Government pledges to ‘transform care' for people with ME
It comes after the high-profile death of a young woman from the disease.
Maeve Boothby-O'Neill, 27, suffered with ME for a decade before she died at home in Exeter in October 2021 from severe malnutrition.
Her inquest heard how she had been admitted to the Royal Devon and Exeter Hospital three times that year for treatment for malnutrition.
The 10-day hearing focused on the final few months of her life, by which time she was confined to bed, unable to chew food and had difficulty drinking because she was not able to sit up.
Miss Boothby-O'Neill, the daughter of Sean O'Neill, a journalist with The Times newspaper, had been suffering from fatigue since the age of 13, which got worse after she completed her A-levels.
Deborah Archer, now an area coroner for Devon, Plymouth and Torbay, concluded Miss Boothby-O'Neill had died from natural causes 'because of severe myalgic encephalomyelitis (ME)'.
Last year she wrote to the Government to highlight a lack of specialist beds, 'extremely limited' training for doctors and lack of available funding for research and treatment of the condition.
On Tuesday, the Government said that it has created a plan which 'outlines clear steps to improve care for patients, by investing in research and offering access to care in the community'.
The Department of Health and Social Care (DHSC) acknowledged that many people with the condition 'currently struggle to access appropriate care tailored to their complex condition'.
The plan, which is expected to be published on Tuesday, will include new training for NHS workers, DHSC said.
And the document will also include funding for research, the DHSC said.
Public health minister Ashley Dalton, said: 'ME/CFS is a debilitating illness that can severely limit patients' ability to participate in everyday activities, maintain employment, or enjoy family and social life.
'Today's plan will help tackle the stigma and lack of awareness of this condition through improved training for NHS staff.
'And through our neighbourhood health services, we will ensure patients suffering from the effects of ME/CFS can access quality care, closer to home, as pledged in our 10-Year Health Plan.
But Action for ME said that the plan 'does not go far enough'.
Sonya Chowdhury, chief executive of the charity, said: 'We appreciate the time DHSC has put into the delivery plan and their engagement with us and the ME community throughout.
'However, the plan simply does not go far enough. We are at the stage now where we need more than rhetoric, we need to take a strategic approach if we want a different outcome. What is proposed in the plan will not offer this.
'We must have a funded, dedicated research hub to leverage our world-leading life sciences sector to unlock treatments and ultimately cures for ME.
'Without a commitment to better co-ordinate research, people with ME will continue to be neglected, overlooked and, for many, confined to their homes.
'ME charities have been calling for this funding to be accelerated for years and we are still not seeing a strategic approach to address this historic shortfall. Once again, it feels like people with ME have been ignored.'
Dr Charles Shepherd, honorary medical advisor and trustee at the ME Association, said: 'Whilst today's announcement is an important step forward in helping to improve the quality of life of people with ME/CFS, the Government must now go much further to improve their medical care and management and help to fund much needed biomedical research into cause and treatment.'
Hashtags
Try Our AI Features
Explore what Daily8 AI can do for you:
Comments
No comments yet...
Related Articles
South Wales Guardian
38 minutes ago
- South Wales Guardian
Imported dogs could carry disease or behaviour risk, RSPCA warns
Government statistics reveal that in 2023, 320,000 pets were brought into the UK under travel pet schemes and 44,000 entered as commercial imports. RSPCA spokesman David Bowles likened the process to 'Deliveroo for dogs' and called on the Government to tighten regulations on animal rescues. He told the BBC: 'The RSPCA's major concern is these dogs are essentially ticking time bombs – coming over, not being health tested. 'Diseases are now coming in through these dogs. They're affecting not just the dogs that are being imported, they could also affect the dogs already in this country and their owners. 'They've almost set up a Deliveroo for dogs and that is a real problem.' There is no requirement for rescue organisations to be licensed in England, Wales or Northern Ireland. It comes weeks after a bill that aims to stop animal smuggling and cruelty cleared the Commons with cross-party support. Legislation put forward by Liberal Democrat MP Dr Danny Chambers will reduce the number of animals for non-commercial entry into the UK, ban the import of puppies and kittens under six months old or heavily pregnant dogs and cats, and introduce a halt on the import of dogs and cats who have been 'mutilated', including having their ears docked. The MP for Winchester's Animal Welfare (Import of Dogs, Cats and Ferrets) Bill was supported by the Government, and will now proceed to the House of Lords on its passage to becoming law. Dr Chambers said: 'As a vet, I've seen the devastating consequences of puppy smuggling. It's unimaginably cruel to separate puppies and kittens from their mothers at a very young age, and then bring them across borders in substandard conditions where they're then sold for maximum profit by unscrupulous traders who prioritise profit over welfare.' He added: 'Careful consideration has been given to setting these limits, balancing the need to disrupt illegal trade with minimising impact on genuine pet owners. To underpin this, only an owner, not an authorised person, will be permitted to sign and declare that the movement of a dog or cat is non-commercial. He criticised the influence of social media on the increased demand for dogs with docked ears, and a party colleague hit out at the platforms' role in publishing animal abuse. He said: 'One reason that there is such an interest in dogs with cropped ears is that a lot of influencers on Instagram and other social media platforms pose with these dogs or show they have these new dogs with cropped ears. Many people aren't aware that this is a mutilation. 'They think it's how the dogs' ears normally look, and it drives a demand for dogs that look like this.'
Leader Live
3 hours ago
- Leader Live
Imported dogs could carry disease or behaviour risk, RSPCA warns
Government statistics reveal that in 2023, 320,000 pets were brought into the UK under travel pet schemes and 44,000 entered as commercial imports. RSPCA spokesman David Bowles likened the process to 'Deliveroo for dogs' and called on the Government to tighten regulations on animal rescues. He told the BBC: 'The RSPCA's major concern is these dogs are essentially ticking time bombs – coming over, not being health tested. 'Diseases are now coming in through these dogs. They're affecting not just the dogs that are being imported, they could also affect the dogs already in this country and their owners. 'They've almost set up a Deliveroo for dogs and that is a real problem.' There is no requirement for rescue organisations to be licensed in England, Wales or Northern Ireland. It comes weeks after a bill that aims to stop animal smuggling and cruelty cleared the Commons with cross-party support. Legislation put forward by Liberal Democrat MP Dr Danny Chambers will reduce the number of animals for non-commercial entry into the UK, ban the import of puppies and kittens under six months old or heavily pregnant dogs and cats, and introduce a halt on the import of dogs and cats who have been 'mutilated', including having their ears docked. The MP for Winchester's Animal Welfare (Import of Dogs, Cats and Ferrets) Bill was supported by the Government, and will now proceed to the House of Lords on its passage to becoming law. Dr Chambers said: 'As a vet, I've seen the devastating consequences of puppy smuggling. It's unimaginably cruel to separate puppies and kittens from their mothers at a very young age, and then bring them across borders in substandard conditions where they're then sold for maximum profit by unscrupulous traders who prioritise profit over welfare.' He added: 'Careful consideration has been given to setting these limits, balancing the need to disrupt illegal trade with minimising impact on genuine pet owners. To underpin this, only an owner, not an authorised person, will be permitted to sign and declare that the movement of a dog or cat is non-commercial. He criticised the influence of social media on the increased demand for dogs with docked ears, and a party colleague hit out at the platforms' role in publishing animal abuse. He said: 'One reason that there is such an interest in dogs with cropped ears is that a lot of influencers on Instagram and other social media platforms pose with these dogs or show they have these new dogs with cropped ears. Many people aren't aware that this is a mutilation. 'They think it's how the dogs' ears normally look, and it drives a demand for dogs that look like this.'
North Wales Chronicle
3 hours ago
- North Wales Chronicle
Imported dogs could carry disease or behaviour risk, RSPCA warns
Government statistics reveal that in 2023, 320,000 pets were brought into the UK under travel pet schemes and 44,000 entered as commercial imports. RSPCA spokesman David Bowles likened the process to 'Deliveroo for dogs' and called on the Government to tighten regulations on animal rescues. He told the BBC: 'The RSPCA's major concern is these dogs are essentially ticking time bombs – coming over, not being health tested. 'Diseases are now coming in through these dogs. They're affecting not just the dogs that are being imported, they could also affect the dogs already in this country and their owners. 'They've almost set up a Deliveroo for dogs and that is a real problem.' There is no requirement for rescue organisations to be licensed in England, Wales or Northern Ireland. It comes weeks after a bill that aims to stop animal smuggling and cruelty cleared the Commons with cross-party support. Legislation put forward by Liberal Democrat MP Dr Danny Chambers will reduce the number of animals for non-commercial entry into the UK, ban the import of puppies and kittens under six months old or heavily pregnant dogs and cats, and introduce a halt on the import of dogs and cats who have been 'mutilated', including having their ears docked. The MP for Winchester's Animal Welfare (Import of Dogs, Cats and Ferrets) Bill was supported by the Government, and will now proceed to the House of Lords on its passage to becoming law. Dr Chambers said: 'As a vet, I've seen the devastating consequences of puppy smuggling. It's unimaginably cruel to separate puppies and kittens from their mothers at a very young age, and then bring them across borders in substandard conditions where they're then sold for maximum profit by unscrupulous traders who prioritise profit over welfare.' He added: 'Careful consideration has been given to setting these limits, balancing the need to disrupt illegal trade with minimising impact on genuine pet owners. To underpin this, only an owner, not an authorised person, will be permitted to sign and declare that the movement of a dog or cat is non-commercial. He criticised the influence of social media on the increased demand for dogs with docked ears, and a party colleague hit out at the platforms' role in publishing animal abuse. He said: 'One reason that there is such an interest in dogs with cropped ears is that a lot of influencers on Instagram and other social media platforms pose with these dogs or show they have these new dogs with cropped ears. Many people aren't aware that this is a mutilation. 'They think it's how the dogs' ears normally look, and it drives a demand for dogs that look like this.'
