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Birmingham experts urge more support for hoarding disorder

Birmingham experts urge more support for hoarding disorder

BBC News10-05-2025

A social enterprise has warned it is seeing a large rise in people seeking help with severe hoarding.Last month Birmingham-based Clouds End CIC said the issue had become a "mental health emergency", and its founder, Heather Matuozzo, said coverage of the issue since then led to more people coming forward.It comes as mental health experts across the UK publish an open letter urging the government to increase funding to support people living with hoarding disorder.Signed by charities, housing groups and academics, and led by Northumbria University, it warns of a critical situation in the absence of a co-ordinated national mental health strategy.
The call for increased awareness comes after the BBC in the Midlands followed Clouds End as it worked with hundreds of hoarders in Birmingham.Estimates suggest the condition may affect four million people, but there has been no detailed analytical research.The World Health Organisation (WHO) classified hoarding as a mental health disorder in 2018. The Department of Health & Social Care (DHSC) said the government would "fix the broken system" to ensure mental health was given the same focus as physical health.
But hoarding experts say there must be a single unifying policy."Hoarding is often misunderstood, or dismissed as mere clutter, laziness or a lifestyle choice, but it is a complex mental health condition that goes far beyond an inability to organise or let go of possessions", said Prof Nick Neave, chair of the UK Hoarding Partnership."People who hoard often struggle to find adequate support and services, meaning they are frequently overlooked by social care systems, health services, housing authorities and mental health professionals."Individual local authorities, including Birmingham City Council, have developed policies alongside the local NHS, funding third sector organisations to offer emotional support to those with the disorder.But there is no single UK-wide policy, leading to concerns some people are falling through the cracks and unable to access support.Ms Matuozzo believes the government needs to take their concerns more seriously."There has never been a more opportune moment to send this open letter", she said, ahead of Hoarding Awareness Week, which starts on Monday."The BBC's coverage of the official request for National Guidelines, prompted by a potential mental health crisis among people who hoard, has opened a door that must remain wide open."
The UK Hoarding Partnership, which was established last year, said there should be an integrated multi-agency approach, where mental health services, social care, environmental health, professional organisers, and housing authorities worked together to address the need.Paulette Hamilton, the MP for Birmingham Erdington and vice-chair of the health and social care select committee, agrees."It needs to be a little more joined up, government, the NHS, so it's not just the voluntary sector and others that are trying to cure it", she said earlier this month."We could have some very strong recommendations which we can take to the Department of Health to get into communities," she added.Responding to the open letter, a DHSC spokesperson told the BBC it was planning to recruit an additional 8,500 mental health workers, and invest £26m to open new community mental health crisis centres, alongside reforms to the Mental Health Act.
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EXCLUSIVE My entire body went numb and I couldn't walk after taking common ADHD drug prescribed to millions
EXCLUSIVE My entire body went numb and I couldn't walk after taking common ADHD drug prescribed to millions

Daily Mail​

time36 minutes ago

  • Daily Mail​

EXCLUSIVE My entire body went numb and I couldn't walk after taking common ADHD drug prescribed to millions

Hannah Schweickert never thought a common medication for ADHD would leave her numb from her face to her toes, at times unable to walk. Schweickert, from Indiana, has had attention deficit hyperactivity disorder since she was young. Doctors had prescribed her the popular drug Adderall, a stimulant taken by 16million Americans known to improve focus, attention, and impulse control. She started on a low dose, standard practice doctors follow to minimize side effects, which can include insomnia, increased heart rate, anxiety, mood swings, and jitteriness. When she showed no improvement, doctors increased the dosage, first to 15mg, then to 20mg, 30mg, and, finally, 40mg, her highest dose. Schweickert, 25, took a 40mg tablet every day for about two months with little incident. But when she went on a family vacation, she began experiencing troubling symptoms she didn't immediately connect to the prescription stimulant. 'I was scratching my neck and I couldn't feel anything. My neck had no feeling,' she said. That numbness spread from her neck to her fingertips, and a week later, to her cheeks, eventually taking over her whole body. Back at college one night, alone in her room and unable to feel her bed underneath her, she panicked. 'I thought I was dying,' she said, describing a destabilizing panic attack. 'I immediately shot up, couldn't breathe, my heart was beating out of my chest. 'I didn't know what a panic attack was, but that's definitely what was happening.' Schweickert laid in a state of panic for an hour before a friend was able to get to her. She calmed herself, but it was far from the last panic attack that would strike. She said in a TikTok: 'Then that started happening every day. The worst one probably lasted about two hours. 'I couldn't walk. My friends had to carry me to pee.' She went on to say she had gone to the emergency room for her panic attacks, a common response people have to the sense of chest-tightening panic that mimics a heart attack, four times over the next few months, but doctors were stumped. Her mom then suggested something that had not occurred to Schweikert previously: stop taking Adderall. 'At this point, I had no feeling in my entire body,' Schweickert said. 'It had been 22 days with no feeling. So all my nerves, something was wrong with them.' Doctors would test her ability to feel touch on her arms, head, and legs, and according to them, everything seemed normal. She said they were not concerned and let her leave without any answers. So she took it upon herself to figure out what was going on. Schweickert stopped taking her Adderall for a week, something doctors do not generally recommend because the withdrawal symptoms can be intense, causing depression, anxiety, headaches, muscle aches, and sleep disruptions. But some of her numbness subsided in that time. She continued her research, having seen a study that found rats given Adderall at high doses experienced considerable changes in their brains. The 2017 study, published in the journal Neuroscience Letters, studied rats given 10mg of amphetamine (a key component of Adderall) and an antidepressant called desipramine, which extends the stimulant's effects. The rats' dopamine levels plummeted and stayed low for seven days after a single dose. In addition to producing feelings of motivation and reward, dopamine can regulate pain and sensory signals. But the researchers also found evidence of other neurotoxic effects in rats that could potentially explain Schweickert's reaction. The medicine starved the rats' brain cells of their energy source within an hour, making it impossible for nerve cells to send signals. This could lead to Schweiker's initial feelings of having a dead limb or tingling. 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Figures for the number of children taking Adderall or other ADHD medications are hard to pin down due to differences in prescription databases, changing trends over time (due to the Adderall shortage in 2022, for instance), state-by-state variations in reporting, and the rise of telehealth prescriptions. But current estimates say that around 10 percent of American children, aged two to 17, have been diagnosed with ADHD, and 62 percent of them are being treated with medications, translating to about 4.5 million children.

Rape victims can challenge dropped cases after sexsomnia fiasco
Rape victims can challenge dropped cases after sexsomnia fiasco

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An 'important first step' Ms McCrossen-Nethercott received £35,000 in compensation and an apology from the Crown Prosecution Service (CPS) for its decision to drop the case before the evidence had been tested in court. She contacted police in 2017 because she thought she had been raped while asleep. She said she had woken up half-naked, finding her necklace broken on the floor. But charges were dropped by the CPS days before a trial was scheduled to begin after lawyers for the alleged perpetrator claimed Ms McCrossen-Nethercott had sexsomnia – a medically recognised, but rare, sleep disorder that causes a person to engage in sexual acts while asleep. She welcomed the pilot scheme to be run in the West Midlands as an 'important first step'. 'It can't undo the harm already done to victims like me, but it's real, tangible progress, and I hope it marks the beginning of a fairer system, one where victims' voices are not just heard, but acted on,' said Ms McCrossen-Nethercott. Victims already have the right to challenge a decision not to charge suspects once it has been taken, but the pilot scheme will extend that right to before prosecutors decide to drop a case. 'Make Britain's streets safer' Lucy Rigby, Labour MP and Solicitor General, wrote in an article for The Telegraph: 'The existing scheme is already an important tool in delivering justice, but this new commitment from the CPS will extend that right, so that victims are further empowered to question decisions made in their cases, resulting in fewer cases falling through the cracks and more offenders brought to justice. 'Beginning on Friday, the pilot will become operational in the West Midlands. If it is a success, we will look to extend this across the country to support all victims of rape and serious sexual assaults. 'We know there is much to do to fix the justice system. But this is a vital step towards building the system that victims deserve and ultimately make Britain's streets safer.' 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Too often, victims of violence against women and girls are let down by our criminal justice system, compounding what is already a traumatic experience. I have strong views on the reasons why. Chief among them: 14 years of governments whose approach was nothing short of negligent. This resulted in too few bobbies on the beat, overflowing prisons and a record backlog in our courts, leaving victims of very serious crimes waiting years to see perpetrators in court. In short, a broken criminal justice system in desperate need of repair. The impact on victims and public trust in the justice system was significant. A creaking criminal justice system undermines one of the basic principles fundamental to our democracy: the rule of law. That is to say the law applies to everyone equally and all must have access to justice. This happened despite the work of thousands of dedicated public servants to protect us all. I've met many of them – including the prosecutors from across the country that dedicate their careers to sifting through evidence, often in harrowing crimes, to build a case and pursue justice on behalf of victims. Empowering rape victims This Government has begun the difficult task of fixing our criminal justice system as part of the Plan for Change, in which we pledge to halve violence against women and girls in a decade. To achieve this, we are putting domestic abuse specialists into 999 control rooms, introducing new Domestic Abuse Protection Orders, doing more to effectively tackle spiking, stalking and coercive behaviour. That means better support in place for victims and giving them the confidence that specialists are helping them. These changes will also see more police on our streets, locking up abusers, but importantly – getting quicker justice and support for those suffering at the hands of perpetrators of these horrific crimes. 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Leading victims' rights voices, like Jade Blue McCrossen-Nethercott, the Centre for Women's Justice, Dame Vera Baird and Claire Waxman OBE, the Victims' Commissioner, have recognised the success of this scheme and that is why we are extending it to better support more victims. A new pilot launched this week will give survivors of rape and serious sexual assault the right to have their case reviewed before CPS makes any final decisions. Currently, criminal cases can be stopped at any point if a prosecutor decides there is no longer a realistic prospect of conviction. For the first time, survivors of rape or serious sexual abuse will be offered the right to request a review by a different prosecutor before their case is dropped. Where a review finds that the initial decision was wrong, the case against the accused will continue. A system victims deserve The existing scheme is already an important tool in delivering justice, but this new commitment from the CPS will extend that right, so that victims are further empowered to question decisions made in their cases, resulting in fewer cases falling through the cracks and more offenders brought to justice. Beginning on Friday, the pilot will become operational in the West Midlands. If it is a success, we will look to extend this across the country to support all victims of rape and serious sexual assaults. We know there is much to do to fix the justice system. But this is a vital step towards building the system that victims deserve and ultimately make Britain's streets safer.

Tom Daley was bullied so horrifically he received threats of broken legs and was given classroom key to escape
Tom Daley was bullied so horrifically he received threats of broken legs and was given classroom key to escape

The Sun

time41 minutes ago

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TOM DALEY once ruled the world of diving after becoming an Olympic champion. But in a candid interview and documentary, Daley has opened up on his personal struggles to get to that point, including bullying, eating disorders and the loss of his father. 4 4 4 The now-retired Daley, 31, won five medals for Team GB across five Olympic Games, including gold for the 10-metre synchro in 2021. His long list of accolades also included being named world champion twice, but perhaps his greatest prize now is his loving family with husband, Dustin Lance Black, and two boys, Robbie and Phoenix. In the new documentary, " 1.6 seconds", Daley has opened up the career struggles that have shaped him into the person he is today. And also speaking to People, the Brit has reflected on both the good and bad parts of his life. Speaking in the documentary, Daley says: "My whole life has been about diving. My whole life has been about perfecting those 1.6 seconds. 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Tom Daley breaks down in tears as he retires live on BBC after returning home from Paris 2024 Olympics "I was almost embarrassed about the fact that people were mean to me at school. I feel so sorry for that kid that had to explain what was going on." Daley publicly spoke about his bullying at the age of 13, but now believes he should have been "more conservative" with what he shared due to it making the situation even more overwhelming and painful. In 2011, Daley had to fight his way through an eating disorder after being told to lose weight by the performance director at British Diving, which was all he could think about going into London 2012. Daley said: "It was the first time where I felt that I was being looked at and judged not for how I did in the diving pool but for how I looked. "I took some quite drastic measures to make sure that the food did not stay in my stomach... "Every time I made a decision about what I was going to eat, if I was going to eat it and then get myself so hungry that I would end up eating so much and binging to the point where I was then so guilty — that I then had to do something about that." Daley admits his struggles were not helped by his internal beliefs about masculinity where guys, "didn't have eating disorders, didn't have any problems with their mental health," and "were meant to be these macho things that get on with anything and you just keep going". As a result, Daley felt isolated, a problem which was only deepened with the tragic loss of his father, Robert, from brain cancer just days after he turned 17. On his grief, Daley says: "I think there was something about when he was gone that I think in turn, probably did have something to do with all that I've faced. "The feeling like I had to face it alone because I didn't want to upset anyone else or bother anyone else because they were already going through enough." His father had kept the seriousness of his illness hidden from his children for as long as he could, as he was determined not to let it overshadow his son's growing success. In the documentary, Daley reflects: "He didn't care how well I did. He didn't care if I came last. He didn't care if I bombed out. Like there was no concern about the outcome. "He just wanted to be there.… He just loved seeing me dive. He was the one person that I could go to to speak about anything and everything and feel like I had someone on my side. "I didn't just lose my dad, because he was much more than that. 'He was my biggest cheerleader, my best friend, mentor. I mean, our whole life came to a standstill." However, Daley says he understands his father's decision to keep it close to heart, saying to People: "Now that I think about it as a parent, it would be like trying to explain that to my oldest son. "And, you know, if one of the kids knew, then they were all going to know. As a parent, you want to protect your kids from anything that's going into that." He added: "So I just think… that's part of the reason for the documentary and like how grateful I am to have all of that archival footage. "All of those moments… forever immortalised by being able to actually have copies of that digitised." Daley's world of isolation came crashing down when he met his husband and eventually started a family. In 1.6 seconds, he explains: "I finally found perspective, and I didn't put all of my self-worth and self-esteem based on how well I did in diving. "I started to realise that I was more than just a diver. [I am] a husband, a father, a friend, a son." Despite the struggles he has been through, the Olympic legend, father and husband says: "You know, there's much of my life formed and shaped because of the experiences I went through — the good and the bad. "Those things formed me and created the person I am today."

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