Latest news with #CRPS
Yahoo
02-08-2025
- Health
- Yahoo
Rare condition made mom feel like she was "walking on a hot bed of Legos"
When Amber Meade twisted her ankle and broke a bone in her foot, she expected recovery to be easy. She needed surgery to shave down the damaged bone and make sure the nerves and tendons in her foot were where they should be. The procedure seemed to go smoothly, but in the weeks that followed, she began to feel debilitating pain. A second surgery found that a screw placed in her foot had been pressing on the head of one of her nerves. That screw was moved, and a nerve decompression was performed but the pain didn't stop. "It would just turn black and blue, swell up really big, and I just was unable to put any weight on it," 41-year-old Meade said. The pain upended everything. She left her job as a surgical assistant since she could no longer stand for long periods. She was unable to take part in family activities with her two young sons. Even light breezes could trigger the pain. Resting under a blanket was unbearable, making sleep difficult. Meade compared the sensation to "walking on a hot bed of Legos constantly, while getting stabbed with a pencil." Meade spent months seeing different specialists. Finally, after nearly a year, a doctor suggested Meade might have something called chronic regional pain syndrome. It was the first time Meade had heard of it. It would take even longer before she could find a treatment that helped her pain. What is chronic regional pain syndrome? Chronic regional pain syndrome, or CRPS, is a chronic disorder with no cure, said Dr. Rohan Jotwani, an interventional pain specialist and anesthesiologist at NewYork-Presbyterian and Weill Cornell Medicine. Jotwani was not involved in Meade's care. CRPS can occur after surgery, like Meade's, or from other injuries to the nerve. "For some patients, they'll have an injury to a nerve and it will get better with time. For some patients, that injury will actually develop into its own chronic pain disorder," Jotwani said. Diagnosing the condition is difficult, Jotwani said. No test or scan can definitively identify it, and because it is a rare condition, many doctors may not be familiar with it, he added. Physicians have to rely on clinical criteria. Telltale hallmarks for the condition are extreme levels of pain at the source, even when nothing should be causing it - like when a bedsheet causes pain, as Meade experienced. CRPS patients may also experience swelling, changes in temperature and skin color or texture changes. They may even begin to lose function in the affected area. Diagnosing chronic regional pain syndrome is only the start, Jotwani said. Actually treating the condition requires a "multi-pronged approach" that can vary from person to person. Treatment typically starts with physical therapy. Patients may also take medication to decrease nerve signals in the area, so they feel less pain, or try interventional techniques like a nerve block. Meade tried multiple options, but nothing was improving her pain. "Doing regular therapies was not working. I even heard, at 33, that I was getting older and that 'sometimes we just hurt more.' I thought that was comical," Meade said. Treating chronic regional pain syndrome In 2022, long after Meade's pain started, a doctor suggested she see physical therapist Dr. Anita Davis, who specializes in treating the condition and leads the comprehensive pain rehabilitation program at Brooks Rehabilitation in Florida. The pair worked to develop a physical therapy routine that would work for Meade. "Before me, she had all of the traditional exercises ... and those things were just not possible with that much pain in her foot," Davis said. "As healthcare providers, we ask patients to rate the pain from zero to 10. These folks are typically going to be at the top of the scale, even on a good day. When I ask her to do something that's painful on top of her existing pain, it's just crazy to think about doing that." They also worked on relaxation and emotional exercises to cope with the mental load of the constant pain. "Pain management for Amber ... isn't just the physical aspects," Davis explained. "Anything that enhances relaxing the nervous system is valuable." The protocol led to some improvements for Meade, but while CRPS patients can have "symptoms subside for a length of time," it is "a lifelong condition," Davis said. "There's not a cure for it," Davis said. Working towards a less painful future Meade said she still feels pain and discomfort, and is at risk of flare-ups when the weather changes or if she steps the wrong way. In addition to working with Davis, she is taking medication and receiving ketamine infusions every few months. She said the combination of ketamine treatment and physical therapy allows her to "do a lot more than I have been able to." The effects of the infusion usually last around four weeks. Meade uses that period to work on strengthening her body. "I try to make some headway in my physical health before that starts going down, because I know it's going to," Meade said. "The pain is a lot less when my physical health is better." Meade said even without the effects of the infusions, she is dealing with less pain than before her diagnosis and treatment. She can focus on her day-to-day activities. She sleeps better and can walk on the beach, one of her favorite activities. She can't do too much running around with her kids, but she can play catch and help with homework most days. Meade said she hopes to improve her functionality and eventually go back to work and be more active, but for now, she is grateful for what she has gained. "I want to try to get to that point where I have less and less flares, and get up to doing what everybody enjoys doing: Working, coming home, having something to work towards, going on vacations," Meade said. "Every time I have a good day, we work a little bit harder." Arkansas officials reveal new details about Devil's Den murders of husband and wife The A.I. Divide | America Unfiltered Defense attorneys refuse new cases in Massachusetts, citing unfair pay Solve the daily Crossword


CBS News
02-08-2025
- Health
- CBS News
A mom felt like she was "walking on a hot bed of Legos constantly." It took months to learn why.
When Amber Meade twisted her ankle and broke a bone in her foot, she expected recovery to be easy. She needed surgery to shave down the damaged bone and make sure the nerves and tendons in her foot were where they should be. The procedure seemed to go smoothly, but in the weeks that followed, she began to feel debilitating pain. A second surgery found that a screw placed in her foot had been pressing on the head of one of her nerves. That screw was moved, and a nerve decompression was performed but the pain didn't stop. "It would just turn black and blue, swell up really big, and I just was unable to put any weight on it," 41-year-old Meade said. The pain upended everything. She left her job as a surgical assistant since she could no longer stand for long periods. She was unable to take part in family activities with her two young sons. Even light breezes could trigger the pain. Resting under a blanket was unbearable, making sleep difficult. Meade compared the sensation to "walking on a hot bed of Legos constantly, while getting stabbed with a pencil." Meade spent months seeing different specialists. Finally, after nearly a year, a doctor suggested Meade might have something called chronic regional pain syndrome. It was the first time Meade had heard of it. It would take even longer before she could find a treatment that helped her pain. Chronic regional pain syndrome, or CRPS, is a chronic disorder with no cure, said Dr. Rohan Jotwani, an interventional pain specialist and anesthesiologist at NewYork-Presbyterian and Weill Cornell Medicine. Jotwani was not involved in Meade's care. CRPS can occur after surgery, like Meade's, or from other injuries to the nerve. "For some patients, they'll have an injury to a nerve and it will get better with time. For some patients, that injury will actually develop into its own chronic pain disorder," Jotwani said. Diagnosing the condition is difficult, Jotwani said. No test or scan can definitively identify it, and because it is a rare condition, many doctors may not be familiar with it, he added. Physicians have to rely on clinical criteria. Telltale hallmarks for the condition are extreme levels of pain at the source, even when nothing should be causing it - like when a bedsheet causes pain, as Meade experienced. CRPS patients may also experience swelling, changes in temperature and skin color or texture changes. They may even begin to lose function in the affected area. Diagnosing chronic regional pain syndrome is only the start, Jotwani said. Actually treating the condition requires a "multi-pronged approach" that can vary from person to person. Treatment typically starts with physical therapy. Patients may also take medication to decrease nerve signals in the area, so they feel less pain, or try interventional techniques like a nerve block. Meade tried multiple options, but nothing was improving her pain. "Doing regular therapies was not working. I even heard, at 33, that I was getting older and that 'sometimes we just hurt more.' I thought that was comical," Meade said. In 2022, long after Meade's pain started, a doctor suggested she see physical therapist Dr. Anita Davis, who specializes in treating the condition and leads the comprehensive pain rehabilitation program at Brooks Rehabilitation in Florida. The pair worked to develop a physical therapy routine that would work for Meade. "Before me, she had all of the traditional exercises ... and those things were just not possible with that much pain in her foot," Davis said. "As healthcare providers, we ask patients to rate the pain from zero to 10. These folks are typically going to be at the top of the scale, even on a good day. When I ask her to do something that's painful on top of her existing pain, it's just crazy to think about doing that." They also worked on relaxation and emotional exercises to cope with the mental load of the constant pain. "Pain management for Amber ... isn't just the physical aspects," Davis explained. "Anything that enhances relaxing the nervous system is valuable." The protocol led to some improvements for Meade, but while CRPS patients can have "symptoms subside for a length of time," it is "a lifelong condition," Davis said. "There's not a cure for it," Davis said. Meade said she still feels pain and discomfort, and is at risk of flare-ups when the weather changes or if she steps the wrong way. In addition to working with Davis, she is taking medication and receiving ketamine infusions every few months. She said the combination of ketamine treatment and physical therapy allows her to "do a lot more than I have been able to." The effects of the infusion usually last around four weeks. Meade uses that period to work on strengthening her body. "I try to make some headway in my physical health before that starts going down, because I know it's going to," Meade said. "The pain is a lot less when my physical health is better." Meade said even without the effects of the infusions, she is dealing with less pain than before her diagnosis and treatment. She can focus on her day-to-day activities. She sleeps better and can walk on the beach, one of her favorite activities. She can't do too much running around with her kids, but she can play catch and help with homework most days. Meade said she hopes to improve her functionality and eventually go back to work and be more active, but for now, she is grateful for what she has gained. "I want to try to get to that point where I have less and less flares, and get up to doing what everybody enjoys doing: Working, coming home, having something to work towards, going on vacations," Meade said. "Every time I have a good day, we work a little bit harder."


USA Today
28-07-2025
- Health
- USA Today
This chronic pain condition almost only affects women. Most never get treated.
Amber Meade expected her foot to heal without complications. She rolled her ankle while pushing a shopping cart, but for six weeks, she continued working on her feet at a hospital in Jacksonville, Florida. As the discomfort grew, Meade, 33 at the time, eventually booked an appointment with the orthopedics specialist at her hospital. An X-ray revealed that she had broken an extra bone in her foot. Surgery was required to both remove the bone and move her tendon over. But during the procedure, which took place in 2017, an anchor screw used in the repair pressed on a nerve in her foot, causing excruciating pain that left her unable to stand or work. "As soon as I started waking up in the operating room, I knew there was an issue," Meade, now 41, says. For nine months, Meade's foot swelled, turned purple and left her debilitated. Doctors came up with a myriad of explanations: She needed to push through the pain before it got better. She was "getting older," her surgeon suggested. "That made me get a second opinion," Meade says. "That second opinion is what sent me into the CRPS world." Complex regional pain syndrome (CRPS) is a form of chronic pain that usually develops after an injury, surgery, stroke or heart attack. The pain is often more extreme than the severity of the initial injury, but the average CRPS patient will go undiagnosed for nearly four years. Chronic pain is most prevalent among women, but most research studies investigating pain predominantly focus on men. Of the nearly 200,000 people in the U.S. affected yearly by CRPS, almost three-quarters of patients are women. However, there is a misconception that CRPS is a mental rather than physical illness, and women who seek care for CRPS symptoms are frequently misdiagnosed with mental health disorders, such as depression or anxiety. "Because it's rare, it's hard for people to recognize it and diagnose it," Dr. Anita Davis, a physical therapist and expert in chronic pain at Brooks Rehabilitation, says. "There's so much for medical professionals to learn about that these rare diseases seldom make it into the textbook." Women with untreated or poorly treated chronic pain report not being believed by their doctors as the core reason why they did not receive adequate care, according to a 2023 study. Reducing a physical illness to a psychosomatic condition not only undermines the patient's lived experiences, but can lead to feelings of abandonment by the medical system during an ongoing battle of diagnosis searching and interrupted functioning. When pain goes untreated, an individual can suffer from learned helplessness or depression, which an estimated 35-45% of people with chronic pain do. 'I lost my identity' Meade sought a second opinion, but that doctor never suggested she could have CRPS. He instead did a decompression from the knee down and a nerve block. It didn't help. From there, she got "thrown into the world of pain management." Failed procedures and a never-ending search for answers led to "severe depression." "I was probably in the best shape of my life when this happened," Meade says, adding that she would run about 5-10 miles a day. She had a young child and a teenager at the time who loved playing sports, and she would play with them constantly. "Everything in my life came to a grinding halt when this started, and I felt like I lost my identity," she says. For 13 months after the initial injury, she had been "standing like a flamingo" at work, putting all her weight on her second foot. She eventually injured the Achilles tendon and got plantar fasciitis on her second foot. After that surgery, the nerve pain impacted both her feet. Finally, she was sent to a nerve specialist – her third doctor – and heard the first mention of CRPS. She was referred to Davis, who worked with her to provide physical therapy and desensitization therapy, and Meade was able to attend group sessions with other CRPS patients. Meade had tried a spinal cord stimulator, which some patients have success with, but in her case, it set her on a "massive downfall." She was nauseous and vomiting almost every day for a year before getting it taken out. She also tried ketamine infusions, but had to pay for them out of pocket, and eventually couldn't afford to continue with those treatments. "The most important aspect is getting to the correct type of physical therapy. The quickest I've seen the most gains in myself from doing just that," Davis says. Regaining the ability to perform simple, everyday tasks significantly improved her quality of life. "To go through a grocery store by myself and not have to get on one of those scooters, getting out of bed," she lists. "Most people don't think about that, but getting out of bed was a big chore." Her pain, however, comes in flares. "Everyday pain feels like I'm walking through fire or ice," she says. "A lot of moms can relate to walking through a hot bed of Legos, with someone stabbing your feet constantly. That's what it feels like." CRPS has clear signs, but too many doctors don't know them CRPS is rare, meaning that it's not seen by many general practice physicians. Since it most commonly occurs following an injury or surgery, it can be "hard to differentiate," Davis says. But among clinicians who are familiar with the symptoms of CRPS, Davis says there are clear signs that can help diagnose patients. "When people present with complex regional pain syndrome, there's a significant amount of pain that's beyond what you would expect with a typical injury, it lasts longer and it's more intense, and it may even be painful, even after the event has healed," she explains. Patients may exhibit temperature differences between the affected and unaffected limbs (i.e., comparing the right and left feet); the affected limb may be colder or warmer, which can be measured with a thermal camera. The affected limb may also be sweatier or drier than the other. Other diagnostic measures include looking at the texture of the skin, and spending time assessing differences in thickness, brittleness and shininess of the skin, Davis says. "The complexity is, it changes from day to day. It can change from hour to hour. So having more than one data point is very valuable," Davis adds. If CRPS isn't treated early, the disease may progress to further disabling symptoms, such as tissue wasting (atrophy) and muscle tightening (contracture). The skin, bones and muscles may begin to deteriorate and weaken after reduced usage, or the hand and fingers contract into a fixed position. "We really need to get better at identifying it early to get that right treatment to the right person to get a better outcome," Davis says.


Scottish Sun
16-07-2025
- Health
- Scottish Sun
It feels like I'm burning alive after ‘pregnancy rash' that makes me look like a corpse left me suicidal
Rachel had to give birth via emergency C-section as she could barely move from the pain and swelling 'NO ESCAPE' It feels like I'm burning alive after 'pregnancy rash' that makes me look like a corpse left me suicidal Click to share on X/Twitter (Opens in new window) Click to share on Facebook (Opens in new window) A YOUNG MUM feels like she's 'burning alive' due to a "pregnancy rash" that erupted across her body - to the point she can't hold her baby son on her lap and has been left suicidal. Rachel Bradford, 30, was 24 weeks pregnant in March 2024 when she noticed an 'extraordinarily itchy' rash breaking out over her skin, covering her body in red blotches. Sign up for Scottish Sun newsletter Sign up 11 Rachel Bradford, 30, was 24 weeks pregnant when an itchy rash appeared on her body Credit: PA Real Life 11 Her symptoms worsened despite doctors telling her they'd subside after birth Credit: PA Real Life 11 Rachel's body feels like it's on fire and her skin blisters or turns black Credit: PA Real Life The mum, who lives in Torbay, Devon, with her husband of two years, Jack, 31, was told by doctors the rash was likely pregnancy-related and would go away when she gave birth. But Rachel watched in horror when just two weeks later the skin all over her body turned a 'burning' red. It 'blistered' in some spots and went black in others, making her look like 'a dead person'. Rachel kept pushing for answers in hospital but she felt 'no-one was listening' and was 'sent away' several times. Rachel gave birth to her son Michael via an emergency C-section in May 2024, as her legs were so swollen and painful she was unable to open them. But her symptoms persisted, making her body feel like like it was 'constantly on fire'. It forced her to step back from her job as a support worker. Feeling like there was "no escape" from her pain, the mum also began grappling with suicidal thoughts. In February this year, Rachel was eventually diagnosed with erythromelalgia, a rare condition that causes burning pain, redness, hot skin, and chronic regional pain syndrome (CRPS). 'It feels like I'm burning alive, like my body is constantly on fire,' Rachel said. 'This condition has taken everything away from me, pregnancy and motherhood, my job, my mobility, my independence – I can't even play with my son.' Ear piercing left my 'body on fire' I can't leave home & only eat cold food Jack, an assistant store manager for an agricultural storage facility, added: 'There's always a part of Rachel's body which is constantly on fire and it doesn't go away. 'She can't escape it, from the moment she opens her eyes, it's the first thing she feels.' Rachel had no major health issues before breaking out in the 'extraordinarily itchy' rash during her pregnancy. 'There was a point where Rachel would be sleeping with her nails in her shoulders, digging in so she didn't scratch herself,' Jack recalled. 11 Rachel had no health issues before the rash Credit: PA Real Life 11 Now the pain is the first thing she notices when she wakes up Credit: PA Real Life 11 She was eventually diagnosed with erythromelalgia Credit: PA Real Life 11 It causes burning pain, redness and hot skin Credit: PA Real Life The couple visited their doctor, but Rachel said she was told it was likely a pregnancy-related symptom which would subside after she gave birth. Two weeks later however, Rachel said her rash became 'really bad', prompting the couple to phone NHS 111 – and they were advised to seek help at Royal Devon and Exeter Hospital. 'They told us it was nothing to worry about and we were sent away,' Jack said. Rachel's rash then changed, turning red and 'boiling hot', and Jack recalled feeling the heat radiate from his wife's skin. 'It's thought it's related to her blood vessels – so they will either completely constrict and she will look like a dead person, or it will go the other way to the point her skin will blister,' Jack explained. This started on Rachel's arms and legs, before it spread to her head, face, hands, neck, back, shoulders and ears. Jack and Rachel claim they visited the A&E department at Royal Devon and Exeter Hospital several times over the subsequent weeks and were left waiting for hours before being 'sent away'. 'We were still being told it could go after pregnancy, it was just sort of brushed off,' Jack said. What is erythromelalgia? Erythromelalgia is a rare condition that causes burning pain, redness and hot skin, mainly in the feet. It can be constant or come and go, but treatment and avoiding triggers can help. The main symptoms are: Burning pain, which often starts as itching Redness – this can look different on brown or black skin Warm or hot skin Other symptoms include: Swelling Sweating more than normal The pain can either be constant or come and go. When the pain comes, it might be called a flare-up. A flare-up can come on gradually or suddenly, and last anywhere from a few minutes to a few days. Your skin may feel cold after a flare-up and look blue or grey. It's often not clear what causes erythromelalgia. Sometimes it's caused by another condition or a faulty gene inherited from one of your parents. At this stage, Rachel was heavily pregnant and wheelchair-bound as the condition left her with swollen limbs. 'Mentally, I was not right, I was suicidal,' Rachel said. 'I was praying the pain would stop – I couldn't take it anymore and I felt no one was listening to me, no one was taking me seriously.' Rachel delivered her baby, Michael, via an emergency C-section at Torbay Hospital on May 31, 2024. 'I couldn't have a natural birth anyway because I couldn't open my legs,' Rachel said. 'They were so swollen from the condition and my mobility was almost nothing at that point.' The couple later submitted a complaint to the maternity ward in Torbay Hospital, and the hospital apologised that 'Rachel's experience of her care was not a positive one'. 11 The mum has struggled to get support and treatment for her condition, even after diagnosis Credit: PA Real Life 11 Rachel is has been left in so much pain that she can't play with little Michael or hold him on her lap Credit: PA Real Life 11 Jack said Rachel 'can't escape' from her symptoms Credit: PA Real Life 11 Rachel also experiences uncontrollable spasms and joint pain Credit: PA Real Life 'Absolutely horrendous' It's not always clear what causes erythromelalgia, but sometimes another condition or a faulty gene inherited from a parent can be to blame, according to the NHS. Erythromelalgia can be difficult to treat, and those with the condition may need to try different treatment combinations to find ones that work. Rachel said she also suffers from uncontrollable spasms, brain fog, joint pain and loss of feeling in her extremities. The couple claim they visited Royal Devon and Exeter Hospital for Rachel's care and pain management but were told by hospital staff to 'put some socks on' and that they 'can't do anything else' to help Rachel. Rachel said the condition has weighed greatly on her mental health. 'If Michael sits on Rachel's lap for even just five minutes, it causes her thighs to flare up,' Jack said. 'Rachel is an amazing mum and to see her completely limited by something outside of her control, it's absolutely horrendous.' The mum is now trying new medications in the hopes it will relieve her symptoms. The couple have also launched a GoFundMe page, raising over £2,000 so far, to help them access scrambler therapy in Italy – a non-invasive treatment helping patients with chronic pain. 'If we have the money for another option, another treatment…I don't want Rachel to be hitting a point where she says we have nothing more to try,' Jack said. You can visit Jack and Rachel's GoFundMe page here.


Daily Mail
17-06-2025
- Health
- Daily Mail
My doctor used a dirty needle during common procedure - it left me with agonising 'suicide disease'
A former primary school teacher has been left with a rare condition dubbed 'suicide disease' after a doctor re-used a dirty needle during a common procedure. Amy Pohl, now 32, from Warwickshire, visited her GP for help with a cough that doctors suspected was a respiratory infection, and referred her to the local hospital. Ms Pohl should have made a full recovery following a course of steroids to help reduce the swelling in her airways. However, the hospital medic failed to properly insert a cannula—a thin tube inserted into the vein to administer the medication— leading to an infection. The infection was supposedly caused by a doctor incorrectly using the same needle in both her arms, without properly sterilising the skin, after numerous failed attempts to insert the tube. Ms Pohl believes this infection eventually triggered a debilitating condition that causes agonising pain in the limbs. Called complex regional pain syndrome (CRPS), the problem is the body's over-reaction to an injury, and can also cause the hands, feet and legs to seize up and become extremely swollen. The medics' oversight left Ms Pohl partially paralysed and in excruciating pain. View this post on Instagram A post shared by Amy Pohl (@amy_pohl) CRPS is dubbed suicide disease because of how many sufferers take their life after developing the condition. Ms Pohl said the excruciating pain she endured felt like she was being 'stabbed by a hundred shards of burning glass', as doctors scrambled for answers. Recalling the initial problem that led her to seek help in November 2017, Ms Pohl said she put her sore throat down to end of term exhaustion. But a GP eventually diagnosed croup—an infection that usually affects children, causing a distinct 'barking' cough. Croup is usually caused by a contagious virus such as parainfluenza, which is spread through contaminated air droplets when an infected person coughs or sneezes. When Ms Pohl arrived at hospital, doctors performed an endoscopy—where a camera is passed up the nose and down the throat—to better visualise the harm caused by the infection. Unfortunately Ms Pohl suffered a severe allergic reaction to the anesthetising spray they had used to numb the area, which led to an admission to a high dependency unit. Not long after her admission, Ms Pohl said her doctor attempted to insert a cannula into her arm to administer medication directly into her bloodstream to treat the infection. 'The doctor only brought one cannula into the room,' Ms Pohl recalled in a YouTube video. 'He put the needle into my arm and then without cleaning the skin or the needle he tried my wrist. 'His whole mask was steaming up and my dad said to him "shouldn't you be using a new needle?" He shouted at my dad and told him to leave the room. 'Then he went over to the other arm and that's when he put it into my hand. And he tried and tried and tried. Because of all that, I developed an infection.' 'The chance of someone getting an infection if a needle is reused in their own body is really slim', she said, 'but it happens that I was that one in a million'. Ms Pohl's hand and wrist then began to swell. The pain got so bad that it would radiate up her arm and into her abdomen, stopping her from eating. Unbeknown to both her and her doctors at the time, she was experiencing the onset of CRPS. According to the NHS, the skin of the affected body part can become so sensitive that even a slight touch or change in temperature can cause intense pain. Affected areas can also become swollen, stiff or undergo fluctuating changes in colour or temperature. 'No matter how many weeks went by after the surgeries, my hand was just getting worse not better,' Ms Pohl recalled in an Instagram video. Ms Pohl eventually diagnosed with CRPS in 2018 and has since been campaigning on social media to raise better awareness for the condition, resolved to 'stop fighting [herself] and start fighting for [herself]'. The content creator, who has 3.7million followers on TikTok now makes upbeat videos about her diagnoses, in a bid to spread awareness about the dangers of re-using needles. Through an extensive physiotherapy regime, Ms Pohl now has a better range of movement in her hand and wrist, and is starting to gain back her independence. According to the NHS, while the condition is usually triggered by an injury, the resulting pain can last for years. In addition to chronic pain, CRPS can also cause a range of other symptoms including strange sensations in the affected limb—almost as if it doesn't belong to the rest of the body—joint stiffness and swelling, tremors and muscle spasms and insomnia. In some cases, it can even cause the muscles to waste away, restricting suffers range of movement until they can no longer live unassisted. The prevalence of the condition is still unclear, however it is estimated that up to 3,800 people in the UK develop CRPS each year.