logo
Sheffield girl with tumour hikes 18km for childrens' charity

Sheffield girl with tumour hikes 18km for childrens' charity

BBC News12-05-2025

A 12-year-old girl living with a rare brain tumour has completed an 11-mile (18km) walk to help other children facing the disease.Thalia, from Sheffield, raised £3,700 for OSCAR's Paediatric Brain Tumour Charity by hiking Ullswater Way in the Lake District."I wanted to prove to myself and others that while this disease can hold you back in certain ways, it can't stop you doing what you love," she said.Her father, Chris, a cancer researcher at the University of Sheffield, said when his daughter was diagnosed in March 2023, he would never have expected her to take on the challenge.
"We were told this [sort of thing] was not going to be possible," he said."We know many other families whose children did not survive very long at all."Thalia suffered significant paralysis on the left side of her body as a result of the tumour, a diffuse intrinsic pontine glioma (DIPG).Thalia's "incredible positive atmosphere" had helped her regain her movements and fine motor skills and family life was "remarkably normal", her father said.
She had daily radiotherapy and chemotherapy for three months and weekly chemotherapy for six months, and in the year since, has been stable.Her father described this as a "happy surprise" given the aggressive nature of the disease."The past couple of years have really taught us to live more in the now and do things while you can," he said."We don't have a concept of putting something off and saying, 'there's always time later'."Thalia has the same approach to life as her father, as just a few weeks after completing the near-half marathon, she is set to hike Yr Wyddfa, also known as Snowdon, the tallest mountain in Wales.Cancer had taught her "determination and willingness" and made her stronger, she said.
"I am partly disappointed that the walk is over because I really enjoyed it," she added."It provided security around me and I really felt like I belonged."The group of 50 people who took part in the hike raised a total of £25,000 for OSCAR's, which was set up in memory of nine-year-old Oscar Hughes to help families of children with brain tumours "at the point of greatest need".Phil Martinez, from the charity, said it was an "important life lesson" for children to know they can help other young people."Thalia is leading the way in that respect," he added.
Listen to highlights from South Yorkshire on BBC Sounds, catch up with the latest episode of Look North

Orange background

Try Our AI Features

Explore what Daily8 AI can do for you:

Comments

No comments yet...

Related Articles

EXCLUSIVE How women blighted by cruel back pain may actually have hidden arthritis - as doctors reveal there's a simple drug cure that can end the agony. Special report by ETHAN ENNALS
EXCLUSIVE How women blighted by cruel back pain may actually have hidden arthritis - as doctors reveal there's a simple drug cure that can end the agony. Special report by ETHAN ENNALS

Daily Mail​

time2 hours ago

  • Daily Mail​

EXCLUSIVE How women blighted by cruel back pain may actually have hidden arthritis - as doctors reveal there's a simple drug cure that can end the agony. Special report by ETHAN ENNALS

Clair Evans believes her back pain began during her teens – but she has lived with the debilitating problem for so long that she struggles to remember a time when she wasn't in agony. The 47-year-old from Doncaster says her lower back became extremely stiff, and often the pain would radiate down into her legs. She also found that certain movements triggered excruciating spasms.

STEPHEN POLLARD: Labour's created an atmosphere where the hard working middle class are now fair game for bigotry
STEPHEN POLLARD: Labour's created an atmosphere where the hard working middle class are now fair game for bigotry

Daily Mail​

time2 hours ago

  • Daily Mail​

STEPHEN POLLARD: Labour's created an atmosphere where the hard working middle class are now fair game for bigotry

That an eight-year-old can be refused healthcare on the NHS because of the school he attends is deeply troubling. It shows that the service once described by Margaret Thatcher 's Chancellor Nigel Lawson as 'the closest thing the English people have to a religion,' has become a battleground for class war where children seeking treatment are seen as the enemy of the proletariat. That includes my children. I am lucky enough to be able to pay for them to attend private schools. I pay the fees on top of my taxes, of course. Now it seems the NHS regards my kids as non-citizens to be shunned.

One of NHS's biggest AI projects is halted after fears it used health data of 57 MILLION people without proper permissions
One of NHS's biggest AI projects is halted after fears it used health data of 57 MILLION people without proper permissions

Daily Mail​

time3 hours ago

  • Daily Mail​

One of NHS's biggest AI projects is halted after fears it used health data of 57 MILLION people without proper permissions

NHS England has paused a ground-breaking AI project designed to predict an individual's risk of health conditions after concerns were raised data from 57 million people was being used without the right permissions. Foresight, which uses Meta 's open-source AI model, Llama 2, was being tested by researchers at University College London and King's College London as part of a national pilot scheme exploring how AI could be used to tailor healthcare plans for patients based on their medical history. But the brakes were applied to the pioneering scheme after experts warned even anonymised records could contain enough information to identify individuals, The Observer reported. A joint IT committee between the British Medical Association (BMA) and the Royal College of General Practitioners (RCGP) also said it they had not been made aware that data collected for research into Covid was now being used to train the AI model. The bodies have also accused the research consortium, led by Health Data Research UK, of failing to consult an advisory body of doctors before feeding the health data of tens of millions of patients into Foresight. Both BMA and RGCP have asked NHS England to refer itself to the Information Commissioner over the matter. Professor Kamila Hawthorne, chair of RGCP, said the issue was one of 'fostering patient trust' that their data was not being used 'beyond what they've given permission for.' She said: 'As data controllers, GPs take the management of their patients' medical data very seriously, and we want to be sure data isn't being used beyond its scope, in this case to train an AI programme. 'We have raised our concerns with NHS England, through the Joint GP IT Committee, and the committee has called for a pause on data processing in this way while further investigation takes place, and for NHS England to refer itself to the Information Commissioner. 'Patients need to be able to trust their personal medical data is not being used beyond what they've given permission for, and that GPs and the NHS will protect their right to data privacy. 'If we can't foster this patient trust, then any advancements made in AI – which has potential to benefit patient care and alleviate GP workload – will be undermined. 'We hope to hear more from NHS England in due course, providing definitive and transparent answers to inform our next steps.' Katie Bramall, BMA England GP committee chair, said: 'For GPs, our focus is always on maintaining our patients' trust in how their confidential data is handled. 'We were not aware that GP data, collected for Covid-19 research, was being used to train an AI model, Foresight. 'As such, we are unclear as to whether the correct processes were followed to ensure that data was shared in line with patients' expectations and established governance processes. 'We have raised our concerns with NHS England through the joint GP IT committee and appreciate their verbal commitment to improve on these processes going forward. 'The committee has asked NHS England to refer itself to the Information Commissioner so the full circumstances can be understood, and to pause ongoing processing of data in this model, as a precaution, while the facts can be established.' 'Patients shouldn't have to worry that what they tell their GP will get fed to AI models without the full range of safeguards in place to dictate how that data is shared.' An NHS spokesperson confirmed that development of the Foresight model had been paused for the time being.

DOWNLOAD THE APP

Get Started Now: Download the App

Ready to dive into the world of global news and events? Download our app today from your preferred app store and start exploring.
app-storeplay-store