Latest news with #WorldHemophiliaDay
National News
23-04-2025
- Health
- National News
CHANCE Symposium Highlights Urgent Need for Women and Girls' Bleeding Disorder Care and Launches an Innovative AI-Powered, Patient-Focused Initiative
NNA - On the evening of Thursday, April 10, 2025, CHANCE Association successfully hosted a high-impact symposium at the Emirates Hall of the Habtoor Grand Hotel, in collaboration with the Lebanese Society of Obstetrics and Gynecology Congress. On the occasion of the World Hemophilia Day, celebrated worldwide on April 17 of each year and under the theme 'Access for All: Women and Girls Bleed Too', the event brought together medical leaders, policymakers, and international experts to advocate for improved recognition and care for women and girls with bleeding disorders. The symposium was directed by LAU Professor, Dr Roula Farah, President of CHANCE (CHildren AgaiNst CancEr) Association and featured insightful presentations by internationally renowned speakers from the University of Geneva, Professors Alessandro Casini, Philippe de Moerloose, and Dr. Awa Babington-Ashaye. Their contributions highlighted the urgent need for better awareness and multidisciplinary collaboration in diagnosing and managing bleeding disorders in female patients, a group often underdiagnosed and undertreated. Endorsed by 4 scientific societies and attended by over 250 experts in pediatric and adolescent medicine, laboratory medicine, hematology, gynecology and perinatology, the educational symposium was followed by a panel discussion featuring Dr David Atallah, President of the Lebanese Society of Obstetrics and Gynecology; Dr Maroun Matar, Board member of the Lebanese Society of Perinatology ; Dr Mona Alameh, President of the Lebanese Pediatric Society; Dr Myrna Germanos, President of the Syndicate of Clinical Pathologists; Mrs Lina Abou Mrad, Director of the National E-health Programme at the Ministry of Public Health; and Dr Hanane Ziade, Obstetrician-Gynecologist specialized in Adolescent Gynecology at the Lebanese American University of Beirut-Rizk Hospital. A Key highlight of the evening was the launch of an AI-powered, patient-focused initiative, aimed to bridge critical gaps in disease education by providing curated, culturally adapted, and easily accessible information in Arabic, French, and English. By enhancing disease management and promoting better access to knowledge, the chatbot aspires to improve the overall quality of life for individuals with coagulation disorders in Lebanon. This forward-thinking project holds great promise for driving impactful partnerships with Lebanon's Ministry of Public Health and advancing care at the national level. A Lifeline for Children with Cancer and Blood Disorders. Since its founding in 2002, CHANCE has been a beacon of hope for over 850 children and their families, covering more than 15,000 hospital admissions and securing over 5,000 essential medications. The association remains dedicated to ensuring every child, regardless of financial background, receives access to life-saving treatment. CHANCE has also led four national awareness campaigns on early diagnosis and detection of childhood cancer and blood diseases, as well as provided direct psycho-social support through activities such as art therapy and virtual reality. Following Lebanon's financial crisis and the 2020 Beirut explosion, CHANCE launched the Donate Medicine initiative, reducing waste by allowing people to donate their unused medications to those in need. As an Associate Member of Childhood Cancer International (CCI) since 2006, CHANCE represents Lebanon in a global network of 189 organizations across 98 countries. Since 2014, Dr. Roula Farah, CHANCE founder and president has served on the Asia Regional Committee of CCI, advocating for the right to equal access to treatment for all children with cancer worldwide. CHANCE was also recognized in 2015 as a top finalist for the best NGO award in health by Quality Systems International, Paris, and the United Nations Development Program. It is an active member of the United Nations Global Compact Network. Since 2019, Dr. Farah has been a member of the World Health Organization's (WHO) Global Childhood Cancer Initiative Working Group. In 2020, she was nominated as a CCI representative for the WHO Global Initiative on Childhood Cancer for the Eastern Mediterranean (EMRO) region. In 2024, she was appointed as the CCI representative and co-focal point for the EMRO region towards the WHO for matters related to childhood cancer. A Collective Responsibility for a Brighter Future Lebanon's healthcare system is in crisis, but childhood cancer and serious blood disorders cannot wait. With survival rates reaching 80% globally where proper treatment is available, it is imperative to act now. CHANCE calls upon policymakers, global partners, and the public to take action: ● Raise awareness and promote early diagnosis. ● Advocate for stronger healthcare policies supporting pediatric hematology and oncology. ● Support CHANCE's initiatives to fund essential treatments and provide hope to children fighting cancer and blood disorders. Join Us. Take Action. Be Their CHANCE. The fight against childhood cancer and blood diseases requires a united effort. No action is too small when a child's life is at stake. Together, we can turn hope into reality. Together, we can inspire action. Together, we can change lives. For more information about Chance Association and its initiatives, please visit or contact 70-812259 For volunteering, information or donations, visit CHANCE website: Follow CHANCE association on IG and FB: @chanceassociation Email: [email protected] Bank details: Bank Name: CREDIT LIBANAIS SAL, Achrafieh Branch, Beirut, Lebanon Account Holder: CHANCE Association (Children Against Cancer)
National News
23-04-2025
- Health
- National News
CHANCE Symposium Highlights Urgent Need for Women's Bleeding Disorder Care and Launches an Innovative AI-Powered, Patient-Focused Initiative
NNA - On the evening of Thursday, April 10, 2025, CHANCE Association successfully hosted a high-impact symposium at the Emirates Hall of the Habtoor Grand Hotel, in collaboration with the Lebanese Society of Obstetrics and Gynecology Congress. On the occasion of the World Hemophilia Day, celebrated worldwide on April 17 of each year and under the theme 'Access for All: Women and Girls Bleed Too', the event brought together medical leaders, policymakers, and international experts to advocate for improved recognition and care for women and girls with bleeding disorders. The symposium was directed by LAU Professor, Dr Roula Farah, President of CHANCE (CHildren AgaiNst CancEr) Association and featured insightful presentations by internationally renowned speakers from the University of Geneva, Professors Alessandro Casini, Philippe de Moerloose, and Dr. Awa Babington-Ashaye. Their contributions highlighted the urgent need for better awareness and multidisciplinary collaboration in diagnosing and managing bleeding disorders in female patients, a group often underdiagnosed and undertreated. Endorsed by 4 scientific societies and attended by over 250 experts in pediatric and adolescent medicine, laboratory medicine, hematology, gynecology and perinatology, the educational symposium was followed by a panel discussion featuring Dr David Atallah, President of the Lebanese Society of Obstetrics and Gynecology; Dr Maroun Matar, Board member of the Lebanese Society of Perinatology ; Dr Mona Alameh, President of the Lebanese Pediatric Society; Dr Myrna Germanos, President of the Syndicate of Clinical Pathologists; Mrs Lina Abou Mrad, Director of the National E-health Programme at the Ministry of Public Health; and Dr Hanane Ziade, Obstetrician-Gynecologist specialized in Adolescent Gynecology at the Lebanese American University of Beirut-Rizk Hospital. A Key highlight of the evening was the launch of an AI-powered, patient-focused initiative, aimed to bridge critical gaps in disease education by providing curated, culturally adapted, and easily accessible information in Arabic, French, and English. By enhancing disease management and promoting better access to knowledge, the chatbot aspires to improve the overall quality of life for individuals with coagulation disorders in Lebanon. This forward-thinking project holds great promise for driving impactful partnerships with Lebanon's Ministry of Public Health and advancing care at the national level. A Lifeline for Children with Cancer and Blood Disorders. Since its founding in 2002, CHANCE has been a beacon of hope for over 850 children and their families, covering more than 15,000 hospital admissions and securing over 5,000 essential medications. The association remains dedicated to ensuring every child, regardless of financial background, receives access to life-saving treatment. CHANCE has also led four national awareness campaigns on early diagnosis and detection of childhood cancer and blood diseases, as well as provided direct psycho-social support through activities such as art therapy and virtual reality. Following Lebanon's financial crisis and the 2020 Beirut explosion, CHANCE launched the Donate Medicine initiative, reducing waste by allowing people to donate their unused medications to those in need. As an Associate Member of Childhood Cancer International (CCI) since 2006, CHANCE represents Lebanon in a global network of 189 organizations across 98 countries. Since 2014, Dr. Roula Farah, CHANCE founder and president has served on the Asia Regional Committee of CCI, advocating for the right to equal access to treatment for all children with cancer worldwide. CHANCE was also recognized in 2015 as a top finalist for the best NGO award in health by Quality Systems International, Paris, and the United Nations Development Program. It is an active member of the United Nations Global Compact Network. Since 2019, Dr. Farah has been a member of the World Health Organization's (WHO) Global Childhood Cancer Initiative Working Group. In 2020, she was nominated as a CCI representative for the WHO Global Initiative on Childhood Cancer for the Eastern Mediterranean (EMRO) region. In 2024, she was appointed as the CCI representative and co-focal point for the EMRO region towards the WHO for matters related to childhood cancer. A Collective Responsibility for a Brighter Future Lebanon's healthcare system is in crisis, but childhood cancer and serious blood disorders cannot wait. With survival rates reaching 80% globally where proper treatment is available, it is imperative to act now. CHANCE calls upon policymakers, global partners, and the public to take action: ● Raise awareness and promote early diagnosis. ● Advocate for stronger healthcare policies supporting pediatric hematology and oncology. ● Support CHANCE's initiatives to fund essential treatments and provide hope to children fighting cancer and blood disorders. Join Us. Take Action. Be Their CHANCE. The fight against childhood cancer and blood diseases requires a united effort. No action is too small when a child's life is at stake. Together, we can turn hope into reality. Together, we can inspire action. Together, we can change lives. For more information about Chance Association and its initiatives, please visit or contact 70-812259 For volunteering, information or donations, visit CHANCE website: Follow CHANCE association on IG and FB: @chanceassociation Email: [email protected] Bank details: Bank Name: CREDIT LIBANAIS SAL, Achrafieh Branch, Beirut, Lebanon Account Holder: CHANCE Association (Children Against Cancer)
Yahoo
18-04-2025
- Health
- Yahoo
New plasma donation center opens in Wichita
WICHITA, Kan. (KSNW) – A new plasma donation center opened in Wichita on Thursday. The company, Octapharma Plasma, has over 180 facilities across the nation. The new facility, which opened near Harry and Oliver, will feature updated technology. 'Octapharma Plasma has been at the forefront of providing lifesaving treatments derived from plasma, which are used to treat more than 300 rare, chronic, and life-threatening diseases, including hemophilia and primary immunodeficiency,' Sedgwick County Commissioner Jim Howell said. 'They are the world's leading plasma collection and human protein product manufacturer.' Local leaders say it will bring a $6 million boost to the local economy. 'Octapharma building is more than just a facility, they are strengthening the lifeline for patients and a legacy of care for this community,' Howell said. Thursday also happened to be World Hemophilia Day, and World Primary Immunodeficiency Week is just around the corner. It is recognized from April 22 to 25. Copyright 2025 Nexstar Media, Inc. All rights reserved. This material may not be published, broadcast, rewritten, or redistributed.
Yahoo
15-04-2025
- Health
- Yahoo
Dr. Jonathan Roberts: Leading expert in rare bleeding disorders
PEORIA, Ill. (WMBD) — His passion lights a path forward for those with rare bleeding disorders. 'I'm involved in helping to craft policies that help to shape national guidelines and recommendations for management with people with other bleeding disorders,' said Dr. Jonathan C. Roberts, MD. Dr. Jonathan Roberts is the associate medical director and research director for the Bleeding and Clotting Disorders Institute (BCDI) in Peoria. 'I'm very fortunate that I'm uniquely suited, that I can share my personal experience and really connect with my patients on a personal level when they're right in front of me,' said Dr. Roberts. 'I also am able to impact the larger global community because I have a unique voice and perspective when it comes to policymaking and research endeavors in that regard. I myself have severe hemophilia A, so from being a very small child I had the personal drive that I wanted to take care of people who had a similar disorder to what I have. That led to a lifelong pursuit and then ultimately my career and what I do day-to-day.' He recently received the Rod Niederman Humanitarian Award for his services to the international community. 'This award is in memory of a fellow blood brothers we like to call each other who had severe hemophilia, who passed away from the HIV epidemic that happened to the bleeding disorder community back in the eighties and very early nineties,' said Dr. Roberts. 'That affected my family as well. I had two uncles with severe hemophilia a who ended up succumbing to HIV before the treatments got as good as they are now. In my early childhood [that] was a huge personal motivating factor, to see my uncles suffer to then, you know, help other people who have similarly been affected. So, this humanitarian award is really in memory of that generation.' He pours himself into helping people with Hemophilia, Von Willebrand Disease, and more. His reach goes far beyond the Greater Peoria area, reaching a global stage. 'Lecturing at patient events, across the state, across the country,' said Dr. Roberts. 'I've been invited some places internationally for research collaborations and serving as faculty. I'll speak at a local patient event or I'll speak at our national/international conferences with oral presentations and publications.' With more than 70 peer-reviewed research publications, Dr. Roberts hopes to continue crafting and creating breakthrough research to make a difference in everyone's lives. World Hemophilia Day is April 17. Donate to BCDI Learn More about services offered BCDI leaders hosted their 14th Annual Trivia Night The Great Outdooors last Friday where supporters helped surpass a fundraising goal of $150,000. Contributions help BCDI's foundation to support patients, aid in education efforts, uplift scholarship opportunities, and more. 'Our staff here at BCDI who put it on – we couldn't do it without them,' said Dr. Roberts. 'It gets better and better every year.' If you missed the trivia event, BCDI leaders are preparing for their inaugural Food Trunk Frenzy. Copyright 2025 Nexstar Media, Inc. All rights reserved. This material may not be published, broadcast, rewritten, or redistributed.
