logo
Pharmac Funding U-Turn For Patients

Pharmac Funding U-Turn For Patients

Scoop15-06-2025
Associate Minister of Health
Associate Health Minister David Seymour says the oestradiol patch funding decision is an example of Pharmac's new patient-centric approach.
From December 2025 Pharmac will fund two brands of oestradiol patches, Estradot and Estradiol TDP Mylan.
'Pharmac received significant feedback at the end of last year about a decision to move to Estradiol TDP Mylan as the only funded brand of oestradiol patch. They heard very clearly that the TDP Mylan brand of patch did not work for everyone, and that people wanted options,' Mr Seymour says.
'I'm pleased to see Pharmac's responsiveness to the voices of patients by funding both brands. This decision reflects our commitment to a more adaptable and patient-centric approach.
'The community let Pharmac know that they weren't consulted enough on the original decision. Pharmac has learnt from this, and has added an additional consultation step to its annual tender process to seek feedback when considering a medicine brand change. This patient-centric approach was taken in today's funding decision.
'Pharmac worked and engaged with people who use oestradiol patches, menopause specialists, doctors, nurses, pharmacists, advocacy groups and petition founders in making the decision to fund both brands of patches.
'People should have the opportunity to share what the impact of brand changes would be for them, and what support would be required if there was a change to their current medicine.
'Last year I outlined in my letter of expectations that Pharmac should have appropriate processes for ensuring that people living with an illness, along with their carers and family, can participate in and provide input into decision-making processes around medicines, this is part of the ACT-National Coalition Agreement.
'I expect all key groups to be involved in changes to funded medicine brands through the annual tender. This approach ensures stakeholder engagement while managing financial and operational impacts.
The annual tender process is a key mechanism for Pharmac to manage pharmaceutical expenditure at a relatively low transactional cost. Once a year Pharmac invites suppliers to bid to be the main suppliers of certain medicines. This process can realise between $30 million and $50 million savings per year to spend on new treatments.
'The redirection of Pharmac remains positive and continues towards a more adaptable and patient-centred approach to funding medicines,' says Mr Seymour.
'The decisions to fund Estradot and Estradiol TDP Mylan, and to improve consultation criteria on the annual tender process follows the Pharmac Consumer Engagement Workshop Report, and my letter of expectations, are positive steps towards a system which works for the people it serves.'
Orange background

Try Our AI Features

Explore what Daily8 AI can do for you:

Comments

No comments yet...

Related Articles

Kiwi family move to Australia to get cystic fibrosis drug Trikafta for daughter
Kiwi family move to Australia to get cystic fibrosis drug Trikafta for daughter

NZ Herald

time4 hours ago

  • NZ Herald

Kiwi family move to Australia to get cystic fibrosis drug Trikafta for daughter

Adalyn Delaney was suffering the effects of CF before she was even born, with health staff discovering during a scan that she had a bowel obstruction. The moment she was born, she had to be rushed away to surgery. Adalyn Delaney, 4, moved to Australia with her family, including 1-year-old Emily Delaney, to access Trikafta. Adalyn had to have two surgeries within her first five weeks of life, and another at the age of 1 to get scar tissue removed. She has been hospitalised multiple times, including for pneumonia, a collapsed lung and another bowel obstruction. She has to go on a nebuliser (a mask-like device that turns medicine into a vapour she can inhale) three times a day when she is healthy, and must take medication when she eats to help her body digest food properly. Before going on Trikafta, she went on antibiotics every time she got a cough. Since getting to Queensland in June, Adalyn was quickly prescribed Trikafta and has been on what she calls her 'special pill' now for several weeks. While it is still early days, the medication appears to be working well so far, with Adalyn experiencing a spike in energy and hunger, and a lack of tummy aches. Delaney said it was 'really heartbreaking' to leave behind their support networks, friends and family, but they had to make the decision for Adalyn's health. 'Children don't want to be strapped to nebulisers, they want to be playing and all that.' Delaney said it was disappointing it was 'taking so long' for the drug to be funded for young children in New Zealand. Adalyn Delaney calls Trikafta her "special pill". 'It's definitely a condition that affects things from birth ... the sooner the better that children can go on it for better long-term outcomes.' The family have thought about whether they would move home once Adalyn turns 6, but Delaney said Australia was funding more medications that may have a better impact on Adalyn. 'We want NZ to keep pace with treatments, not just catch up. We need to be where she'll get the best care.' 'This can change the trajectory of their lives' The chief executive of Cystic Fibrosis New Zealand, Lisa Burns, said New Zealand was 'just so far behind' other countries in providing Trikafta to children. Children were suffering irreversible damage to their bodies before the age of 6, she said. To the best of her knowledge, about 55 children in New Zealand would benefit from the drug being funded for them. She noted Pharmac's Pharmacology and Therapeutics Advisory Committee previously said Trikafta could add 27 years to someone's life. While previous estimates have put the average life expectancy in the 30s, updated figures in Australia, where more medications have been funded for longer, are closer to the mid-50s. Alex and Kayla Delaney moved their two daughters, Adalyn, 4, and Emily, 1, to Australia to access the drug for Adalyn. 'When children are normally learning to walk and explore, these kids aren't. They're going through hours of treatment regimes and having to spend time in hospital, and they don't get to have the same opportunities, and this medication could drastically help to improve that in this age group. It's so important,' she said. 'My message to Pharmac is please recognise the value that is being delivered from the patient population ... we want to see equitable, accessible treatment for our children. 'I just don't understand why we wouldn't do it, this can change the trajectory of their lives.' 'It was literally life-changing' Hanna Meates, 33, went on Trikafta a couple of years ago when Pharmac began funding it for people over 6. 'Everybody should be able to have access to something like that if it's going to literally save their life ... like, they can avoid all the lung damage and all of that stuff that's irreversible,' the Lower Hutt woman said. It was an opportunity for them 'to have a normal life right off the bat'. 'I think something like Trikafta is the most incredible medical breakthrough that we've had for cystic fibrosis.' Meates had never expected to have a long life, and upon starting Trikafta, her emotions were 'quite indescribable'. 'For the first time, I actually had a future to look forward to and a future that I could plan for and know that I was going to have that and be healthy for at least most of it. 'It was amazing but also scary in a way as well, because like, you grow up and you're told that ... you're not probably going to have a long life. So you live your life like that. Hanna Meates, 33, started taking Trikafta for her cystic fibrosis, and said the medication was life-changing. 'I didn't plan for anything. I don't have savings or anything. I didn't care about what was going to happen, so I was just living in the moment, and then suddenly you do have a future and then you have to start thinking about savings and what you're going to do for your future.' Meates said her symptoms were significantly reduced on Trikafta. She still experiences more shortness of breath than the average person and can get quite tired, but aside from that and a persistent cough, she otherwise feels healthy. 'You're one way your whole life and you don't really know what you're missing out on, and then suddenly your life just completely changes.' Before Trikafta, she couldn't exercise or hold down a full-time job, or even go for a light walk without running out of breath. Now she can go to the gym and live life relatively normally, and has a full-time job as an adviser in a government department. 'It was literally life-changing,' she said. Pharmac's director of advice and assessment, Dr David Hughes, said when they funded Trikafta for people over 6 in April 2023, Trikafta only had approval for that age group at the time. 'The company obtained Medsafe approval for Trikafta for children aged 2 to 5 years in March 2025, after supplying clinical trial data for this age group,' he said in a statement. A year ago, a respiratory advisory committee recommended Pharmac fund it with a high priority for people aged 2-6 who met certain criteria. 'Our teams are working hard to finish our assessment of this application, which is well under way. Once our assessment is complete, we will then compare this application against applications for other medicines that people would like us to fund on the Options for Investment list. 'We can't say if or when a decision about funding this medicine will be made. It depends on things like the budget we have available, the success of negotiations with suppliers, and how we've prioritised this medicine against others.' In a statement, Vertex, which makes Trikafta, said more than 40 countries, including those with a similar funding system to New Zealand, were funding the drug. 'Vertex is keen to explore innovative funding solutions with Pharmac so that eligible children ages 2-5 years can have sustainable access to Trikafta as soon as possible.' Melissa Nightingale is a Wellington-based reporter who covers crime, justice and news in the capital. She joined the Herald in 2016 and has worked as a journalist for 10 years.

Exclusive: David Seymour asked Ministry for Regulation to look into removing bike helmet requirements
Exclusive: David Seymour asked Ministry for Regulation to look into removing bike helmet requirements

NZ Herald

timea day ago

  • NZ Herald

Exclusive: David Seymour asked Ministry for Regulation to look into removing bike helmet requirements

Data quoted by the Ministry for Regulation found following that mandate, adult helmet use in New Zealand rose from 43% in 1993 to 92% the year after. Initial analysis undertaken by the ministry recommended the risks of removing bike helmet requirements outweighed any benefits, with Seymour provided numerous reasons as to why. Ministry officials first pointed out it did not believe there would be a material increase in the uptake of cycling by removing the bike-helmet mandate. The document stated that while cycling has declined since the 1990s, several factors including increased car ownership, urban planning and a lack of cycling infrastructure contributed to this. Officials noted many countries did not have mandates for helmets in place, including countries with high rates of bike use and strong safety records, such as the Netherlands. It was determined the Netherlands example could not be a direct comparison to New Zealand, as the Ministry for Regulation noted they 'invest significantly' in cycling infrastructure and other safety measures. The response to Seymour's office also added that while there would be health benefits to increasing cycling, and fewer congestion problems, the increase would not be 'significant enough' to have a material impact on either. The issue of fatalities and severe head injuries was also raised by the Ministry for Regulation, which stated helmets are 'generally low cost and highly effective at preventing serious injury and death from cycling accidents'. 'There has been a significant decline in serious injuries and fatalities since a regulatory helmet mandate was introduced in New Zealand,' the advice read. 'The ministry considers that removing the helmet mandate would likely lead to an increase in serious injuries and fatalities as a result of cycling accidents. As well as personal, family and societal costs, this would lead to increased healthcare and long-term ACC scheme costs. As outlined above, we do not think there would be any material benefits‚' officials said. Data was provided which proved cycling helmets had been 'consistently shown to be effective' in reducing the severity of head injuries. Since helmets were mandated in New Zealand, it was found the number of serious injuries and fatalities both decreased markedly. Ministry for Regulation advice noted cycling helmets were "effective at preventing injuries and deaths". Officials added a comprehensive cost-benefit analysis of the topic would have taken 12 weeks and would divert resources from other areas of work. Advice deemed the cost of the bike itself, rather than a helmet, was deemed the main cost barrier for people cycling. The regulatory response ended saying 'based on this initial analysis, the ministry considers that further work on this issue carries risks'. It expected any further analysis would find the benefits of mandating helmets outweigh the costs. When asked to comment on the matter, Seymour told Newstalk ZB his office asked the ministry to provide some quick advice into the effectiveness of the regulations, saying 'this is an issue raised with me from time to time'. 'In any case, the ministry advised bike helmet regulations are appropriate, and having considered the advice, I agree. No further action was or will be taken,' he confirmed. Azaria Howell is a multimedia reporter working from Parliament's press gallery. She joined NZME in 2022 and became a Newstalk ZB political reporter in late 2024, with a keen interest in public service agency reform and government spending.

Assisted dying: Thoughts from the front line
Assisted dying: Thoughts from the front line

Newsroom

time2 days ago

  • Newsroom

Assisted dying: Thoughts from the front line

Comment: When the End of Life Choice Act 2019 came into effect in November 2021, it marked a profound shift in how we approach death and dying in New Zealand. As researchers and clinicians our team felt a deep responsibility to understand how this new law was unfolding, not from the top down, but from the ground up. That meant listening to the very people who were making it happen: assisted dying practitioners. These are the doctors and nurse practitioners who sit with patients in their final moments, who navigate complex eligibility criteria, and who carry the emotional weight of helping someone die on their own terms. They are the ones who bring the service to life. And yet, before this research, we knew very little about their experiences. Why we did this study The motivation behind this research was simple: to capture what was actually happening in practice. Assisted dying is a new health service in New Zealand, and many practitioners entered it with no roadmap. They were learning as they went, often alone, often unsure, and often deeply moved by the experience. We wanted to understand their journey, not just to document it, but to help improve the service. If there were challenges, we needed to know. If there were moments of beauty and meaning, we needed to honour those too. Ultimately, this study was about making assisted dying safer and more sustainable for everyone involved, including patients, their families, and providers. We used a 'memorable case' approach, inviting 22 assisted dying practitioners to reflect on their experiences during the first 12 months of the Act's implementation. These weren't just clinical accounts, they were deeply personal stories that revealed the emotional, ethical, and logistical complexities of assisted dying. Through thematic analysis, we identified three major themes: 'Knowing', reflecting on practitioners' prior personal and professional experience; 'doing', reflecting on their early assisted dying experiences of delivering this service; and 'being', reflecting on their personal/professional accounts of being an assisted dying provider. These themes helped us understand not just what practitioners did, but how they felt, what they struggled with, and what they learned. What assisted dying practitioners said Let's start with the positives because there were many. Practitioners consistently described the experience as a privilege. Despite the anxiety and emotional intensity, particularly during the first couple of service provision, they felt honoured to be part of something so meaningful. For many, the last words they heard from patients were 'Thank you'. That simple phrase carried immense weight. It affirmed that they were helping to end suffering, honour final wishes, help fulfil autonomy and choice, and offer peace. But there were challenges too, some of which persist today. One major issue is the eligibility criteria, particularly the requirement that a person must be likely to die within six months. This can exclude people who are suffering profoundly but don't meet the strict timeline. Assisted dying practitioners sometimes found themselves in situations where they were challenged to give an exact or accurate prognosis because of the unpredictable nature of many medical conditions. Another challenge is the regulatory prohibition on raising the topic of assisted dying with patients. Practitioners can't initiate the conversation; it must come from the patient. While this protects against coercion, it also means that many people don't even know the option exists. Some practitioners felt torn: they felt ethically challenged by withholding information about the full range of end-of-life care options, but they couldn't say so. Some others accepted the restriction, fearing that even a well-intentioned suggestion could be misinterpreted. Assessing suffering was another complex area. There's no standard guideline or measurement tool, and suffering is deeply subjective, which could confuse patients in the evaluation process. Practitioners had to dig deeper, asking about daily activities, joy, and quality of life to understand the full picture. This subjectivity, however, allowed some room to acknowledge other forms of suffering, including psychological, existential, and spiritual suffering. For some practitioners, this subjectivity was seen as a positive point, allowing patients to determine whether and how they were suffering. Experienced clinicians were often better equipped to do this and acknowledged that assisted dying involves a steep learning curve for junior practitioners. And then there's the stigma. In smaller communities, some practitioners feared backlash from colleagues, neighbours, and even family. Many kept their involvement quiet, worried about judgment or misunderstanding. For some, this secrecy added another layer of emotional strain to an already demanding role and limited their ability to seek support. Finally, we must acknowledge the logistical burden. Most assisted dying practitioners were, and still are, doing this work on top of their regular duties, after hours, on weekends, driven by compassion rather than compensation. Their dedication was extraordinary, but it may not be sustainable without better support. What comes next This study was just the beginning. It gave us a snapshot of the early days, a time of uncertainty, courage, and profound human connection. Since then, some challenges have been addressed, which is encouraging. But others remain, and we must keep listening, learning, and evolving. Assisted dying is not just a legal or medical service; it's a deeply human one. If we want it to succeed, we need to support the people who make it possible. That means clearer guidelines, better training, more public awareness, and a culture that values openness over silence. We are proud of this research and grateful to the practitioners who shared their stories and experiences. Their voices are essential. They remind us that behind every policy is a person and behind every person is a story worth telling.

DOWNLOAD THE APP

Get Started Now: Download the App

Ready to dive into a world of global content with local flavor? Download Daily8 app today from your preferred app store and start exploring.
app-storeplay-store