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News18
2 days ago
- News18
Raksha Bandhan 2025: Celebrating Siblinghood, Best Gift - Second Chance at Life
NewsVoirBengaluru (Karnataka) [India], August 12: DKMS Foundation India, a non-profit organisation dedicated to the fight against blood cancer and other blood disorders such as thalassemia and aplastic anemia, celebrates siblinghood this marks Raksha Bandhan, with two unique brother-sister young children, Ayan Khan and Papali Gaan were battling with a blood disorder called thalassemia major, but their siblings saved them by donating their blood stem faces a pressing healthcare challenge: with over 10,000 new children born annually with thalassemia – a hereditary blood disorder leading to severe anaemia. These children often require lifelong blood transfusions, and without proper treatment, many do not survive beyond the age of 20. Blood stem cell transplantation offers the only curative option, but access remains limited due to financial and logistical the Access to Transplantation Program DKMS India is addressing this gap by supporting families in need. This program ensures access to life-saving stem cell transplants for patients who face medical, financial, and infrastructural impediments. the DKMS Patient Funding Program India and the DKMS Thalassemia Program Khan's storyAyan Khan, born on March 11, 2016, was diagnosed with a life-threatening blood disorder, Thalassemia Major. He required regular blood transfusions. His father, a construction labourer with limited finances, was running pillar to post in search of a permanent and his family found hope in an HLA-typing camp that took place in October 2022, organised by DKMS Foundation India along with Narayana Health City, Bengaluru. Ayan's elder sister, Al Shifa, reported as a perfect HLA Match!!On May 1, 2023, under the expert care of Dr. Sunil Bhat, Vice Chairman – Oncology Collegium, Narayana Health Group, and Director of Pediatric Haematology, Oncology, and Bone Marrow Transplantation, Ayan underwent a successful blood stem cell transplant. Two years after the transplant, Ayan is reported as completely disease-free, no longer dependent on blood transfusions. He is currently studying in second standard, and his sister Al Shifa is in seventh standard. Ayan and Al Shifa's story becomes a testament to the courage and compassion of young siblings and stresses the importance of timely medical Gaan's StoryPapali Gaan, born on March 15, 2015, suffered from Thalassemia Major. Her parents, despite their limited financial means, remained steadfast in their commitment to finding a cure. A breakthrough came in the form of an HLA typing camp jointly conducted by DKMS Foundation India and Narayana Health City in February Prakash, Papali's younger brother, emerged as a perfect match. At a young age, the lad donated his blood stem cells. On August 15, 2023, Papali received her life-saving transplant under the expert care of Dr. Sunil Bhat and his her transplant, Papali is living her second chance at life without needing a blood transfusion. Both Papali and Om Prakash are living a healthy life, full of mischief and innocence. But the story doesn't end with recovery. Deeply moved by his daughter's transformation, Papali's father has now taken it upon himself to support other families dealing with Thalassemia. He actively guides and motivates others by spreading awareness about blood stem cell donation and sharing his journey, giving them about the two case studies, Patrick Paul, Chairman, DKMS Foundation India, said, 'Ayan, Papali, and their siblings remind us that Raksha Bandhan has become more than a ritual; it's a celebration of siblinghood. Our role is to ensure that patients from economically disadvantaged backgrounds have access to the first step toward a potential cure–high-resolution HLA typing. While some patients may find a match within their family, the rest must rely on unrelated donors from global registries. However, due to India's genetic diversity, finding a match is especially challenging. Only 0.09% of the Indian population of the relevant age is registered as a blood stem cell donor. This can leave many patients without viable options. 'DKMS Foundation India is a non-profit organisation dedicated to the fight against blood cancer and other blood disorders such as thalassemia and aplastic anemia. The foundation aims to improve the situation of patients in India and across the world by raising awareness about blood stem cell transplantation and registering potential blood stem cell more information, please visit: DISCLAIMER: The above press release has been provided by NewsVoir. ANI will not be responsible in any way for the content of the same)
Fashion Value Chain
2 days ago
- Fashion Value Chain
Raksha Bandhan 2025: Celebrating Siblinghood, Best Gift – Second Chance at Life
Breaking away from tradition, siblings gift life through blood stem cells DKMS Foundation India spotlights two real-life stories where sibling donors gave young patients a second chance through blood stem cell transplantation DKMS Foundation India, a non-profit organisation dedicated to the fight against blood cancer and other blood disorders such as thalassemia and aplastic anemia, celebrates siblinghood this marks Raksha Bandhan, with two unique brother-sister pair. Papali Gaan with her stem cell donor and younger brother, Om Prakash, and Ayan Khan with his stem cell donor and sister, Al Shifa Two young children, Ayan Khan and Papali Gaan were battling with a blood disorder called thalassemia major, but their siblings saved them by donating their blood stem cells. India faces a pressing healthcare challenge: with over 10,000 new children born annually with thalassemia – a hereditary blood disorder leading to severe anaemia. These children often require lifelong blood transfusions, and without proper treatment, many do not survive beyond the age of 20. Blood stem cell transplantation offers the only curative option, but access remains limited due to financial and logistical barriers. Through the Access to Transplantation Program DKMS India is addressing this gap by supporting families in need. This program ensures access to life-saving stem cell transplants for patients who face medical, financial, and infrastructural impediments. the DKMS Patient Funding Program India and the DKMS Thalassemia Program India. Ayan Khan's story Ayan Khan, born on March 11, 2016, was diagnosed with a life-threatening blood disorder, Thalassemia Major. He required regular blood transfusions. His father, a construction labourer with limited finances, was running pillar to post in search of a permanent cure. Ayan and his family found hope in an HLA-typing camp that took place in October 2022, organised by DKMS Foundation India along with Narayana Health City, Bengaluru. Ayans elder sister, Al Shifa, reported as a perfect HLA Match!! On May 1, 2023, under the expert care of Dr. Sunil Bhat, Vice Chairman – Oncology Collegium, Narayana Health Group, and Director of Pediatric Haematology, Oncology, and Bone Marrow Transplantation, Ayan underwent a successful blood stem cell transplant. Two years after the transplant, Ayan is reported as completely disease-free, no longer dependent on blood transfusions. He is currently studying in second standard, and his sister Al Shifa is in seventh standard. Ayan and Al Shifa's story becomes a testament to the courage and compassion of young siblings and stresses the importance of timely medical intervention. Papali Gaan's Story Papali Gaan, born on March 15, 2015, suffered from Thalassemia Major. Her parents, despite their limited financial means, remained steadfast in their commitment to finding a cure. A breakthrough came in the form of an HLA typing camp jointly conducted by DKMS Foundation India and Narayana Health City in February 2022. Om Prakash, Papali's younger brother, emerged as a perfect match. At a young age, the lad donated his blood stem cells. On August 15, 2023, Papali received her life-saving transplant under the expert care of Dr. Sunil Bhat and his team. Post her transplant, Papali is living her second chance at life without needing a blood transfusion. Both Papali and Om Prakash are living a healthy life, full of mischief and innocence. But the story doesnt end with recovery. Deeply moved by his daughter's transformation, Papali's father has now taken it upon himself to support other families dealing with Thalassemia. He actively guides and motivates others by spreading awareness about blood stem cell donation and sharing his journey, giving them hope. Speaking about the two case studies, Patrick Paul, Chairman, DKMS Foundation India, said, 'Ayan, Papali, and their siblings remind us that Raksha Bandhan has become more than a ritual; it's a celebration of siblinghood. Our role is to ensure that patients from economically disadvantaged backgrounds have access to the first step toward a potential cure-high-resolution HLA typing. While some patients may find a match within their family, the rest must rely on unrelated donors from global registries. However, due to India's genetic diversity, finding a match is especially challenging. Only 0.09% of the Indian population of the relevant age is registered as a blood stem cell donor. This can leave many patients without viable options. ' About DKMS Foundation India DKMS Foundation India is a non-profit organisation dedicated to the fight against blood cancer and other blood disorders such as thalassemia and aplastic anemia. The foundation aims to improve the situation of patients in India and across the world by raising awareness about blood stem cell transplantation and registering potential blood stem cell donors. For more information, please visit:
Time of India
5 days ago
- Time of India
In Gujarat, siblings donate stem cells for raksha, deepen bandhan
Ahmedabad: For 23-year-old Dhara, now living abroad, life took an unexpected turn three years ago when she was diagnosed with leukaemia. Despite multiple rounds of treatment, her condition did not improve, and doctors recommended a bone marrow transplant (BMT) as a last resort. Tired of too many ads? go ad free now The life-saving solution came from an unlikely source — her half-brother Aman, the son of her father's first wife, who turned out to be a suitable donor. Doctors said that, at the time, the families of the two wives did not share cordial relations. But when Dhara's life was on the line, both families rose above old disputes. Aman agreed to undergo the human leukocyte antigen (HLA) testing, and when he was found to be a haploidentical match, he donated his stem cells without hesitation. Dr Nidhi Jain, hemato-oncologist and BMT specialist at Zydus Hospital, who oversaw the treatment, said the transplant was successful. "There were moments when her condition worsened and she had to be given radiation and other intensive treatments. But she responded well. After nearly three years of treatment, she's healthy. She got married and recently became a mother," said Dr Jain. The city has seen several such sibling-driven transplant cases in recent years. "In one instance, a 55-year-old woman from the city received a stem cell donation from her elder brother, who is a teacher. The patient was suffering from acute myeloid leukaemia and her condition was deteriorating. In this case, too, the brother emerged as a saviour, due to which the patient is leading a normal life now," said Dr Jain. Another case involved Sangeeta, 48, who was diagnosed with acute lymphoblastic leukaemia. Tired of too many ads? go ad free now Her life was dotted with regular hospital visits, chemotherapy sessions, and an uncertain future, but her brother Rajesh had different plans. Medical experts at the BMT unit of Apollo Hospitals said that the brother was a full match and the transplant was carried out soon after. "It has been three years since, and the siblings have stood by each other through thick and thin. She is completely healthy and is leading a normal life. Sangeeta often says that her brother's strength gave her the courage to face one of the toughest battles of her life," said a senior BMT expert at Apollo Hospitals. Experts said that such cases not only highlight the resilience of the family but also the unshakeable bond the siblings share. (Patients and donors' names changed to protect identity) Why siblings are preferred donors for BMT Bone marrow transplant (BMT), also known as stem cell transplant, is a procedure to treat leukaemia by replacing diseased bone marrow with healthy blood-forming stem cells, said experts. "The procedure is not for all leukaemia patients, but those who are eligible for it often show good results. Siblings are often the best stem cell donors due to a higher possibility of HLA match. Compatibility is an important factor, and we often prefer such donors for long-term good results," said a BMT expert. "Compared to a decade ago, the number of procedures increased due to the availability of technology and expertise. It is often life-saving. The patients may require medication or even minor procedures, but overall the results are encouraging." Sisters more likely to donate kidneys than receive them Ahmedabad: Figures from the Institute of Kidney Diseases and Research Centre (IKDRC) show a notable gender disparity among living kidney donors. Over the past three years, 20 sisters have donated kidneys to save their brothers, while only three brothers have done the same for their sisters. Doctors say the higher incidence of kidney disease among men is one factor. In one such recent case, three sisters came forward to donate a kidney to their brother, Kiran Patel. Sushila, the best match, went ahead with the transplant, fully supported by her family. "It was a moment of complete unity — all three sisters stepped up, and one gave him a new lease of life," said a senior IKDRC official.
