Latest news with #DevelopmentalHipDysplasia
Irish Examiner
24-05-2025
- Health
- Irish Examiner
'Who am I to question the doctor?': Mother fears son's hip surgery may have been unnecessary
"You do what the doctors say," said the mother of one child who had hip surgery with Children's Health Ireland (CHI), but now she, like thousands more, is wondering was that the right option. More than 2,200 families including 1,800 from just two hospitals are being contacted by CHI in the wake of critical findings on Friday in an audit of surgery for children with Developmental Hip Dysplasia (DDH). The audit 'raises concerns' about reasons given for surgery 'in many of the cases' in CHI at Temple Street and the National Orthopaedic Hospital, Cappagh, the report states. Some 147 surgeries under 14 surgeons were analysed. It found 98% of CHI at Crumlin surgeries were for reasons which matched criteria retrospectively applied by the audit. However, it found 60% at Temple Street did not meet this criteria, and 79% at Cappagh did not meet this threshold. Many of these are expected to be found unnecessary with the HSE commissioning an external panel of experts to next assess children 'to determine if their surgery was necessary'. Áine Gladney Knox is anxiously waiting to see if her son Archie will be included, having already received a check-up invitation in March. He had hip dysplasia surgery aged just three in 2022 at Crumlin. 'When you're brought up in a family where what the doctors says, you do. And you go with what they're saying,' she said. 'If that's what they're advising, you feel 'who am I to question the doctor?'' She was not reassured by the report. 'I'm frustrated, I'd love to put this to bed now and have clear answers,' she said, adding they were originally told Archie would get follow-up when he is older. He experienced complications after his surgery. Archie was treated in their local hospital in Kilkenny and then rushed by ambulance back to Crumlin, she explained. He was in so much pain, he was screaming 'help me mammy.' It was one of the hardest things for us to go through. She feels the surgery is being minimised by people unfamiliar with it. Ms Gladney Knox, a Sinn Féin candidate for Carlow-Kilkenny, called on CHI to share more information. 'It's really stressful for parents, you're your child's advocate, especially at that age,' she said. Another mother whose daughter had surgery in Temple Street told RTÉ's Liveline: 'We were just devastated to think we may have put her though a massive surgery that potentially she did not need.' She recalled being told by a doctor her daughter would not have received this surgery if she were at Crumlin hospital. She echoed Ms Gladney Knox's sentiments, saying: 'We trusted the professionals.' These issues were only picked up on after a whistleblower made a protected disclosure on their concerns to the hospitals. In the report, audit lead Simon RYW Thomas from the Bristol Royal Hospital for Children said he spoke with the surgeons. They gave reasons for recommending additional surgery in all the cases sampled. However, he said his conclusions and recommendations did not change from a draft report published online last year. The audit raises worrying questions for parents as to whether their child's surgery was really necessary. The report says: 'Declaring that the criteria I have set were not reached in certain percentages of pelvic osteotomies does not prove that none of them were indicated. "It is well known that there is worldwide variability between surgeons in their recommendations for pelvic osteotomy in DDH.' HSE chief clinical officer Dr Colm Henry said the surgeons believed 'earlier intervention at a lower threshold was appropriate in order to prevent complications'. He did not clarify why differences and unnecessary surgeries were not picked up earlier, noting only Temple Street consultants published a paper on this less invasive technique in 2010. Around 1,800 patients of Temple Street and Cappagh since 2010 will be monitored until they reach 12 (girls) or 14 (boys). Picture: Sasko Lazarov The audit does not identify the surgeons. On Thursday, responding to questions at the Public Accounts Committee, CHI clinical director Ike Okefor and CEO Lucy Nugent confirmed a doctor referred to as 'Surgeon A' in a Hiqa report on spinal surgeries is one of the 14 surgeons. Around 1,800 patients of Temple Street and Cappagh since 2010 will be monitored until they reach 12 (girls) or 14 (boys). From Crumlin, some 447 children will be followed up. Ms Nugent said: 'The care and wellbeing of children is our absolute priority in Children's Health Ireland, and I am sorry that impacted families were not offered one consistent and excellent standard of care across our DDH service.' Dr Henry acknowledged another review of spinal surgeries is on-going. 'It's obviously independent, but once we have it we'll obviously be examining it very closely for any parallels or messages that align with this [audit],' he said. CHI Helpline: Freephone 1800 807 050 or 00 353 1 240 8706 from outside Ireland
RTÉ News
23-05-2025
- Health
- RTÉ News
Questions from hip audit to take many months to answer
The questions raised by the independent audit of children's hip surgeries will take many months, perhaps even longer, to answer. It will bring a period of great worry for parents and young children waiting to see if they are part of the patients where it was deemed surgery was not indicated. The issue first emerged after concerns were raised with Children's Health Ireland by a whistleblower about the thresholds being applied when making the decision to undertake surgery for children with Developmental Hip Dysplasia (DHD). Around 1,800 children and young adults will be offered a review and some of these are already under way. However, the process is expected to take around six months and will use external experts. One of the major findings from the audit is that the percentages of pelvic osteotomies not reaching the criteria at Temple Street and Cappagh are so high that it mandates further inquiry. The audit author, UK paediatric orthopaedic surgeon Mr Simon Thomas, also found that while there is worldwide variability between surgeons, the variance identified here cannot be accounted for by measurement error or observer variability alone. Asked about this on RTÉ Radio today, Dr Colm Henry, the Chief Clinical Officer, said the surgeons believed the interventions were necessary and had evolved based on research. Bernard Gloster, the HSE Chief Executive, described the variance as being of very serious concern and said measures will be taken to ensure this kind of variation cannot recur. Minister for Health Jennifer Carroll MacNeill said she is moving now to strengthen governance and oversight structures at Children's Health Ireland and Cappagh. She said this will be done with the appointment of two members of the HSE Board to the Board of CHI. Lawyers representing some of the families said the report makes for difficult reading and that the percentage of affected children is very high. They want speedy access to orthopaedic surgeon reviews and to establish what remedies are needed.
Dublin Live
23-05-2025
- Health
- Dublin Live
Dozens of children may have undergone unnecessary hip surgeries, says new report
Our community members are treated to special offers, promotions and adverts from us and our partners. You can check out at any time. More info Dozens of children who underwent hip surgeries at Cappagh and Temple Street did not meet an international expert's full criteria for hip surgery, a damning new report has found. In nearly 80% of cases at Cappagh Orthopaedic Hospital and 60% of cases at Temple Street, lower decision-making thresholds were used to decide whether surgeries should be conducted. It is likely that hundreds of children may have been operated on at a lower threshold, as it is understood that it is likely this standard was applied going back "many years". CHI and National Orthopaedic Hospital at Cappagh (NOHC) commissioned an audit after a whistleblower raised concerns about the thresholds used to decide whether to perform surgery for children with Developmental Hip Dysplasia (DHD) at Temple Street and Cappagh. This surgery relates to the failure of the full formation of the hip socket in children. It can be identified through screening and is followed up with other investigations such as X-rays and ultrasound. CHI commissioned UK-based Consultant Paediatric Orthopaedic Surgeon Mr Simon Thomas to review a random sample of surgery cases carried out on children aged between one and seven between 2021 and 2023 across Temple Street, Crumlin, and Cappagh hospitals. In total, Mr Thomas reviewed 147 random and anonymous cases across the three hospitals. The report found that there were significantly different thresholds for recommending pelvic osteotomy procedures between Crumlin, Temple Street and The National Orthopaedic Hospital in Cappagh. At CHI Crumlin, the threshold for performing hip surgeries on children was fully in line with the criteria used by the international expert who wrote the report. However, Mr Thomas raised concerns about the threshold for surgery in many cases in Temple Street and Cappagh Hospital. What was called "novel picking" was used. In this context, an existing but less invasive procedure was completed, but questions were raised about the threshold for surgery. Mr Thomas sampled 51 cases out of a total of 114 surgeries done at Cappagh. Of 70 pelvic osteotomies, just 15 met the audit criteria (21%). At Temple Street, 49 cases were audited out of 127 that took place in the hospital between 2021 and 2023. Out of 85 pelvic osteotomies, 34 met the audit criteria (40%). At Crumlin, 47 cases of 101 were audited. Of 63 pelvic osteotomies, 62 met the audit criteria This means that 79% of surgeries at Cappagh and 60% of surgeries at Temple Street did not reach the criteria required for surgery set out by Mr Thomas. The audit also identified one case from the review sample where a child experienced complications due to the surgical approach recommended to them. Mr Thomas said in many of the Crumlin and Cappagh cases sampled, there was no record of closed or open hip reduction after delayed diagnosis, no record of either hip ever having been dislocated and "often no history of treatment soon after birth by splint or brace for hip instability". All 497 cases that have undergone pelvic osteotomy at Cappagh and Temple Street between 2021 and 2023 now require ongoing follow-up to skeletal maturity. Around 1,800 children and young adults who have had this surgery at CHI at Temple Street and Cappagh since 2010 will now be reviewed. These families will be recalled and should undergo an independent clinical review and radiological assessment, the report stated. This group of patients will be contacted directly to explain what this means and the next steps for them. An external independent panel of surgeons with expertise in DDH surgery is currently being established to review all patients who underwent surgery for DDH in CHI at Temple Street from 2010 and Cappagh from 2021 to establish whether the criteria for surgery aligned with acceptable parameters as determined by the expert panel. Families will be involved throughout this process. Bernard Gloster, CEO of the HSE, said that the variance in surgical practice between Cappagh and Temple Street was concerning. He said: "The proportion of pelvic osteotomies taking place at CHI at Temple Street and NOHC, despite not reaching the international criteria used in the audit, was so high that the audit report says further inquiry is mandated. "Focus on follow-up and putting in place a mechanism to ensure this kind of variation can't recur is central to our next steps, and we will be working with everyone to ensure that this can't happen again." CHI and Cappagh Hospital have established a dedicated contact number which will be supported by clinical staff and will support patients and families who are seeking further information about their care and the next steps. The phone line is open Monday to Friday 8am to 8pm, and Saturday and Sunday 9am to 5pm. The number is Freephone 1800 807 050, or 00 353 1 240 8706 from outside Ireland. Health Minister Jennifer Carroll MacNeill said she has 'moved immediately to strengthen governance and oversight structures at CHI and NOHC'. She said: "In responding to this Report, I am thinking first and foremost of the impact a surgery has on a child. I am also deeply aware of the worry that parents will face today and this is something that is sitting with me all the time. "My immediate priority is to ensure that there is clinical follow-up and care for patients who have undergone pelvic osteotomy surgery. This follow-up will be in accordance with best practice and the recommendations of the Report." Join our Dublin Live breaking news service on WhatsApp. Click this link to receive your daily dose of Dublin Live content. We also treat our community members to special offers, promotions, and adverts from us and our partners. If you don't like our community, you can check out any time you like. If you're curious, you can read our Privacy Notice. For all the latest news from Dublin and surrounding areas visit our homepage.
