Oxford-Harrington Rare Disease Centre appoints Majid Jafar to its advisory council
The Oxford-Harrington Rare Disease Centre ('OHC'), a partnership between the University of Oxford, UK and Harrington Discovery Institute at University Hospitals, Cleveland, Ohio, aimed at driving cutting-edge rare disease breakthroughs, has announced the appointment of Majid Jafar to its Advisory Council.
The Advisory Council, led by former UK Prime Minister David Cameron, supports the OHC's mission to deliver new treatments for the nearly half a billion people affected by rare diseases worldwide. Council members are leaders of relevant industries and sectors, from different regions of the world who bring expertise, resources and networks towards the initial goal of developing 40 new drugs for rare diseases in the next 10 years.
Jafar is a distinguished business leader serving as Vice-Chairman of the Crescent Group and CEO of Crescent Petroleum, based in the United Arab Emirates, and is the first person to be appointed to the Council from the GCC and Middle East, a region with over 30 million people affected by rare diseases.
He is a prominent, global rare disease advocate and philanthropist with a strong commitment to driving positive social change in healthcare and education, with extensive networks and interests in business, investment and philanthropy in the US, Europe and the Middle East. Among his roles, Mr. Jafar is the co-founder, with his wife Lynn, of the Loulou Foundation, a private non-profit foundation dedicated to advancing science and treatments for CDKL5 Deficiency Disorder (CDD), a rare neurogenetic disorder that affects their eldest daughter, Alia. The Loulou Foundation has funded important research projects at leading universities and institutions in the US, Europe and Asia, with a total of over 60 projects at 45 different institutions.
Jafar also sits on various non-profit boards including the Board of Fellows of Harvard Medical School, where he co-chairs the Discovery Council, and is a member of the Academy of the University of Pennsylvania and the Global Precision Medicine Council of the World Economic Forum, as well as co-chairing the campaign for Cambridge Children's Hospital in the UK.
David Cameron, Chair of the OHC's Advisory Council, said: 'We are delighted to welcome Majid to the OHC Advisory Council. His extensive experience within the business and investment communities and in policy engagement - alongside his philanthropic efforts in education and healthcare - make him an invaluable addition to our team. Furthermore, as a parent of a child with a rare disease, Majid has a deep empathy with families in similar situations as they seek a diagnosis and treatment. We look forward to his contribution to the Council and to his support of the OHC as it continues its groundbreaking work in rare disease research and development of new treatments for patients worldwide.'
Majid Jafar commented: 'I am honoured to join the Oxford-Harrington Rare Disease Centre Advisory Council. Supporting the development of innovative treatments for rare diseases is a cause close to my heart with my family's own experience deeply shaping my commitment to delivering urgently needed treatments to rare disease patients. I look forward to helping advance the OHC's mission by fostering key partnerships in new regions and sourcing philanthropic investment that can accelerate progress for the many patients in need.'
Matthew Wood, Director and Chief Scientific Officer of the OHC, added: 'Majid brings a unique perspective to our Advisory Council, with his strong leadership background and dedication to advancing healthcare. His commitment to social impact, coupled with his ability to expand the OHC's reach into new regions, will be instrumental as we work towards delivering rare disease drugs in the coming years. We are thrilled to have him on board and look forward to his contributions to our mission.'
Majid Jafar joins Lord Cameron (Chair of the OHC's Advisory Council and Former UK Prime Minister), Professor Sir John Bell (President, Ellison Institute of Technology Oxford, and former Regius Professor of Medicine at Oxford University), Baroness Nicola Blackwood (Chair of Genomics England and of Oxford University Innovation), John F. Crowley (President and CEO of the Biotechnology Innovation Association (BIO)), Ronald G. Harrington (a renowned entrepreneur and philanthropist, and co-founder of Harrington Discovery Institute), and Jonathan S. Stamler, MD (President and co-founder of Harrington Discovery Institute and Distinguished University Professor of Medicine), on the OHC Advisory Council.
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