
'One stop shop' opens to offer dementia support in Bristol
Mr Hall was a carer for his wife Barbara for more than 20 years, until her death in 2022. He set up BDAA to help others following her dementia diagnosis. As well as a memory café, the aim of the hub, which opened on Monday, at Lawrence Weston is to provide social and practical support to help people navigate a dementia diagnosis.The BDAA said the pilot was the first of its kind."When you get a diagnosis of dementia, or you become a carer for someone with dementia, you suddenly have a lot of questions," said Mr Hall."So we have created a hub where people can go to get support."Whether it's financial advice or legal advice, we'll provide professionals who can give advice on what they are concerned about."
'Socialise and reminisce'
The BDAA already runs Happy Days Memory Cafés in Westbury-on-Trym, Shirehampton and Sea Mills.They are open during specific days, for two-hour sessions.People living with dementia and their carers can meet for tea, coffee and a slice of cake, and take part in organised activities."We're known as the tea-time charity," said Mr Hall."People come along and they can socialise and reminisce."A fourth café based in Avonmouth is due to close. "It hasn't really taken off so we're going to close it and take it to the hub where there will be more people around," Mr Hall added.

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BBC News
26-04-2025
- BBC News
Hall 'starting from scratch' as London awaits
An enforced break through illness followed by the arrival of her two children has meant a rollercoaster few years for two-time Paralympic wheelchair racer Jade with a renewed enthusiasm for the sport, she will line up in Sunday's London Marathon just 13 months after giving birth to her daughter via Caesarean her maiden name of Jones, the Middlesbrough racer, who was mentored by Paralympic great Baroness Tanni Grey-Thompson and her husband Ian from the age of 12, made her Great Britain debut aged 15 and competed at European and World Championships and at the London and Rio then switched to Para-triathlon, winning Commonwealth gold for England in 2018 in Australia, and was training for the Tokyo Paralympics before the Covid pandemic and then illness mid-2020, after initially feeling like she had flu, Hall was diagnosed with pericarditis – inflammation of the lining around the heart, external which can cause chest pain and discomfort - and after recovering made the decision to take a break from elite sport and miss the Games."There was definitely a point where I didn't think I was going to be able to race again," the 29-year-old told BBC Sport."I was ill for about eight months and in that time everything was hard. My heart rate was elevated when I was just walking around and that was causing chest pains and other symptoms."From training every day to not being to train at all and not even being able to even go out for a walk or do something simple was pretty tough."I made the decision to focus on my recovery and forget about the Games because I needed to get healthy again and live a normal life."Hall and her husband and fellow wheelchair racer Callum decided to focus on having a family and after welcoming son Luca in February 2023, she returned to training and competed in the Manchester 10K race when he was 12 weeks afterwards, she discovered she was pregnant again and Bonnie arrived in March 2024."I've had a period of almost three years of being in and out of training and with the Caesarean, it's like I've started from scratch," she said."I feel like I've had a career before children and a career after and it's really hard to compare the two because they're just very different."Before I became unwell I was kind of feeling a bit tired and I felt like I didn't really know which direction I was going in."Having that forced break with the illness and then having the children made me realise that I do really love it." Hall finished seventh in the New York Marathon in November, seven months after Bonnie's birth, and on Sunday returns to London, which she last raced in field for the women's race is led by two-time winner and Paralympic champion Catherine Debrunner of Switzerland and American Susannah Scaroni, who won Monday's Boston Marathon. Briton Eden Rainbow-Cooper will hope to improve on her fourth place in Boston after struggling with a back injury since early last the men's race, Swiss 'Silver Bullet' Marcel Hug will be aiming for his fifth win in a row - and seventh overall - to close in on David Weir's record of eight Hall, who is now focused solely on wheelchair racing rather than triathlon, the next Paralympics in Los Angeles in 2028 are a consideration but her short-term goals are more important."LA is at the back of my mind but I want to see how the next year goes and how I can earn my place back on the marathon circuit, so I feel like it's one step at a time for me right now," she said."I'm not just sacrificing my time any more, I'm sacrificing time with the children to go and train."I'm enjoying it - probably more than I ever have - and I want my children to be able to see me doing something positive with my life"Now it just feels different and it feels like it's bigger because it's a part of their life too."


BBC News
26-04-2025
- BBC News
Workington infected blood victim wants compensation paid quicker
A man who was infected with contaminated blood says it has "ruined his life for more than 40 years" and called for compensation for victims of the scandal to be speeded Hall, from Stainburn in Workington, Cumbria, contracted hepatitis C from a blood transfusion in the 1980s while being treated for government launched a compensation scheme for victims of infected blood last year and ministers say they are committed to "delivering compensation as swiftly as possible".Mr Hall was left with health problems, including cirrhosis and liver cancer, and needed a liver transplant in 2021. He said risks from infected blood were too often ignored in the 1980s."The government and the NHS were aware the blood treatments blood transfusions, could be infected with hepatitis C and in some cases HIV," he June he was also diagnosed with bowel cancer, to which his other health issues had made him vulnerable. "I was told once I had a liver transplant, because of the immune-suppressant medication I take to stop my body rejecting the liver, I'll be at high risk of other cancers," he 58-year-old retired council officer said he was one of thousands frustrated by the wait for full compensation."You check your emails every day to see if you've got an email inviting you to start your claim," he said. "You just want it to be over. You just want to get that finished, put it to one side and just move on with your life."He warned victims would miss out on the help they needed."Time is running out for some people. Two people die every four days from the condition they've now got and it's very important they receive their compensation." More than 30,000 people in the UK are believed to have been infected with HIV or hepatitis C from contaminated blood or blood products in the 1970s and 1980s and about 3,000 have since Infected Blood Public Inquiry chaired by Sir Brian Langstaff reported in May 2024 the scandal stemmed from a "catalogue of failures" and victims had been let Infected Blood Compensation Authority (IBCA) says 475 people have so far been asked to start their compensation claim and 137 people have received a compensation offer."Our priority continues to be paying as many people as soon as possible. We are building a claim service and delivering compensation at the same time, to ensure we make payments as quickly as we can," an IBCA spokesman said. "With more dedicated claim managers in place, we are opening our service to more and more eligible people every week."A government spokesman said: "We have paid over £44m so far in compensation, over £1bn in interim payments, and set aside £11.8bn to compensate victims."While no amount of compensation will make up for the suffering people have endured, we are committed to delivering compensation as swiftly as possible." Follow BBC Cumbria on X, Facebook, Nextdoor and Instagram.


The Independent
17-04-2025
- The Independent
Top NIH researcher resigns claiming RFK Jr.'s aides stopped him talking to media about ultra processed foods
The top processed food expert at the U.S. National Institutes of Health (NIH) has resigned from his role, announcing the decision in a lengthy social media post in which he implied that aides to Health and Human Services (HHS) Secretary Robert F Kennedy Jr had attempted to censor his work. Dr. Kevin Hall told CBS News that aides to RFK Jr blocked him from speaking to The New York Times about a new study into the addictive nature of ultra-processed foods. The research in question 'just suggests that they may not be addictive by the typical mechanism that many drugs are addictive,' Dr Hall told the network. 'But even this bit of daylight between the preconceived narrative and our study was apparently too much.' On Wednesday night, Dr Hall announced his resignation in a post on LinkedIn. 'After 21 years at my dream job, I'm very sad to announce my early retirement from the National Institutes of Health,' Dr Hall wrote 'Given recent bipartisan goals to prevent diet-related chronic diseases, and new agency leadership professing to prioritize scientific investigation of ultra-processed foods, I had hoped to expand our research program with ambitious plans to more rapidly and efficiently determine how our food is likely making Americans chronically sick. 'Unfortunately, recent events have made me question whether NIH continues to be a place where I can freely conduct unbiased science,' he continued. 'Specifically, I experienced censorship in the reporting of our research because of agency concerns that it did not appear to fully support preconceived narratives of my agency's leadership about ultra-processed food addiction.' Dr Hall continued: 'I was hoping this was an aberration. So, weeks ago I wrote to my agency's leadership expressing my concerns and requested time to discuss these issues, but I never received a response.' 'Without any reassurance, there wouldn't be continued censorship or meddling in our research, I felt compelled to accept early retirement to preserve health insurance for my family.' He later alleged that Kennedy's spokesperson Andrew Nixon had downplayed the findings and subsequently sent edited versions of his written answers back to the NYT without Hall's consent. His claims have since been denied by the HHS, which stated in a press release that it was 'disappointing that this individual is fabricating false claims.' It continued: 'NIH scientists have, and will, continue to conduct interviews regarding their research through written responses or other means. 'We remain committed to promoting gold-standard research and advancing public health priorities. 'Any attempt to paint this as censorship is a deliberate distortion of the facts.' Dr Hall further told CBS that he had been blocked from presenting his research at a conference and ordered to comply with edits made by officials to a manuscript he had worked on, or to remove himself as its co-author. 'I was hoping this was an aberration. So, weeks ago, I wrote to my agency's leadership expressing my concerns and requested time to discuss these issues, but I never received a response,' he said. RFK Jr has been on a national speaking tour this week, discussing his 'Make America Healthy Again' initiative and highlighting research into rising autism statistics by the U.S. Centers for Disease Control and Prevention, a significance that his own experts have downplayed. The upheaval also coincides with the publication of new findings by the University of Amsterdam that reveal that distrust in science is currently rampant among American conservatives.