
B.C. couple moves from Fairmont to Calgary to get access to chemotherapy
Pragmatically and logistically, the move was relatively stress-free, according to Doran. As a senior retired couple with the kid long moved out and property already held in Calgary, it was much easier to pack up and move.
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But that didn't make it easy. 'I didn't like it much, but I did it because I knew it was coming,' he said. He and his wife had owned the property in Fairmont for more than three decades.
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'We did it because it was the only sensible thing to do,' he said.
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He wanted to voice his story not because of the inconvenience caused to him and his wife, but what a similar scenario would mean for a younger family, with children in school and working parents.
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'It's for the young families that get stuck with this and have to uproot,' he said, or alternatively, are stuck with the drive to Kelowna back-and-forth because they are unable to pick up and move elsewhere.
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A statement from B.C. ministry of health attributes the challenges with cross-border care between B.C. and Alberta to 'internal decision(s) made by Alberta.'
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'A B.C. patient can receive cancer care in Alberta, as long as the patient is referred by BC Cancer and accepted by Alberta,' the statement reads. 'However, the decision to accept a patient transfer from B.C. to Alberta rests entirely within Alberta. The B.C. Ministry of Health does not have authority over the Alberta healthcare system.'
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The province's health minister, Josie Osborne, sent a letter to Alberta counterpart Adriana LaGrange earlier this spring, requesting a meeting to discuss the issue, the statement continued.
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Postmedia has reached out to Alberta's ministry of health to confirm if the letter was received and responded to.
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A spokesperson for Alberta's health ministry attributed the limitations to a local increase in demand for health services.
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'With a growing population, the demand for health services has increased, putting pressure on the system,' the statement reads. 'To ensure that Albertans continue to receive timely care and maintain efficient services, priority is given to them.'
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The province continues to offer emergency and urgent care to anyone in Alberta, regardless of where their health coverage comes from.
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'For elective care, patients from other provinces and territories are encouraged to seek treatment in their home province, where they are generally seen more quickly. In exceptional circumstances — such as urgent oncology needs — care may be provided based on clinical judgment and local capacity,' the statement reads.

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Vancouver Sun
4 hours ago
- Vancouver Sun
U.S. Batten disease experts who lobbied B.C. to reinstate drug in Charleigh Pollock case had relationships with drug company
Almost all the U.S. research experts the B.C. government leaned on to make a decision to reinstate a $800,000-a-year drug treatment for a 10-year-girl have, or had, relationships with the pharmaceutical company that manufacturers the drug or foundations that advocate for treatment, a Postmedia examination has found. The province's decision went against its own 58-member advisory committee. Of the 12 physicians and one neuroscientist who signed a letter sent to B.C. Health Minister Josie Osborne calling on treatment to be reinstated, eight of the signatories have declared conflicts in the past five years in papers written for scientific journals or for public presentations because they have consulted for, been paid by, or received grants from California-based BioMarin Pharmaceutical Inc. Another doctor reported being a consultant for BioMarin for four years on a resumé posted online and was paid by BioMarin to be on a medical podcast. Start your day with a roundup of B.C.-focused news and opinion. By signing up you consent to receive the above newsletter from Postmedia Network Inc. A welcome email is on its way. If you don't see it, please check your junk folder. The next issue of Sunrise will soon be in your inbox. Please try again Interested in more newsletters? Browse here. BioMarin manufactures Brineura used to treat Batten disease, the rare incurable neurodegenerative condition that 10-year-old B.C. girl Charleigh Pollock has. Three other doctors who signed the letter have relationships with foundations that advocate and raise money for Batten disease research. The Postmedia examination also found that one of the U.S. doctors that signed the letter owns shares in BioMarin, two have been quoted in BioMarin news releases and three former BioMarin employees sit on one of the U.S.-based Batten research foundations. Experts in bioethics and pharmaceutical policy say the conflict-of-interest revelations raise questions on why the B.C. government overruled its own advisory committee, why it depended on the opinions of U.S. doctors with relationships to BioMarin, and whether it took those conflict-of-interest relationships into consideration. 'I want to suggest that the British Columbia Ministry of Health was handling this case in an ethically justifiable way and has been sidetracked by the lobbying efforts of the Batten disease patient advocacy groups and the patient herself and the doctors whose careers stand to benefit from licensing and prescribing this drug,' said Arthur Schafer, a University of Manitoba professor with a speciality in bioethics and founder of the school's centre for professional and applied ethics. In an emailed statement from communications manager Amy Crofts, the B.C. Ministry of Health said they 'can confirm that government was aware that some of the U.S. experts have conflicts of interest.' Officials noted the conflicts were required to be declared when publishing peer-reviewed research on Batten disease, including the initial clinical trials on Brineura that were funded by BioMarin and used by Canada's Drug Agency in 2019 to establish the discontinuation criteria. Health officials did not respond to questions on whether the government considered the conflicts of interest in their assessment and how it weighed these conflicts against the advice of its own adviser group. Osborne was not made available for an interview. Initially, the B.C. government backed its advisory committee's decision to halt treatment to the 10-year-old girl after six years. The advisory committee said they recommended stopping treatment because discontinuation criteria was met, and beyond which the benefits versus risks of the drug were not believed to be favourable. The U.S. doctors sent a letter — under a Batten disease support and research association designation — outlining their concerns and calling for the girl's treatment to continue. Osborne, the health minister, said the province reversed its decision because of the letter. 'The letter I received today from the Batten disease experts confirms there is a significant disagreement between health experts on Brineura, and it is not acceptable that Charleigh and her family suffer as a result of that disagreement about the use of Brineura for Batten disease,' Osborne said last month. Following the reversal, 10 members of the advisory committee quit and B.C. Premier David Eby has now called for a review and overhaul of the decision process. Schafer, who has been studying biomedical conflicts of interest for more than 20 years, said he was not surprised to learn the U.S. letter signatories had relationships with the drug company that produced the drug and that they recommended its continued use. He said he believes the B.C. government would have been fully aware of the conflicts of interests held by the U.S. doctors who signed the letter, as these relationships are 'standard procedure.' Schafer, who formerly worked as an ethics consultant for the Winnipeg Regional Health Authority, said he believes the B.C. government capitulated and caved to pressure, as he believes most Canadian provincial governments would. 'And I think the resulting decision is not morally justifiable,' he said. Schafer noted the effectiveness of these expensive rare-disease drugs is often unproven, underscoring the importance for governments to have independent expert advice when making difficult decisions in the face of emotion, public pressure and scarce resources. Other experts have made similar observations. Pierre-Marie David, a professor in the faculty of pharmacy at the University of Montreal who has been researching access to exceptional drugs, said a key to making these decisions is building trust in provincial health agencies, particularly given there is a large pipeline of these expensive drugs with uncertain effectiveness for rare diseases, which means more difficult decisions and increasing costs. 'If we have trust in the decision of a public agency, we should stick to it,' said David. He said he did not believe provinces and Canada should be turning for advice to the U.S. health system, whether the doctors there are right or wrong, or have a conflict of interest or not, because they do not have a public health care system like Canada's. 'They have no lessons to tell us here,' said David. The relationships of some of the U.S. letter signatories to BioMarin are laid out in conflict-of-interest and disclosure statements in scientific journals. For example, a 2024 editorial Dr. Raymond Wang wrote for the journal Neurology includes a 'disclosure' that says he receives research funding from, has received speaking honorariums from, and owns equity in BioMarin Pharmaceuticals, which manufacturers Brineura. Wang is director of the Batten Disease Center for Excellence at Children's Hospital of Orange County in California. A 2024 Lancet Neurology journal article co-written by Dr. Emily de los Reyes includes a conflict-of-interest statement that notes she received 'salary support' from BioMarin for herself and her research personnel. She also received honorariums and travel support. De los Reyes is the chair of the Batten Disease Centers of Excellence program and director of the Batten Disease Center of Excellence at Nationwide Children's Hospital in Columbus, Ohio. A 2022 Journal of Inherited Metabolic Disease paper co-authored by Dr. Erika Augustine, who is the director of the Batten Disease Centre of Excellence at the Kennedy Krieger Institute in Baltimore, notes in a conflict-of-interest statement that she received compensation as a consultant for BioMarin and other pharmaceutical companies. Postmedia reached out by email to these doctors to ask questions about the conflict-of-interest disclosures, but did not receive a reply. In a written response to Postmedia questions, Amy Fenton Parker, president of the Batten Disease Support and Research Association, said questions of funding from drug companies should be posed to each research and clinical treatment group. 'In all scientific presentations, both groups are required to make disclosures about any funding or conflicts of interest,' noted Parker. She noted the centres of excellence do not receive funding from industry partners through the association. There are a number of Batten disease organizations that co-operate and partner to advocate for, and help fund, research for treatments. The Batten Disease Support and Research Association manages the centres of excellence program, under which the U.S. doctors who signed the letter operate. That association has three former BioMarin employees on its board of directors , including vice-chair Barbara Wuebbels. Another group, the Beyond Batten Disease Foundation, has raised $35 million to help fund research to find treatments and has partnered with the Batten Disease Support and Research Association. The research association has several chapters around the world, including in Canada. The 10-year-old B.C. girl's mother, Jori Fales, is on the board of directors of the Canadian chapter, according to the latest filing of the group for registered charities in Canada. ghoekstra@


Toronto Sun
7 hours ago
- Toronto Sun
DEAR ABBY: Husband's hazy new habit has wife eyeing the exit
A husband's marijuana smoking is bothering his wife. Photo by stock photo / Getty Images Reviews and recommendations are unbiased and products are independently selected. Postmedia may earn an affiliate commission from purchases made through links on this page. DEAR ABBY: My husband is going to be 70 next month. He is in good physical shape but has taken up smoking marijuana every day. He says he is addicted. I have told him how much I hate that he uses dope. He quits for a while and then goes back to it. This advertisement has not loaded yet, but your article continues below. THIS CONTENT IS RESERVED FOR SUBSCRIBERS ONLY Subscribe now to read the latest news in your city and across Canada. Unlimited online access to articles from across Canada with one account. Get exclusive access to the Toronto Sun ePaper, an electronic replica of the print edition that you can share, download and comment on. Enjoy insights and behind-the-scenes analysis from our award-winning journalists. Support local journalists and the next generation of journalists. Daily puzzles including the New York Times Crossword. SUBSCRIBE TO UNLOCK MORE ARTICLES Subscribe now to read the latest news in your city and across Canada. Unlimited online access to articles from across Canada with one account. Get exclusive access to the Toronto Sun ePaper, an electronic replica of the print edition that you can share, download and comment on. Enjoy insights and behind-the-scenes analysis from our award-winning journalists. Support local journalists and the next generation of journalists. Daily puzzles including the New York Times Crossword. REGISTER / SIGN IN TO UNLOCK MORE ARTICLES Create an account or sign in to continue with your reading experience. Access articles from across Canada with one account. Share your thoughts and join the conversation in the comments. Enjoy additional articles per month. Get email updates from your favourite authors. THIS ARTICLE IS FREE TO READ REGISTER TO UNLOCK. Create an account or sign in to continue with your reading experience. Access articles from across Canada with one account Share your thoughts and join the conversation in the comments Enjoy additional articles per month Get email updates from your favourite authors Don't have an account? Create Account We have been married almost 50 years. I would be disappointed filing for divorce, but I am starting to think it's my only way out of a situation that has become increasingly frustrating. His doctor has told him it probably won't kill him. Seriously? What's your advice, Abby? — POTHEAD'S WIFE IN ARIZONA DEAR WIFE: Unless there are other reasons why you want out of your marriage, perhaps you should lighten up. Some people smoke marijuana to relax or to relieve tension, depression or even boredom. Do you know why your husband does it on a daily basis, and why you are bothered to the point you are considering divorce? Before talking to an attorney, you might benefit from attending a few Nar-Anon meetings to gain some insight. They're as near as your computer at Your noon-hour look at what's happening in Toronto and beyond. By signing up you consent to receive the above newsletter from Postmedia Network Inc. Please try again This advertisement has not loaded yet, but your article continues below. DEAR ABBY: I recently bought a new house. I was downsizing because my mother has passed away and my daughter went out of state to college. I invited my best friend and her son over. We have been best friends since junior high, and I love her dearly. I actually bought my new furniture with weight considerations as a factor because she and her son weigh about 1,000 pounds combined. As they sat down, my friend joked about having broken other people's furniture in the past. Then there was an audible 'crack' as they sat down on my couch. She just looked at me and made no comment. Abby, I know friendship is more valuable than a couch, but she wants to bring more of her family over to visit. I simply can't afford to buy a $900 couch every few months. Can you please help? — HESITANT HOSTESS This advertisement has not loaded yet, but your article continues below. DEAR HOSTESS : Your friend should have offered to pay to have your new sofa repaired or replaced. That she heard the wood crack under the burden of their weight and said nothing speaks volumes to me. In the future, visit her at her home, but refrain from inviting her to visit or bring relatives to your home again. RECOMMENDED VIDEO DEAR ABBY: My husband and I have neighbours we are not interested in being friends with. We are a religious family and believe in God. They have a black ram's head hanging in their living room, if you catch my drift. They keep inviting us to events at their home or to spend time with them, and we don't know how to politely decline without making anyone angry. How do we keep our distance? — STAYING AWAY IN NEW YORK DEAR STAYING AWAY: Have you and your husband been accepting their invitations? If that's the case, start backing away by having 'other plans.' However, if they don't take the hint, begin sending them religious tracts from your denomination, and they may disappear in a puff of sulfur. Dear Abby is written by Abigail Van Buren, also known as Jeanne Phillips, and was founded by her mother, Pauline Phillips. Contact Dear Abby at or P.O. Box 69440, Los Angeles, CA 90069. Sunshine Girls Sunshine Girls Toronto Blue Jays Opinion Toronto & GTA


The Province
9 hours ago
- The Province
The 5 best face masks for great summer skin
These masks help calm redness, balance oil and restore radiance Tatcha Luminous Deep Hydration Lifting Mask is an ideal 15-minute treat for August skin. Reviews and recommendations are unbiased and products are independently selected. Postmedia may earn an affiliate commission from purchases made through links on this page. Reviews and recommendations are unbiased and products are independently selected. Postmedia may earn an affiliate commission from purchases made through links on this page. This advertisement has not loaded yet, but your article continues below. THIS CONTENT IS RESERVED FOR SUBSCRIBERS ONLY Subscribe now to read the latest news in your city and across Canada. Exclusive articles by top sports columnists Patrick Johnston, Ben Kuzma, J.J. Abrams and others. Plus, Canucks Report, Sports and Headline News newsletters and events. Unlimited online access to The Province and 15 news sites with one account. The Province ePaper, an electronic replica of the print edition to view on any device, share and comment on. Daily puzzles and comics, including the New York Times Crossword. Support local journalism. SUBSCRIBE TO UNLOCK MORE ARTICLES Subscribe now to read the latest news in your city and across Canada. Exclusive articles by top sports columnists Patrick Johnston, Ben Kuzma, J.J. Abrams and others. Plus, Canucks Report, Sports and Headline News newsletters and events. Unlimited online access to The Province and 15 news sites with one account. The Province ePaper, an electronic replica of the print edition to view on any device, share and comment on. Daily puzzles and comics, including the New York Times Crossword. Support local journalism. REGISTER / SIGN IN TO UNLOCK MORE ARTICLES Create an account or sign in to continue with your reading experience. Access articles from across Canada with one account. Share your thoughts and join the conversation in the comments. Enjoy additional articles per month. Get email updates from your favourite authors. THIS ARTICLE IS FREE TO READ REGISTER TO UNLOCK. Create an account or sign in to continue with your reading experience. Access articles from across Canada with one account Share your thoughts and join the conversation in the comments Enjoy additional articles per month Get email updates from your favourite authors After a summer of (hopefully) sun, sand and sea, your skin is probably calling for a reset — and a face mask is the ultimate easy fix. Whether you're craving a formula to restore hydration or a cooling version to help refresh your visage after a long weekend in the sun, these masks help calm redness, balance oil and restore radiance. Rebecca Tay discovers five face masks to address any summer skin care issues and get you looking dewy and fresh for the rest of the season. The K Shop Biodance Radiant Vita Niacinamide Real Deep Mask Whether it's out-there ingredients such as snail mucin, seven- or 10-step regimens, or its pioneering treatments, Korean beauty is a major thing. For the first-time curious or the very well-versed, The K Shop is a great resource for discovering the latest and greatest — as well as some perennial bestsellers. For skin dulled by the heat of summer, try the Radiant Vita Niacinamide Real Deep Mask by Biodance, a sheet mask that can actually be worn overnight for maximum revitalizing effect. Essential reading for hockey fans who eat, sleep, Canucks, repeat. By signing up you consent to receive the above newsletter from Postmedia Network Inc. Please try again This advertisement has not loaded yet, but your article continues below. The K Shop, | $9 Beautysense Image Skincare Ageless+ Retinol Overnight Masque Widely touted for its ability to boost skin cell and collagen production, which in turn helps unclog pores, exfoliate skin and give it a fresher, plumper look overall, retinol is one of the most common ingredients in antiaging skin care, and this Ageless+ Retinol Overnight Masque with 0.5 per cent retinol complex has just enough in it to do great work while you catch some zzzs. Unlike some formulas, it's also safe enough to use every night, so there's no need to keep track of whether you already applied it the night before — because really, who has the energy for that when you're getting ready for bed? Beautysense, | $156 This advertisement has not loaded yet, but your article continues below. Proudly founded in the U.K. and now Canadian-owned, The Body Shop has been our decades-long go-to for no-frills skin care that smells good and does the trick, no matter your age or skin care concern. Case in point? This Aloe Soothing Sheet Mask, which has a nice, light cucumber-y scent thanks to cucumber extract and aloe vera, and hydrates and calms dry, sensitive skin in just 15 minutes. The Body Shop, | $7 Tatcha Luminous Deep Hydration Lifting Mask It might seem expensive for a single, throwaway mask — and if we're totally honest, we don't love the disposability of sheet masks, though their convenience and hygiene factor is undeniable, especially when travelling — but this deeply moisturizing mask by Japanese skin care brand Tatcha is worth it. Packed with hyaluronic acid and red algae, and without any parabens, phthalates, urea or other sometimes-problematic ingredients, it's an ideal 15-minute treat for August skin. This advertisement has not loaded yet, but your article continues below. Tatcha, | $27 Riversol Redness Calming Mask Created by Vancouver dermatologist Dr. Jason Rivers, Riversol is all about research-backed products that aren't exorbitantly priced and, most importantly, work. For flare-ups or skin that's been through the ringer all summer, this Redness Calming Mask will work wonders: the 50 ml jar should last about four months, and 81 per cent of participants who used it in a 12-week study saw reduced redness. Use it three times a week as a mask, or leave on overnight for even better results. Riversol, | $72 Read More