Sandy mom of six survives 15 years of blood cancer, helps other patients fight
SANDY, Utah () — A mom who fought, and won, a 15-year fight with blood cancer, created a nonprofit to ensure others battling cancer have a fighting chance, too.
Jenny Ahlstrom, 57, was diagnosed with , a form of blood cancer, in 2010. Following her diagnosis, she was presented with a lot of options for treatment.
'It's really hard to figure out, as a patient, what to do,' Ahlstrom told ABC4. 'I was looking for strategies where I could get treated and not have to be treated for a long time.'
A turning point in Ahlstrom's battle was receiving a known as CAR-T during clinical trials. The treatment, much like dialysis, included the removal of her blood cells, changing them in a lab, then infusing the cells back into her through an IV drip.
'Taking care of Jenny and taking care of her family… has just been remarkable,' Ahlstrom's doctor, Doug Sborov, said.
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According to Sborov, an Associate Professor at the University of Utah's Huntsman Cancer Institute, multiple myeloma is generally considered to be 'incurable.' However, with new research and medications, like CAR-T, physicians can drastically lengthen patients' lives and improve their quality of life.
'Here I am, three years later, completely disease free,' Ahlstrom said.
'She's provided patients an incredible opportunity to be educated. She's provided researchers, like myself, an incredible opportunity to engage with patients and really fundamentally change how we're approaching how we take care of these folks,' Sborov told ABC4.
Jenny Ahlstrom raises awareness about available resources for blood cancer patients. (Courtesy Stacey Isaacs)
Now, Ahlstrom leads a nonprofit called that raises awareness and increases access to vital data for researchers.
'If we're going to make advances in healthcare, we need to leapfrog forward in innovation,' Ahlstrom said.
Ahlstrom says there are about 35,000 new diagnoses of myeloma every year and 150,000 living patients with myeloma.
'It's really amazing to bring these new types of therapy to these patients,' Ahlstrom said. 'It's available and it's here.'
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ANAD runs a helpline at 888-375-7767 from 9 a.m. to 9 p.m. CT and provides links to support groups and treatment providers. A call center at 800-334-673 and online chat run by the Butterfly Foundation is open 8 a.m. to midnight AET every day except public holidays. Helplines for England, Scotland, Wales and Northern Ireland are open 9 a.m. to midnight weekdays and 4 p.m. to midnight weekends, every day of the year. Unfortunately, weight stigma is pervasive, and it isn't something you can snap your fingers and rid yourself of, Conason said. One step the medical field can take is to de-emphasize body mass index, or BMI, as an important marker of health, especially because it often classifies healthy people as unhealthy and those with health issues as falling into a healthy weight class, Tomiyama said. When working with clients, Conason also focuses on creating resiliency, she said. 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