Anglesey: Girl, 4, inspires Tŷ Gobaith hospice campaign
Alaw Evan, from Llanfairpwll, features in a summer appeal for Tŷ Gobaith children's hospice, which has raised more than £60,000 in just a few weeks.
Alaw's face has appeared on the front of envelopes delivered to 32,000 homes since the start of May, with her parents, Ffion and Barry, sharing their story.
Ffion said: "Those teeny tiny steps where Alaw is doing something really well, something we never thought we would see.
Alaw's face has appeared on the front of envelopes delivered to 32,000 homes since the start of May (Image: Russell Davies Photography)
"Alaw isn't able to sit up unaided, she doesn't crawl, she doesn't walk, she doesn't stand without the support of a frame but she has the most contagious giggle ever."
Alaw was born on Valentine's Day and sustained a brain injury, due to lack of oxygen, after her mother developed HELLP syndrome, a rare and life-threatening pregnancy condition.
Ffion was not able to meet her Alaw until five days after giving birth.
Barry said: "They were both fighting for their lives and we were being told to expect the worst.
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"But Alaw was a little fighter, and after five days Ffion was able to have her bed wheeled to Neonatal Intensive Care to meet her too."
Alaw was later diagnosed with cerebral palsy, epilepsy, and dystonia.
After spending six months in Alder Hey Hospital, a paediatrician recommended the family consider respite care at Tŷ Gobaith.
Ffion said: "We went to visit in springtime last year and I remember stepping outside in the car park and just feeling completely overwhelmed by how beautiful the setting was."
Mr Evan recently raised money for the hospice by abseiling down the Anglesey Column (Image: Supplied)
She added: "We went inside and everybody was making a fuss of Alaw and she was loving it.
"The first time we left her overnight was massive for us but it felt like a safe place and I'm not just talking about the nurses, I'm talking about the housekeepers and the kitchen staff and how everybody knows everything that is going on there and how everyone is involved in Alaw's care like one big family."
Barry recently raised money for the hospice by abseiling down the Anglesey Column on May 17.
He said: "We are so excited about this next chapter in our lives where we can just be parents to Alaw and our baby Caio, and with the help of Tŷ Gobaith that is happening more and more often."
You can find out more about Alaw's campaign by visiting hopehouse.org.uk/alaw
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3 days ago
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Anglesey: Girl, 4, inspires Tŷ Gobaith hospice campaign
Alaw Evan, from Llanfairpwll, features in a summer appeal for Tŷ Gobaith children's hospice, which has raised more than £60,000 in just a few weeks. Alaw's face has appeared on the front of envelopes delivered to 32,000 homes since the start of May, with her parents, Ffion and Barry, sharing their story. Ffion said: "Those teeny tiny steps where Alaw is doing something really well, something we never thought we would see. Alaw's face has appeared on the front of envelopes delivered to 32,000 homes since the start of May (Image: Russell Davies Photography) "Alaw isn't able to sit up unaided, she doesn't crawl, she doesn't walk, she doesn't stand without the support of a frame but she has the most contagious giggle ever." Alaw was born on Valentine's Day and sustained a brain injury, due to lack of oxygen, after her mother developed HELLP syndrome, a rare and life-threatening pregnancy condition. Ffion was not able to meet her Alaw until five days after giving birth. Barry said: "They were both fighting for their lives and we were being told to expect the worst. READ MORE: Official opening event is held for a new basketball court on Anglesey Gwynedd museum re-opens following £280,000 makeover "But Alaw was a little fighter, and after five days Ffion was able to have her bed wheeled to Neonatal Intensive Care to meet her too." Alaw was later diagnosed with cerebral palsy, epilepsy, and dystonia. After spending six months in Alder Hey Hospital, a paediatrician recommended the family consider respite care at Tŷ Gobaith. Ffion said: "We went to visit in springtime last year and I remember stepping outside in the car park and just feeling completely overwhelmed by how beautiful the setting was." Mr Evan recently raised money for the hospice by abseiling down the Anglesey Column (Image: Supplied) She added: "We went inside and everybody was making a fuss of Alaw and she was loving it. "The first time we left her overnight was massive for us but it felt like a safe place and I'm not just talking about the nurses, I'm talking about the housekeepers and the kitchen staff and how everybody knows everything that is going on there and how everyone is involved in Alaw's care like one big family." Barry recently raised money for the hospice by abseiling down the Anglesey Column on May 17. He said: "We are so excited about this next chapter in our lives where we can just be parents to Alaw and our baby Caio, and with the help of Tŷ Gobaith that is happening more and more often." You can find out more about Alaw's campaign by visiting
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