logo
3-yr-old terminally ill girl made to 'fast unto death' by parents in Indore

3-yr-old terminally ill girl made to 'fast unto death' by parents in Indore

A three-year-old girl from Madhya Pradesh's Indore, diagnosed with a terminal brain tumour, was reportedly placed under 'Santhara', a Jain religious practice involving voluntary fasting unto death, NDTV reported.
The child, Viyana Jain, daughter of IT professionals Piyush and Varsha Jain, was diagnosed in December 2024 and underwent treatment, including surgery, in Mumbai. According to the family, her condition worsened despite medical intervention.
On March 21, 2025, during a visit to spiritual leader Rajesh Muni Maharaj in Indore, the family administered Santhara to the child. Her mother, Varsha Jain, said, 'Gurudev inspired us and explained everything. With our consent, the 'Santhara' was done, and 10 minutes later, Viyana died.'
Her father, Piyush Jain said, 'We didn't go with the intent of getting her 'Santhara' done, but Guruji said her condition was serious and suggested it. Everyone in the family agreed.'
The incident became public after Viyana was listed in the Golden Book of World Records as the youngest person to take the vow of Santhara.
Legal and constitutional concerns
Legal experts, however, raised serious concerns. Supreme Court advocate Ritesh Agarwal told NDTV, 'The decision of life and death of a minor is not even with the parents. This raises a serious legal and constitutional question: Can 'Santhara' be administered in the case of a minor who cannot legally or emotionally comprehend death?'
'Article 25 grants freedom of religion, but not above the law. Even religious practices cannot override a minor's legal right to life,' he said.
In 2015, the Rajasthan High Court had declared Santhara illegal, equating it to suicide. However, the Supreme Court stayed that decision a month later. No legal precedent currently exists for administering 'Santhara' to minors.
Understanding Santhara in Jainism
An ancient and solemn rite in Jainism, Santhara involves the gradual renunciation of food and water as a means of embracing death with spiritual awareness and detachment. It is traditionally undertaken by terminally sick people or the elderly, and is seen within the faith as a path to liberation by acceptance and discipline at the end of life, rather than suicide.

Orange background

Try Our AI Features

Explore what Daily8 AI can do for you:

Comments

No comments yet...

Related Articles

High costs of life-saving drugs leave patients of rare diseases in the lurch: Will their crusade for Indian variants win?
High costs of life-saving drugs leave patients of rare diseases in the lurch: Will their crusade for Indian variants win?

Indian Express

time3 hours ago

  • Indian Express

High costs of life-saving drugs leave patients of rare diseases in the lurch: Will their crusade for Indian variants win?

For Seba P A, 26, from Kerala, the cost of breathing easy, moving around and enduring fewer bouts of infection comes at a steep price — nearly Rs 18 lakh per month. For long, she had managed with the Rs 50 lakh government grant under the national policy of rare diseases, one of which — Spinal Muscular Atrophy — she is battling. Now she is on a crusade to make life-saving drugs, currently under patents, affordable for persons suffering from rare diseases. Suffering from Spinal Muscular Atrophy (SMA), a rare disease that progressively affects muscle functions, her condition can be managed with Risdiplam. Developed by Swiss pharma giant Roche, one bottle of Risdiplam costs around Rs 6 lakh in India — something her taxi driver father cannot afford. In a bid to make the life-altering medicine affordable for SMA patients like herself, Seba had in December 2023 filed a petition in the Kerala High Court urging the government to invoke the compulsory licensing clause under Section 84 of the Indian Patents Act, 1970. This allows the Indian government to grant someone other than the patent holder the right to make the medicine if a product or process is nationally unavailable or overpriced. Roche holds the patent for Risdiplam till May 2035. Her case is now being heard in the Supreme Court. 'If other companies start manufacturing the drug, the prices are likely to plummet,' says Seba. Like her, patients suffering from rare diseases, who need life-long therapy, have been urging the government to invoke the compulsory licensing clause. WHY PATIENTS OF RARE DISEASES RAN OUT OF OPTIONS Two years ago, Seba's family had applied for financial aid under the Centre's National Policy for Rare Diseases, 2021, which had identified 1,000 patients, including Seba, for a one-time financial assistance of Rs 50 lakh each. 'When I was taking Risdiplam, my health was stable. I was able to speak and sing. However, the funds got exhausted in mid-February. Since then, I have already had two bouts of infections and have been confined to bed,' Seba, who loves singing and painting, tells The Indian Express. Though she is back on Risdiplam, being provided by Roche free of cost for a year while the case is on, it continues to be out of reach to other SMA patients. The mother of a 14-year-old boy from Bengaluru has been struggling to obtain medicine to treat his cystic fibrosis (CF), a genetic condition that affects cells that produce mucus, sweat and digestive juices, making them thick and sticky, clogging up lungs and the digestive system. In 2019, Trikafta, a three-drug combination sold by US-based Vertex, was approved by the US Food and Drug Administration (FDA) for CF treatment. 'Importing a three-month supply costs Rs 70 lakh. An Argentina company manufactures a slightly cheaper version that costs around Rs 21 lakh for a three-month supply,' she says. She is one of the petitioners urging the government to grant a compulsory license for the medicine. In an attempt to get the medicine from Argentina, the mother scours Facebook for Indians living there and requests them to get the medicine when they come home. 'I split the tablets to make them last at least six months. If Indian companies are given compulsory licences, I might be able to afford medicines for my son,' she says. WHAT'S THE STATUS OF COMPULSORY LICENSING CLAUSE? Despite the exorbitant cost of drugs used to manage rare diseases, India's compulsory licensing clause has been used just once in 20 years. 'Only one private company got a compulsory license once,' says Anand Grover, a senior lawyer who works on such patent cases, referring to the New Delhi-based Natco Pharma, which secured the permit to manufacture Nexavar, a cancer drug made by German multinational Bayer, in 2012. Since then, three Indian companies have unsuccessfully applied for compulsory licences — BDR Pharmaceuticals for Dasatinib (for leukemia), Lee Pharma for Sitagliptin (for diabetes), and Emcure Pharmaceuticals for Trastuzumab (for breast cancer), says Sneha Sharma, a partner at Sujata Chaudhri IP Attorneys. ROCHE VS NATCO In 2024, Roche Pharmaceuticals had filed a petition to get an injunction, claiming that Natco Pharmaceutical was in the process of launching a generic version of Risdiplam. Though its injunction was denied by the Delhi High Court in March 2025, the Swiss drug-maker has filed an appeal. The Division Bench has heard the arguments in the case and is now awaiting written statements from both parties. Meanwhile, Natco announced that if it is allowed to manufacture and market the generic version of Risdiplam, it will sell it for just Rs 15,900 per bottle (against Roche's Rs 6 lakh per bottle). Though Roche's assistance programme provides five bottles at the cost of two, patients still end up spending nearly Rs 30 lakh annually. A generic version of Risdiplam would mean that the government's Rs 50-lakh aid will last almost nine years instead of just a few months for SMA patients. Risdiplam is sold for around $500 (around Rs 42,000) per bottle in China and Pakistan. 'Risdiplam costs less in China and Pakistan where prices were negotiated with the company. Since that did not happen in India, a simple solution would be to issue a compulsory license to Natco,' says Grover. He also challenged the narrative put forth by the Swiss drug-maker, which said that a drug's exorbitant prices were meant to cover the 'high costs' of research and development (R & D). In its suit against Natco, Roche had said that it takes a company nearly 10-15 years and an estimated $2.6 billion (nearly Rs 260 crore) to bring a successful drug to the market. The company had claimed that only one in nearly 5,000 or 10,000 drugs in the research pipeline and around 12% of those in clinical trials get approved. 'Many drugs are, in fact, developed by smaller companies that are acquired by bigger ones and taken to clinical trials. Big companies often hold these patents despite not bearing initial costs of developing several candidate drugs. The figures these companies have been giving out for years are an exaggeration. Which is why we ask for actual costs the companies incur on drug R & D,' says Grover. He says studies have shown that the cost of developing Risdiplam would, at most, be $150 million, a figure that has not yet been contested by the company. HOW PHARMA MAJORS PROLONG PATENT CONTROL Pharma giants find loopholes to prolong their control over a drug. When it comes to Trikafta, the CF drug, Vertex Pharmaceuticals already holds the patent for two of these medicines in India while an application for the third is in process. 'In a blatant abuse of its monopoly, Vertex has filed and obtained multiple patents in India, thus having monopoly rights on various CFTR modulators (a class of medications designed for individuals with CF). But it has not bothered to register the medicine in India,' states a 2024 petition by CF patients in the Karnataka High Court. Sharma says a compulsory licence may also be issued if a patent holder has not worked the patent in over three years. PATENTING PHARMACEUTICALS IN INDIA When the country's new patent law was brought out in the 1970s, the government created a very important provision — it allowed for only process patenting when it came to pharmaceuticals. 'After the British left, drugs in India were very costly. A committee set up by (then PM) Mrs (Indira) Gandhi recommended dropping product patenting for pharmaceuticals. If a product is patented, you cannot do anything. But if a process is patented, you can legally make a similar drug using another process. That is what was done under the new Patent Act that came into force in 1972,' says Grover. This decision was key to the generic manufacturing of pharmaceuticals in India, earning the country the moniker of the 'pharmacy of the world.' Meanwhile, the US, which wanted to create a monopoly for itself, forced the world to accept the Trade-Related Aspects of Intellectual Property Rights (TRIPS) Agreement, which came into effect on January 1, 1995. While countries like Brazil, Mexico and India initially formed a block against TRIPS, threats of sanctions forced them to toe the line. India was given time till 2005 to implement provisions similar to the ones in the US — ensuring product patents and extending patent period from seven to 20 years, explains Grover. In fact, India's Patent Act, which allowed only the process to be patented, became the reason why Indian drug-maker Cipla could establish itself as the 'Robin Hood' of pharmaceuticals. In 2001, the company started selling a cocktail of antiretrovirals (medicines used to manage HIV) for less than $1 a day, driving down the prices of the medication across the world. Grover says, '(Despite TRIPS), we still tried to maintain some provisions that would help our people. Our law does not allow extending patents simply by changing the medicine's form or replacing some salts (a process called ever-greening of patents) unless there is a significant change in its efficacy. Our law also allows for both pre and post-grant opposition.' Anonna Dutt is a Principal Correspondent who writes primarily on health at the Indian Express. She reports on myriad topics ranging from the growing burden of non-communicable diseases such as diabetes and hypertension to the problems with pervasive infectious conditions. She reported on the government's management of the Covid-19 pandemic and closely followed the vaccination programme. Her stories have resulted in the city government investing in high-end tests for the poor and acknowledging errors in their official reports. Dutt also takes a keen interest in the country's space programme and has written on key missions like Chandrayaan 2 and 3, Aditya L1, and Gaganyaan. She was among the first batch of eleven media fellows with RBM Partnership to End Malaria. She was also selected to participate in the short-term programme on early childhood reporting at Columbia University's Dart Centre. Dutt has a Bachelor's Degree from the Symbiosis Institute of Media and Communication, Pune and a PG Diploma from the Asian College of Journalism, Chennai. She started her reporting career with the Hindustan Times. When not at work, she tries to appease the Duolingo owl with her French skills and sometimes takes to the dance floor. ... Read More

Pilot Refuses To Fly, Leaves Eknath Shinde Stuck At Jalgaon Airport For 45 Minutes
Pilot Refuses To Fly, Leaves Eknath Shinde Stuck At Jalgaon Airport For 45 Minutes

News18

time2 days ago

  • News18

Pilot Refuses To Fly, Leaves Eknath Shinde Stuck At Jalgaon Airport For 45 Minutes

Last Updated: The Maharashtra Deputy Chief Minister's departure from Jalgaon was delayed after the pilot cited exhaustion and duty hour restrictions Maharashtra Deputy Chief Minister Eknath Shinde's return to Mumbai from Jalgaon was delayed twice on Friday — first, due to technical issues before arrival, and later after the pilot of his aircraft refused to take off, citing duty hour limitations and ill health. According to NDTV, Shinde was scheduled to arrive at Jalgaon at 3.45 pm but reached nearly two-and-a-half hours late due to technical reasons. After landing, he travelled to Muktainagar by road, where he participated in the Palkhi Yatra (religious procession) of Sant Muktai, accompanied by ministers Girish Mahajan, Gulabrao Patil, and several administration officials. After completing the visit and returning to Jalgaon airport at around 9.15 pm, a second delay occurred. The pilot of Shinde's personal aircraft refused to fly, stating that his duty hours had ended and that fresh clearance would be needed to operate the flight. The pilot also cited ill health as an additional reason for refusing to take off, according to NDTV. As per News18 Marathi, the pilot had already been flying for 12 consecutive hours and was not in a position to continue, both due to his condition and technical regulations. In an attempt to resolve the situation, Mahajan, Patil, and other officials held discussions with the pilot for about 45 minutes. Mahajan also contacted airline officials for the required permissions. According to Lokmat Times, a doctor was also called to examine the pilot's condition. After the medical assessment and necessary approvals, the pilot eventually agreed to operate the flight and the aircraft departed for Mumbai. Speaking to reporters, Girish Mahajan said, 'The pilot had a health-related concern and an issue with the timing. There were some technical difficulties too. We spoke to the airline company, and they explained the situation to the pilot in their own way. It was a minor issue." During the return flight, the Deputy Chief Minister's team assisted a woman who urgently needed to travel to Mumbai for a kidney surgery. According to NDTV, the woman, Sheetal Patil, and her husband had missed their scheduled flight. Upon learning about their situation, Mahajan arranged for the couple to board Shinde's aircraft. Ambulance services were kept ready at Mumbai airport to immediately transfer the woman for surgery. Gulabrao Patil said, 'Eknath Shinde has not forgotten his days of struggle even today. He has shown sensitivity towards the common man."

₹5 Parle-G sold for ₹2,300 in Gaza? Father's war reality claim shocks internet
₹5 Parle-G sold for ₹2,300 in Gaza? Father's war reality claim shocks internet

Hindustan Times

time2 days ago

  • Hindustan Times

₹5 Parle-G sold for ₹2,300 in Gaza? Father's war reality claim shocks internet

A video of a kid receiving Parle-G, her favourite biscuits, from her father in Gaza has shocked social media. In the video, the man claims that the item is sold for ₹2,300 - a huge difference from its humble pricing in India - amid the ongoing Israel-Gaza war. 'After a long wait, I finally got Ravif her favorite biscuits today. Even though the price jumped from €1.5 to over €24, I just couldn't deny Rafif her favorite treat,' X user Mohammed Jawad wrote. In addition to the video, which shows Ravif receiving her biscuits, Jawad also posted a picture of her relishing the treat. Though cannot independently verify the claims in the X post, the share has taken social media by storm. While many showed sympathy, some tagged Minister of External Affairs of India S Jaishankar, urging him to send biscuits to the kid. An individual wrote, 'S Jaishankar, That baby is eating India's favourite biscuit. Look, I know we are neutral about the war. But can we please send more Parle G to Palestine? These are glucose biscuits that will help relieve the civilian population.' Another urged, "India should send some more food and medicines to Palestine.' A third posted, 'It's very saddening to see this.' A fourth remarked, 'These are my favourite biscuits, too, from my childhood.' A few on social media simply expressed their shock and surprise. has reached out to the company. This report will be updated when a response is received. According to a report by NDTV, the humanitarian aid that enters Gaza is often sold at a steep price in the black market. Dr Khaled Alshawwa, a 31-year-old surgeon based in Gaza City, told NDTV, 'The problem isn't with the original suppliers or taxation,' adding, 'These goods usually enter Gaza as humanitarian aid, free of charge. But only a minority receives them. Scarcity turns them into high-priced black market goods.' 'The closure of borders for more than three months now has allowed only a scarce amount of very basic needs that don't meet the needs of 2 million people. So when some people are able to get some, or when looting happens, these foods are being sold at very high, unaffordable prices,' the doctor continued.

DOWNLOAD THE APP

Get Started Now: Download the App

Ready to dive into the world of global news and events? Download our app today from your preferred app store and start exploring.
app-storeplay-store