Latest news with #CHOP
Yahoo
2 days ago
- General
- Yahoo
World's first patient treated with CRISPR gene editing therapy at CHOP returns home
The Brief A ten-month-old baby who has been at the Children's Hospital of Philadelphia (CHOP) since birth finally got to go home with his family. KJ Muldoon made headlines around the globe a few weeks ago for being the first person in the world to receive a breakthrough gene editing therapy that is customized to the patient. The family said after KJ received three infusions in February, March and April. Doctors said the results are very promising so far. CLIFTON HEIGHTS, Pa. - An emotional homecoming occurred in Delaware County for a ten-month-old baby named KJ Muldoon who made headlines around the globe just a few weeks ago. The backstory KJ was born on August 1 and diagnosed with a rare metabolic disease called CPS1 that causes ammonia to build up to a toxic level in the body. In February, doctors treated the infant with a breakthrough and historic CRISPR gene editing therapy, making KJ the very first patient in the world to receive this kind of personalized treatment. KJ received additional infusions of the experimental therapy in March and April. Doctors have told his parents the results so far are very promising. What's New "We went through all of the emotions. You're excited, you're nervous, but we're just glad that he's finally able to be home with us," said Nicole Muldoon, KJ's mother. "We've been operating like five plus one for so long and we're excited to be the six of us moving forward." "We're trying to meet all his developmental milestones and kind of see what he's capable of, but he's already shown us how special he is and I think we're in for a treat." KJ's family and friends hung up welcome home signs and colorful balloons as they waited in anticipation for his homecoming in Clifton Heights. "It's just been a really long fight for him," said Dee Aaron, KJ's grandmother. "Miracles do happen, and it really is a miracle. We didn't think he'd be here." "We're so happy you're home big guy," said Cathy Franklin, KJ's great-grandmother. "He's beautiful, and his parents have been remarkable just remarkable. Stayed so strong and we just prayed for ten months. Here he is!" The staff at CHOP dressed KJ up in a graduation cap and gown for his send-off, and they sent him out the hospital doors in great numbers, cheering on his health and recovery. Once the family made it out of the hospital, police from Upper Darby and Radnor Township escorted the family from CHOP all the way to Clifton Heights. The nonprofit The Delco Group helped arrange the special police escort. "We made one phone call yesterday with Ken Piree from Radnor right to Upper Darby Township. It was just within seconds and that's what you get in Delaware County. Everybody gets each other's back here," said John Port of The Delco Group. What you can do The community has also raised tens of thousands of dollars in a gofundme campaign which will now help support KJ's medical needs moving forward.
Yahoo
4 days ago
- General
- Yahoo
Children's Hospital of Philadelphia Hosts 29th Annual Fetal Surgery Family Reunion at Philadelphia Zoo
More than 2,500 people gathered to celebrate at the Lori J. Howell Fetal Family Reunion, an event for children treated by CHOP's world-renowned fetal therapy team PHILADELPHIA, June 2, 2025 /PRNewswire/ -- Yesterday, over 900 families totaling more than 2,500 guests gathered at the Philadelphia Zoo to celebrate Children's Hospital of Philadelphia's (CHOP) 29th annual reunion for patients and families treated at the Richard D. Wood Jr. Center for Fetal Diagnosis and Treatment (CFDT). Now in its second year as the Lori J. Howell Fetal Family Reunion, the event honors the late Lori J. Howell, a pioneering nurse leader, mentor, and longtime executive director of the CFDT whose vision continues to shape fetal medicine worldwide. "This reunion is a powerful reminder of the strength and resilience of our families, and of the deep bonds that connect them to one another and to our team," said N. Scott Adzick, MD, Surgeon-In-Chief at CHOP and Director of the CFDT. "It's incredibly special to witness this community grow stronger each year. It continues to be our favorite annual event, and our team is honored to play a part in the lives of the families who attend." The annual reunion provides a joyful opportunity for families to reconnect with the CHOP clinical teams who helped care for them during their most critical moments. Many of the children in attendance were diagnosed prenatally with serious birth defects—such as spina bifida, congenital diaphragmatic hernia, or twin-twin transfusion syndrome, among others—and underwent either fetal surgery before birth or received highly specialized care immediately after delivery. Now decades strong, the event has grown from a handful of families in 1997 to more than 900 families attending annually, forming a vibrant and supportive global community. This year, attendees traveled from states including Florida, Maine, Illinois and Connecticut. Since opening its doors in 1995, the CFDT at CHOP has become the world's largest and most comprehensive fetal program. More than 32,000 expectant mothers from all 50 states and over 70 countries have turned to the CFDT for hope and options. With more than 2,400 fetal surgeries performed to date, the CFDT has helped transform fetal surgery from a groundbreaking concept into a life-changing reality for families around the globe. Patients and families experience the highest level of care for complex fetal surgeries at CHOP. Our surgical teams specialize in advanced procedures to treat a variety of birth defects, ensuring the best possible outcomes for both mother and baby, providing expert care from prenatal diagnosis to delivery in CHOP's Garbose Family Special Delivery Unit, and beyond. About Children's Hospital of Philadelphia:A non-profit, charitable organization, Children's Hospital of Philadelphia was founded in 1855 as the nation's first pediatric hospital. Through its long-standing commitment to providing exceptional patient care, training new generations of pediatric healthcare professionals, and pioneering major research initiatives, the hospital has fostered many discoveries that have benefited children worldwide. Its pediatric research program is among the largest in the country. The institution has a well-established history of providing advanced pediatric care close to home through its CHOP Care Network, which includes more than 50 primary care practices, specialty care and surgical centers, urgent care centers, and community hospital alliances throughout Pennsylvania and New Jersey. CHOP also operates the Middleman Family Pavilion and its dedicated pediatric emergency department in King of Prussia, the Behavioral Health and Crisis Center (including a 24/7 Crisis Response Center) and the Center for Advanced Behavioral Healthcare, a mental health outpatient facility. Its unique family-centered care and public service programs have brought Children's Hospital of Philadelphia recognition as a leading advocate for children and adolescents. For more information, visit Contact: Kaila M. RevelloChildren's Hospital of Philadelphia610-457-5916contikm@ View original content to download multimedia: SOURCE Children's Hospital of Philadelphia Error in retrieving data Sign in to access your portfolio Error in retrieving data Error in retrieving data Error in retrieving data Error in retrieving data
Yahoo
29-05-2025
- General
- Yahoo
Boy, 8, Contracts Rare Bacterial Illness, Dies 16 Hours Later: ‘I Could Feel His Little Heartbeat Fade Away'
Ashlee Dahlberg's son, Liam, came home from school with a headache; the next day he was rushed to the hospital, nearly unresponsive An MRI that showed the 8-year-old's brain and spinal cord were covered by invasive Haemophilus influenzae bacteria, a sign of untreatable meningitis Dahlberg is urging others to vaccinate their children against Hib, as doctors say Liam likely caught it from an unvaccinated childAn 8-year-old Indiana boy died of a rare bacterial infection after he likely caught it from an unvaccinated child, according to doctors. 'This is not your typical everyday flu,' Ashlee Dahlberg said in an interview with WHTR, where she shared how invasive Haemophilus influenzae, also known as "H. flu,' or 'Hib' killed her son within hours. Liam Dahlberg came home from school in April with a headache. The next morning, the family rushed the barely responsive child to the hospital. An MRI revealed the unthinkable: 'They discovered the amount of bacteria that was covering his brain and his spinal cord,' his mother told the outlet. 'At that point in time, that's when there was there was nothing they could do.' Haemophilus influenzae causes a type of bacterial infection, the Cleveland Clinic explains, that despite its name, is unrelated to the flu. A mild infection causes bronchitis; more severe outcomes include septic arthritis, septicemia — and as was the case with Liam, meningitis (infection in the brain and spinal cord). She shared a video of her son writhing in pain and moaning in the hospital, telling the outlet, 'I would never wish this kind of pain on my worst enemy ever. To have sat there and listened to the doctor say you did everything right, but there was just nothing we could do, and then to lay there with him as they took him off life support. And I could feel his little heartbeat just fade away.' Pediatrician Dr. Eric Yancy told WHTR that the disease was 'absolutely devastating' before the vaccine was available. He said it was likely Liam caught Hib from someone unvaccinated — possibly a child, as vaccination rates have fallen. As the Children's Hospital of Pennsylanvia (CHOP) explains, before the Hib vaccine was introduced in 1985, about 20,000 children in the United States would develop serious, sometimes fatal infections. 'Most children harmed by Hib were previously healthy and well nourished,' CHOP says, adding that children who recover from a Hib infection may be left paralyzed, deaf, blind, or mentally impaired. It's spread through respiratory droplets, the Cleveland Clinic explains, and can be contagious even if the person infected doesn't exhibit symptoms. 'Liam was a bright and smart young boy, full of life and potential. His presence brought joy and warmth to everyone he met,' his family wrote in a GoFundMe established to help pay their unexpected medical costs. 'There's no words that can describe that pain,' Dahlberg told WHTR. 'I feel I have failed my child because I could not protect him from everything that would cause harm.' Never miss a story — sign up for to stay up-to-date on the best of what PEOPLE has to offer, from celebrity news to compelling human interest stories. Read the original article on People
Scottish Sun
23-05-2025
- Business
- Scottish Sun
I tried out one-hour supermarket delivery slots – one was so quick it came in 12 minutes but there's a hidden cost
Check below to see how much it would cost you SPEEDY SHOP I tried out one-hour supermarket delivery slots – one was so quick it came in 12 minutes but there's a hidden cost I PUSHED the order button on my phone and then 10 minutes later my groceries were at my door. I often find I'm missing an ingredient for a recipe and with two kids at home it's easier to get the items delivered. Advertisement 5 Trial of supermarket deliveries with Lana Clements, photographed by Oliver Dixon for Sun Features – 12 May shows Sainsburys and COOP Credit: Oliver Dixon But how much extra am I paying? Sun Savers Editor Lana Clements puts 60-minute delivery services to the test. To my home in Maidenhead I can get Tesco Whoosh, Sainsbury's Chop Chop, Morrisons via Amazon, Waitrose via Uber Eats and Co-op via Deliveroo. I ordered the same basket from each shop. Selecting the cheapest, pint of semi-skimmed milk, six-pack of eggs, punnet of strawberries, three-pack of Solero ice creams, loaf of white bread and two-pack of burgers. Advertisement TESCO WHOOSH MIN SPEND: No minimum spend but baskets under £15 incur an extra £2 charge. No minimum spend but baskets under £15 incur an extra £2 charge. BASKET COST: £16.55 £16.55 FEES: £2.99 £2.99 TOTAL COST: £19.54 5 My order arrived in 12 minutes, which was pretty speedy Credit: Oliver Dixon Tesco claims deliveries come in 20 minutes to 70 per cent of the UK from 1,500 stores. It was easy to order through the Clubcard app. I did find the choice of items were fairly limited and more premium products on offer than basic ones. Advertisement For example, only Tesco's finest burgers and strawberries were available, plus the smallest carton of milk available was two pints as opposed to one. This pushed up the overall cost of the basket. Although, it does have a low delivery fee compared to other supermarkets. My order arrived in 12 minutes, which was pretty speedy. Advertisement The strawberries did have a short best before date, which is annoying. RATING: 3/5 Shopping discounts - How to make savings and find the best bargains SAINSBURY'S CHOP CHOP MIN SPEND: £15 £15 BASKET COST: £15.20 £15.20 FEES: £4.99, plus carrier bag fee 30p £4.99, plus carrier bag fee 30p TOTAL COST: £20.49 5 The order came exactly 10 minutes after placing it making it the fastest in the test Credit: Oliver Dixon It claims to deliver within an hour less from 800 stores. Advertisement You need to download the Chop Chop app. The choice of products was good and I was able to order everything I needed and keep costs relatively low. For example, I was offered three different packs of strawberries to choose from. This means the basket cost was lower than rival Tesco, however, the fees were more than £2 higher and included a carrier bag fee making it more expensive overall. Advertisement The order came exactly 10 minutes after placing it making it the fastest in the test. And I can't complain about the food which was all in great condition. You can also order Sainsbury's through Uber Eats and Deliveroo but you can earn Nectar points when ordering through Chop Chop. This was the quickest delivery and there was a great choice of food but the fee was at the higher end of the scale. Advertisement RATING: 4/5 MORRISONS VIA AMAZON MIN SPEND: £15 for Amazon Prime members, £40 for non-members £15 for Amazon Prime members, £40 for non-members BASKET COST: £15.48 ( plus the extra sausages) £15.48 ( plus the extra sausages) FEES: Orders over £60 are free for Prime members, £2 for between £40 and £60, and £4 under £40. For non-members, fees are £3 for orders over £60 and £5 between £40 and £60. Orders over £60 are free for Prime members, £2 for between £40 and £60, and £4 under £40. For non-members, fees are £3 for orders over £60 and £5 between £40 and £60. TOTAL COST: £19.48 Same-day deliveries within two-hour timeslots. When I logged on at 9.30am in the morning, I had the choice of three slots available with the earliest being 2-4pm, the next 4-6pm and then 6-8pm. I picked the later slot to make sure I didn't miss the delivery while on the school run. Advertisement The choice of products was fantastic and the cheapest prices. I needed to meet a minimum spend of £15, as I'm an Amazon Prime member. I added on a pack of sausages to bring the total order up to £15.48. By 8pm nothing had arrived. Then at 8.09pm I received a text message to say the order had been cancelled and that I would be refunded. Advertisement There was no reason given for the cancellation. Luckily we didn't go hungry as the other orders were arriving - but I was not impressed. The fees and minimum spends are offputting too. RATING: 0/5 Advertisement WAITROSE VIA UBER EATS MIN SPEND: No min spend over £15, but under £15 it's £3. No min spend over £15, but under £15 it's £3. BASKET COST: £13.11 (after discounts) £13.11 (after discounts) FEES: £3.93 Made of three parts: *Service fee (10% of your subtotal capped at £2.99) £1.64 for my order *Delivery fee (depends on variables including location and availability of drivers) £1.79 for my order. *Bag fee (depends on retailer) 50p for my order £3.93 Made of three parts: *Service fee (10% of your subtotal capped at £2.99) £1.64 for my order *Delivery fee (depends on variables including location and availability of drivers) £1.79 for my order. *Bag fee (depends on retailer) 50p for my order TOTAL COST: £17.64 5 The selection from Waitrose was great and my order arrived within 26 minutes. Credit: Oliver Dixon On Uber Eats I can get Sainsbury's and Co-op delivered as well as Waitrose. The selection from Waitrose was great and my order arrived within 26 minutes. I also got 50 per cent off selected fruit and veg as there was an offer running, which knocked off £2.69 off my total bill. Advertisement The fees seem excessive as you're charged for service, delivery and bags separately. My order was also split into two bags, pushing up the cost. Good choice of food and it arrived in reasonable time and condition. RATING 3/5 Advertisement CO-OP VIA DELIVEROO MIN SPEND: No min spend No min spend BASKET COST: £13.55 (no eggs) changed to £8.10 after substitutions (no eggs, no strawberries) £13.55 (no eggs) changed to £8.10 after substitutions (no eggs, no strawberries) FEES: £1.95 *Service fee: £1.36 *Delivery fee: 49p *Bag fee: 10p £1.95 *Service fee: £1.36 *Delivery fee: 49p *Bag fee: 10p TOTAL COST: £10.05 5 The order arrived in a reasonable 17 minutes Credit: Oliver Dixon Through Deliveroo I can get Waitrose and Sainsbury's delivered but I tested Co-Op. Unfortunately, it was not long after the supermarket suffered from cyber attacks impacting its stock levels and product availability. However, I was still able to order burgers, milk, bread and ice lollies - and raspberries instead of strawberries. But there were no eggs at all. Advertisement The original order total came to £15.50. However, the raspberries were out of stock when it came to packing and my one pint of milk was changed to a two-pint carton, while the lollies were changed to Co-Op own brand. The order arrived in a reasonable 17 minutes. Unlike all the other deliveries, my Co-Op shopping arrived in a green compostable bag. Advertisement This didn't seem to offer the food as much protection as the brown paper bags from the other supermarkets. As a result, I wasn't too happy with my loaf of bread which arrived seriously squished. Fees are split in a similar way to Uber Eats and made up of three parts. The order arrived in good time but I wasn't happy with my squashed bread and the choice also let down the experience but this seemed like bad timing. Advertisement RATING: 2/5 OTHER SUPERMARKETS Asda and Ocado both offer speedy grocery deliveries. Asda offers between an hour and four hours from 330 stores. My closest branch is five miles away but I couldn't get it delivered. Advertisement There's no minimum spend and fees are £8.50 to £8.99. Ocado's Zoom delivery is between 6am and 10pm. It currently only covers parts of West and East London. Minimum spend is £15 and fees start from £1.49. Advertisement
Yahoo
22-05-2025
- Yahoo
12-year-old boy fatally shot in West Philly: police
The Brief A 12-year-old boy was shot and killed inside a home in Philadelphia's Powelton neighborhood Wednesday night. The juvenile family member who fired the fatal shot, along with the juveniles' mom, were both taken to the Homicide Unit. PHILADELPHIA - An investigation is underway after police say a 12-year-old boy was shot and killed in Philly's Powelton neighborhood Wednesday night. What we know Just before 9:30 p.m. police were called to the 800 block of Brooklyn Street for reports of a shooting. Upon arrival, family members directed police to the third floor rear bedroom where they found a 12-year-old boy lying in his bed suffering from a gunshot wound. Medics rushed the child to the Children's Hospital of Philadelphia (CHOP) where he was pronounced dead at 9:42 p.m. Police say the 12-year-old boy was accidentally shot by a juvenile family member who was taken to the Homicide Unit. The mother of both the victim and the juvenile who fired the deadly shots has also been taken to the Homicide Unit. Police say there were other children and teenagers in the home at the time of the shooting. The family is cooperating with the police. What's next This is an ongoing investigation. Detectives are working to determine why the gun was in the home and who it belonged to. A search warrant is in progress.
