Brave scoliosis patient Noah Quish diagnosed with ninth serious health issue
Noah, 8, who also has autism, received in recent days a new diagnosis of Eosinophilic esophagitis (EoE).
It is a chronic inflammatory condition of the esophagus that stops him eating and means he will need another operation.
Brave young Noah has already been diagnosed with a heart condition, severe obstructive Laryngomalacia, scoliosis, malformation of the brain, severe sleep apnoea, a chromosome deletion, meningitis and autism.
His devoted mum Una revealed that her "little miracle" is also due to have his 16th operation soon.
She said: "Noah has been busy with appointments. A few weeks ago, he had biopsy tests and what they suspected came back positive.
"It is EoE, which is a chronic lifelong condition where his oesophagus is inflamed and narrow, which causes him to choke.
"We are lucky that Noah never wanted to eat anything thicker than yoghurt as he would have choked.
"This explains the constant gagging, vomiting and problems with swallowing.
"He came back on the severe side of it, which I knew he would, based on how he is on a daily basis.
"He started treatment for this two weeks ago and will continue to do so for the foreseeable, until he is called back for another scope to check the inflammation.
"If things haven't improved, then we see what's next."
Una added: "Noah is still awaiting other important tests to check for other things which I suspect will shine a light on other issues he's having.
"He has also grown a bit, which is great in one way, but not so good regarding his spine, as he has outgrown the rods in his back [that were lengthened in an operation four months ago].
"He is in a bit of pain lately and very uncomfortable. He will have surgery again in the coming weeks.
"We postponed his therapy in Boston for a few months until we get to the bottom of his new diagnosis and see what needs to be done from here on.
"We will plan again, once he is deemed healthy enough for intense therapy.
"As always, he has a lot going on, but he battles on with great courage."
Noah, from Co Limerick, was born in March 2017 and diagnosed with several issues.
He needed open heart surgery at just four months old and is described by his family as their "little miracle".
A fundraiser for donation has been set up on GoFundMe called Noah's Long Road to Recovery.
Try Our AI Features
Explore what Daily8 AI can do for you:
Comments
No comments yet...
Related Articles
Irish Daily Mirror
2 hours ago
- Irish Daily Mirror
Gran dies in Spanish airport on way home from 'best holiday' with grandkids
A grandmother has tragically died at a Spanish airport while on her way back from a holiday. Angela McTier was en route to Alicante airport in a taxi when she suffered a burst varicose vein which led to significant blood loss. The 48 year-old reached the airport but collapsed in the departure lounge. Tragically, despite receiving emergency treatment, she died at the scene on Tuesday July 22. Her daughter, Michelle Hilston, spoke to STV about how her mum had been working on her health so she could watch her granddaughters grow up. The 24 year old expressed: "My mum watched the grandkids at least two nights every week and always looked forward to them coming over. I'm heartbroken for my two girls who have just lost that special relationship with her. If there's one thing my mum loved, it was going on holiday, she thrived over there and this particular holiday to La Mata she just kept saying how amazing it was, it was her best holiday and she'd felt so well and couldn't wait to bring the grandkids over. Alicante international airport in Spain (Image: Getty Images) "She was due to go away with me and my two toddlers next month as well," reports the Mirror. Michelle also shared that her mother, who was from Blantyre in Lanarkshire, was an essential support while she was studying for her midwifery degree. She had sent her mum a video of her 11-month-old granddaughter taking her first steps, as reported by the Daily Record. Michelle recounted: "She helped me out so much to pursue my dream degree after having my kids and always made sure I had all the childcare and financial support I needed. Her holidays were a special thing for her, she went multiple times a year, and it was one of the things she loved doing the most. "But the thing she loved the most was her granddaughters and would ask for pictures of them multiple times a day. The day she died, I had sent her a video of my 11-month-old finally walking, and she was in tears over the video, phoning everyone to tell them, and I'm glad that's the last video she saw of the kids." A spokesperson for the Foreign, Commonwealth and Development Office stated: "We are supporting the family of a British woman who died in Spain." To help with the costs associated with Angela's repatriation and funeral expenses, a GoFundMe page has been established. Sign up to the Irish Mirror's Courts and Crime newsletter here and get breaking crime updates and news from the courts direct to your inbox.
Irish Independent
5 days ago
- Irish Independent
Young Limerick parents overwhelmed as community raises thousands for newborn's surgery abroad
Baby Ronan, son of Leah Kelly and Daire Ó Conchúir from Creeves, was diagnosed with Bladder Exstrophy, a serious condition that will require multiple surgeries both now and in the years to come. As his family prepares for his main surgery in Manchester later this year, friends, family and neighbours are stepping up to help via a popular GoFundMe and local events. "We are reaching out as a club, a community and a family to support one of our own," said a spokesperson for the local soccer club. "As a newborn he has already shown incredible strength and resilience, but his journey is just beginning." Leah and Darragh, parents to two boys, are both beloved members of their local soccer club, Creeves Celtic FC, and now their teammates are aiming to return that dedication in kind. "Both Leah and Darragh are much loved members of our soccer club, dedicated players, teammates and friends. We want to show them that they are not alone," the club spokesperson added. Ronan's treatment will mean a prolonged stay in Manchester of six to eight weeks, placing a financial strain on his young family. "This GoFundMe has been set up to help ease the financial pressure they are under, covering travel to specialist hospitals, time off work and accommodation costs," the campaign statement reads. "Any donation, no matter the size, will be greatly appreciated. Every euro donated is a show of support for this young family and a step toward helping Baby Ronan get the care he needs and deserves.' Other efforts to help the family-of-four include a Shaveathon on Saturday, July 26 in Strand Bar Newcastle West. ADVERTISEMENT Brave volunteers will get their heads shaved or legs waxed in support of baby Ronan and supporters will enjoy a DJ set and raffle with 'amazing' spot prizes. On Sunday, August 3, Creeves Celtic FC are also hosting a special soccer fundraiser at the Thatch, Newbridge along with a raffle. 'We are inviting all our past and present men's and ladies players, as well as the wider soccer community to lace up your boots and join us for a great cause. Everyone is welcome, whether you are playing or cheering on from the sidelines,' said a spokesperson for the club.
Irish Independent
5 days ago
- Irish Independent
€30,000 raised to save life of five month-old Wicklow baby with rare condition
Born with biliary atresia with splenic malformation, which affects her liver and other vital organs, Millie Doyle-Keegan from Aughrim has already endured so much despite her young age, but has done so with a smile on her face. The Kasai procedure to address the condition sadly didn't work for baby Millie, whose liver continues to fail. The only option remaining is a liver transplant at King's College Hospital in London, which comes with huge travel costs, time off work, accommodation in London and ongoing medical care. To help ease the burden on Sarah and her husband Richie Keegan so they can focus on Millie and their two young boys, Lee and Matthew, Sarah's friend Heather launched a GoFundMe page that has raised €30,554 in just two weeks. 'When the surgery didn't work, I was embarrassed about doing a fundraiser, but Heather pressed home that we had a sick child, and people wanted to help,' Sarah said. 'There's lots of bills to pay, so we're completely overwhelmed by everyone's generosity. It's almost too much. 'People are contacting us in the village to do fundraisers, but we don't want to take advantage of the situation, so we told them it's fine. We were just looking for a bit of help, and have had so much already. 'From the beginning, it wasn't even about the money – it's about being told by the hospital that nothing was wrong with Millie, and the situation she's in,' she added. 'I was initially told there's nothing wrong at one hospital, before hearing from Crumlin Hospital three days later that she has biliary atresia with splenic malformation. 'For something so rare, I've met a few people through different connections with the same condition, so it's great to highlight that this happens. 'People have reached out to me, including a woman whose son has the same condition and had his transplant, offering support and advice. ADVERTISEMENT Learn more 'We're so grateful. We were never expecting this.' The family will fly to London in August for an assessment, after which Millie will go on a liver transplant list. From then on, they must be on alert 24/7 and ready to fly at a moment's notice. 'If they ring to say the liver is available, there's an ambulance 20 minutes away, we have to be ready to get to the ambulance, go straight to the airport and on to London,' Sarah said. 'We could wait one or two years. If her condition worsens, she'll be moved up. I'm praying someone in the family will match her. 'I'm so blessed she has just taken everything in her stride. It gives us hope for the future. She's such a good baby, and you can really see her personality shining through.' To support baby Millie, visit
