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Former Australian of the Year shares update on his cancer battle

Former Australian of the Year shares update on his cancer battle

Daily Mail​04-07-2025
Former Australian of the Year Dr Richard Scolyer has revealed he has recently experienced some 'tough times' in this battle with stage four brain cancer.
The globally-renowned pathologist was diagnosed with 'incurable' brain cancer in June 2023 and has been sharing his journey with Australians ever since.
Dr Scolyer shared a photo of him undergoing an MRI to Facebook on Friday, writing he had recently experienced some 'tough times' but was recuperating.
'It sure is amazing to be back out there participating and enjoying life,' he said.
'A month or so ago, I had some tough times with recurrent brain tumour and additional challenged. These were associated with swelling of my brain which can cause changes in how I am functioning.
'However, now I am feeling much better and loving spending time with my wonderful family and friends.'
The post was quickly flooded with well-wishes from supporters.
'You are such an inspiration to us all and enjoy the time with your beautiful family,' on person commented.
'You're a true fighter and so incredibly honest with your journey. We're all cheering you on Dr, you're an inspiration,' a second wrote.
'Love your outlook on life, whatever it may be, keep family and friends close to your heart,' a third said.
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Rare ‘brain-eating amoeba' detected in drinking water supplies in Australia
Rare ‘brain-eating amoeba' detected in drinking water supplies in Australia

The Independent

time9 hours ago

  • The Independent

Rare ‘brain-eating amoeba' detected in drinking water supplies in Australia

One of the world's most dangerous water-borne microorganisms, commonly called a 'brain-eating amoeba ', has recently been detected in two drinking water supplies in south-west Queensland. Both affected towns are about 750 kilometres west of Brisbane: Augathella (population roughly 300) and Charleville (population 3,000). During an analysis of water samples commissioned by Queensland Health, Naegleria fowleri was detected in the water systems of two health facilities, one in Charleville and one in Augathella, as well as in the incoming town water supply at both facilities. The Shire Council of Murweh, which takes in the two affected locations, issued a health notice for residents and visitors on August 7, warning of the detection of N. fowleri in the water supplies. So what is this organism? And how significant is the risk likely to be in these Queensland towns, and elsewhere? It's rare – but nearly always fatal The N. fowleri amoeba is a microscopic organism found around the world. It only lives in warm freshwater, generally between 25 and 40°C. This can include ponds, lakes, rivers, streams and hot springs. If someone is infected with N. fowleri, it causes what's called primary amoebic meningoencephalitis, a serious infection of the brain. Symptoms include a sore throat, headache, hallucinations, confusion, vomiting, fever, neck stiffness, changes to taste and smell, and seizures. The incubation period of primary amoebic meningoencephalitis – the time between infection and symptoms appearing – typically ranges from three to seven days. Tragically, this illness is nearly always fatal, even if someone receives medical attention quickly. Death typically occurs about five days after symptoms begin. Fortunately, though, cases are very rare. In the United States, there were 167 reported cases of primary amoebic meningoencephalitis between 1962 and 2024, according to the Centers for Disease Control and Prevention. Only four survived. A global review of the disease up to 2018 reported that, of 381 known cases, Australia accounted for 22, the fifth highest number, after the US, Pakistan, Mexico and India. Some 92% of people died. So how does someone get infected? The route of infection is very unusual and quite specific. N. fowleri infects the brain through a person's nose. The amoeba then passes through a protective membrane called the nasal epithelium. This is an important physical barrier and allows the amoeba to travel to the brain through the olfactory nerve, which is responsible for our sense of smell. The infection then kills brain tissue and causes swelling of the brain, termed cerebral oedema. Infections occur in people when infected water travels up their nose. Most cases involve children and young people who have swum in infected waters. The majority of cases occur in males, with an average age of 14. Even water sports in affected waterways can be dangerous. A person is currently in intensive care in Missouri after it's believed they became infected while water skiing. Regarding the recent detection in Queensland water supply systems, the source of the infection has not been reported. It's possible a fresh waterway, or groundwater, which feeds into the affected drinking water systems, was contaminated with N. fowleri, and the amoeba travelled from there. But this will likely be determined with further investigation. How dangerous is N. fowleri in drinking water? First, it's important to note you can't get primary amoebic meningoencephalitis from drinking contaminated water. But any activity that allows infected water to enter a person's nose is potentially dangerous. This can happen during a bath or a shower. Some people flush their nasal passages to clear congestion related to allergies or a viral infection. This has been linked to infections with N. fowleri. If you're going to flush your nasal passages, you should use a sterile saline solution. Even young children playing with hoses, sprinklers or water activities could be at risk. A 16-month-old child was fatally infected following an incident involving a contaminated water 'splash pad' in the US in 2023. Splash pads are water-based recreation activities, primarily for young children, that involve splashing or spraying water. So what's the risk in Queensland? Regarding N. fowleri, Australian drinking water guidelines advise: If the organism is detected, advice should be sought from the relevant health authority or drinking water regulator. The guidelines also provide recommendations on how to disinfect water supplies and control N. fowleri, using chlorine and other chemical compounds. All public town water supplies across Australia are regularly tested to ensure that the water is safe to drink. We don't yet know the exact cause of the detection of the amoeba N. fowleri in these Queensland towns' water supplies. But drinking or cooking with water contaminated with this amoeba will not cause an infection. Any activity that allows potentially contaminated water to go up the nose should be navigated carefully for now in the affected areas. Contamination of a town's drinking water supply from this amoeba is very rare and is unlikely in other Australian town water supplies. How about swimming? To reduce your risk in potentially infected warm, fresh waters, you should keep your head above water while swimming. And don't jump or dive in. You can use a nose-clip if you want to swim with your head under water. The amoeba cannot survive in salt water, so there's no risk of swimming in the ocean. Also, properly maintained swimming pools should be safe from the organism. New South Wales Health advises that the amoeba cannot survive in water that is clean, cool and adequately chlorinated. Ian A. Wright is an Associate Professor in Environmental Science at Western Sydney University.

Boy with painful skin condition given hope after taking part in trial for first potential treatment
Boy with painful skin condition given hope after taking part in trial for first potential treatment

Sky News

time14 hours ago

  • Sky News

Boy with painful skin condition given hope after taking part in trial for first potential treatment

A boy with a rare, painful skin condition has been given hope after taking part in a trial for the first potential treatment for the disorder. Gabrielius Misurenkovas' mother says he has managed to do a few things that he was not able to before the treatment, including taking part in some sports at school, riding his bike in the park on the grass, and being able to play football with his friends, with a soft ball. The 12-year-old was diagnosed with an inflammatory disease called recessive dystrophic epidermolysis bullosa (RDEB) when he was a baby. People with the painful genetic disease, which is severely debilitating and causes itchiness, have extremely fragile skin which can be damaged with even the smallest amount of friction, leading to blistering, deep wounds and scarring. With no disease-modifying treatment available, patients and their families manage symptoms by dressing wounds and applying eye ointments. Over time, the condition can lead to severe complications and many patients with the condition develop a type of skin cancer called squamous cell carcinoma when they are young adults - this is the most common cause of death for RDEB patients. About 150 children in the UK are affected by RDEB. The condition is caused by a fault in the gene that makes a protein which holds layers of skin together - collagen VII. Gabrielius, who has been under the care of medics at the world-renowned children's hospital Great Ormond Street (GOSH) since he was a baby, said he jumped at the chance to join the clinical trial when it was suggested by his doctors. He continued: "I wanted to take part in the trial as I was excited to see if it could help improve my condition and so I could do more of the things I enjoy, like playing football and spending time with my friends." The youngster, who can speak three languages and is a big fan of footballer Lionel Messi, needed his bandages changing three times a day, or more if he was injured. His mother, Jolita Cekaviciene, said: "Gabrielius did really well on the trial. "His wounds healed quicker, and his skin was less red and inflamed. "His skin was also less itchy which also reduced him scratching. "His sleep was also less disturbed as he didn't need to have his special wound dressings changed as often, so this was a great benefit." She added that the trial has given her son more freedom than before, but he still needs to be careful in any activity to avoid falling over or bumps. Gabrielius was referred to GOSH as a baby after medics spotted a wound when he was born, and he was diagnosed with RDEB when he was two weeks old. Ms Cekaviciene said: "The first two years were really hard as you had to watch him constantly - even rubbing his eyes could cause painful blistering. "He couldn't even tell us how much pain he was in or where he was hurting." How did the trial work? Medics wanted to assess whether regular infusions with mesenchymal stromal cells (MSC) improved symptoms for children with the condition, after studies suggested that MSC treatments could promote wound healing, reduce inflammation and stimulate tissue regeneration. In the trial, funded by NHS England, the National Institute for Health and Care Research and the charity Cure EB, children were given a treatment called CORDStrom, manufactured by INmuneBio. Gabrielius is one of 30 children who took part in the new clinical trial at GOSH and Birmingham Children's Hospital. Patients would go into hospital and have a drip which delivers the cells over 10 to 15 minutes. In the study, patients were split into two groups, about half were given the treatment, which is made from umbilical cord tissue, as an infusion, twice over two weeks. The other half were given a placebo, also known as a dummy drug. They then had a nine-month gap, known as a wash-out period, where the group that were initially given the dummy drug were given the treatment, while the group that received therapy first were given a dummy drug. The study, published in the journal eClinicalMedicine, reported a positive outcome of the treatment. The largest effects were in children under the age of 10, and in the children with intermediate type of RDEB. INmuneBio have agreed to provide CORDStrom free of charge for a year for all children who took part in the trial, so researchers can continue to study them, and patients are expected to get two infusions of the treatment every four months. The company is seeking regulatory approval for the treatment so it can be approved for use in the UK and other countries.

I shed more than half my body weight including 3st AFTER I came off Mounjaro – folk say I ‘look like a different person'
I shed more than half my body weight including 3st AFTER I came off Mounjaro – folk say I ‘look like a different person'

The Sun

time15 hours ago

  • The Sun

I shed more than half my body weight including 3st AFTER I came off Mounjaro – folk say I ‘look like a different person'

A WOMAN has revealed how she shed weight even after stopping Mounjaro. Arlene Taggart, from the UK, took to social media to share her weight loss transformation which left people stunned. 3 3 Arlene revealed that she started taking the weight loss jab last September, weighing 15.4 stone at 5'1". In just five months she lost almost 5 stone while taking Mounjaro, shifting her weight to 10.10st. In the before images, Arlene dressed in large black baggy clothes but now feels confident enough to show off her new slim build. She even revealed that she lost yet another 3 st since stopping the weight loss aid, giving her a current weight of 7.3st. Now, Arlene is happy to pose in her bikinis at the pool on holiday. She said that she used Mounjaro as a way to listen to her body, so she could keep up the weight loss once she was off it. She wrote: "I used the time on Mounjaro to listen and get to know my body for the first time in my whole life. "It was a lifestyle change rather than a diet as every 'diet' I have been on I have bloody failed!" Arlene also said that she had loose skin due to the significant amount of weight she lost, but that it didn't bother her. "I do have loose skin," she continued. "My tummy took the most I would say, but I do a lot of weight training now and it has MASSIVELY helped. "I'm not ashamed. I am proud." The post went viral on the Facebook group, mounjaro ozempic wegovy weight loss support, and people were quick to congratulate her on her weight loss journey. One person wrote: "What a difference you look like a different person well done." Another commented: "Then you kept losing weight after you stopped?? You look beautiful, gorgeous, amazing change that I am sure it's not only on your it up girl!!" "Wow what an achievement," penned a third. The 7 fat jab mistakes stopping you losing weight WHILE weight loss jabs have been hailed as a breakthrough in helping tackle Britain's obesity crisis, some users say they're missing out on their waist-shrinking powers - and it could be down to some simple mistakes... POOR PENMANSHIP Many people don't correctly use the injection pen, according to Ana Carolina Goncalves, a pharmacist at Pharmica in Holborn, London. Make sure to prime your weight loss pen correctly, as per the instructions. If nothing comes out, try again, and if it still doesn't work, switch the needle or ask a pharmacist for help. It's also recommended to rotate injection sites between the abdomen, thigh and upper arm to avoid small lumps of fat under the skin. TIME IS OF THE ESSENCE Make sure you're using the jabs on the most effective day of your schedule. For example, taking the jab right before a takeaway or party won't stop you from indulging, says Jason Murphy, head of pharmacy and weight loss expert at Chemist4U. Weight loss injections need time to build up in your system, so if you're planning for a heavier weekend, inject your dose mid-week. MAKING A MEAL OF IT You may not feel the urge to overeat at mealtimes due to the jabs. But skipping meals altogether can backfire, says Dr David Huang, director of clinical innovation at weight loss service Voy. If a person is extremely malnourished, their body goes into emergency conservation mode, where their metabolism slows down. FOOD FOR THOUGHT A key mistake using weight loss jabs is not eating the right foods. As well as cutting out sugary drinks and alcohol, Dr Vishal Aggarwal, Healthium Clinics recommends focusing on your protein intake. DE-HYDRATION STATIONS Dehydration is a common side effect of weight loss injections. But it's important to say hydrated in order for your body to function properly. Dr Crystal Wyllie, GP at Asda Online Doctor, says hydration supports metabolism, digestion, and can reduce side effects like headaches, nausea and constipation. MOVE IT, MOVE IT It can be easy to see the jabs as a quick fix, but stopping exercising altogether is a mistake, says Mital Thakrar, a pharmacist from Well Pharmacy. Exercise helps maintain muscle mass and help shape the body as you lose weight, which may be crucial if you're experiencing excess skin. QUIT IT While there's the tendency to ditch the jabs as soon as you reach your desired weight, stopping them too soon can cause rapid regain. Mr Thakrar recommends building habits like healthier eating during treatment for sustaining results. Meanwhile a fourth said: "What a fantastic achievement! You used MJ in the right way. Yes it's a journey with the way you see food. "You have proven MJ helps assist the weight loss but it's not a quick fix it's a start to a change of relationship of food and what you maintain after the weight loss. Well done!" "You look amazing. Well done,' claimed a fifth

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