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MAHA to reveal plan on kids' chronic diseases

MAHA to reveal plan on kids' chronic diseases

Politico19-05-2025
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Driving The Day
CHRONIC DISEASE CHRONICLES — The Trump administration's Make America Healthy Again commission is set to release its much-awaited report this week that should shed light on its strategy to combat the chronic disease epidemic among American children.
The report, to be released Thursday, is expected to identify the key drivers of chronic childhood illness, such as asthma and autoimmune diseases, in the U.S. It could indicate how HHS Secretary Robert F. Kennedy Jr. might shift key health policy and research focuses within the nation's health agencies as he seeks to further his MAHA agenda.
Background: President Donald Trump signed an executive order establishing the MAHA commission in February, just after Kennedy was confirmed as secretary. The commission's goals align with Kennedy's MAHA agenda: identifying and addressing the root causes of chronic health issues and ending childhood chronic disease.
Trump named Kennedy commission chair and directed the group to first study the scope of childhood chronic disease in the U.S. and any contributing factors — such as diet and environment — and provide government-wide recommendations on addressing the contributing causes. The order directed the commission to submit the 'Make Our Children Healthy Again Assessment' to the president by May 24.
What to expect: The EO directs the commission to assess and recommend actions on childhood chronic disease, including:
— Assessing the threat of potential overuse of medicine, certain food ingredients and chemicals
— Identifying best practices for preventing childhood health issues, including through nutrition
— Evaluating the effectiveness of existing federal programs and funding aimed at preventing and treating childhood health issues
— Eliminating undue health industry influence in scientific findings and establishing a framework for transparency and ethics review in industry-funded projects
Key context: Agriculture industry groups worry that the MAHA report could target pesticides and warn that a crackdown on the chemicals' use could negatively affect farmers and consumers. The report is widely expected to assess whether pesticides and other food ingredients are linked to health problems in children.
What's next: By mid-August, the commission must submit to Trump a 'Make Our Children Healthy Again' strategy based on the initial report's findings. The strategy should address restructuring the federal government's response to the childhood chronic disease crisis and add new solutions to tackle chronic disease, according to the executive order.
WELCOME TO MONDAY PULSE. Congrats to Journalism for meeting his deadline and winning the Preakness this weekend. Send your tips, scoops and feedback to khooper@politico.com and ccirruzzo@politico.com, and follow along @Kelhoops and @ChelseaCirruzzo.
In Congress
GOP ADVANCES MEGABILL — The House Budget Committee voted to advance the GOP's sweeping domestic policy agenda late Sunday night, keeping alive House Speaker Mike Johnson's goal of getting the 'big, beautiful bill' across the finish line by Memorial Day.
The legislation — central to President Donald Trump's agenda, including tax cuts, border security and energy policy — advanced through the committee in a 17-16 vote, with four conservatives voting 'present.'
Key context: The bill, which would cut federal Medicaid spending by more than $600 billion, initially failed to get through the Budget Committee in a vote Friday, when five Republicans joined the panel's Democratic cohort by voting in opposition. Some conservatives took issue with the legislation's line on work requirements for Medicaid recipients, set to take effect in 2029, wanting them to start sooner.
Just before the reconvened markup on Sunday night, Johnson told reporters that 'minor modifications' were promised to those holdouts.
House Republican leaders haven't publicly detailed possible changes or briefed the full House GOP Conference, and those concessions to fiscal hawks could endanger support among moderate Republicans wary of changes like speeding up enforcement of Medicaid work requirements.
Committee member Rep. Chip Roy (R-Texas), one of the holdouts Friday who then voted 'present' Sunday night, said in a post on the social media platform X that the bill 'does not yet meet the moment' because it doesn't go far enough in slashing federal dollars going to state Medicaid programs. Roy joined three of his colleagues to 'vote 'present' out of respect for the Republican Conference and the President to move the bill forward,' he said.
What's next: Top House Republicans want to push the megabill through the Rules Committee and the House floor by Thursday when lawmakers are set to leave for Memorial Day recess.
HEALTH CARE
BIDEN'S DIAGNOSIS — Former President Joe Biden has been diagnosed with an aggressive form of prostate cancer, according to a statement from his personal office Sunday, POLITICO's Adam Wren and Gregory Svirnovskiy report.
Doctors diagnosed Biden last week with a prostate nodule after he experienced increasing urinary symptoms. By Friday, they diagnosed him with cancer, which has spread to the bone.
Biden's office said the cancer 'appears to be hormone-sensitive which allows for effective management.' The former president, who is 82, and his family are reviewing treatment options with his doctors, the statement said.
What to know: Metastatic prostate cancer is not curable, but it is treatable and can typically be managed for a number of years, according to Dr. Geoffrey Sonn, an associate professor of urology at Stanford University School of Medicine who specializes in treating patients with prostate and kidney cancer. Sonn is not involved in Biden's care.
About 1 in 8 men will be diagnosed with prostate cancer in their lifetime, and it is more common among older men — with about 60 percent of cases diagnosed in men 65 and older, according to the American Cancer Society.
'People can live for years on these hormonal therapy medicines, and there are other backup treatments once the initial ones start to fail, too, and those work longer, too,' he said. 'There's been a number of new medicines that have been improved and shown to be effective in the last 10 years or so.'
The hallmark treatment for prostate cancer that's spread to the bones is hormone therapy, which typically involves reducing the patient's testosterone level and can cause the cancer to shrink or stop growing, Sonn said. The median survival for patients undergoing the treatment is four years, though it can vary widely and sometimes be extended when patients use additional therapies or participate in clinical trials.
Quality of life with the diagnosis 'can be quite good with appropriate exercise and diet,' though the hormone treatment does have side effects, including sexual dysfunction and weakened bone density, according to Sonn.
'This is very different than if you hear someone that shows up with metastatic pancreatic cancer, where you know most are going to be dead within three to six months,' he said. 'Prostate cancer is very different in that regard, in that it can be managed for years.'
Even so: Prostate cancer is typically slow-moving, but Biden's advanced diagnosis suggests it's a faster-moving tumor, which could make it more difficult to treat, said Dr. Cory Abate-Shen, a professor of urologic sciences at Columbia University. Abate-Shen is not involved in Biden's care.
'It's pretty serious if it's so advanced, because you wouldn't imagine that from someone who's being monitored,' she said.
Vaccines
NOVAVAX COVID SHOT APPROVED — The FDA on Friday green-lighted Novavax's Covid-19 vaccine — but with some restrictions.
The FDA granted the company full approval for the protein-based and non-messenger RNA Covid shot, which previously had only emergency authorization for use in people 12 and older. But the agency approved the shot for use only in people 65 and older or for those ages 12 to 64 who have at least one underlying condition putting them at high risk for severe Covid outcomes.
Novavax competitors Pfizer and Moderna received full approval for their mRNA Covid-19 vaccines for certain age groups during the pandemic.
Why it matters: The vaccine's approval for certain groups of people comes amid uncertainty over whether the Trump administration will continue to recommend yearly Covid shots for all Americans ahead of a meeting of the CDC's top vaccine advisers next month. HHS Secretary Robert F. Kennedy Jr., a longtime vaccine skeptic, also plans to stop recommending routine Covid vaccines for pregnant women, teenagers and children, The Wall Street Journal reported Friday.
Key context: The agency had initially set an April 2025 deadline to decide whether to license the shot. But the decision was delayed after a top FDA official directly intervened in the agency's review and asked for more data on the shot — a highly unusual move that cut against longstanding precedent at the FDA designed to shield scientific assessments from political interference.
WHAT WE'RE READING
The Associated Press' Eric Tucker, Gene Johnson and Alanna Durkin Richer report on the FBI investigating an explosion at a California fertility clinic as an act of terrorism.
POLITICO's Hassan Ali Kanu reports on the Trump administration asking the Supreme Court to allow mass layoffs of federal workers.
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I want to be a voice and a person who can help women." Halsey Singer Halsey was first diagnosed with endometriosis in January 2016 and underwent multiple surgeries to treat it one year later. In a post-op Instagram post tagged #endowarrior, she wrote: "For those of you who have followed this battle of mine or who may suffer with it yourself, you know the extremes to which it can be mentally exhausting and physically painful." Susan Sarandon Susan Sarandon manages to raise awareness for endometriosis while stressing that the condition should not define those who suffer from it. After years of pain, she received what she describes as a "half-assed diagnosis," which included half-hearted treatments, but not a comprehensive explanation of what they were or how the disease worked. "When all you know is pain, you don't know that that is not normal. It is not a woman's lot to suffer, even if we've been raised that way," she said at the Endometriosis Foundation of America's 3rd Blossom in 2011. Mae Whitman For 20 years, Mae Whitman struggled to pinpoint the source of the 'violently… extremely intense pain' she experienced with every period. She was given frustrating anwers like 'period pain is normal,' the Good Girls star recalled in a 2019 Instagram post, until she found Dr. Iris Orbuch, who listened and 'not only explained every facet of what could be happening in my body, but a comprehensive lifestyle plan to diagnose, excise, and not only manage, but really BEAT this technically incurable disease,' Whitman wrote. After surgery, Whitman felt 'better than ever' and was able to hope for a future 'where I'm not weighed down by pain, fatigue, and depression' during her period. The experience inspired Whitman to start raising awareness for the condition. 'I just hate the fact that there are people out there that are struggling with this, and feel alone, and feel like there's no one else,' Whitman told People in 2021, revealing that famous friend Lena Dunham was the one to refer her to Dr. Orbuch. 'The day that I got the surgery was the best day of my life,' Whitman went on. 'I'm so much better now, I'm a different person.' Tara Lipinski Tara Lipinski has undergone three endometriosis surgeries and has been open about the toll endometriosis has taken on her body. 'For the last year I've been dealing with a painful endometrioma that formed in my ovary,' the Olympic gold medalist wrote in a July 2024 Instagram story, per People. '[My doctor] removed that and cleaned up all my remaining endo. (Which hopefully won't be coming back as I hopefully [won't] be doing any more fertility treatments.)' Lipinski also shared that her doctors removed her fallopian tubes during the hospital stay, 'as it's a huge risk reduction for ovarian cancer. So glad to have them out!' Lipinski, who welcomed her daughter Georgia Winter in 2023 via surrogate, was also an open book when it came to her difficult IVF journey — she even hosted a podcast, Unexpecting, on the topic. It's a topic close to home for many with endometriosis, as the condition impacts fertility. 'I think at the end of the day, what I learned with so many women on their journeys was that everyone approaches grief or loss or struggle differently,' Lipinski told SheKnows in a previous interview. 'To be able to follow other women that were on their journey, I felt just less alone. So… I'm hopeful that my story resonates with someone going through something similar or feeling the same way.' Francia Raisa Francia Raisa has long been open about her experience having PCOS, but revealed in a June 2024 Instagram post that she'd recently been diagnosed with endometriosis and small intestinal bacterial overgrowth (SIBO) as well. Raisa said that her journey to diagnosis included 'years of confusing symptoms' before her doctors found an answer. The combination of conditions 'puts me at very high risk of having complicated pregnancies in the future,' Raisa went on, explaining that she was 'in shock' at the diagnoses. 'What strikes me the most is that it's not enough that I take care of my health and body,' the How I Met Your Father actor wrote. 'With all the advances in medicine, there still isn't enough research being done into women's specific health care to really understand how women like me are able to ensure our opportunity to have a healthy life and family.' Alexa Chung Alexa Chung first revealed her endometriosis diagnosis quietly, via a 2019 Instagram post. 'I don't want to belong to any club that would accept me as a member, but here I am,' she captioned a photo taken in a hospital hallway, adding the hashtags #endometriosisclub, #lifelongmembership, and #sorryifyouhaveittooitsucks. In a 2023 essay for British Vogue, the model and fashion designer went into greater detail about her experience with the condition and frustration at the lack of effective treatments. 'It can be agony,' she wrote, going on to detail how her symptoms were dismissed by doctors. 'Do you know what a period is?' one doctor asked her in a condescending tone, after Chung almost missed a flight 'thanks to a period that was so heavy I was unable to leave a bathroom stall.' In 2019, Chung underwent surgery to remove an ovarian cyst and areas of endometriosis and hasn't experienced any flare-ups since. 'I don't say this to brag but rather to offer an example of how surgery can resolve the matter if it is discovered and treated early enough — something that every sufferer of endometriosis deserves,' she wrote. Bethenny Frankel Bethenny Frankel had laparoscopic surgery in her early 30s to help treat her endometriosis and wasn't afraid to discuss her struggles with the disease. Several years prior, she experienced bad cramping and spotting and was diagnosed with cysts and fibroids on her uterus. Ultimately, she said it was getting pregnant that helped her pain subside the most. "Don't feel shame," she wrote in an open letter on Facebook in 2016. "Other women are going through the same issue and it's okay to talk about it." Tia Mowry Tia Mowry spoke out about her endometriosis and is especially vocal about what she believes to be a connection between the condition and diet. 'The most surprising thing is how food can exacerbate inflammation or get rid of it,' Mowry told SheKnows in 2016. 'Food can be medicine, and if you eat foods that alkalize the body, it's amazing how that can slow down and fight inflammation.' Alaia Baldwin Aronow Model Alaia Baldwin Aronow was diagnosed with endometriosis in 2016, per the Endometriosis Foundation of America and has since worked to spread awareness about the condition. In 2019, Baldwin Aronow bared her surgery scars on Instagram 'to bring a small glimpse of the reality of living with this disease,' she wrote. 'Many other women have suffered through more surgeries than 1 and carry many scars… We are all connected by our scars.' Molly Qerim Molly Qerim, who hosts ESPN's First Take, was diagnosed with endometriosis in 2011 and shared her story publicly in 2018. 'The endometriosis was not just in my reproductive organs, it was everywhere,' she said in an interview on Good Morning America. In addition to being on her liver and intestines, the endometriosis tissue had also 'compiled into a cyst which burst and then the toxins were all in my body,' Qerim said. The journalist was initially put on Lupron, a hormone-suppressing drug, which was administered via injections to her backside. 'Pain is just running down your leg,' Qerim recalled of the medication, which also put her into menopause. 'I didn't feel myself, mentally, emotionally, physically.' Qerim switched to using acupuncture to treat her pain, calling it a 'saving grace,' as well as cutting sugar, alcohol, and processed foods out of her diet. 'If I can connect with some other people and help them feel like they're not alone, we can fight through this, and then, hopefully in next couple generations … they're going to have the right treatments and this will no longer be an issue,' she said. Dolly Parton In 1985 at the age of 36, Dolly Parton underwent a partial hysterectomy to treat endometriosis. Back in 2008, she spoke out about not only her surgery, but also the severe depression that followed when she realized that she would never be able to give birth. "It was an awful time for me. Every day I thought, 'I wish I had the nerve to kill myself,'" she said. Whoopi Goldberg Whoopi Goldberg was never one to shy away from discussing important matters in women's health, and endometriosis is no exception. The actress and star of The View opened up about getting diagnosed at the 2009 Endometriosis Foundation of America's Blossom Ball, saying, 'I had endometriosis 30 years ago… I was very, very lucky. I had an intelligent doctor who sort of knew what was going on and said well, here take this stuff and he cleared it up.' Most recently, Goldberg spoke again about her endometriosis experience on a 2023 episode of The View. Speaking to Shannon Cohn, the director of the endometriosis documentary 'Below the Belt,' and Hillary Clinton, who was an executive producer for the documentary, Goldberg expressed her frustration that women and people with uteruses are 'constantly having to beg for health care… I don't understand why when doctors go to school forever, they're not taught about a woman's body.' Of her own diagnosis, Goldberg reiterated how lucky she was to have an informed doctor. 'When I saw this documentary and I heard that it takes them 6-10 years to even get the diagnosis, I don't understand that!' she said. 'What are they doing in medical school?' Ayesha Shand Ayesha Shand revealed her endometriosis diagnosis in January 2023 in an emotional social media video, describing the condition as 'isolating, agonizing, and completely unbearable.' The condition caused her to 'faint, vomit, spend nights and days crouched on the floor crying,' added Shand, who is the niece of Queen Camilla. 'This is all followed by intense waves of helplessness and depression.' But Shand also shared some good news: she was planning to get surgery to remove the lesions. In an interview with SheKnows at the Endometriosis Foundation of America's Blossom Ball in May 2024, Shand said the surgery 'went really well' and she'd 'progressively start[ed] feeling better' in the weeks since. 'My first period was a bit painful. And since then, I'm taking one Tylenol per period and I used to be taking oxycodone, so it was a big change,' Shand added. 'It's changed my life,' she said of the surgery. Monica Monica publicly discussed her endometriosis in 2017 after undergoing an eight-hour surgery to remove cysts, fibroids, a hernia and endometrial tissue. The singer didn't know she had the condition until two weeks prior to her surgery. She wrote on Facebook: 'In life, we have to count it all joy and know the unplanned may be in his plan. May 30th I had an almost 8-hour surgery to remove my endometriosis (which I didn't know I had until two weeks prior), 2 cysts, fibroids and a hernia that all were making me very sick… I've known something was wrong, but I also knew victory & better health would be near again!! Thank you Dr. Ceana Nezhat & Northside Hospital Staff.' Brandi Rhodes Former WWE wrestler Brandi Rhodes had her endometriosis symptoms — including bloating, irregular menstrual bleeding, and pain — dismissed for years before a doctor diagnosed her with endometriosis during a pelvic exam. She quickly decided to undergo laparoscopic surgery to remove the lesions. During the procedure, Rhodes told doctors confirmed she had stage four endometriosis — a severe case. The athlete is now using her experience to encourage others to advocate for themselves. 'Feel empowered by your own feelings,' Rhodes said. 'It can feel really discouraging, and you can start to second guess yourself and feel like maybe this is [your] fault. But it's not.' Lexi Young On season 28 of The Bachelor, contestant Lexi Young made the brave decision to open up about her endometriosis with not only Joey Graziadei, but the entire viewing audience. She opened up about her experience further on TikTok, explaining that she'd experienced excruciating pain that left her unable to do her job and 'attending multiple doctor appointments weekly in search of answers.' Still, doctors dismissed her pain, leading Young to feel 'invalidated' and doubting what she felt. When she was finally able to get diagnosed and undergo surgery, Young said it 'truly changed my life… It was was the most emotional, validating day I've ever had.' Young ended up leaving The Bachelor as her timeline for children didn't align with Graziadei's; endometriosis can affect fertility, so Young wants to have kids sooner rather than later. Still, Young has nothing but gratitude for the experience. 'I've had thousands of women say that [me speaking out] encouraged them to bring [edometriosis] up in a relationship. It's made them see themselves differently,' she told SheKnows at the Endometriosis Foundation of America's Blossom Ball in May 2024. And now that she's entering the dating pool again, she's committed to that level of honesty. 'I have not gotten to the point with someone yet to open up about [endometriosis],' Young said. 'But Joey was so kind and so caring. There are very large shoes to fill for the next person… But I think it's just about being honest from as soon as you start to feel a connection that could turn into something long-term.' Kayla Itsines Fitness influencer Kayla Itsines has lived with endometriosis since she was a teenager. 'Having heavy, painful periods was one of my biggest symptoms and I remember being so jealous of all of my friends who could carry on as normal during their period because that just wasn't the case for me,' she told SheKnows. 'I used to walk around school with heat pads on my stomach because I was in so much pain.' Itsines, who was named an ambassador for Endometriosis Australia in 2023, says she's passionate about raising awareness around endometriosis. 'I hope that by sharing my own story we can encourage and empower women to learn about the signs and symptoms of this disease while improving outcomes for women with endo,' she says. As a fitness professional, Itsines also hopes to show others how she stays active while dealing with the debilitating symptoms. 'The truth is, every day is different when I'm having a flare-up,' Itsines explains. 'Some days exercise is absolutely NOT going to happen, other days a light low-impact workout actually makes me feel better and helps manage the pain.' Marilyn Monroe Marilyn Monroe's short life was full of pain, some of which reportedly came from having endometriosis, according to biographies of the actor. Though she made a secret of wanting to be a mother, all of Monroe's pregnancies ended in miscarriage or being ectopic. Monroe's desire to become a mother was especially apparent in a note she taped to her stomach before going into surgery to have her appendix removed, per Daily Express US. In it she wrote, 'Save please (I can't ask you enough) what you can — I'm in your hands. You have children and you must know what it means — please Dr. Rabwin — I know somehow you will! … For God's sakes Dear Doctor no ovaries removed.' Per The Guardian, some have even linked endometriosis to the iconic actor's use of and later addiction to painkillers — which ultimately ended her life — but there is no definitive proof of this. Amy Schumer Amy Schumer dealt with extreme pain from endometriosis for her whole life, she said in a 2022 appearance on The Checkup With Dr. David Agus. 'It was just this pain you can't see,' she explained. 'And there is this inclination to always think a woman is just being dramatic.' She described endometriosis as a 'lonely, lonely disease.' Schumer has continued to keep fans updated on her condition, including her 2021 surgery to remove her appendix and uterus as a result of the condition. The Life and Beth star has also used her platform and experience to encourage women to speak out about their pain and get help. 'We need to not confuse advocating for ourselves with being bitchy,' she said on Instagram. Eve In her 2024 memoir Who's That Girl?, Eve opened up about experiencing an ectopic pregnancy in 2006 while filming her sitcom. It was only after that traumatizing experience that the rapper was diagnosed with both endometriosis and uterine fibroids. 'Back then it was something no one really talked about,' Eve told Good Morning America about the reproductive conditions. 'Doctors barely even talked about it. I always had had painful periods, but that's also something that they tell women, so I never thought anything of it.' The Grammy winner went on to have a son, Wilde, through IVF in 2022. Solve the daily Crossword

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