
Planned closure of local Healthwatch criticised
Ieuan Jehu turned to Healthwatch Isle of Wight last year when the final dentist practice in Freshwater providing NHS services announced it was to close. He said "Healthwatch were invalable in helping to save the service and find a new operator to take the surgery over. My experience with them was excellent, they listened and kept me informed of what was happening."Mr Jehu said he would welcome a stronger organisation representing patients as sometimes Healthwatch "lacked teeth", but said ICBs themselves would not be able to advocate for patients and hold their own management to account. Healthwatch chairs across the South have said the plan will undermine the independence and effectiveness of the public voice in health and social care.Dr Veronica Barry, Executive Director of Healthwatch Oxfordshire said they were proud of their work engaging with people and communities across the county, including those who don't always give their views."The voice outside the system for patients to advocate or listen on their behalf was really important. Once you bring that function within a system, within health and care it, it can be very difficult for them to really engage and hear."
Siobhain McCurruch, Healthwatch Area Director Hampshire and Portsmouth added "it's hard to understand the reasoning behind dismantling something that will eventually need to be rebuilt," adding "we urge the Government to urgently rethink this very important decision that will have an adverse impact on the local, independent voice".In the statement, the Department for Health and Social care (DHSC) acknowledged the successes of Healthwatch but said "these changes will make things clearer for patients and give them a stronger voice. Through our 10 Year Health Plan we will bring patient care into the 21st century, using tech and AI to make checks more rigorous and efficient and ensure we never turn a blind eye to failure."The timeframe for the closure of the Healthwatch network is still unclear and is subject to further legislation by the government.For now, the organisations say they will continue to fufill their role and are encouraging patients to contact them about their health and social care experiences.
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Wales Online
25 minutes ago
- Wales Online
Toddler was given paracetamol by doctors but she was already fighting for her life and now faces race against time
Toddler was given paracetamol by doctors but she was already fighting for her life and now faces race against time Katie Hughes faces a a looming NHS deadline for £500,000 treatment Sisters Katie and Mackenzie Hughes A little girl who was told to take paracetamol for a simple fever is now fighting for her life after doctors discovered she has a rare and deadly disease. Three-year-old Katie Hughes was rushed to hospital after suffering a terrifying seizure. Doctors blamed it on a high temperature and her parents Grant and Jessica Hughes were reportedly sent home with painkillers and told not to worry. But the fits kept coming and after Katie endured her seventh seizure, her parents demanded answers. On 14 July, with no family history to explain her symptoms, doctors ordered genetic tests that delivered crushing news. Katie has CLN2 Batten Disease – a cruel, terminal brain disorder that will slowly rob her of her ability to walk, talk and see. While there is no cure for Batten Disease, a special enzyme therapy can help slow its relentless progress but the treatment costs a staggering £500,000 a year per patient – and has to be given directly into the brain every two weeks through a permanent device. The NHS has a special deal in place for children who have already started treatment or who can start it before the end of 2025, according to the NICE website. But new patients after that might not be able to get it on the NHS at all, because health bosses say there's not enough long-term evidence it works and the price is too high for the NHS budget. Katie's parents are in a desperate race against time to try to get her onto the treatment before the deadline – or raise enough money to go private or even abroad if they have to. Katie and her dad Grant Hughes "As a mother you're always there for your children and I'm expected to just sit down and slowly watch her deteriorate and go," Jessica, 29, from Porth in Wales, said. "It's just hard to see that because she's only three – she hasn't even lived her life yet. She's too young to understand what's happening to her." Katie's symptoms first appeared in January this year. She had a brain scan in May that confirmed that she had epilepsy before she received her Batten diagnosis in July. Doctors have warned that she may not live past the age of eight to 12, meaning her parents could lose their daughter before she even reaches secondary school. Her family want to make precious memories while she's still able to enjoy them. Grant, said: "I'd never even heard of [the disease] before. "Jessica called me at work and told me to come home because the doctor wanted to give us the news together. I'm not a crying person but I was tearing up – we were in pieces. "They told us what was going to happen in the future but they didn't straight away say she was going to die. I felt like they were skirting around it. "I asked them outright what her life expectancy was and they told me it would be early childhood. It's devastating. It's hard to wrap your head around because she's normal – she's running around fine but all her skills will slowly go." Three-year-old Katie Hughes was rushed to hospital after suffering a terrifying seizure. Despite their heartbreak, the brave parents are determined to stay strong for Katie and her big sister MacKenzie, age seven. They hope to take Katie on dream trips so she can experience the magic before it's too late. Jessica said: "Everything is on a timer now. We want to take her to theme parks and Disney World while she can still enjoy it. "Even that's not simple – because she's epileptic we have to pay £100 for special glasses so she can cope with the flashing lights. "We put on a brave face every day but secretly it's destroying. We have to be there for her – and for MacKenzie too." Katie's loved ones have launched a fundraiser to help cover the sky-high treatment costs, specialist equipment and special days out. Grant added: "We just want Katie to have the best days we can possibly give her. She deserves to smile, to laugh and to feel loved every single day we have left." Article continues below You can donate to Katie's fundraiser here.


Daily Mirror
an hour ago
- Daily Mirror
I'm a nutritionist - eat what you want without cutting calories with my easy hacks'
Expert Robbie Puddick reveals 10 ways to enjoy the summer's barbecues, picnics and all-inclusive buffets and still reduce hunger and boost energy levels As the long sunny summer rolls on, so does the national pastime of firing up the barbecue, dining al fresco or taking some picky bits to the park for a picnic. And who doesn't enjoy eating tasty food and having a drink with friends and family? But, it's also these situations, when we're offered endless food choices or we're out of our usual routine, that can lead us to overeat as we don't want to feel as though we are 'missing out'. The good news is that, with a few tweaks, the food we enjoy while having fun can be delicious and won't compromise our health. When it comes to summer dining and parties, balance really is key. And, by adding healthier options alongside our favourite foods, it can make these occasions something to look forward to rather than worry about. But this isn't about restriction and calorie-counting (our approach at Second Nature, an NHS -backed healthy eating plan focuses on giving our body everything it needs to thrive). Food is information. And, if we send the right signals to our brain with what we're eating, it will respond by lowering our hunger and boosting our energy levels. Our approach ensures you're eating enough protein, fat, and fibre to help you feel fuller for longer, so you're not having to reach for sugary snacks between meals. Here are some top tips for summer eating. READ MORE: Urgent salad and fruit warning to anyone eating common items in hot countries 1 Master the balanced BBQ plate Summer BBQs often focus heavily on meat and refined carbohydrates, but creating a more balanced plate will help you achieve your health goals while still enjoying your favourite foods. Aim to fill half your plate with vegetables; try grilling vegetable skewers, corn on the cob, or foil packets of mixed veg alongside your proteins. For the protein portion (about a quarter of your plate), opt for meat, fish, or plant-based options like grilled tofu or meat alternatives such as veggie sausages. If you're including a starchy carbohydrate like potato salad or a burger bun, keep it to a quarter of your plate (roughly the size of one closed fist). This balanced approach ensures you're getting a variety of nutrients while still enjoying classic BBQ favourites without feeling deprived. 2 Mix your own marinades Many shop-bought marinades contain surprising amounts of added sugar. Creating your own marinades gives you control over ingredients while adding incredible flavour. Mix olive oil with lemon juice, garlic, and herbs for a Mediterranean option, or try yoghurt with spices for a tandoori-style marinade. Acidic ingredients like vinegar, citrus juice, or yoghurt not only add flavour but also tenderise meat. 3 Create super summer salads Summer salads don't have to be boring side dishes. To create a satisfying main meal, start with a variety of colourful vegetables for different nutrients and textures. Add a good source of protein, such as grilled chicken, leftover grilled meats from the BBQ, canned fish, feta cheese, or chickpeas. Include a portion of fats such as avocado, nuts, seeds, or olive oil dressing, which helps your body absorb fat-soluble vitamins from the vegetables. Consider adding complex carbohydrates, such as quinoa, brown rice, or sweet potatoes, for sustained energy. This approach transforms a simple side salad into a balanced, nutritious meal that will keep you satisfied for hours. 4 Choose the right cooking method Different cooking techniques can transform both the taste experience and nutritional profile of our favourite dishes. Grilling creates a delicious smoky flavour to vegetables and proteins alike, perfect for outdoor cooking. Light steaming helps vegetables retain their vibrant colours and crisp textures, making them more appealing on the plate. Air-frying can create wonderfully crispy results for foods like homemade chips or vegetable fritters. Quick stir-frying in a small amount of quality extra virgin olive oil preserves the satisfying crunch of vegetables while developing complex flavours. Slow roasting intensifies the natural sweetness in vegetables like peppers, tomatoes, and courgettes. These cooking methods aren't about restriction but rather about enhancing the natural qualities of your ingredients, making nutritious foods more delicious and satisfying. 5 Drink mindfully The British culture around alcohol often encourages overconsumption, which can have a knock-on impact on our health in the long term. But we can enjoy alcohol in moderation and enjoy our social events. If you choose to drink, alternate alcoholic beverages with water to stay hydrated and consume less overall. Wine spritzers (wine with sparkling water) reduce alcohol content while maintaining the social experience. Clear spirits with low-sugar mixers, such as soda water and fresh lime, generally contain fewer calories than creamy cocktails or sugary premixes. Be wary of 'healthy' cocktails as they many contain large amounts of free sugars from fruit juices. Remember that guidelines recommend not exceeding 14 units weekly, spread across several days, with alcohol-free days in between. 6 Snack smart Hot weather can disrupt normal meal patterns and lead to increased snacking. Prepare by having nutritious options readily available. Keep a container of chopped vegetables and hummus in the fridge for quick access. Freeze yoghurt drops by piping small dots of Greek yoghurt onto baking paper and freezing; these make refreshing, protein-rich treats. Homemade ice lollies made with smoothies offer a healthier alternative to store-bought versions. A small handful of mixed nuts provides protein and healthy fats to keep you satisfied. Having these options prepared in advance makes it easier to make nutritious choices when hunger strikes, even on the hottest days. 7 Go to parties with a plan Summer parties present a particular challenge for balanced eating. Having a small meal containing protein and fibre, such as Greek yoghurt and berries, before attending can help prevent arriving overly hungry. When at the event, first survey all available options before filling your plate, allowing you to make conscious choices rather than automatically taking everything. Position yourself away from the food table during conversations to prevent mindless grazing. 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These approaches ensure you're not skipping breakfast, which research shows can impact energy levels and food choices throughout the day. 10 Batch cook for busy days Summer often brings spontaneous activities that can disrupt meal routines. Batch-preparing core components on the weekend creates flexibility while maintaining a nutritious diet. Cook extra portions of protein, such as chicken breasts or hard-boiled eggs, to add to salads or sandwiches. Prepare a large batch of mixed roasted vegetables that can be eaten cold or reheated. Wash and chop the salad ingredients, then store them separately with kitchen towels to absorb moisture, thereby extending their freshness. Cook and freeze portions of whole grains, such as brown rice or quinoa, that can be quickly defrosted. This preparation enables you to quickly assemble balanced meals when opportunities for outdoor activities arise, supporting both your health goals and ability to enjoy the longer days.

Leader Live
3 hours ago
- Leader Live
Newly qualified doctors face ‘recurring cycle of debt', BMA warns
Students from poorer backgrounds are hit hardest, the union claims, as it calls on the Government to address the funding gap and make a career in medicine accessible to people from as many backgrounds as possible. Students in their final undergraduate year, along with those in the later years of a post-graduate medical degree, get a reduced student loan alongside an NHS bursary. This leads to a £3,674 drop in funding on average, according to the BMA. Sophie Mitchell, deputy co-chair (finance) of the BMA's medical students' committee, told the PA news agency: 'A lot of people are using these loans in previous years to either pay their rent and to live off. 'Losing out on a significant portion of that is meaning that students are struggling. 'We've got people maxing out overdrafts, we've got people maxing out credit cards. 'We've got people going into very significant debt just to actually finish this degree.' The average medical student faces 12 months of this reduced funding. However, some post-graduate students, along with those on six-year degree programmes, face up to three years, Ms Mitchell said. Some are them are also faced with relocation expenses ahead of starting their first job in the NHS. 'The issue with that is most academic years or final years start in around the middle of August,' Ms Mitchell said. 'You are then having this reduced rate of funding until you then get paid at the end of August the following year. 'I know that a lot of my colleagues have had to get loans to pay their rent, or they've had to get credit agreements so that they can pay their rent. 'Also then having to relocate to a new place where you're getting this reduced rate of funding has been a struggle for a lot of people. 'A lot of my friends were already graduating, maxing out their overdrafts, and then they've had to get overdraft extensions to help them live until they get paid at the end of August. 'It's creating this recurrent cycle of debt that people are really struggling to get out of until that first paycheck.' Ms Mitchell said she knows of new graduates stewarding football matches or taking zero hours bar work to get by. She added: 'We have people working behind bars. 'We have people stewarding. 'One of my friends is actually working for Uber at the moment, because it was the only work that she could get that meant that she could get some employment in the area that she's in.' Ms Mitchell is heading the BMA's Fix Our Finance campaign alongside co-chair Henry Budden. 'Quite a common thing that we've heard about the campaign is 'every student gets a job, why are you guys complaining so much?',' she told PA. 'But I think what people maybe aren't so aware of is actually how intense our course is. 'You're training for that role that you're about to start. 'You're in hospital Monday to Friday, nine to five. 'Some universities make their students do night shifts. 'Some universities make their students also do weekends on top of this. 'And then on top of that placement, where you're learning to be a doctor, you're also having to revise for your exams.' The BMA is calling on the Government to ensure medical students receive full student finance maintenance for the entirety of their course. The union claims this would cost the Treasury £24 million and just 0.12% of Student Finance England annual lending. Ms Mitchell and Mr Budden warned the 'situation isn't sustainable' and 'does nothing to help those from poorer backgrounds or improve participation in medicine'. 'Medicine is longer than many other degrees for good reason; because we want to ensure doctors working in the NHS have the best possible training,' they added. 'It is only right then that they should receive the appropriate funding to see them through the entirety of their course.' A Government spokesperson said: 'NHS bursary grants were uplifted from last September for the first time since 2015 and will increase again by forecast inflation this year, but we know there is more to do to support future NHS doctors. 'The 10-Year Health Plan explicitly acknowledges that the cost of studying medicine is a barrier for working-class students. 'We are determined to break down these barriers and ensure the NHS workforce reflects the communities it serves, which is why we're exploring options to improve financial support to students from the lowest socio-economic background so that they are able to thrive at medical school.'