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Running bare: Canberra mum to share powerful City2Surf message

Running bare: Canberra mum to share powerful City2Surf message

9 News4 days ago
Your web browser is no longer supported. To improve your experience update it here Amid the throng of 90,000 runners tackling the Voltaren City2Surf this weekend, Robyn Smith will be carrying a deeply personal message. The Canberra mother-of-three will run the 14-kilometre course from Sydney's CBD to Bondi Beach topless. Painted over her mastectomy scars will be the words, "Flat out for funding". Robyn Smith will run this weekend's Voltaren City2Surf with a message painted over mastectomy scars. (Supplied: Robyn Smith) Smith said the statement was not just about her own journey with inherited cancer; it was also aimed at raising awareness for the often-unexplored choice of "going flat" after a mastectomy. The 46-year-old is collecting much-needed donations for the patient advocacy organisation where she works, Inherited Cancers Australia. While she was feeling nervous about the run, Smith said she was inspired by UK flat advocate Louise Butcher, who has twice completed the London Marathon bare-chested to represent the thousands of women "living flat" without breasts. Smith, 46, was pregnant with her second child back in 2012 when she discovered she had inherited a "ticking time bomb" - the BRCA2 gene mutation. Women with the gene mutation have a 70 percent chance of developing breast cancer and a 17 percent risk of ovarian cancer. "My mum died of ovarian cancer and my grandma died of breast cancer. My cousins had breast cancer, and my uncles had prostate cancer - we are all BRCA gene mutation carriers," Smith said. To reduce her risk of developing cancer, Smith chose to have a mastectomy, which was followed by a breast reconstruction. Smith, 46, discovered she had inherited the BRCA2 mutation back in 2012. (Supplied: Robyn Smith) In a story similar for many women, Smith said she was never really told much about the option of "going flat" before the surgery. Instead, Smith was only provided with a "really nice glossy brochure about reconstruction, and nothing else." For Smith, it was almost assumed that getting breast implants was the option she would take. She had breast implants put in and for 13 months, suffered from a cascade of debilitating symptoms she now attributes to breast implant illness. "My hair was falling out. I had extreme fatigue, memory loss, brain fog, and one of my blood markers — my autoimmune, the ANA marker — went through the roof," she said. The symptoms became so severe that she had the implants removed after 13 months. Almost immediately after "going flat", her health began to improve dramatically. "Within a few weeks, lots of my symptoms started to reside and everything went back to normal," Smith said. Her experience highlights a lack of education and choice for women undergoing mastectomies. According to a Flinders University study , published last month, about 20 percent of women were not told about the option of "going flat" before surgery. A further 18 per cent were told, but only after they asked about it. Robyn Smith, pictured running in a previous City2Surf. (Supplied: Robyn Smith) "Flat is a valid option, just as valid as reconstruction," Smith said, adding that thousands of Australians live happily and confidently without reconstructing their breasts. For Smith, her run is also a tribute to her family, who weren't given the same choices. She feels "really fortunate to have had information that they didn't have," and while she is running for a serious cause, she expects her mum would had an amused reaction. "Sometimes I think my mum must be up there just rolling her eyes and thinking, 'What are you doing?'" she said. The second message of her run is also a plea for help. Smith and her colleagues at Inherited Cancers Australia are struggling to secure funding for the patient advocacy group, which has never received federal government support. She hopes her bold action will grab the attention of corporate sponsors who might be willing to "support the little guy". The organisation provides crucial psychosocial support for families with inherited cancer risk, an issue that affects one in 400 Australians. "I am doing this because I feel like we've exhausted a lot of other avenues," she said. "We're doing something bold like this because we're a small charity without sustainable funding." Smith says she has two messages she will be carrying to Bondi this Sunday. "One of them is written on my chest, and the other is my chest." health
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‘Ticking time bomb': Why Canberra mum is running City2Surf topless
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time3 days ago

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When Canberra mum-of-three Robyn Smith learnt that she was a recipient of the cancer gene that gave her an overwhelming risk of developing breast cancer, she decided to undergo a mastectomy. This Sunday, she is joining 90,000 others in the 2025 Voltaren City2Surf, which starts in Sydney's CBD and ends in Bondi, in an effort to raise awareness and funds for Inherited Cancers Australia. Except, she's going one step further to raise awareness – by running the race topless. It was 2012 when then 33-year-old Robyn learnt that she and seven relatives had the mutation BRCA2, an inherited gene that increases the risk of breast cancer by 70 per cent and ovarian cancer by 40 per cent. 'One in 400 Australians have a gene mutation like I do,' she told NewsWire. 'That's heaps of people who are facing these challenges.' The same year she underwent her genetic testing, her mother was diagnosed with ovarian cancer. Her mother's diagnosis was part of a long history of cancer in Robyn's family. Robyn's grandmother died from breast cancer before she was born, and her cousin was later hit with the same diagnosis. Her uncle was diagnosed with prostate cancer not long after. Cancer runs in Robyn's family, so she decided to take matters into her own hands and outrun it herself. Soon after learning of her gene mutation, Robyn turned to Inherited Cancers Australia (ICA), which offered her risk-reduction information and a community to lean on along the way. 'This organisation was instrumental in helping me be proactive with my cancer risk – a privilege that others in my family were not afforded,' she said. Women with BRCA are advised to remove their breasts, ovaries and fallopian tubes in their 30s and 40s to reduce the risk of developing cancer. So in 2018, a few months shy of her 40th birthday, Robyn underwent her risk-reducing mastectomy. 'I am proud of my decision and how I go about living my best flat life while also shining a light on the realities of living with the ticking time bomb of inherited cancer risk,' she said. As a long fan of running, and in an effort to raise awareness of inherited cancer genes and the ICA, she will be bravely running topless at the Sunday race to 'do something bold and brave' to raise awareness for inherited cancer genes and the ICA She was inspired by UK flat advocate Louise Butcher, known as the Topless Runner, who twice participated in the London Marathon bearing it all. Not even the threat of wet weather can dim Robyn's shine, as she hopes to 'show that women can be flat, strong, and unapologetic'. 'Every day, 35 people in Australia undergo Medicare-funded genetic testing,' she said. 'More people are finding out they have inherited cancer risk. But too often, they're left to figure out the next steps on their own.' The ICA is the only Australian charity dedicated to inherited cancer risk, offering support and recourse for people unsure where to turn. However, with no federal funding, the charity is in desperate need of support, which inspired Robyn to run topless with the words 'Flat out funding' painted across her chest. 'Living with and working in the inherited cancer space means I see first hand the impact that organisations like ours can have on someone in this position,' she said. 'It's great to be able to give back through running.'

Robyn Smith to run bare-chested in Sydney's City2Surf after double mastectomy
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Robyn Smith believes there is nothing wrong with "living flat", and plans to make the message clear at the City2Surf. The 46-year-old has decided to run bare chested, displaying the scars of her double mastectomy to break the stigma around choosing not to get breast reconstruction, and live without breasts. "So about six years ago I had a risk-reducing mastectomy and yeah, now I live flat," she said. Ms Smith said she was inspired by United Kingdom advocate Louise Butcher, who ran the London Marathon twice to bare her mastectomy scars and represent thousands of women globally "living flat" without breasts. She will be among 90,000 runners in this year's sold-out fun run, which will once again go from Sydney's CBD to Bondi Beach — the same route that's been in place for 55 years. The six-time City2Surf runner is raising funds for charity Inherited Cancers Australia, a not-for-profit organisation that provides support for people who have a strong family history of cancer. She realised she could either watch and wait to see if she developed the disease, or have surgery to remove her breasts and drastically reduce her risk. In 2012, after her mother was first diagnosed with ovarian cancer, she had genetic testing and discovered she carried the gene mutation known as BCRA2, which dramatically increases the risk of developing breast and ovarian cancer. Shortly after, she had her breasts removed. She believes her mother saved her. "I'm able to manage my cancer risk. She's saved my life, and unfortunately she died because she didn't get the knowledge that I am privileged to have," she said. Ms Smith has also had her fallopian tubes and ovaries removed for the same reason. Painted across her scars will be the words "flat out of funding" which she said is about the critical shortage in donations that is impacting services being offered by Inherited Cancers Australia. "You know the demand of genetic testing is just continuing to go through the roof." Both her mother and grandmother have died from the disease. Her uncle lived with prostate cancer, and most recently her 36-year-old cousin was diagnosed with breast cancer. Last year's joint Australian of the Year and world renowned pathologist Richard Scolyer, who is in the midst of his own cancer battle, will also be taking part in the event along with his family. In March he announced that after a period of remission his terminal brain cancer, diagnosed in 2023, was back and he only had three months to live. It's past that deadline, and since then he achieved another milestone in June when he clocked his 250th ParkRun. Speaking to ABC Radio National on Saturday, Professor Scolyer said he was making the most of his time, and it was down to "luck" that he was still here. "I'm absolutely delighted to still be here, it's normal that 75 per cent will be dead within a year," he said. Professor Scolyers's first City2Surf was 21 years ago. He took part with his wife and first-born daughter Emily, who was just months old and in a pram. "I remember one time actually she had a number two, and we had to pull over to change her nappy and that slowed us up. "And the back ambulance that follows the people went past us, so we had to run to catch up." He is raising money for the Chris O'Brien Lifehouse, the institute that honours the late pioneering cancer specialist and surgeon who died from a brain tumour in 2009. It's also where Professor Scolyer worked and where he now receives treatment. "I felt very honoured to work with him [Chris O'Brien] and to learn from him and become a friend." He said he was excited to be taking part in this year's run, and because of his love of exercising he doesn't think the race will be that tough. "It's going to be amazing to be with that many people, I can't wait to go down there especially with my wife hand-in-hand — it will be terrific," he told Nine radio on Friday. It's the second year in a row the City2Surf has been sold out, according to organisers. Tanya Carroll, the organisation's regional director, said they were able to "put up the sold-out sign" two months before the event. However, with 90,000 runners participating and thousands more expected to show up to watch, the NSW government has warned the public to prepare for road and transport disruptions. "While it's a fantastic celebration of community, fitness and fun, it does bring major road closures and detours, and we are calling on everyone to plan ahead," Minister for Roads Jenny Aitchison said. According to the government, motorists should expect major delays across the Eastern Suburbs, with all roads expected to be sealed off by 7am. The quickest completion time of the fun run is held by Australian runner Steve Moneghetti in 1991, at about 40 minutes and 2 seconds. Ms Smith said she's not looking to break any records. "I'm going to be going for exposure rather than speed, so it'll just be getting amongst and talking to as many people as I can about the cause and really raising awareness." The race will begin at 7.35am, with the final runners expected to reach the finish line by 2pm.

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When Canberra mum-of-three Robyn Smith learnt that she was a recipient of the cancer gene that gave her an overwhelming risk of developing breast cancer, she decided to undergo a mastectomy. This Sunday, she is joining 90,000 others in the 2025 Voltaren City2Surf, which starts in Sydney's CBD and ends in Bondi, in an effort to raise awareness and funds for Inherited Cancers Australia. Except, she's going one step further to raise awareness – by running the race topless. Robyn has undergone a risk-reducing mastectomy. Supplied Credit: Supplied The Canberra mum is running this year's City2Surf topless. Supplied Credit: Supplied It was 2012 when then 33-year-old Robyn learnt that she and seven relatives had the mutation BRCA2, an inherited gene that increases the risk of breast cancer by 70 per cent and ovarian cancer by 40 per cent. 'One in 400 Australians have a gene mutation like I do,' she told NewsWire. 'That's heaps of people who are facing these challenges.' The same year she underwent her genetic testing, her mother was diagnosed with ovarian cancer. Her mother's diagnosis was part of a long history of cancer in Robyn's family. Robyn's grandmother died from breast cancer before she was born, and her cousin was later hit with the same diagnosis. Her uncle was diagnosed with prostate cancer not long after. Cancer runs in Robyn's family, so she decided to take matters into her own hands and outrun it herself. Robyn (left) had a risk-reducing mastectomy shortly before turning 40. Supplied Credit: Supplied Soon after learning of her gene mutation, Robyn turned to Inherited Cancers Australia (ICA), which offered her risk-reduction information and a community to lean on along the way. 'This organisation was instrumental in helping me be proactive with my cancer risk – a privilege that others in my family were not afforded,' she said. Women with BRCA are advised to remove their breasts, ovaries and fallopian tubes in their 30s and 40s to reduce the risk of developing cancer. So in 2018, a few months shy of her 40th birthday, Robyn underwent her risk-reducing mastectomy. 'I am proud of my decision and how I go about living my best flat life while also shining a light on the realities of living with the ticking time bomb of inherited cancer risk,' she said. The avid runner will bare it all this Sunday. Supplied Credit: Supplied As a long fan of running, and in an effort to raise awareness of inherited cancer genes and the ICA, she will be bravely running topless at the Sunday race to 'do something bold and brave' to raise awareness for inherited cancer genes and the ICA She was inspired by UK flat advocate Louise Butcher, known as the Topless Runner, who twice participated in the London Marathon bearing it all. Not even the threat of wet weather can dim Robyn's shine, as she hopes to 'show that women can be flat, strong, and unapologetic'. 'Every day, 35 people in Australia undergo Medicare-funded genetic testing,' she said. She is raising awareness for Inherited Cancers Australia, which offers support and guidance for those with inherited cancer genes. Supplied Credit: Supplied Robyn will have 'flat out funding' painted across her chest. Supplied Credit: Supplied The ICA is the only Australian charity dedicated to inherited cancer risk, offering support and recourse for people unsure where to turn. However, with no federal funding, the charity is in desperate need of support, which inspired Robyn to run topless with the words 'Flat out funding' painted across her chest. 'Living with and working in the inherited cancer space means I see first hand the impact that organisations like ours can have on someone in this position,' she said. 'It's great to be able to give back through running.'

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