
'Breaking point' as people in last 12 months of life occupy 'almost a fifth of Welsh hospital beds'
Marie Curie Cymru says end of life care in Wales is "at breaking point" and is calling on the next Welsh government to ensure high-quality care.
The charity says that, for many, support could be better provided at home or close to home, as it launched its manifesto for next year's Senedd election at Cardiff Bay's Norwegian Church on Tuesday.
Gareth Miles died at home in Llanddarog, Carmarthenshire, in September 2023.
Mr Miles, who had Parkinson's disease, had spent 10 weeks in hospital before his last week.
His daughters, Branwen, Eiry and Elen, are calling for better care at home for those who have a palliative or end-of-life care condition.
"Once [her father] was in hospital, even though he was better after 10 days, he couldn't be discharged because he lost the care package," she said.
"He was being supported by carers twice a day because of his Parkinson's and his arthritis, and without the carers, we would have been unable to care for him ourselves.
"So he spent a long time in hospital, waiting for a care package to be reinstated and, while he was there, his condition deteriorated."
While calling for "better links" between health and social care, Mrs Miles said the support from Marie Curie was "invaluable".
"Without their support, my father would have been stuck in hospital and his death would have been very painful for all of us, in quite a distressing environment," she added.
'Surrounded by his family'
Remembering her father fondly, she said he was a "great person" with a "very fulfilling life".
"He saw himself as a very lucky man because, as well as being able to do a job that he loved, he also had family and friends that loved him," she added.
"So it was just very sad then that he spent the end of his life in those circumstances.
"But luckily, we were able to bring him home and he had what he would call a good death in the end, surrounded by his family.
"My intention through sharing this story...is just to hopefully raise awareness of the issue and hopefully make sure that other people are aware of the support that they have."
Natasha Davies, senior policy manager for Marie Curie Cymru, told Sky News the palliative and end of life care system in Wales was at "breaking point" and "under immense pressure".
"The result of that is that too many people are not able to access the care and the support that they need, when they need it, where they need it," she said.
"I think what those experiences show us is the profound impact that getting this right can have, not just on the person who's terminally ill, but also on those close to them."
Ms Davies acknowledged hospital would be "the right and best place" for some people to receive their care.
"But for others, we know that those hospital admissions, particularly via emergency department, could be reduced or avoided," she added.
The Welsh government said: "Good palliative and end of life care can make a huge difference to those with life-limiting illness, helping them to die with dignity, and help the grieving process for those left behind.
"We provide more than £16m a year to make sure everyone has access to the best possible end of life care. This includes setting national standards, boosting community services and ensuring people receive the support they need.
"We are working with health boards and local authorities, supported by monthly discharge data, to improve the safe discharge of patients from hospital. This applies equally to people requiring end of life care."
Hashtags

Try Our AI Features
Explore what Daily8 AI can do for you:
Comments
No comments yet...
Related Articles


BBC News
an hour ago
- BBC News
Saddle Head: Rock climber in Pembrokeshire hospitalised after falling on cliff
A rock climber has been airlifted to hospital after falling on a cliff on the Pembrokeshire male climber fell at Saddle Head, near the village of Bosherston, at about 17:20 BST on Thursday, a spokesman for the Maritime and Coastguard Agency was airlifted to the top of the cliff to be transferred to an air ambulance and flown to hospital in extent of his injuries are not clear. Also in attendance were the St Govans and Tenby Coastguard rescue teams, as well as RNLI all-weather lifeboats from Tenby and Angle.A coastguard helicopter from Newquay in Cornwall was also scrambled to the incident, as well as two Wales air British Mountaineering Council describes South Pembrokeshire as one of the best sea cliff climbing areas in Head is described as providing "fine climbing on good rock", mainly in the lower grades of limestone cliffs rise to around 35m (114 feet) above sea headland lies on the edge of the Ministry of Defence's Castlemartin range and cannot always be accessed due to live firing.


ITV News
an hour ago
- ITV News
Cutting deep: Welsh Rugby faces radical reform to reverse sport's decline
There is a desperate battle brewing in the proud rugby nation of Wales, with a U-turn by the Welsh Rugby Union throwing the game into chaos. ITV News Wales Reporter Rhys Williams has more Having punched above its weight for so long, Wales has worn its rugby heritage like a badge of honour. But after a string of disappointing results on the pitch, resignations in the governing body over allegations of misogyny and sexism, and a growing financial crisis, the future of Welsh rugby has never looked more months after pledging to fund the existing four professional clubs, the Welsh Rugby Union is now considering a radical and controversial restructuring of the professional game, including the possibility of halving the number of clubs from four to just two. It's a move that would reshape the sport at its highest level in Wales, but one that's already causing anger and resentment among thousands of has also created enormous uncertainty for the clubs, with the new season due to begin next would be a very bold move. No international team with fewer than four professional clubs has even finished higher than third in the Six Nations Rugby Championship, let alone win CEO Abi Tierney told ITV News today that this is a 'once-in-a-generation chance to get this right for Wales', and acknowledged the urgent need to provide stability and clarity to the game. With clubs facing challenging financial and performance issues, WRC CEO Abi Tierney explains why the reforms are being put forward But the turbulence isn't confined to the pitch. A political row has erupted after Carmarthenshire-based politicians called on the Welsh Government to block the Ospreys' planned redevelopment of the historic St Helen's Ground on Swansea MP and Swansea East MP Carolyn Harris has hit back strongly, calling their behaviour 'underhand.' Meanwhile, Ospreys CEO Lance Bradley told ITV News that it's vital the clubs know what's happening 'as soon as we can,' but said short-term pain could be worth it if it leads to long-term gain for Welsh rugby.'We have to keep our eye on the prize here. What we're all aiming for is to get Welsh rugby, at both national and club level, into a much better place than it is now. That's what we're all working together to try and achieve.''Whatever happens, we're very positive about the future here at St Helen's and to be honest, we can't wait to be in.'The landscape of Welsh rugby looks set to change dramatically. The hope is that bold reform can reverse its the fear remains: cutting teams may only make things worse.


BBC News
5 hours ago
- BBC News
BBC News quiz of the week: Which baby names took top spot?
This week saw Donald Trump's oft-threatened tariffs finally come into force, the US Coast Guard publish its report into the Titan submersible disaster, and two women denied an AirBnB booking because they were how much attention did you pay to what else happened in the world over the past seven days?Quiz collated by Ben Fell. Fancy testing your memory? Try last week's quiz, or have a go at something from the archives.