
CHANCE Symposium Highlights Urgent Need for Women and Girls' Bleeding Disorder Care and Launches an Innovative AI-Powered, Patient-Focused Initiative
NNA - On the evening of Thursday, April 10, 2025, CHANCE Association successfully hosted a high-impact symposium at the Emirates Hall of the Habtoor Grand Hotel, in collaboration with the Lebanese Society of Obstetrics and Gynecology Congress. On the occasion of the World Hemophilia Day, celebrated worldwide on April 17 of each year and under the theme 'Access for All: Women and Girls Bleed Too', the event brought together medical leaders, policymakers, and international experts to advocate for improved recognition and care for women and girls with bleeding disorders.
The symposium was directed by LAU Professor, Dr Roula Farah, President of CHANCE (CHildren AgaiNst CancEr) Association and featured insightful presentations by internationally renowned speakers from the University of Geneva, Professors Alessandro Casini, Philippe de Moerloose, and Dr. Awa Babington-Ashaye. Their contributions highlighted the urgent need for better awareness and multidisciplinary collaboration in diagnosing and managing bleeding disorders in female patients, a group often underdiagnosed and undertreated.
Endorsed by 4 scientific societies and attended by over 250 experts in pediatric and adolescent medicine, laboratory medicine, hematology, gynecology and perinatology, the educational symposium was followed by a panel discussion featuring Dr David Atallah, President of the Lebanese Society of Obstetrics and Gynecology; Dr Maroun Matar, Board member of the Lebanese Society of Perinatology ; Dr Mona Alameh, President of the Lebanese Pediatric Society; Dr Myrna Germanos, President of the Syndicate of Clinical Pathologists; Mrs Lina Abou Mrad, Director of the National E-health Programme at the Ministry of Public Health; and Dr Hanane Ziade, Obstetrician-Gynecologist specialized in Adolescent Gynecology at the Lebanese American University of Beirut-Rizk Hospital.
A Key highlight of the evening was the launch of an AI-powered, patient-focused initiative, aimed to bridge critical gaps in disease education by providing curated, culturally adapted, and easily accessible information in Arabic, French, and English. By enhancing disease management and promoting better access to knowledge, the chatbot aspires to improve the overall quality of life for individuals with coagulation disorders in Lebanon. This forward-thinking project holds great promise for driving impactful partnerships with Lebanon's Ministry of Public Health and advancing care at the national level.
A Lifeline for Children with Cancer and Blood Disorders. Since its founding in 2002, CHANCE has been a beacon of hope for over 850 children and their families, covering more than 15,000 hospital admissions and securing over 5,000 essential medications. The association remains dedicated to ensuring every child, regardless of financial background, receives access to life-saving treatment. CHANCE has also led four national awareness campaigns on early diagnosis and detection of childhood cancer and blood diseases, as well as provided direct psycho-social support through activities such as art therapy and virtual reality. Following Lebanon's financial crisis and the 2020 Beirut explosion, CHANCE launched the Donate Medicine initiative, reducing waste by allowing people to donate their unused medications to those in need.
As an Associate Member of Childhood Cancer International (CCI) since 2006, CHANCE represents Lebanon in a global network of 189 organizations across 98 countries. Since 2014, Dr. Roula Farah, CHANCE founder and president has served on the Asia Regional Committee of CCI, advocating for the right to equal access to treatment for all children with cancer worldwide.
CHANCE was also recognized in 2015 as a top finalist for the best NGO award in health by Quality Systems International, Paris, and the United Nations Development Program. It is an active member of the United Nations Global Compact Network.
Since 2019, Dr. Farah has been a member of the World Health Organization's (WHO) Global Childhood Cancer Initiative Working Group. In 2020, she was nominated as a CCI representative for the WHO Global Initiative on Childhood Cancer for the Eastern Mediterranean (EMRO) region. In 2024, she was appointed as the CCI representative and co-focal point for the EMRO region towards the WHO for matters related to childhood cancer.
A Collective Responsibility for a Brighter Future Lebanon's healthcare system is in crisis, but childhood cancer and serious blood disorders cannot wait. With survival rates reaching 80% globally where proper treatment is available, it is imperative to act now.
CHANCE calls upon policymakers, global partners, and the public to take action:
● Raise awareness and promote early diagnosis.
● Advocate for stronger healthcare policies supporting pediatric hematology and oncology.
● Support CHANCE's initiatives to fund essential treatments and provide hope to children fighting cancer and blood disorders.
Join Us. Take Action. Be Their CHANCE. The fight against childhood cancer and blood diseases requires a united effort. No action is too small when a child's life is at stake.
Together, we can turn hope into reality.
Together, we can inspire action.
Together, we can change lives.
For more information about Chance Association and its initiatives, please visit
https://chanceassociation.org/ or contact 70-812259
For volunteering, information or donations, visit CHANCE website: www.chanceassociation.org
Follow CHANCE association on IG and FB: @chanceassociation
Email: [email protected]
Bank details:
Bank Name: CREDIT LIBANAIS SAL, Achrafieh Branch, Beirut, Lebanon
Account Holder: CHANCE Association (Children Against Cancer)
Hashtags

Try Our AI Features
Explore what Daily8 AI can do for you:
Comments
No comments yet...
Related Articles


MTV Lebanon
16 hours ago
- MTV Lebanon
MoPH: 3 injured in the airstrike on Ain Qana
A statement was issued by the Public Health Emergency Operations Center of the Ministry of Public Health, announcing that the Israeli enemy's airstrike on the town of Ain Qana in Nabatieh district resulted in three citizens being injured.


MTV Lebanon
30-05-2025
- MTV Lebanon
30 May 2025 13:40 PM France to Ban Outdoor Smoking in Most Public Places
France will ban smoking in all outdoor places that can be accessed by children, including beaches, parks and bus stops, the health and family minister announced Thursday. Famed as a country where smokers linger over cigarettes on cafe terraces or strolling down cobblestone streets, France has increasingly tightened restrictions on tobacco use in public spaces in recent years. The new ban, which will enter into force on July 1, will cover all spaces where children could be present, including "beaches, parks, public gardens, outside of schools, bus stops and sports venues", said the minister Catherine Vautrin. "Tobacco must disappear where there are children," Vautrin said in an interview published by the regional Ouest-France daily on its website. The freedom to smoke "stops where children's right to breathe clean air starts," she said. The ban will also extend to schools, to stop students smoking in front of them. Offenders face a fine of up to 135 euros ($154), Vautrin said. The ban will not extend to France's iconic cafe terraces however, the minister said. Electronic cigarettes, which have boomed in France in recent years, are also not covered. France already forbids smoking in public spaces such as workplaces, airports and train stations, as well as playgrounds. Anti-smoking groups had been fighting for a broader ban. An estimated 35 percent of France's population are smokers -- higher than the averages for Europe (25 percent) and the world (21 percent), according to the World Health Organization. Around 75,000 people are estimated to die from tobacco-related complications each year in France. According to a recent opinion survey, six out of 10 French people (62%) favour banning smoking in public places. The government's National Anti-Tobacco Programme for 2023 to 2027 proposed a smoking ban similar to the one announced by Vautrin, calling France to "rise to the challenge of a tobacco-free generation from 2032". But anti-tobacco organisations had voiced concern the authorities were dragging their feet on implementing the measures. More than 1,500 cities and villages had already imposed their own bans on smoking in public spaces such as parks, beaches and ski slopes. Vautrin said there were no plans to place additional taxes on cigarettes "at the moment", citing the thriving black market that emerged after existing taxes were introduced in a bid to discourage smoking.


Nahar Net
27-05-2025
- Nahar Net
France's National Assembly to vote on long-debated bill legalizing end-of-life options
by Naharnet Newsdesk 27 May 2025, 15:02 France's lower house of parliament, the National Assembly, is voting Tuesday on a bill to allow adults with incurable illness to take lethal medication, as public demands grow across Europe for legal end-of-life options. Tuesday's vote, expected in the late afternoon, is a key legislative step on the contentious and long-debated issue. If approved by a majority of lawmakers, the bill will be sent to the Senate for further debate. The proposed measure defines assisted dying as allowing people to use a lethal substance under certain conditions so that they may take it themselves. Only those whose physical condition doesn't allow them to do it alone would be able to get help from a doctor or a nurse. The bill provides for strict conditions To benefit from the newly proposed measure, patients would need to be over 18 and be French citizens or live in France. A team of medical professionals would need to confirm that the patient has a grave and incurable illness "at an advanced or terminal stage," is suffering from intolerable and untreatable pain, and is seeking lethal medication of their own free will. Patients with severe psychiatric conditions and neurodegenerative disorders such as Alzheimer's disease won't be eligible. The person would initiate the request for lethal medication and confirm the request after a period of reflection. If approved, a doctor would then deliver a prescription for the lethal medication, which could be taken at home, at a nursing home or a health care facility. In parallel, another bill on palliative care meant to reinforce measures to relieve pain and preserve patients' dignity will also be put to a vote Tuesday. A 2023 report indicated that most French citizens back legalizing end-of-life options, and opinion polls show growing support over the past 20 years. Initial discussions in parliament last year were abruptly interrupted by President Emmanuel Macron's decision to dissolve the National Assembly, plunging France into a months-long political crisis. Months-long debate still ahead A definitive vote on the measure could take months to be scheduled amid France's long and complex legislative process. The National Assembly has the final say over the Senate. Earlier this month, Macron suggested he could ask for French voters to approve the measure via referendum if parliament discussions get off track. Activists supporting the change have criticized the complexity and length of the parliamentary process that they say is penalizing patients waiting for end-of-life options. Many French people have traveled to neighboring countries where medically assisted suicide or euthanasia are legal. The Association for the Right to Die with Dignity (ADMD) has called on French lawmakers "to respect the French who want the same right that our Dutch, Belgian, Luxembourgian, Swiss, Spanish, Portuguese neighbors have." French religious leaders issued this month a joint statement to denounce the bill, warning about the "dangers" of an "anthropological rupture." The Conference of Religious Leaders in France (CRCF), which represents the Catholic, Orthodox, Protestant, Jewish, Muslim and Buddhist communities, said the proposed measures risk exerting pressure on older people and those with illnesses or disabilities. Similar talks in the U.K. The debate in France comes as similar talks are ongoing in the U.K., where lawmakers are debating a bill to help terminally ill adults end their lives in England and Wales after giving it initial approval in November. Medically assisted suicide involves patients taking, of their own free will, a lethal drink or medication that has been prescribed by a doctor to those who meet certain criteria. Euthanasia involves doctors or other health practitioners giving patients who meet certain criteria a lethal injection at their own request. Assisted suicide is allowed in Switzerland and several U.S. states. Euthanasia is currently legal in the Netherlands, Spain, Portugal, Canada, Australia, Colombia, Belgium and Luxembourg under certain conditions.