, and the executive producer of CNN Audio is Steve Lickteig. With support from Jamus Andrest, Jon Dianora, Haley Thomas, Alex Manasseri, Robert Mathers, Leni Steinhardt, Nichole Pesaru, and Lisa Namerow. Special thanks to Ben Tinker and Nadia Kounang of CNN Health and Wendy Brundige.

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