
Blackpool athlete's 'long Covid' turned out to be terminal cancer
She said that after a series of relapses and months of treatment over the course of last year, she received a stem cell transplant in December and was declared cancer-free.However, just a week later, in early March this year, Ms Knowles was given the "bitter" news the leukaemia had returned.The hair salon owner, whose "typical weekend" before her diagnosis involved 100-mile bike rides and 15-mile runs, walked 20 miles around Fairhaven Lake on 16 March to raise funds for clinical research at King's College Hospital.She said she hoped any donations would improve research on AML, a particularly aggressive cancer which, she said, had not seen any "solid advancements" in treatment for 50 years."I always thought that relapse would be a real possibility, but obviously, I just didn't expect it to be so soon," she said."All I really miss now is going to work and training. That's all I want – just my normal day and my normal routine."It might sound odd to some people, but I would just love to take the dog for a run and go to work, more than anything."With AML, she explained: "Even if there's a speck of it left, it just regrows."And what regrows is basically the resistant cells, the ones that have evaded and resisted the previous chemo."Ms Knowles' consultant at Blackpool Victoria Hospital had given her three options – try to get a transplant despite her relapse, join a clinical trial, or "do nothing".In November, after various unsuccessful trials, Olivia was given a novel Car-T treatment – immunotherapy which genetically modifies a patient's T-cells to attack cancer.
The treatment at King's College Hospital in London was followed by the stem cell transplant."The initial bone marrow findings were excellent," she said."There were no signs of disease. It was a really positive result at first."Last month, she was readmitted with gut issues, a common side effect of stem cell transplants, but blood tests "showed active disease".Ms Knowles said her consultant was "blindsided" by her relapse, because the transplant had gone so well.While home with her mum Susan and dad Stephen, she decided "on a little bit of a whim" to walk a marathon around Fairhaven Lake to raise funds for the clinical research team at King's.The former triathlete was forced to stop after 20 miles but still raised more than £25,000.She hopes the money would contribute to "solid advancements", saying the team at King's were "on the cusp of something excellent with their development of Car-T treatment for AML"."For them to have something that can help treat children, it gives you a bit more hope," she said.
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Daily Mirror
5 days ago
- Daily Mirror
'I couldn't lift head off pillow - they said I wouldn't make Christmas'
Lucy Musgrave, 58, was diagnosed after experiencing severe exhaustion A mother-of-four who was told she "wouldn't make it to Christmas" after being diagnosed with leukaemia has performed a cartwheel every single day to mark reaching remission. Urban designer Lucy Musgrave, 58, from London, received her acute myeloid leukaemia (AML) diagnosis - a " very aggressive" form of blood cancer - in September 2021 following bouts of severe fatigue. Her consultant warned that without immediate treatment, she wouldn't survive until Christmas that year. Lucy, who founded research and urban design practice Publica, received blood transfusions and began intensive chemotherapy within days, enduring six months of hospital stays throughout the Covid-19 pandemic. Following her inpatient care in March 2022, she commenced maintenance chemotherapy and in November that year, friends whisked her away to Mexico, where she performed 12 cartwheels on the beach - one to "mark every month of survival". From January 2023, Lucy has executed a cartwheel daily - including at the Old Bailey, outside St Paul's Cathedral and on the red carpet at the Baftas - and has partnered with Leukaemia UK for the charity's new Cartwheel for a Cure campaign to generate funds for vital research. Lucy, who is now dubbed the "Cartwheel Queen", said: "I dived straight into the sea and when I came out, I did 12 cartwheels on the beach (in Mexico) – one for each month of that terrible year. That moment of joy sparked something. "The survival rates for AML are absolutely devastating, which is why I'm doing all the fundraising. I don't want anyone, any family, to ever, ever, ever have to go through what we went through." According to Leukaemia UK, nearly 3,100 people receive an AML diagnosis in the UK each year, with almost 80% failing to survive beyond five years. Signs include tiredness, pallid skin, regular infections, breathlessness, unexplained weight loss, easy bruising and bleeding, plus bone pain. Lucy revealed she had experienced "mild shingles" – a viral infection – during spring 2021 and felt completely drained. "We went on holiday down to Cornwall, and I literally couldn't lift my head off the pillow – it was terrible," she recalled. Lucy, who lives with husband Zad, the founder of Atomized Studios, arranged a video consultation with her GP, who suggested she had "picked up another virus". But as her exhaustion continued, she sensed something wasn't right and booked a private appointment with a different GP. "I went to see this GP, he took a blood test, and he phoned me the next day and said, 'Could you go to A&E now, please?'," Lucy said. "I just thought, 'Well, thank goodness someone's taking this seriously. I haven't got post-viral fatigue'." Lucy recounted her experience at University College London Hospital (UCLH), where she was so exhausted that she could barely sit upright and had to lie down on an empty hospital bed. After a nurse performed a bone marrow biopsy, she was moved to another ward and informed that her husband had been called to the hospital. "I thought, 'OK, here we go. I'm going to be told I've got cancer and, well, that's OK. I've had this amazing life and I've been so lucky'," Lucy said. "What's the worst thing they could tell me? They're going to tell me I've got six months to live." On September 9, 2021, a consultant broke the news to Lucy that she had AML and, without treatment, she might only have three months left. She said: "The consultant said it's curable and it was his job to ensure I made it to my 80s or 90s, but if we didn't start treatment straight away, I wouldn't make it to Christmas. I never thought it would be less than six months... so I said, 'Bring it on. When can we start?' But then I looked to my side and saw my husband looking completely broken. It hit me then that this wasn't just about me, but this was going to be incredibly difficult and traumatic for my family too, particularly my daughters." Surrounded by her "incredible" team of medics and nursing staff, Lucy felt reassured about her treatment programme and began chemotherapy within days. Despite enduring side effects including mouth ulcers, sickness and losing her hair, Lucy said concentrating on "positive energy" and backing from family helped her through the moments when she felt "broken". "People say this language of 'fighting cancer', but with blood cancer, it's literally in every cell of your body. You can't fight your own body," she said. "I just knew I had this minuscule piece of energy.... and, in my mind, I just kept thinking, if I can hang on to that positive energy and if I can grow it, I can get through this." Lucy finished her hospital treatment in March 2022 and began a year of ongoing chemotherapy and is now in remission. The "surreal" experience of her shocking diagnosis and recovery prompted Lucy to launch a fundraising campaign – and it all began with 12 cartwheels on holiday in Mexico. "I'm here because of medical science and the NHS and a lot of love," she said. "Doctors said at the time that, if I had been diagnosed five years earlier, they wouldn't have been able to treat me. That's why I'm cartwheeling – it's this tiny movement for joy, this tiny bit of positive energy." Since January 2023, Lucy has been performing a cartwheel every day, no matter where she is, and filming it to celebrate her remission. She's managed to raise more than £28,500 for the Haematology Cancer Care (HCC) unit at UCLH. Her cartwheels have taken place at iconic locations such as the Old Bailey, Tube stations, and even outside St Paul's Cathedral. She's also hoping to perform her acrobatic feat with the Lionesses and at various institutions like ballet schools, sports clubs, and primary schools across the country. After completing her 1,000th cartwheel in June, Lucy kicked off a new national campaign with Leukaemia UK called Cartwheel for a Cure. She hopes this "movement for joy" will help raise as much money as possible. "I want to spend the next 12 months limbering up the nation and practising our cartwheels, and then on June 30 forevermore, it will be national cartwheeling day and we're going to raise a lot more money on that day," she declared. Lucy is urging people not to hesitate in getting any unusual symptoms checked out and to never be afraid to "ask for help". "The sad thing is that every family in the UK is going to be touched in some shape or form by cancer," she said. "I've learned to squeeze every inch and ounce out of life because of this life-threatening disease and now I'm fearless. I'm hoping I'll be cartwheeling into my 80s." For more information, visit: or search @lucy. musgrave or @cartwheelforacure on Instagram.


Daily Mail
5 days ago
- Daily Mail
Mother-of-three died without her children at her side and far from home after being forced to travel to London for cancer treatment
A cancer-stricken mother died without her three children at her side when she had to travel to London for treatment. Catherine Sherry, 42, died earlier this year after repeated flights from her home in Co Armagh, Northern Ireland, left her weakened and unable to fight an infection. She died 'far from home and far from her children' at King's College Hospital - despite treatment for her lymphoma being available in Dublin an hour from her house. Her grieving husband Fergal Sherry said Catherine had 'used all her reserves of energy and strength to travel'. The primary school teacher was diagnosed in September 2024 but she couldn't have the CAR-T cell treatment across the border at nearby St James's Hospital as it 'wasn't available for patients from Northern Ireland'. But the travelling took its toll on her body and she died in May this year with her husband saying she heartbreakingly told him: 'No mammy should have to be away from their children.' The therapy is currently available in England, Scotland, Wales, and the Republic of Ireland, but not in Northern Ireland. Mr Sherry said his wife would have been treated sooner if they were allowed to go to Dublin, but said there wasn't 'an all-island approach'. She died 'far from home and far from her children' at King's College Hospital - despite treatment for her lymphoma being available in Dublin an hour from her home 'When you are going through cancer treatment you want your family near,' he told the BBC in June. He stayed by his wife's side when she made the journey to London where they would chat to their children on the phone and play music. This week, councillors at Newry, Mourne and Down District Council said it was a 'political failure'. Cllr Killian Feehan brought forward a motion calling for people from Northern Ireland to be able to access the treatment in Dublin. In an impassioned speech, the Belfast Telegraph reported him as saying: 'Let me put it plainly, no mother should have to leave her children behind to fight for her life in another country. 'No family should get a call saying she is going to die when the system itself has failed to give her the best fighting chance close to home.' The Department for Health told the BBC in June that the treatments were available 'on an equitable basis for people from Northern Ireland'. 'The process involves the local clinician making a referral, which is then considered by a national panel of experts who assess which patients are eligible,' a spokesperson said.


Belfast Telegraph
6 days ago
- Belfast Telegraph
Calls to act on all-island cancer services after death of NI woman forced to travel to London for care available in Dublin
Catherine Sherry, who passed away earlier this year, faced 'repeated air travel while she was severely immuno-suppressed', which weakened the 42-year-old 'and left her unable to fight the infection which led to her death', councillors heard. The death was behind a motion at Newry, Mourne and Down District Council (NMDDC) this week amid ongoing anger over how the mum-of-three had to travel to London for CAR-T cell treatment despite it being available in Dublin. The council approved the motion linking air travel to London to the toll on Mrs Sherry's health, while an option for a short drive from home to a Dublin hospital might have saved her. 'She passed away far from home and far from her children' Bringing forward the motion on behalf of the Sherry family, SDLP representative Killian Feehan said: 'I must commend the incredible strength and bravery of Fergal Sherry and he and Catherine's sons, who have been campaigning for CAR-T cell treatment to be made available to [Northern Ireland] patients at St James's Hospital in Dublin. 'I can't begin to imagine how difficult it was to lose their wife and mother in such circumstances on May 12, 2025. Catherine's treatment was working, but the repeated air travel while she was severely immuno-suppressed weakened Catherine and left her unable to fight the infection which led to her death. She passed away far from home and far from her children. 'And here is the devastating truth: the treatment that Catherine needed was just 60 miles down the road in Dublin, but she wasn't able to access it. Why? 'Because there is still no agreement between the Department of Health (DoH) in the North and their counterpart in Dublin to allow Northern Ireland patients to access this specialist therapy in the Republic, despite it being routinely delivered in St James's Hospital. 'This is not a capacity or funding issue, it is quite simply a political failure. No mother should have to leave her children behind to fight for her life in another country. 'No family should get a call to say 'She is going to die', when the system itself has failed to give her the best fighting chance close to home.' Mrs Sherry passed away at King's College Hospital, London, while receiving CAR-T treatment, a personalised form of immuno-therapy that reprogrammes a patient's own immune cells to fight cancer. News Catch Up - Thursday 7th August Catherine's aunts Ann and Marie, who looked after the Sherry children whilst Catherine travelled to London for therapy, attended the NMDDC chamber in support of the motion. The Sherry family has since led a campaign to change current NHS policy, with claims the emotional and physical toll of having to travel long distances for care resulted in Mrs Sherry's untimely death. Councillor Feehan added: 'Nobody should have to go through the experience of the Sherry family, particularly when this treatment is available so close to home. 'We have seen the success of cross-border cancer services in the past, allowing patients to access care closer to home and within reach of their families. I believe we need to see the same approach with CAR-T cell therapy. 'We commend Fergal and his sons, who are now advocating for the treatment to be made available to other cancer patients from the North in Dublin, and acknowledge the Department of Health has an existing Memorandum of Understanding on all-island cancer services signed following the Good Friday Agreement. 'We further recognise that CAR-T therapy will not be available in Northern Ireland until 2031 at the earliest. The SDLP is urging Health Minister Mike Nesbitt and Irish Health Minister Jennifer Carroll MacNeill to begin urgent negotiations to make the changes necessary so that patients can access this treatment in Ireland, without having to travel long distances, and with the support of their family around them. 'We can all make a collective call on government to act now on an all-island path for CAR-T therapy. The infrastructure exists, the expertise exists, the only thing that is missing is political will.'