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Death of 'precious and special' young man was 'unavoidable' , inquest hears

Death of 'precious and special' young man was 'unavoidable' , inquest hears

Yahoo01-05-2025
The family of a 'fantastic and special' 26-year-old who 'lived his life to the fullest' have paid him a heartfelt tribute following his inquest at Bolton Coroners Court.
Jack Robert Bannister, aged 26, was described by his family as a popular and social man who was adored by all who met him.
Jack, who worked as a customer services assistant in Sainsbury's, was born with Pierre Robin syndrome and spondyloepiphyseal dysplasia congenital (SEDC), the same bone growth condition as award-winning actor, Warwick Davis.
Jack Bannister was described as 'special and precious' by family and friends at his inquest. (Image: Gillian Bannister) By the age of 11, Jack had undergone around 30 various operations for his condition, including a tracheostomy and hernia repair. He used a wheelchair and had full life expectancy, with his condition was not thought to have a direct impact on his lifespan.
The inquest heard that Jack, who was from Leigh, was a keen gardener who enjoyed holidaying abroad with his family and friends, expressed a strong interest in property valuations and loved spending time with his beloved pet dog, Lottie.
Family, friends and close loved ones gathered at Bolton Coroners Court dressed in bright orange clothing, Jack's favourite colour.
The hearing heard that on the evening of 17th December 2024, Jack began to experience abdominal pains in his stomach.
Despite calling 111 for an ambulance, Jack's family noted that there were 'severe delays' of up to almost two hours in him getting seen to and so decided to drive him directly to Royal Bolton Hospital.
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Speaking at the hearing, Jack's mum Gillian Bannister said: 'At first, we thought Jack was suffering from constipation, although this wasn't something he'd had issues with before.
'We were told by the nurse on the phone that the hospital would be notified of his condition and would be expecting him, but when we got there this was not the case.
'But Jack's condition began to deteriorate even further once he arrived to Royal Bolton, he was screaming out in pain. He has a high pain threshold because of his SEDC, so we knew that if he was shouting like this it must have been excruciating.
'Anyone who would pass he would shout to them; he was desperate for help. He began to say that he was struggling to breathe. He wasn't seen by the first triage for around 45 minutes, we were just told to wait for someone to be available.
'After he was eventually seen to by the first triage, I asked if there was a bed that he could use to stretch out, as he had just been cramped up in his wheelchair. It was only after I suggested he stretch out on the floor that they were able to provide us with a bed for him.
Jack, who worked as a customer services assistant in Sainsbury's, was born with Pierre Robin syndrome and spondyloepiphyseal dysplasia congenital. (Image: Gillian Bannister) 'He went an hour and a half without any pain relief. There was around four and a half hours between him entering the hospital to him getting seen to by the surgical registrar for a review.'
The inquest heard that there were delays for getting in contact with the surgical registrar, with senior doctors unable to contact them via the hospital's switchboard.
Jack's condition continued to worsen, the inquest heard that he was left 'crawling on all fours' due to pain following a CT scan whilst waiting for a surgical review.
Gill added: 'When the residential surgeon finally came in, we heard her ask the clinical physician 'why she had been called out for this'.
'We heard doctors arguing behind the curtain between themselves about where Jack should be best placed, he received atrocious care that evening.'
Doctors administered Jack with ketamine as a form of pain relief.
Gillian said: 'He began spasming after the ketamine was administered, he had total fear in his eyes. I'll never forget that look he gave me, this was the last time that he was ever conscious.
'I believe that there were significant delays at Royal Bolton that contributed to Jack's passing. I just want to know if he looked like the average person would this have happened.
'There was a series of significant mistakes, concerns about Jack's breathing were lot listen to, we tried to flag that his skin was mottling and didn't get a response from staff. We felt like we were invisible, there was very little communication about what was happening.
'At one point we were asked to describe what his quality of life was like to the surgical registrar; I mean what kind of question is that?'
Although multiple members of staff attempted to insert a life-saving nasogastric tube into Jack's nose on several occasions, the inquest heard that attempts were unsuccessful.
A needle decompression was considered by staff but deemed too high-risk and likely to result in gastric perforation.
Despite resuscitation attempts by doctors, Jack died after suffering from a cardiac arrest at 6.38am on 18th December.
A post-mortem examination found that his lungs had partially collapsed, and his stomach was 'significantly dilated and full of air' at the time of his death.
Speaking at the inquest, Dr Emma Wheatley, who compiled the NHS report following Jack's death which described his death as 'unavoidable' due to the surrounding circumstances and that the 'outcome would be the same.'
She said: "The nasal gastric tube would have been the life-saving procedure. But this wouldn't go through, despite multiple attempts from senior people.
'Staff were unable to relieve pressure on his stomach, which pushed on the diaphragm and made it difficult for him to breathe. The team were unable to balance the pressure between his lungs and the stomach.
'His triage took about 90 minutes that night, I'm not saying it is acceptable by any means, but unfortunately that is the standard.
'There was a lot of stress between the teams that night, it is not a place for clinical teams to discuss plans in front of patients. Training is now in place to make sure people are being civil to one another and making sure there's no blame amongst staff members.
'The quality-of-life question was insensitive, as this is difficult to determine. We are going to run a communications workshop about that so staff know how to get the best information out of people sensitively.
'Because we couldn't treat the primary problem, it just added to more and more problems, which started with the inability to get the tube in.'
Gill added: 'Jack lived life to the fullest, he had so much to live for and managed to cram so much into his cruelly cut short life.
'Everyone knew him and loved him, over 400 people attended his funeral including the staff at Sainsburys. He was popular, everyone would always compliment him on his beaming smile.
'Jack was the type of person who wanted to help everyone, he sat with his best friend, Jade, for 24 hours whilst she gave birth to his god daughter, Ophelia.
'He loved cars, a good gossip and designer clothes. He was so highly thought of and respected by so many people. He was my son, my best friend.
'Jack's death was undignified, and we still don't understand the reason for these delays on that night. There was so much that we believe could have prevented this and we felt like the communication wasn't there.
'We just exist now, we don't live. I believe he was let down by everyone there that night. I believe that they just looked at him, scratched their heads and didn't know what to do.
'He was the same as everyone else, he worked in Sainsburys and was adored by his customers, he could drive and had so many friends and family who cared deeply for him.
'SEDC is not a life-limiting syndrome, I believe that they were well out of their comfort zone in treating someone of a different size and shape.
'He should still be here.'
A fundraiser for Jack's family has raised over £2,000 of its initial £500 target.
Concluding, Coroner Ceri Owen said: 'There was a failure to offer collation at the end of Jacks' life, I don't know why that was.
'I appreciate those in the medical field have competing demands, steps were taken to deliver care by staff of all seniorities.
'It is impossible to say whether sooner intervention would have had a different outcome. I did feel that some of his treatment was sub-optimal, but I'm not satisfied that the cause of death is neglect in this case.
'I agree with the post-mortem on the cause of death being metabolic acidosis, small bowel obstruction and spondyloepiphyseal dysplasia congenital.
'He was waiting from 90-100 minutes that night, with 95 other patients in A&E. There were delays in him getting a surgical review because of the descended stomach.
'The increasing intrabdominal pressure meant that he had difficulty breathing and unfortunately suffered a cardiac arrest which required advanced care support.
'Ultimately, I rule the cause of death to be natural causes. I offer my sincerest condolences to Jack's family and friends.'
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'All of these threats, it's saber-rattling, it's rhetoric.' Wave of Clinic Closures Based on the recent closure of clinics and the halting of GAC-related treatment at some hospitals, the pressure from the Trump administration appears to be working, Jack Drescher, MD, a psychiatrist and psychoanalyst in private practice in New York City and a past president of the New York County Psychiatric Society, told Medscape Medical News . Earlier this year, Denver Health in Colorado stopped providing gender-affirming surgeries for those younger than 19 years and Children's National Hospital in Washington, DC, paused prescriptions of puberty blockers and hormone therapy. Hospitals in Illinois, Virginia, New York, and a number of other states have followed suit, even in cases where state laws allow GAC treatments in minors. In June, Stanford Medicine became the latest center to pause certain GAC services for patients younger than 19 years. Stanford Medicine said in a statement that it paused the surgeries after careful review of the latest actions and directives from the Trump administration and consultation with clinic leadership. 'We took this step to protect both our providers and patients,' Stanford Medicine said in the statement. 'This was not a decision we made lightly, especially knowing how deeply this impacts the individuals and families who depend on our essential care and support. Even as circumstances change, we remain committed to providing high quality, thorough and compassionate medical services for every member of our community.' One of the nation's oldest and largest trans youth centers, the Center for Transyouth Health and Development at Children's Hospital Los Angeles in Los Angeles closed its doors in July. The center's Medical Director, Johanna Olson-Kennedy, MD, declined a request to speak about the closure. In a statement, the center acknowledged the upcoming closure and said the staff was 'heartbroken to learn of the decision from hospital leaders, who emphasized that it was not made lightly but followed a thorough legal and financial assessment of the increasingly severe impacts of recent administrative actions and proposed policies.' 'Not Based on Science' Many families have left states with GAC-related bans because their children can no longer get care, Drescher said, adding that in some areas, parents are being accused of abusing their children for providing them with GAC. 'We're seeing something similar to what happened with attitudes toward abortion, which is that there are parts of the country where you can no longer access care,' Drescher said. The landscape is also becoming more worrisome for physicians who provide GAC, he added. In another parallel to threats made against clinicians who perform abortions, the names of hospitals and providers who provide GAC have been shared publicly on social media online. Drescher referenced one specific website that hosts such a list and provides data on the top providers that have billed for gender-related surgical procedures for minors. The names of physicians who practice GAC are included in some of the content, according to a review by Medscape Medical News. Medical Groups Respond Medical associations widely condemned the HHS report and other actions by the Trump administration to clamp down on GAC. The AAP questioned the credibility of the report, saying the report 'misrepresents the current medical consensus and fails to reflect the realities of pediatric care.' Similarly, a joint statement from the American Psychiatric Association and other leading medical associations said physicians should not be criminalized or penalized for 'providing care and that medical standards of care and physician training and education must remain evidence-based and free from political interference.' The AMA and other associations have long recommended a staged process for transgender minors that allow youth to explore and live the gender they identify with, while keeping other options open. According to the AMA, evidence has consistently shown that providing GAC that is age-appropriate and evidence-based, leads to improved mental health outcomes. Denying such care on the other hand, has been linked to a higher incidence of anxiety, depression, and self-harm in young people, the AMA stated. 'Gender-affirming care seeks to minimize the distress trans individuals experience by providing a supportive, nonjudgmental environment that acknowledges the individual's gender identity, or uncertainty about their gender identity,' former AMA President Jack Resneck Jr, wrote in a recent AMA article. 'This type of care also offers interventions to reduce the incongruence between gender identity and the individual's sex assigned at birth and gives patients who struggle with their gender identity the time and support they need to resolve that struggle,' he added. Legal, Ethical Questions Raised However, an executive order cannot change state law or federal regulations, said Craig Konnoth, a professor at the University of Virginia School of Law, Charlottesville, Virginia. Konnoth wrote in a June article about the legal and ethical impacts of the administration's executive order in Health Affairs . 'It basically has no force,' Konnoth told Medscape Medical News . 'It says to agencies, 'please change the law,' but does not change the law itself. The executive order isn't a good reason for organizations to stop providing care, and in fact, in many jurisdictions, organizations are required under the law to keep providing care.' In his Health Affairs piece, Konnoth called the criminal actions threatened by the administration, such as violating female genital mutilation protections and running afoul of the Food, Drug, and Cosmetic Act, 'far-fetched.' He noted that pediatric procedures rarely involve genital surgery, and that state protections already prohibit fraud and misrepresentation in medical care. Even the funding withdrawal warnings lack immediate legal effect, he said. To change the conditions of a hospital's participation in Medicare and Medicaid would mean a rulemaking process that would likely take more than a year. The flip side is that hospitals and physicians could land in legal or ethical trouble for ending GAC, according to Konnoth. A number of states prohibit discrimination based on gender identity. In addition, state laws generally prohibit abrupt cessation of care, he said. Patients can sue physicians over a sudden withdrawal of care without sufficient notice and time to find alternative treatment. 'Physicians, I will fully admit, are caught in a difficult spot because you've got conflicting threats you are facing,' he said. 'But the fact remains that the law in many jurisdictions requires physicians to keep providing care.' McNamara said the differing laws and obligations make practicing medicine extremely challenging for physicians right now. 'You don't provide care, or you do provide care, and the negative consequences are devastating on either side,' she said. 'What we're dealing with is the question of: What force is the most influential and powerful right now? These are things the medical profession was never supposed to deal with.'

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