
Letters to the Editor, June 14th: On young people in nursing homes, attacks on Iran and Greta Thunberg
Sir, –The recent RTÉ Investigates exposé on Irish nursing homes made for harrowing viewing.
But behind the headlines lies an even more invisible reality: the quiet, routine institutionalisation of younger people – including those with conditions like Early Onset Parkinson's – into facilities designed for people decades older.
I'm not only the co-founder of Early Onset Parkinson's Disease Ireland, but someone who has lived with Parkinson's for 13 years. I've met too many people in their 30s, 40s and 50s with neurodegenerative conditions who have been placed in nursing homes simply because there is nowhere else for them to go.
Today in Ireland, 1,249 people under 65 years live in nursing homes. One of them is a 47-year-old man with Early Onset Parkinson's, surrounded by residents three and four decades older than him. This isn't because he needs round-the-clock care – it's because our system has failed to develop any alternative.
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This practice isn't just inappropriate; it's profoundly damaging. People with conditions like EOPD need tailored supports: physiotherapy, neurological care, and exercise programmes that are critical to slowing disease progression and preserving independence.
Most nursing homes are not equipped to offer any of these. Instead, these individuals face isolation, accelerated decline, and the emotional toll of being removed from their peers, their communities, and their sense of self.
The Ombudsman's 2021 Wasted Lives report exposed the systemic failures driving this crisis. It found that many younger people were placed in nursing homes without full consultation or understanding of the long-term implications, particularly under the Fair Deal scheme. One young man, Francis, was told his stay would be temporary; he's been there for nine years. Another, Alex, entered a home at 34 after a brain injury. He told investigators: 'If I thought it was for life, I would drive my chair off a bridge.'
The 2024 update to Wasted Lives offered no comfort: every month, 32 more people under 65 are admitted to nursing homes – that's more than one person every day.
We don't even have accurate data on how many of these people are living with Parkinson's. Without data, we can't quantify the problem, let alone solve it.
This must change. We are calling on the Government to act now. It should collect and publish national data on younger people in nursing homes, their diagnoses and needs.
It should develop age-appropriate, community-based supported living options; create clear pathways to transition out of inappropriate care and reform the Fair Deal scheme to ensure full, informed consent.
In addition, the Government should guarantee access to multidisciplinary care and therapies tailored to younger adults.
This is not just a healthcare issue; it is a human rights issue. These are not statistics. They are teachers, artists, musicians, parents – people with lives worth living.
We must ask ourselves: what kind of care system do we want to be known for? One that hides people away or one that sees them, values them, and supports them to live with dignity?
It's time for Ireland to choose. – Yours, etc,
JOE CONDON,
Director of Early Onset
Parkinson's Disease Ireland,
Dublin.
Israel's attack on Iran
Sir, – The Israeli government knows no limits in flouting international law .
By attacking Iran's nuclear plants and facilities it has brought the Middle East to the brink of an all-out war in the region.
It has shattered and undermined the ongoing diplomatic US-Iranian talks to end the Iranian nuclear build-up impasse and by its illegal actions has invited retaliatory action by Iran.
This time the international community must act swiftly to bring the Israeli government to justice . – Yours, etc,
BRENDAN BUTLER,
Drumcondra,
Dublin.
Sir, – I wonder, now that the Dáil defeated the motion to end the Central Bank's facilitation of the sale of Israeli war bonds (85 to 71), if the Israeli government will restaff its embassy in Dublin, and if perhaps the government of Iran will ask its staff to leave for the time being? – Yours, etc,
MYRIAM ROMMERS-
MAC CIONNAITH,
Letterkenny,
Co Donegal.
Riots in the North
Sir, – Recent events in Ballymena can be seen in a wider historical context. Members of my generation from the Belfast nationalist community will note that burning people out of their homes is not a new thing in Northern Ireland.
The details of the present situation of course reveal new and complex motivations but the mindset of the individuals who indulge in such reprehensible behaviour is not new.
It speaks of a siege mentality that fears the 'other', it reveals a narrow interpretation of community and it feeds off misinformation. It is sectarian and racist in nature and it is fed by certain politicians who gain leverage from simplistic sloganeering.
It targets the vulnerable in the name of perverted jingoistic politics and it gains traction by defining unacceptable rituals as 'culture' where, for example, the burning of effigies is seen as a festive activity.
This, for many of us, has always been unacceptable – the step from burning flags and posters to burning houses with people inside, is not a huge one – but in the present context of global politics with the growing influence of neo-fascistic elements on the far right, it is disturbing indeed.
We need to call it out for what it is in essence – part of a continuum in a certain strand of the politics of Northern Ireland which is exclusive, uninterested in compromise and dependent on 19th-century notions of supremacy, privilege and power.
Those days are fading fast of course, but some people (a tiny minority it must be said), badly led by their politicians, still refuse to accept that we now live in a pluralistic, multinational, multi-ethnic society that aspires to tolerance and acceptance. – Yours, etc,
DAVID ATCHESON,
Co Wicklow.
Text message fraud
Sir, – Ireland risks becoming the weak link among English speaking countries in its exposure to fraudulent text messages (
'Text scammers in ComReg's sights as it implements SMS registry for businesses'
, June 12th). The financial services industry shares the welcome for the new SenderID Registry by ComReg.
Unfortunately, this will block only one method for fraudsters, who will continue to send fraudulent text messages from random mobile phone numbers.
Most of your readers will have experienced receiving these fraudulent text messages pretending to be from a genuine company or State agency. The only intervention that can prevent these types of fake messages is an SMS scam filter, that operates much the same way as your email spam filter.
ComReg has highlighted that Ireland is out of step with other English speaking countries in not having an SMS scam filter and it is also already in place in some EU Member States.
The telecoms industry requires supporting legislation to introduce this solution in Ireland.
Without which Irish consumers will continue to be uniquely exposed to criminals targeting them through their phones. – Yours, etc,
NICOLA SADLIER,
Head of Fraud,
Bank of Ireland,
Baggot Street,
Dublin.
Different views on Greta Thunberg
Sir, – Finn McRedmond begins her column by stating, as if fact, not opinion, that 'there is little to like about Greta Thunberg'. ('
Greta Thunberg is hard to like, but don't dismiss her,
' June 12th).
She then proceeds to eviscerate Ms Thunberg with personal insults such being 'elevated beyond her rhetorical means'. Rather than belittle the efforts of Thunberg to bring attention to the climate and biodiversity crises, which are real things despite Ms McRedmond's delusions, she might be better placed using her journalistic nous to explore further the underlying motivations for Greta's pessimism.
On that point Ms McRedmond might like to know that rate of extinction of species in the last 100 years, which has rapidly accelerated in recent decades as we destroy ecosystems for economic growth, is higher than those in most of the previous mass extinction events.
Climate activists such as Just stop Oil see that lack of urgency and the lip service being paid to this crisis by governments and vested interests. They also see how the general population has been rendered apathetic by a tech-induced stupor so feel compelled to create impactful 'publicity stunts' in order to grab their attention.
Ultimately, we are the consumers and the voters, and we can drive change but only if we are motivated.
People like Greta Thunberg are prepared to take the vitriol of our online world to bring attention to existential crises and global injustice, while many commentators prefer to judge them based on their own prejudices.
I know where my admiration lies. – Yours, etc,
BARRY WALSH,
Blackrock,
Cork.
Sir, –Would Finn McRedmond be commenting on Greta Thunberg using terms such as 'little to like, ghoulish, the enviable self-assurance', if Greta were of the male gender?
Is this article not evidence that gender bias and stereotypes around female likeableness and confidence are still in practice in 2025.
To my mind, Greta Thunberg demonstrates great courage in the face of unwarranted criticism based solely on her age and gender. – Yours, etc,
MAUREEN O'SULLIVAN,
Bantry,
Co Cork.
Sir, – Finn McRedmond's flippant article does your newspaper no service. With supporters like McRedmond, Thunberg doesn't need enemies. – Yours, etc,
SHEA CARROLL,
Dublin 8.
Paediatric consultants
Sir, –Dr Tom O'Dowd's letter (June 11th) raises important issues about the culture and future of paediatric care in Ireland.
While we see aspects of the situation differently, we share a common goal: ensuring the best possible care and outcomes for children and their families.
Paediatricians across the country are driven by a deep commitment to their young patients, often going above and beyond in complex and challenging environments.
The care we provide is grounded in compassion, teamwork and the highest clinical standards.
Where concerns about culture or governance have arisen, many paediatric consultants have been proactive in raising issues and seeking improvements to protect patients and uphold professional standards.
With the opening of the new national children's hospital on the horizon, there is a strong and shared desire among consultants to work collaboratively across teams and disciplines.
Thus, the suggestion by Dr O'Dowd that paediatricians from the three existing paediatric hospitals will not be interested in working productively together at the new national children's hospital is completely at odds with our shared goal.
For us, this project is the culmination of decades of work and hope for what we can deliver for children.
It represents a transformative opportunity to deliver world-class paediatric care, and we are focused on building a positive, inclusive and forward-looking culture as the one team, working together for the children and families we are privileged to serve.
We are looking forward to playing our part in ensuring that the new hospital becomes a centre of excellence defined not just by its infrastructure, but by the spirit of partnership and patient-centred care that underpins everything we do. – Yours, etc,
DR GABRIELLE COLLERAN,
President of the Irish Hospital
Consultants Association,
DR SUZANNE CROWE,
President of the Medical Council,
(plus 196 others ).
Sir, – Brian Ahern's letter (June 12th) regarding the correct way to address consultants reminds me of when I was working in a hospital in Cork in the 1980s where a duo of consultants were known respectively as he who thinks he's God and he who knows he is. – Yours etc.
TONY WOOL,
Cork.
The problem with rent controls
Sir, – What a pity yet another 'property academic' has chosen to ignore the factual realities of rent control. (
'This is a housing strategy written by Flann O'Brien,'
June 13th).
In his opinion piece, Dr Sirr states confidently that 'the private sector will not solve our housing problems'. That may be true, but it makes a far faster contribution to solution than the public sector, which appears paralysed at the thought of building anything, anywhere.
Whatever his view of private sector housing provision, the fact stands unchallenged that, prior to the big financial crash, accommodation availability was high, and rents were low. Yes, the banks took unacceptable risks in lending, but the private sector provided the stock.
Today, after 15 years of relentless increases in taxes and regulation and despite record rents and house prices, almost no one is willing to build. All incentives to building housing have gone. The new landlords are employers, who cannot get workers unless they provide accommodation.
Dr Sirr would do well to heed the words of Swedish economist (and socialist) Assar Lindbeck who asserted in his book The Political Economy of the New Left: An Outsider's View (1971) '… rent control appears to be the most efficient technique presently known to destroy a city-except for bombing'.
Nine years of rent controls in Ireland have self-evidently failed to do anything other than decimate the availability of housing. Government is to be commended, not criticised, for belatedly facing reality. – Yours, etc,
NEIL MCDONNELL,
Isme chief executive,
Dublin.
Sir, – Neville Scargill (Letters, June 12th) feels, as a property investor, hard done by. Was/is he not aware that such investments are always risky? – Yours, etc,
TOM KELLY,
Dublin 7.
Courtesy on public transport
Sir, – I was particularly interested in the issue raised by your correspondents, that of 'the lack of courtesy on public transport (Letters, June 13th).
I live in London, am in my 70s and retired. Courtesy still reigns on the transport network. Though on occasion I think I look pretty fit (as in healthy!), passengers here on tubes and trains aren't taken in.
I'm offered seats and while I'm grateful to people much younger than I, I often feel they need the rest far more than I do given the daily slog they have to suffer.
On the free travel pass, my wife and I think it's terrific. Why ? As we're now in the care business (looking after our grandchildren!), it defrays the additional cost of increased travel and we're much indebted to Ken Livingstone, a former London mayor, whose idea it was. – Yours, etc,
ALASTAIR CONAN,
Coulsdon,
England.
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Irish Times
8 hours ago
- Irish Times
‘When I'm singing, I don't think about my grief': Choir of patients enriching their lives through music
'We can be heroes just for one day.' The David Bowie song, Heroes, rings out in Mercer's Medical Centre GP practice on the site of the old Mercer's Hospital in Dublin city centre. A group of about 12 men and women, members of the Mercer's Melodies patient choir, meet here to sing every Tuesday morning, led by music therapist Jessica Harris. John Breen (49) has chronic asthma and finds that singing helps his breathing. 'I was in bands years ago and took music very seriously,' he says. 'It was all about performing perfectly, but here it's about social interaction.' READ MORE Eddie Finlan (71) says the choir has lifted his spirits. 'I was very ill last year and have lost a lot of weight. I was never in a choir before and it has done me the world of good,' says Finlan, who, after years of homelessness, now lives in Beggars Bush in Dublin. The initiative began when GP Dr Una O'Neill discovered an opportunity to help patients with their physical, mental and social wellbeing. 'We had a room in the centre of the building which wasn't being used,' she recalls. 'I came across the SingStrong singing and breathing retraining programme , set up by University of Limerick physiotherapist lecturer, Professor Róisín Cahalan, to help people with respiratory problems. We ran it for 10 weeks last year.' The SingStrong programme of breathing and vocal exercises was first delivered in 2019 to community groups of people living with chronic obstructive pulmonary disease (COPD) in Limerick, Clare and Tipperary. The programmes continue, both online and in person. SingStrong teachers help participants manage feelings of breathlessness by teaching them to breathe more slowly and deeply. Together with work on posture, this improves their sense of control over their breathing. Trish Goulding rehearsing at Mercer's Medical Centre, Stephen Street Lower, Dublin. Photograph: Dara Mac Dónaill Maureen Madigan (77) lost the last of her siblings in 2024, and the choir has helped her deal with the grief. Photograph: Dara Mac Dónaill The Mercer's Melodies choir decided to broaden out their criteria for entry and now have people with respiratory conditions such as asthma and emphysema as well as some with obesity or chronic neurological conditions. O'Neill began to notice the benefits to patients soon after the programme began. 'For some, there has been a massive improvement in mental health. For others, it's given them an informal way to feel more comfortable about coming to see the doctor,' she says. Some patients pop into the GP, or have their bloods done, before or after their singing session. Coming to the group gives me a bit of peace and an hour to myself — Deirdre Gannon Following tests which showed improved lung capacity and enhanced mental health (using the Warwick Edinburgh Mental Wellbeing Scale ), O'Neill ran another programme earlier this year, with Harris at the helm. The criteria was further widened to include patients with dementia, cancer and heart problems. Many enjoyed it so much that a third 10-week programme is under way, with the Royal College of Surgeons of Ireland (RCSI) community outreach programme funding Harris's fees. It's heartwarming to observe the eye contact, laughter and banter between participants. They met as strangers but have become friends through their weekly gatherings. They have even created a WhatsApp group to organise meetups for coffee between sessions. O'Neill, a former member of a choir herself, is keenly aware of the physical health benefits of singing. 'Holding the note of a song or singing a phrase helps control your breathing and improves lung capacity,' she says. Harris, who plays the keyboard and leads the choir with her mellifluous voice, adds that we also engage so much of our brain when we sing. Music therapist Jessica Harris at a Mercer's Melodies choir practice. Photograph: Dara Mac Dónaill Mercer's Melodies choir members Bernie Norman and Irene Kennedy. Photograph: Dara Mac Dónaill From left, singers Trish Goulding, Paul O'Flaherty and John McGauley. Photograph: Dara Mac Dónaill Mercer's Melodies choir members Jimmy Smallhorne and Deirdre Gannon. Photograph: Dara Mac Dónaill She says: 'Singing is like setting off fireworks in our brains. Playing music and singing link the right and left frontal lobes through the corpus callosum which engages the emotions, language, auditory processes of rhythm and pitch. It's a lovely workout for the brain.' Jimmy Smallhorne, who grew up in Ballyfermot in Dublin, lived in Stoneybatter for a time and now lives in Carlow. He joined the choir because O'Neill is his GP. He says he enjoys the craic and the company. 'I drive up from Carlow. I'm an actor and I enjoy doing the breathing exercises. I quit smoking when I joined and I also walk and do meditation to look after my health.' Tom Singleton is also an actor and has directed musicals throughout Ireland. 'I have asthma and sarcoidosis (a condition in which lumps form in the lungs and other parts of the body),' he says. 'The more you use your breath, the better it becomes. And when you learn a song in a group, you are more likely to sing it at home.' O'Neill adds that, according to research, group singing improves concentration and memory as well as helping to reduce stress. Maureen Madigan (77) says that when the last of her siblings died in 2024, her life was turned upside down. 'My sister and I were so close, I needed something to fill the void. When I'm singing, I don't think about my grief and loss,' she explains. Deirdre Gannon (57) says there is a lot going on in her life and coming to sing every Tuesday gives her a break. 'My partner is sick and I have emphysema. Coming to the group gives me a bit of peace and an hour to myself.' [ Fake fitness influencers: They tell us about their morning ice baths and deep breathing, but not injections Opens in new window ] [ Prostate cancer: 'When you hear 'inoperable', your world falls apart. But soon I realised that didn't mean terminal' Opens in new window ] Elizabeth Kavanagh, receptionist at Mercer's Medical Centre, phones all the participants in advance to check that they are coming and co-ordinates the group each week. She says: 'It's very loosey-goosey and free-flowing. This choir brings music into a [medical] space which is often about bad news. The social health benefits are as important as the physical ones.' And it's not just the singers who benefit. O'Neill adds: 'I can hear the music through the vents in my clinic and there is a buzz in the waiting room every Tuesday morning. It's very satisfying.'

Irish Times
10 hours ago
- Irish Times
Beaumont billed NTPF for patients seen in routine clinics, doctors claim
Beaumont Hospital in Dublin billed the National Treatment Purchase Fund (NTPF) – the State-funded organisation which buys care for those on long waiting lists – for about 1,400 patients seen in routine public clinics, doctors have claimed. Concerns were raised by consultants in one speciality at Beaumont in a letter to the hospital's chairwoman, Pauline Philip, earlier this year. These concerns were the catalyst for the move by the NTPF to suspend all funding for an initiative aimed at tackling waiting lists in the north Dublin facility. The NTPF said on Wednesday it had paused funding for what is known as 'insourcing' at a public hospital, subsequently identified as Beaumont, on foot of 'potential financial irregularities'. Insourcing is where funding is provided to hospitals and staff to provide treatment to patients waiting longest for care. This is to take place outside of core working hours or at weekends. Hospitals and their staff receive additional payments for carrying out such work. Beaumont has received about €40 million in funding from the NTPF under various waiting list initiatives since 2020 – including €11.196 million in 2023, €8.6 million in 2024 and €1.185 million so far in 2025. READ MORE Before funding being suspended in April, about 18 people each week were receiving outpatient appointments and about 25 undergoing gastrointestinal scope procedures under the insourcing arrangements. The Irish Times understands that a number of consultants maintained in the letter to the chairwoman there had been systematic underreporting of activity in their speciality to the HSE's national programme for the particular discipline for several years. The consultants maintained that Beaumont had been claiming for new patient activity from the NTPF without their knowledge or consent. They maintained that this represented about 1,400 new patient appointments, going back to 2019. The consultants maintained that their routine clinical practice had been billed to the NTPF and they were not seeking personal financial reimbursement. Beaumont Hospital did not reply to questions submitted by The Irish Times on Friday. [ National Treatment Purchase Fund seeks assurances from all hospitals that rules of waiting-list schemes being followed Opens in new window ] It is understood that the consultants said in the letter to the hospital board that they had been unsuccessful in getting answers to several questions, including the exact amount that had been billed to and paid by the NTPF regarding activity in the speciality, for what this money had been used and whether similar issues had taken place elsewhere. The NTPF said on Wednesday it had alerted Minister for Health Jennifer Carroll MacNeill and the HSE about the issue at a public hospital in April. The Minister said the matter had been referred to internal auditors at the HSE. In a statement on Friday, the NTPF said it had 'raised its serious concerns with the chief executive and board of Beaumont Hospital and with the Department of Health and the HSE and is working with them in relation to the issue'. 'The matter has been referred to the HSE's internal audit team. The board and executive of the NTPF take their responsibilities very seriously and will take whatever actions are necessary to ensure our spend with public hospitals is fully protected for the benefit of public patients. Any proven misuse of public money by public institutions will be treated with the gravity it deserves.' It is understood the consultants maintained that the underreporting of activity by the hospital had portrayed them as being among the least productive such units in the country, when the opposite was the case. They expressed concern that as a result of how the unit was perceived in terms of productivity, it may have lost out on investment. Beaumont said on Wednesday that in March it had 'approached the NTPF of its own volition for the purpose of securing necessary clarifications in relation to activity conducted under the terms and conditions of an existing memorandum of understanding'.

Irish Times
10 hours ago
- Irish Times
A Gaeltacht tragedy: ‘I never would have sent her if I thought anything was wrong'
One year ago, 14-year-old Amelia Belle Ferguson collapsed while out on a hike on one of her last days at an Irish college in Connemara . When they saw her on the ground with her shoulders shaking, her friends thought Amelia was just laughing at herself for falling over. But Amelia's heart was failing. During that day, unknown to anyone, her heart had been beating in chaotic rhythms. When her friends turned Amelia over, they saw that her face was blue. She died on that hill in Connemara on June 13th, 2024. This weekend, as they mark the first anniversary of Amelia's death near her home in Firhouse, Dublin , her family are seeking an independent review of the care she received and the information shared with them by Children's Health Ireland (CHI) in the final months of her life. READ MORE Minister for Health Jennifer Carroll MacNeill has agreed to meet Suzi Mangan, Amelia's mother, to discuss her daughter's case. The family believe that concerns raised at what became Amelia's final appointment in May 2024 should have been taken more seriously, while the family only learned important details about her health records after she died. 'I never would have sent her to the Gaeltacht if I thought that there was anything wrong,' says Mangan. Pictures of Amelia Belle Ferguson on the wall of her home in Firhouse, Dublin. Photograph: Bryan O'Brien Amelia was born premature on February 18th, 2010, 37 weeks into her mother's pregnancy. As a tiny newborn, weighing just 2.5kg (5lbs 10oz), she had an operation to fit a pacemaker because her natural pacemaker was not working. She would regularly attend Crumlin Children's Hospital in Dublin for monitoring as she grew up. But for most of her childhood, she was hardly ever sick – 'never even on antibiotics much,' says Mangan. In January 2018, Amelia attended an appointment at Crumlin Children's Hospital for what should have been a routine operation to get her pacemaker changed. But when an ashen-faced surgeon came out of the theatre, he told her mother that Amelia was flatlining on the operating table. The little girl was resuscitated, put on life support, and then fell into a coma. Mangan has pictures on her phone of Amelia looking tiny, with burn marks on her chest from a defibrillator and tubes in her mouth. 'They didn't know what had gone wrong,' she says. Back when Amelia had her pacemaker fitted as a baby, her father, Brian Ferguson, had asked doctors if the device's cord could get wrapped around her heart. He is a plumber and had been thinking about the mechanics of the pacemaker cord. 'We were told no – that was not possible,' says Mangan. A photo of Amelia on the mantlepiece. Photograph: Bryan O'Brien But by the time Amelia was on the operating table in 2018, the supposedly impossible had happened: Amelia was suffering from cardiac strangulation, the cord of her pacemaker wrapped so tightly around her heart that surgeons described it to her parents as being akin to wire embedded around the bark of a tree. Amelia was one of fewer than 10 people in the world that this is known to have happened to. Before the delicate operation to unwrap the cord from her heart, her parents had to sign a consent form that conceded the high chance that Amelia could die during the procedure. 'We had no choice,' says Mangan. 'She was going to die if they didn't do anything.' The operation was a success, but it left a scar on Amelia's heart. The family say it was not explained to them that such a scar can carry risks. In her grief after Amelia's death, Mangan has thrown herself into research and Amelia's medical files. She found an article in a medical journal in which one of Amelia's doctors discussed the risks of such an operation. She also found references in Amelia's files to anomalies such as murmurs and leaky heart valves which were recorded in both 2017 and 2022, which she said the family had never been told about. By January 2024, Amelia had grown into a very thoughtful, kind, curious, funny, creative and sensitive 13-year-old. She loved music and languages. She had an appointment that month at Crumlin Children's Hospital, which was followed by her final appointment, on May 21st. Amelia Belle Ferguson: The Minister for Health has agreed to meet Suzi Mangan to discuss her daughter's case. Photograph: Bryan O'Brien According to her January 26th appointment, her pacemaker battery was due to last until 2027. But by May, a new reading showed it had depleted, to 2026. Mangan was concerned, but CHI told her not to worry. At the same appointment, Amelia reported having dizzy spells. Her mother was worried about the fact that Amelia would be going to the Gaeltacht in just two weeks' time. 'They said: 'She's fine.'' Eventually, it was agreed at the May appointment to fit Amelia with a Holter monitor – a small, wearable device that records the heart's rhythm – and to ask her to keep a diary while she was wearing it. She was given a follow-up appointment for November. Since Amelia's death, the family said they have found out that the Holter monitor identified two abnormalities, though these were later described by staff as not concerning. The Holter monitor was read on June 4th – 10 days after it was handed back to Crumlin Children's Hospital. By then, Amelia was already in Galway. 'Even if they weren't concerned, we should have been told,' says Mangan . 'I would have gone to Galway and collected her if I thought something was wrong.' The frantic call on June 13th, and the tortuous near-silent journey to Galway for Amelia's parents, are a blur. Amelia's younger sister Poppy, now 13, followed in a car with her grandparents, not yet knowing her sister's fate. Mangan remembers them calling to say they were seven minutes away, and thinking: 'Seven minutes until I have to ruin Poppy's life.' Mangan says CHI described Amelia's death as a 'rare event' that 'could have happened to any child on that hill that day'. 'I do not believe that for one second,' she says. Despite the symptoms flagged and the decision to fit Amelia with a Holter monitor at her last appointment, CHI would later send a letter stating that her cardiovascular examination that day was 'normal'. 'She is doing well and does not have any symptoms. She has good energy,' the letter states. 'It arrived here on the day of Amelia's funeral,' says Mangan. CHI said in a statement: 'Receiving a letter about Amelia's care on the day of her funeral is heartbreaking. CHI deeply regrets the timing of that letter and we will look at our administrative processes in this regard.' 'Even if they weren't concerned, we should have been told,' says Amelia's mother Suzi Mangan. Photograph: Bryan O'Brien Mangan says she is troubled by some experiences with 'dismissive' hospital staff, including after Amelia died. She says she has spent the past year trying to get answers, and Amelia's Holter monitor diary, from CHI. She sent a list of detailed questions to CHI after a meeting to discuss Amelia's case in April, asking the hospital to respond by May 23rd. She is still waiting for a response, though she did receive an email from CHI following a detailed list of questions from The Irish Times. In response to those questions, CHI said in a statement that it could not 'provide details about the care provided to individual patients publicly'. 'Our deepest sympathy is with Amelia's family at such a difficult time. Children's Health Ireland is, of course, aware of Amelia's case and we remain committed to working with her family directly to answer any and all questions they have about Amelia's care with us,' the statement read. [ Children's hospital commentary often `ill-informed' contractor BAM tells Minister for Health Opens in new window ] On the wall of Mangan's kitchen in Firhouse, there's a small purple painting on a canvas print. When seven-year-old Amelia woke up from her coma, she gave a matter-of-fact account of having visited a nice place where she got to meet lots of her late family members. Her mother asked her to paint a picture of what heaven looked like. Amelia did, describing how she had felt happy and safe there. 'That's all that's keeping me going now,' says Mangan. In her livingroom window, Mangan has stuck a photograph taken on An Trá Mhór in Connemara on a blistering hot day in 2023. Amelia had been at Coláiste Lurgan that summer, and the family had gone to visit and taken her to the beach. Under the bright blue sky, the teenager had written a message in sand in big swooping letters: 'BHÍ AMELIA ANSEO,' it said – 'Amelia was here.' Amelia at An Trá Mhór, Connemara, in the summer of 2023. Photograph: Ferguson family