Denham Springs man diagnosed with ALS helping to connect community
'I was slurring and often asked to repeat things so I knew something was wrong,' he said.
Redmond saw many doctors over five years. Finally, he was diagnosed with Amyotrophic lateral sclerosis (ALS), or Lou Gehrig's disease. This is a deadly neurodegenerative disorder that impacts motor neurons in the brain and spinal cord.
'Finally getting a diagnosis was kind of a relief,' he said.
Redmond said he struggles with his speech and balance. Because of this diagnosis, he had to retire. The 62-year-old Denham Springs resident has become an ALS advocate. He talks to state and federal lawmakers about more funding for ALS research. He also volunteers with EverythingALS and its Pathfinder program.
It's a free app to empower those living with ALS and offers essential resources for their caregivers 24/7. Families can find advice and emotional support. They can also chat with peers who understand their journey.
'It's nice to know there's someone else for you out there because this is a very isolating disease,' Redmond stated.
The ultimate goal of the program is to eradicate ALS.
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